Ved and Dr Trost

[Kobegianna]

I just had a virtual meeting with Dr Trost from Utah. I told him I had hour glassing and Indents and I was using ved. He unfortunately said that there was no evidence that it did anything and also that it may cause venous leakage or possibly mess with the valves system in the veins. After hearing this I became pretty distraught.

I want to fight this disease and do something. But now him saying ved doesn't work and can cause more damage I'm not sure what to do. I k ow a lot of people on here swear by Veds but there are also many many stories where people get major injuries.

I kind of understand with bending we can do traction and "stretch" or "loosen" up the plaques to sort of straighten out the penis. How ever with hour glassing and indentations the only way to "filll" it back up would be if the plaques or scars disappear.

Just feel like doing ved for hour glassing is all for not.

Any thoughts on this?

[Benraycamp0]

What did Dr. Trost recommend doing? Did he suggest using RestoreX?

My understanding is that traction can help all types of deformities since the main goal of traction is to induce remodeling of the scar tissue. Whether it is causing a curve or dent, the scar tissue will be stretched during traction and should encourage it to begin remodeling into something more like regular tissue.

[Mikel7]

My understanding is that traction can help all types of deformities since the main goal of traction is to induce remodeling of the scar tissue.

Agree completely. It can also slow down and halt shortening.  Don't be discouraged.  Remember
that every Dr has their own methodology for assessing an individual and prescribing their treatment plan.  They have their own ideas about what works and what doesn't.

You as an individual must decide and test for yourself.  If it works for you then it works!  Have you been doing traction for a solid 12 months?  Have you been doing the VED for 12 months?  Dr's are just people with training and some patient experience.  I believe we place them up on a pedestal sometimes.  I am not knocking Dr Trost - you have to take what he said and weigh it in your mind and own expereince.  You must decide what is working for you or not.  I had to go through 5 uneducated Dr's and thier misinformed treatment protocols before I found and learned about hormone therapy for men.

[Kobegianna]

He was just saying that ved will essentially just over stretch or inflate the good tissue possibly causing damage to the good tissue and not necessarily doing anything to the diseased tissue. Like squeezing an animal balloon.  

[Benraycamp0]

I see. Did Dr. Trost offer any other treatment plan/strategy? Or did you guys just discuss VED?

[Kobegianna]

The appointment I made I wasn't really in a private setting and was a little embarrassed and scared that my friends would over hear. So I had to cut the appointment short. Also I wasn't in the right state of mind. When he told me about ved and that it didn't do much at that point I just became more depressed as it seemed like there's no options. Just pretty much wait and see till it gets to the point of implants.  

[Benraycamp0]

I see. I would just contextualize that Dr. Trost's opinion is just one doctor's opinion. I'd also remember that Dr. Trost is a very evidence-based kind of doctor, in that he doesn't like to support treatments without very solid studies backing them up. Which is why his recommended treatment strategy is exclusively traction, Xiaflex, and surgery.

There isn't anything particularly wrong about that treatment strategy, in my opinion it is the one with the highest chance of improvement. In any Peyronies Disease case with any deformity, I think traction with Penimaster Pro or RestoreX serves as the best nonsurgical therapy we can do.

Some people have found success with VED and I do believe some doctors still recommend it as a treatment option. As a Peyronies Disease treatment, I just think we have limited evidence of VED being beneficial.
Definitely all Peyronies Disease specialists encourage traction so I'd recommend trying that if you haven't already!

[Pfract]

@kobe: i second Mikel7 and Benrays opinion. Also, the recommended protocol from Dr. Trost is on his website. See it here:
https://malefertilityandpeyroniesclinic.com/peyronies/treatments/ This is what he recommends to do, and he lists all the evidence for it.

[markdubby]

from my experience the key to VED is doing it properly. a constant solid amount of vacuum but never to full erection, even 10-20% before. it helps with blood circulation and overall feeling of the penis being whole again.

[Kobegianna]

I just feel like with my hourglassing and dents ved is not going to "stretch" it enough to pop out. Only way my chamber will be fully is if the plaques/calcifications are gone.

It's not like when someone has a large dorsal curve and the can stretch and make the plaque more pliable thus straightening out the penis alittle.

