My personal mindset let me know if it’s flawed

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Curvekiller94

I don't think we should really worry about our condition do anything other than traction and oral meds and if that doesn't work get an implant. Every other option just doesn't seem as good to me and there's no point in worrying about what you can't control and if you're not doing what you want or can't do what you want sexually you should just get an implant. I don't think you should have to be as careful as some people say. because if it gets really bad you can just get an implant. And there are no studies that say sex or masturbation make the condition worse.


Is this flawed thinking? In short use it until it doesn't do what I want it to anymore——-> implant next?
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Benraycamp0

Not flawed at all! Unless your idea of "use it" means intentionally being risky with your penis so that it breaks quicker. Definitely please don't do that! Like if you have a 40 degree upward curve and you absolutely want reverse cowgirl, well that's probably not a good idea.

I don't think you should ever stop enjoying sex with your partner.

Let's put it this way - for all the men with Peyronies Disease, there's a SIGNIFICANTLY larger number of men with congenital curvatures. Some of those curvatures are significant enough that it limits the number of comfortable positions for them. So if your Peyronies Disease is stable and you have no pain, just think that you have a congenital curvature and use it as if you were born with it!

Who knows what's gonna happen in the future? You might live with the deformity you currently have for the rest of your life. Or, it may remain the same for 5 years and then it randomly gets super bad. Or, it gets significantly worse tomorrow.

So enjoy your penis in all the possible ways that makes reasonable sense right now! Don't wait. Don't worry about what if. Don't even worry about treatments in the future (it does absolutely no good). If the time comes that you need surgery, you'll go back to your doctor at that time and discuss options. What if there are some much improved surgical options in 15 years when you need it? The point I am simply making is, no one knows the future. So stop trying to predict it. If your penis is functioning and you can have mutually satisfactory intercourse, use it NOW and enjoy it NOW. If it is not, do everything in your power to get fixed NOW.

If you can get yourself to accept this mindset (very hard to do!), you've basically beaten the disease. You're gonna have a great sex life now and then, IF the time comes where things worsen, you'll simply get the surgery and continue having a great sex life.  
26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

Curvekiller94

Right, but I mean even if you're being risky I think that's better than living ultra repressed. Look at guys like Dennis Rodman yeah he broke it 3 times but at least he uses it and isn't afraid.  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Benraycamp0

There's a huge distance between risky and "ultra repressed". You don't need to risk breaking your dick 3 times in order to have amazing, mind-blowing sex with your partner.
If your issue is that sex isn't interesting/fun enough because you limit the number of positions you do, why not challenge yourself to find creative, interesting ways to maximize pleasure during sex with your partner?

If your only option to be satisfied is to have extremely rough sex in every position known to man until you break it completely and get an implant, I'm almost certain the journey is going to be much more painful and unpleasant than being reasonably careful and creative during sex.
26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

GaussRifle

Porterrobbinsom are you able to have sexual intercourse currently despite the severe ED your introduction mentions ?  
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

porterrobinson

single, mid 20
diagnosed early 2020
indentation 20 degree bent to left, recurrence with new indentation below glans
tried vacuum device with no success

orriw

Quote from: porterrobinson on June 13, 2021, 04:14:45 PM
not at all

porterrobinson i am wondering how you can call implant not a good solution (when there are many people that are happy with the outcome) but rather recommend /consider suicide.
Yes implant is a pretty massive surgery and at a young age it sucks even more. But death is the final step, you could aswell try anything (that includes implant) before you even think of this final step.
26y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

orriw

i just read a lot of frustration in your response and while i had that too a lot and occasionally still have u need to realize this is not helping at all and need to focus and research on treatments. Theres more to life than sex and the penis and you should know  that. What is in your pants, nobody knows. Jeff bezos, putin, joe biden they may all have Peyronies Disease, we would never know, and they still are succesfful. You get what im saying?
26y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

GaussRifle

I dint understand your line here : " the problem is not just being unable to have sex but actually your body being so degrqded and f'~c<+d up that its impossible to do. this can not be relieved with surgery.  "

