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Author Topic: Lee's Story & Implant Surgery at Duke/Dr. Lentz.  (Read 2229 times)

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Stepone

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #50 on: August 12, 2022, 10:24:25 AM »

Thanks for update.
It is interesting how bruising takes time to appear.
I remember when cycling I caused a bruise too. It is a process.
I am retired, but when I went back to choir the following week, I took a special cushion with me too.
I sent an email to the choir director prior to my return that I had a “man urology surgery” and no one asked any questions.
Everyone was very caring and supportive, I assume they all thought it was my prostate, lol.
If anyone would have asked I would have told them I had some surgery on my penis. When I told my brothers and sisters, I had a penile implant, no one asked any questions, lol big time!
My family has always been shy when it comes to anything related to sex. Not me, I was ready to show and tell, lol again!
Stay safe
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Stepone

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #51 on: August 12, 2022, 10:39:17 AM »

Lee, I too have small balls and sack. Some guys had problems reporting that the pump fought with their testicles. I had no problem.
I am remembering more about the pump. So the top of the pump goes into the underside of your penis with all the tubes. Because of this the actual button area and release area are close to the underside of the penis.
I seem to remember having difficulty finding it at first, because initially it is right against the penis.
Overtime it will gradually loosen and drop down a little, I think that’s why I was instructed to GENTLY pull on the pump.
Ask for a model if they haven’t already given you one.
You have plenty of time to figure that out and you can do that when you take  warm baths and explore.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #52 on: August 13, 2022, 06:49:21 PM »

Post-op day 6---Not much to report.  I have stopped taking the oxycodone and am controlling pain with the tylenol.  After not being able to have a bowel movement Monday through Thursday, I finally broke through yesterday and things are getting back to normal today.  So another hurdle overcome.  Still having mild discomfort in the scrotum at times and in the area of my lower abdomen where the reservoir has been placed.  But swelling is decreasing and my wife says I seem to be healing well.  I now understand that I have to wait until day 10 post-op before taking warm baths, 2-3 per day.  So that will be this coming Wednesday.  Well that is about all for now.  Lee









 
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Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #53 on: August 14, 2022, 06:59:12 AM »

Thanks for your report.
We all have different pains at different places.
I never had any reservoir placement pain. Mine was mostly penis and ball sac.
If you could post a copy of your post op instructions minus your personal identification information, etc. that would be great.
I added you to my personal prayer list, so I am praying for a good recovery. I had a friend named Lee, so yours is easy to remember.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Stepone

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #54 on: August 16, 2022, 09:25:01 AM »

Lee there is another video with helpful hints.
YouTube.com/watch?v=tcQgJB3kbO0
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #55 on: August 21, 2022, 01:56:07 PM »

StepOne--Thank you for the video.  I am on post-op day 13.  I have my first post-op check with Dr. Lentz's PA this Wednesday, August 24.  Pain has been fairly manageable but worsened Friday and Saturday.  The pain is in the area of the left upper groin and lower abdomen where the reservoir has been placed.  The pain seems to be predominantly on the left side of the groin and scrotum.  This past Thursday (post-op day 10) I started taking warm baths twice a day for 20 minutes each.  Seems to be helping.  I am actually sitting on an ice pack now.  I guess I have two questions at this point.  How long can I expect the pain and discomfort to persist?  And how much discomfort am I looking to experience with the removal of stitches this coming Wednesday. I believe this also the appointment where the PA will inflate and deflate the Titan.  Any guidance or comments on the pain issues would be appreciated.  Lee
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Age: 65
Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #56 on: August 21, 2022, 03:11:57 PM »

I don’t remember pain from where the reservoir was placed.
My penis seemed to hurt.
I am on the thin side, so maybe there was not a lot of cutting with me in the abdomen.
Your doctor should be able to figure that out and let you know.
They did not remove my stitches as they were self dissolving.
My scrotum hurt really bad around the stitches.
So when I had to pump and deflate it was very painful.
I forgot my pain pills, so be sure to take one before and have another just in case. I forgot my pills and I was in a lot of pain deflating and driving home. Tylenol did nothing.
I would email them and say you are still having abdominal pain. See what they say, maybe there is a valid reason. I am sorry, but I don’t recall abdominal pain at all.
But of course we all are built differently.
Let us know what happens. 
Big hugs
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #57 on: August 21, 2022, 07:47:11 PM »