Is my thinking wrong on this? Would like to hear people thoughts  

[Benraycamp0]

@Kobegianna:

Yes, your thinking is wrong on this. Traction and VED simply encourage remodeling of the scar tissue by stretching it. That's it. Whether the scar tissue is causing a curve, dent, hourglassing, etc. it is just scar tissue and it will be stretched through mechanical therapies like traction/VED.

Of course, every person's exact type and location of scarring is different. So no one knows exactly how the treatments will work. Your best bet is to keep up with your treatment plan whether you choose to to traction, VED, or both.

My personal opinion is always do traction, I've never been much of a fan of VED.

[markdubby]

also i think it will take some time before the scar pops out. it's long effort in stretching the scar tissue with traction + VED and then restoring healthy blood flow. my very first scar was the largest i had, and now it's turned quite soft and split in 2 parts and with VED that part of my penis is further stretching and feeling normal again.

kobe - i'd reccomend a proper stretching device such as PMP. i started wtih manual traction but the the PMP has made all the difference. i have zero curvature still (wtih 3 plaques) and one of my dents has filled out already. if it wasn't for the general glans instability and a big dent at my second scar, i'd have a pretty normal penis and i think traction was the key for this!

[Kobegianna]

I been doing manual traction. Following the NeoV method. Do you personally think a traction device is better? I don't really have curvature. At least not not  

[howtheheck]

Kobe,  I am similar- no curve just kinda a upside down baseball bat with soft glans.  I think your partially right,  It is not as easy for us to correct our issue compared to someone with just a dorsal curve.  I recently started a couple of weeks ago Restorex.  I suggest you choose one traction device that you can be most compliant on, vs. guessing which one might be better. I see no improvement yet (other than flaccid length improving) but I will continue.  Get on board with me, lets fix this together!

[markdubby]

I been doing manual traction. Following the NeoV method. Do you personally think a traction device is better? I don't really have curvature. At least not not

yeah, a traction device is way more efficient. you pop it on and just leave it and a constant force can be applied over many hours rather than having to hold your penis. you dont really know how much force you are applying either

i do some manual stretches on days i can't be bothered with the pmp though

[Kobegianna]

Also restore x seems more beneficial for curvatures because of the counter bending. However I only have hour glassing or indentations on the ventral side and one spot on the dorsal right below glans. PeniMaster pro would be best? Or just ved? I was doing ved but obviously from the post I had a conversation with the docotr saying it didn't do much

[markdubby]

i had 2 curvatures, and the PMP fixed both. i think its just about keeping the plaques stretched with a constant (but not excessive) tension over a long time. this promotes healing and healthy tissue replacing the scars.

restorex seems quite aggressive from what i've seen on this forum and many people seem to hurt themselves further before getting the hang of it

[howtheheck]

I am going to stick with what you will be compliant with.  Meaning which device will you use on a regular basis the entire time.  If the PMP is something you think you can use daily for hours, then do it- if not the Restorex is an option, but basically you are immobile for that short time  twice a day.

Spending a few years in the Pharmaceutical world, I knew many doctors would prescribe "good enough" product because they knew their patients would rather use the drugs in a shorter time period, thus ensuring compliance.  There is a reason the Z-pak is probably the most popular antibiotic treatment.  It gets the job done much easier than others.  Even though there were plenty of studies showing other drugs were better.  But you had to take them longer and were larger pills....

[Kobegianna]

Are you still able to penetrate? Is it stable enough to have sex or has it narrowed to much?

[markdubby]

i think i could have sex at the moment, other than the fact that i'd be quite scared to damage things further. my first dent is almost gone, and hopefully the second dent will follow.

i still have quite a lot of plaque from my first scar so i think the stability will improve as it gets replaced by healthier tissue.

[Olive]

Doctors are protecting their pockets by telling men the only choice they have is surgical.  

[Pfract]

Doctors are protecting their pockets by telling men the only choice they have is surgical.

That's a very broad generalisation. There are protocols doctors are supposed to follow, that were listed here plenty of times. They are the guidelines from The ''American urological association''. There are Different grades of evidence as well showing what Is considered to work and whatnot. Saying something like that is not correct.  

[porterrobinson]

sound like you can have sex based on your description, you should not do anything and accept your penis