Please explain openly what you mean here ?
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

porterrobinson

to me an implant is not much better than having ED. itsboth disturbing. the hype and normalization of the kinds of procedures is crazy. prob a reason why pharma will not even search for better solutions anymore
single, mid 20
diagnosed early 2020
indentation 20 degree bent to left, recurrence with new indentation below glans
tried vacuum device with no success

orriw

There is no hype about it lol of course its a big surgery and not something u would want if its not necessary. But i tell you how it is, having Peyronies Disease is really really reaalllly bad luck or faith call it what you prefer. Not something fun to live with.  Not many men have this or will ever hear about this. So, if you have this horror disease and are not happy with the development of your unique case, you can consider implant surgery. Whats the problem? Big surgery for a big problem in life? Thats just right
26y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

PeyroniKirai

I will chime in here to respond to porterrobinson whom I note is around my son's age.  
Porterrobinson, I feel like you're venting a bit and that's fine because this is a forum of friends and all of us know at least to some extent what the other posters are going through.
If you had a broken leg, you would wear a cast.  If God forbid you had your whole leg smashed in a serious accident, you might need to get your hip, femur and knee all replaced.  Would that be so disturbing?  Would your body be degraded and f-cked up?  I think not.  I think your body would be fixed, maybe not good as new, but I bet your own body and your mind, and your emotional health, and the way everyone around you relates to you would all be better than if you simply let your leg atrophy away.

So I challenge your logic that "having an implant is not much better than having ED".  It's like saying you would better off not getting the prostheses in your leg, and just remaining crippled.  I personally do not have a penile implant and at least today I don't need one, but I think you need to open your mind a little more, like orriw said, "big surgery for big problem", and let go of those fears and that loathing you have concerning your Peyronie's.  As for your statement that it would be better to die a quick painless death, or to commit suicide, rather than suffer a worsening of your Peyonie's, there is no way that this is an appropriate thing to think or say, and it's not even close to being true.  You still have a penis, and you have a body and a mind.  Even if you can't use the first one the same as you used to, there is no limit to what a human being can do with the second and third things in that list.
Age 64, Peyronie's history 4 years, left side hourglass, 20-degree bend to left, no ED

Tortão Pra Direita

@porterrobinson
bro, you're very depressed and no arguments will relieve your pain, so I'll not argue.
I understand it because I was in a similar situation last year and also this year. I just wanted to vent and to scream. I was very frustrated cause I couldn't do anything to get my situation better and I felt plagued. Sometimes our self-esteem is so low that we, unconsciously, stop relying on ourselves and expect others to fix our problems. This is the origin of all the venting we do when very depressed. The venting is a scream for help. Venting on forums, in the therapy session, wherever...

I'm a bit materialist and I also believe it's very difficult to change our mindset solely using our mind. The neuroscientist Andrew Huberman also believes this. We need actions/exercises/practices and, sometimes, drugs (legal, illegal, supplements... you choose).

Some things that got me better:
- Fixing my vitamin D deficiency. Believe me, it has a huge impact on mood;
- Fixing my Magnesium deficiency. Mg deficiency is more common than we think. Vitamin D needs Mg to properly work in our body;
- Cardio exercises. Man, get out of your house and go for a run or for a walk... This will improve your mood, it's not BS.  

This is what worked for me, and may (or may not) work for you. Everyone is different. But I really believe you should use something. SSRI, or a mood supplement, exercises, etc... I don't know.
Maybe you need ketamine for depression... There are some clinics that work with it.

I mean, you need to use something to help you get out of this depression. It's F^@$!ng difficult to see things positively when we are at rock bottom.
1993 born. Brazil.
Peyronies since Sep 2019.
Penis developed curvature, lots of plaque, loss of size and axial rigidity. Severe peyronie.
Mar/21 TEP + Titan Touch 20 cm + 1.5 RTE.

Surgery done by Dr. Marco Tulio Cavalcanti, in São Paulo.