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JamieKer56


Hi All,

Everyone probably feels the same at this point.

Feeling a little down because we've been diagnosed with this condition, unsure how it will all end up (if it can be suitably corrected), hoping it doesn't have a negative effect on our relationships and generally apprehensive about the future.

Thanks to you guys for setting up and taking part in this forum. I'm hoping this will help answer my questions now and in the future.

I'm 56 years old and found out I had a curve in my penis in October 2020. I discussed this with a lady locum doctor in Nov 2020 and was told there was nothing that could be done and I should monitor things and report back in about 3-6 months. Totally the wrong advice.

I was finally referred to a specialist in February 21 and had my first meeting with the specialist in April 21. I feel annoyed and disappointed that there was a delay of 6months until some positive action was taken.

I'm also totally bemused why such a common medical condition has such a low profile. At 56 years old I'd never heard of Peyronies Disease; and I'm an intelligent and inquisitive bloke. This is our fault; we don't talk about things openly enough.

I'm located in Manchester, UK

I have a pronounced bend to the right and downwards due to scarring at the base of my penis; right hand side. I also have an hour-glass pinch midway along my penis due to scarring here too.
I have no clue how / why this started. It just seemed to appear. I've was very sexually active when a younger man. I have a loving wife and a young son. My wife has been fabulous about this.

I just hope I can do the right things to help make this condition better.

I hope you guys can help with this.

Good luck to all

Jamie  
Age 56. First noticed Peyronies Disease Oct 20.
Referred to specialist Feb21; first appointment April 21. Have mid-shaft hour glass pinching. Have pronounced bend to right plus downwards.
Currently using VED. No medication as not prescribed by urologist

Mikel7

Welcome JamieKer56 to the forum! Here you will find more information to help you than most Dr's know about. The first thing you need to do is to read the survival guide --> https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057 . This guide is packed full with information to give you a better ubderstanding of treatments, etc.....
Then Could you please take a minute to fill out your signature line? It's hard to remember
your case details out of 20,000 members. You can find instructions  here! -->         https://www.peyroniesforum.net/index.php/topic,10819.0.html .  You will get a better response to your questions if you do.
It sounds like you have an understanding wife. This is great because you will feel better emotionaly sharing things with her - I have one also.
I may suggest you looking into trying out a traction device.  The two most popular ones are the Restorex and the Penimaster Pro. Also the same with the supplements.  You may also read up on using a VED device.  There is a protocol in the forum regarding such and it has been documented to help.
Lastly don't get down on yourself as all of us here have been right where you are emotionaly.  You don't want to let depression and regret creep in.  The mind plays tricks on us if we allow it.  You will make it through this!    It is sad that the medical community has so little to say and do regarding peyronies. It probably is because of the $$ that they couldn't make from it.  :)  Mikel7
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)