Xiaflex un Europe??

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lumineer78

Is there a way to get this treatment in Europe after the medication was discontinued?? I live in Spain and this seems to be the best,most effective non invasive treatment.

Thanks!!
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MrUpwards

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Gabriel

Hey guys,

I asked this question recently to my uro (Dr Galiano, Paris): he told me that unfortunately we should not count on it anymore, as the US Company discontinued export for financial matters, and almost no one in Europe (public authorities or health professionnal that could try to do lobby job) cares about it and will fight for Xiaflex being authorised again inside EU, in a near future at least...

Anyways, don't lose hope in the meatime, and try everything you reasonably can on this forum to improve your condition: you can and will finally find something or some things that will really work for you!!

Cheers,

G
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

Jack1909

so I need to travel to US in order to get it done, that's ridicolous
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

Torsten64

I think unfortunately traveling to the US to get Xiaflex may be your only option. I think the manufacturer pulled it from the European market out of greed. They probably weren't getting paid enough through the national health plans so they just yanked it and went back to the States where they could rip everyone off on the cost.
63, Peyroines since 2014, no ED, lost relationship over it. Tried Pentox, did nothing. Don't think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Pete10

I´ve been quoted collagenase injections from Lyxurologia Spain. I don´t know what kind of collagenese they have, but Xiaflex (Xiapex) is also collagenase (collagenase clostridium histolyticum). I have asked if it something similar than Xiaflex, but haven´t got any answer. Anyway, it needs several injections, once a month, so for me it is not possible to travel monthly between Finland and Spain.  Maybe you lumineer78 as living in Spain can ask more information and post it here?
2 failed TURP surgery destroyed ejaculation, orgasm and sensation.
They caused severe Peyronies and nerve damage.
Erection is still left.
Peyronies since 2019, age 62.

bentoboy

A few months ago, I reached out to one of the representatives of Xiapex in Europe, and I was told that they took it off the market and are not going to supply it to Europe in the foreseeable future. BUT then I emailed a distributor of Xiapex in Europe, and this is what I was told:

https://ibb.co/DDgF8Qj
Mild S-shaped curve, with some 10* deviation to the left. Biggest problem - multiple dents on each side, mild ED, worsening hour-glassing and wasting. Sexually active, have a girlfriend. Xiapex, PRP, supplements, shockwave, RestoreX - nothing helped.

adiaznar

Hi Pete, were you able to get more info about collagenase injections from Luxurologia?
40 years. Diagnosed Peyronie by lesion. 45 degree upward and to the right. Taking talafil 5mg (3 months later) and pentox (2 months later).

Pete10

Hi adiaznar,
sorry, but I really didn´t get any new info about the Luxurologia collagenase.

2 failed TURP surgery destroyed ejaculation, orgasm and sensation.
They caused severe Peyronies and nerve damage.
Erection is still left.
Peyronies since 2019, age 62.

Pete10

Thanks for info, I will contact TannerPharma
2 failed TURP surgery destroyed ejaculation, orgasm and sensation.
They caused severe Peyronies and nerve damage.
Erection is still left.
Peyronies since 2019, age 62.

BentKnob

Quote from: bentoboy on February 11, 2022, 03:33:19 PMA few months ago, I reached out to one of the representatives of Xiapex in Europe, and I was told that they took it off the market and are not going to supply it to Europe in the foreseeable future. BUT then I emailed a distributor of Xiapex in Europe, and this is what I was told:

https://ibb.co/DDgF8Qj

This seems promising.

I'm based in the UK and have heard people have had great success with Xiaflex.

My wife has had cosmetic procedures in Belgium. There was also a post here recently where someone shared a link with a research company that was looking into treatments for peyronies based in Belgium.

It does seem to be the more advanced and the better place for health care in Europe.

What about for those with Dupuytren contracture, so can they no longer recieve Xiaflex in Europe?
36 years old
Married & open relationship
In 2023 injury caused by repeated trauma, first noticed in early 2024
30° curvature up & to the left
RestoreX BentKnob Journal

Bilhardas

I just found out that Xiaflex is already available in europe, not sure how guys in this forum dont know about that
https://london-andrology.co.uk/news/xiaflex-treatment-for-peyronies-disease-available-now-in-europe/
50 yo
Committed relationship
1.5 year ago
50 degrees upward
verapamil injections; all type of creams an antioxidants, plus taladefil and also tamoxifen, traction devices, vacum etc;

BentKnob

Quote from: Bilhardas on December 08, 2024, 01:13:47 PMI just found out that Xiaflex is already available in europe, not sure how guys in this forum dont know about that
https://london-andrology.co.uk/news/xiaflex-treatment-for-peyronies-disease-available-now-in-europe/

It was withdrawn in 2019 as far as I'm aware. It could be an old link?

Can always confirm by giving them a call.
36 years old
Married & open relationship
In 2023 injury caused by repeated trauma, first noticed in early 2024
30° curvature up & to the left
RestoreX BentKnob Journal

Bilhardas

Is Not, I googled i by the name given in Europe (Xiapex) if is available in the country I live and at least is there so is either a mistake or not, I will check soon with my doctor

https://www.lekarna.cz/xiapex-1x0-9mg-solv-prasek-pro-inj-roztok/pribalovy-letak/?srsltid=AfmBOorWONIlXDSzJuGiDFA3vC7yWrruBcozDLC1HfjG_HneZ98Z22PG

is in czech but you can trqnslate with the browser
50 yo
Committed relationship
1.5 year ago
50 degrees upward
verapamil injections; all type of creams an antioxidants, plus taladefil and also tamoxifen, traction devices, vacum etc;

Alfa15

I had two Xiaflex injections in 2023 in Florence with Prof. Mondaini. In Spain, I couldn't find anyone, so they sent me to Italy. I didn't have a good experience; the first time it was effective, but the second time it didn't affect the plaque. For this reason, I wouldn't recommend going there. Moreover, I think they now have a product similar to Xiaflex
36 years old
Peyronie start 2021
3 Cortisone injection in 2021
2 xiaflex injection in 2022
curvature 60°

BentKnob


How much did the treatment cost?
36 years old
Married & open relationship
In 2023 injury caused by repeated trauma, first noticed in early 2024
30° curvature up & to the left
RestoreX BentKnob Journal

onemillion

I am also interested in having Xiaflex injecitons ... anywhere else rather than in the USA, it s too far for me.

Anyone can advise?
43 years old
40 degrees left curve since Oct 2024
Verapamil, Tadalafil, Restorex, VED, Vitamin E
Plaque softening, but not much improvement in curve