StepOne---That is promising about the stitches dissolving.  I have pain around the stitches as well, particularly if I move too quickly.  Today has been a better day.  So will the PA inflate and deflate me and then I do it during the same appointment as well?  Really appreciate your input--Lee
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Age: 65
Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #58 on: August 21, 2022, 08:08:01 PM »

Lee, my stitch area hurt too.
Sporadic shots of pain.
The PA inflated me and the pain was so bad, I told her to stop and let me do it.
Then she said let me show you how to deflate and I said NO.
I need a minute to breathe! Lol
I deflated, but it was painful.
It’s so much better to do while sitting in a warm whirlpool with a cocktail, lol
Who knows how they do it now, it’s been over 3 years.
Big hugs
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #59 on: August 21, 2022, 08:15:26 PM »

StepOne---Thanks for all the great information.  I think I will have a backup plan of staying in Raleigh overnight if I do not feel I can make the drive back home after the appointment on Wednesday.  I will let you know how it goes.  Lee
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Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #60 on: August 22, 2022, 07:24:02 AM »

Sounds like a plan. If you take pain pills with you or take one when you get there you may be ok. But I had neither and I should have asked for something for the pain. I thought I could handle it, but I couldn’t get home fast enough to get some of my meds and lie down.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #61 on: August 25, 2022, 06:21:49 PM »

Post-op day 17---Yesterday (post-op day 16) I traveled the 5 1/2 hours to Raleigh for my first post-op visit at Dr. Lentz's office with PA Ian Hunter.  I was very apprehensive about the pain I might encounter with having the stitches removed.  However, that went very well with little pain experienced.  However, there was some blood.  (After I got home --again a 5 1/2 hour trip home--there was significant blood on my jock strap and underwear. I would have freaked out if not for my wife who is a nurse).  Anyway, the PA had asked if I was having any pain prior to getting started and I advised him I was having fairly consistent discomfort where the reservoir had been placed (lower left side of abdomen and groin area) with discomfort going down the left side of the groin. (The PA indicated that this is where the tubing from the reservoir to the pump was placed).  The PA after removing the stitches showed me what the Titan implant looked like that was now inside my body.  He showed me where the pump mechanism and where the deflate mechanism were located.  He also pumped me up just slightly beyond the approximate 20% inflation level I had been left at post surgery and then showed me how to deflate.  I was able to use the inflate bulb but could not locate the deflate mechanism in my small shrunk up ball sack.  It is much easier to locate everything during a warm bath
with the scrotum relaxed by the warm water.  So I have challenges ahead as the PA wants me to start cycling once a day between now and when I see Dr. Lentz for my second post-op appointment on September 21. I had watched a video some time ago so was fairly familiar with
 what the Titan looked like and where everything was located.  When I started taking warm baths on post-op day 10 I was able to easily located the pump bulb which is at the bottom of the Titan implant. The deflate mechanism is right above the inflate bulb.  In any event I have some work to do but will try to remember StepOne's guidance that this is a marathon not a sprint.  Fortunately, my wife was able to come with me yesterday and did 80% of the driving.  I would be lost without her. Last night, I did have a lot of burning pain, again where the reservoir has been placed and down the left side of the groin where the tubing has been placed.  It is better sitting up this morning.
   I had more pain and discomfort this afternoon where the reservoir and tubing from the reservoir are located.  The pain is a burning type pain that seems much worse when standing.  The burning sensation subsides when I sit down and is more of an aching type pain.  Tonight I am going to work on trying to completely deflate the implant it is in approximately in the same state of inflation as immediately post surgery.  I will do this while taking a warm bath. I sent in a request to the nurse today for a refill on the Neurontin, but have't heard back yet.
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Age: 65
Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Hawk

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #62 on: August 25, 2022, 09:36:49 PM »

Good report Lee.  I think you just have to outlast the pain.  We all have different experiences, and while your pain may not be just like mine, healing and pain reduction will take place.  You will NOT have daily improvement.  That bounces around, but you should have weekly improvement.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Stepone

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #63 on: August 25, 2022, 09:52:58 PM »

Yes excellent reporting.
Sorry about the continued pain.
Interesting you had stitches to remove, mine were self dissolving.
Could you update your signature with the month and date of your implant and the 22cm + 2?
I’ll pray for you for speedy recovery, but sadly it takes a while.
Stay safe and say hi to the mrs.
A year from now, this will be a distant past.
Big hugs to both of you
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #64 on: August 26, 2022, 08:16:10 AM »

I also had stitches to remove at week two (I Think).  Dr. Eid told me I could get my local urology office to do it.  I set the appointment, and I only saw a beautiful nurse who was quite interested in the implant.  I had no bleeding or discomfort.  I would be concerned that bleeding might indicate I could introduce infection from sitting in a tub of water.

