Interesting discussion.
After a few years away from the forum because I was having no problems, I am back due to a flare. And I was wondering if
Pentox was still the drug of choice.
It appears that
Pentox has, if not fallen out of favor, sort of proven itself to be of no clear value, at least not value backed up by a large study. Anecdotally, during my last flare, which started in 2013 with a couple nodules I could feel in the septum, I immediately got on
Pentox 3x a day, thanks to a very helpful GP. I stayed on
Pentox for something like two years or more thinking it was the best oral med I could be taking to at least try to halt progression.
My flare did eventually end somewhere in the late 2016 or early 2017 time period. The original nodules shrank and the indentations they had created largely filled back in. But curiously, somewhere around 2015/2016 (still in the flare), a completely new nodule emerged near the base of the penis. This was after something like two years of being on
Pentox 3x a day!
So, I have a hard time believing the
Pentox was doing anything if I could develop a new lesion after many months of using it. Just doesn't make sense to me.
Nevertheless ... when my current flare began a few days ago, what did I do? I dug out my old stash of
Pentox and started taking it again. Just a few weeks ago, I was "this close" to trashing that stash, but now I'm glad I didn't. Call it desperation, hope, who knows. If there's even a chance it can help, I want to give myself that chance.
Nemo