I am not sure you can tub-soak with dissolvable stitches.  I was tub-soaking at day three.

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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #65 on: August 26, 2022, 08:12:48 PM »

Thanks to both Hawk and StepOne for the encouraging words and guidance.  This Board is a blessing.  Post-op Day 18 AM--Took neurontin last night and slept fairly well.  Pain is tolerable lying down.  I have found I can sleep on my side to some extent with a pillow between my legs.  My major issue now, besides the pain is not feeling at all that comfortable using the deflate button.  Post-op Day 18 PM --Pain today has at times has been significant.  So I left a message on the nurse's line and then sent a message to Dr. Lentz on Duke My Chart this afternoon.  The nurse called Dr. Lentz and he directed her to call me back with some specific instructions.  He was concerned about the issue of bleeding from the removal of stitches and did not want me to take any more baths until the wound healed completely.  He also did not want me to cycle or tug on the pump ball for the time being.  The nurse spent quite a bit of time speaking to me.  She indicated that Dr. Lentz wanted me to report on my progress on Duke My Chart on Monday morning.  She also told me that Dr. Lentz told her to tell me that the pain I was experiencing on the left side of my groin was not unusual at this point and that I could use a hot pack on the affected area. 
I was very impressed with how quickly the nurse contacted Dr. Lentz and how quickly she relayed his instructions to me.  Wish I could say the same for PA Hunter who had still not responded to my message that I sent him yesterday.  But clearly, if you are one of Dr. Lentz's patients from surgery, his office has been instructed to keep a close eye on messages sent to his attention.  The nurse said that for now they would keep my appointment with Dr. Lentz as scheduled for September 21, but if my situation worsened they would get me in sooner.  I requested a refill on the neurontin prescription yesterday afternoon and it was in at my pharmacy first thing this morning.   Although in pain, I feel better tonight.  Hawk is right, I just have to out last the pain.  And as StepOne has repeatedly told me, it is a marathon not a sprint.  Heck, no where to go but forward. Lee 
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Age: 65
Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #66 on: September 14, 2022, 08:03:29 AM »


Post-op Day 37

I regret I have not been more consistent in my reporting.  I will now try to catch up. 

I continued to have significant pain in the left side of my groin. It has now resolved. It was a burning pain that at times would be extreme. The only relief for this pain was to sit down.  When I would sit down the pain reduced by at least 90%. I found that being on my feet for almost any period of time brought on the pain.  So I reported back on Monday, August 29, 2022  the information on DukeMyChart and Dr. Lentz's office scheduled me to come in to see him on Thursday, September 1.  By September 1, the pain in the left groin area was starting to diminish but I attempted to keep the appointment, a five and half hour trip to Raleigh from Southwest Virginia.  I ran into car problems about 45 minutes into the trip and had to turn around and come back home and reschedule the appointment for the next week on Thursday, September 8.  By the time I made the trip to Raleigh on September 8, the pain on the left side of my groin had almost completely resolved, but I still felt I needed to see Dr. Lentz to let him check and make sure everything was OK. I needed to get his clearance to begin cycling with the pump.  As to the pain in the left side of the groin, I estimate it lasted about 10 to 12 days with a gradual lessening of pain over the last five to seven days.  I still get a twinge of pain there from time to time but nothing like when it first started.  I used Aleve and Tylenol on an alternating basis to deal with the pain and also got a  refill on the Neurontin medication. 

Back to my appointment with Dr. Lentz on September 8.  He inflated me and deflated me. I asked if would inflate me again so I tried  to deflate myself.  I was very apprehensive about making sure I could deflate the implant.  This was one of the main reasons I felt I needed to keep the September 8 appointment even though the pain in the left groin area had pretty much resolved.
I was able to partially deflate--Dr. Lentz came back in to see how I was doing and helped me finish the process of deflation.  I had been unsure as to whether I had to continue to press on the deflate button while squeezing my penis.  Dr. Lentz explained that was not necessary as the Coloplast Titan release was a one touch system. 

Flash forward to present.  I have been cycling with the pump for about a week now while taking a hot bath each day for about 30 minutes, spending 15 minutes inflated. Just getting 15 minutes in is extremely painful. I had a real problem initially depressing the pump bulb and am still trying to getting the hang of it.  I am using the two handed method --one hand to steady the bulb and the the thumb on the other hand to press down on the bulb.  The pump bulb is not easy to depress and takes quite a bit of force.  Maybe it will get easier with time.  I am having a lot of pain in the penis when it is inflated.  It has not been easy to go the full 15 minutes of inflation with the pain but I am doing it.  My wife, the sweet and nice nurse of a couple weeks ago has changed into drill sergeant mode.  Geez!   

With deflation, I am going through the push the deflate button and squeeze the penis three times as per the instructions, but finding I am doing it a couple more times after getting out of the bath to be sure I am fully deflated.  I have lost about a half inch in length, with length at four and half inches with the implant inflated.  With the the VED, I had 5 inches in length and 5 inches in girth.  I do have about 5 inches in girth with the implant inflated.  Hopefully with a 22 cm +2 Coloplast Titan I will be a grower with time and effort.
This is all I have to report for now. I will try to report on at least a weekly basis going forward. Lee
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Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #67 on: September 14, 2022, 05:23:51 PM »

Seems like you are taking small steps forward towards getting better. Based on other guys journals your pain while inflated will definitely go away with time and you probably will regain that lost size for sure.

Keep on pumpin as they say..  ;)
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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #68 on: September 14, 2022, 09:34:56 PM »

Thanks for your detailed report.
So my 22cm implant gave me 7” with 6 to 5.5” girth solid.
My penis grew over 18 months.
So I am thinking with your 24cm, you should do well, but you need to feel the pain and stretch your penis.
Yes pain was frequent and diminished with time, but no pain, no gain.
I used to get up early in the morning, pump my penis up and walk around naked drinking my coffee and reading emails. I tried to do an hour every day. Sometimes the hour seemed to be like hours, but I managed through it.
There is a pop song called “pump it up” that I find amusing.
Stay in touch
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #69 on: September 15, 2022, 07:17:42 AM »

Thanks Sonic and StepOne for the replies. I will shoot for thirty minutes inflated.  I was never very well endowed to begin with so I was somewhat surprised on ending up with a 22 cm +2 titan.  I know Dr. Lentz will not oversize so I will keep working on it.  I must be making some progress because it hurts like hell.
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Age: 65
Symptoms: Erectile Dysfunction, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #70 on: September 15, 2022, 09:43:49 AM »

Lee,
The pain will gradually decrease.
I sometimes had a beer in afternoons when I inflated to full the pain.
Of course Tylenol would help sometimes too.
I remember as do others on here have commented, when the pain goes away, you are no longer stretching, so that means no more gains. So several of us said we missed the pain.
StepOne
Keep on pumping…
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #71 on: September 16, 2022, 08:53:33 PM »

Hello Lee

I just finished reading your story and sounds a lot like mine. I just had my revision July 19,2022. I too have a 10+ wife that has been my nurse (which was a nurse before we met). I also suffered with PE most of my life.
You will read up here different sizes (mine a 24cm titan). If you read on your operative note or on paperwork you received about your titan it should say how much of your titan was placed inside and how much was outside, which changes with each person. For example: mine was 24 and I had 12cm inside and 12cm outside but that was how my body was. In my prime I was 6.5 inches in length and a good girth. Now 8 wks out with great hard on I am 5 1/4 length and girth and straight. The titan stretches in both length and girth so there is light at the end of the tunnel!

Glad you hung in there with insurance and deciding to get titan ipp!  Glad yal stayed couple night post surgery. My 1st one was 4 hours away and they messed me up and we came home couple hours post surgery. Took 9 hours to get home with my wife stressed out!

We will keep you in our prayers and pray for your drill sergeant! Trust me they are the best support

waveboy out
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Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq [email protected] Cosmetic Urology

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Re: Lee's Story & Implant Surgery at Duke/Dr. Lentz.
« Reply #72 on: September 17, 2022, 08:30:52 AM »

to also add to my note Lee. I am a positive person even through my botched surgery. Now 8-9 weeks out of revision a great thought to keep in your head as I do in mine. I talked in note about measurements. If you measure your length now you will NEVER be any shorter!!!!!!! It just gets bigger and better!
As far as the PE yes it was a downer in the past. remember that( in the past)! Now even if you loose that round early you will look down and it still be rock hard! You decide when it goes down not your PE!
You have control!

we be praying together!

waveboy out!
Logged
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
Erectile Dysfunction -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq [email protected] Cosmetic Urology
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