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Author Topic: Feeling let down by treatment  (Read 294 times)

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Curvekiller94

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Feeling let down by treatment
« on: May 11, 2021, 11:45:57 PM »

Pain and curvature started about 7 months ago. Since then I have done pentox, vit e colchicine. traction, heat therapy, l arginine, limited masturbation and sex significantly, cialis

My pain curvature and Tortion remain unchanged as well as hard flaccid. When will this nightmare end I’m losing hope.
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Mikel7

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Re: Feeling let down by treatment
« Reply #1 on: May 12, 2021, 04:52:55 AM »

Don't despair just keep on keepin on. This is a marathon and you will make it through this!  Do you have some hobbies you enjoy?  Do you exercise; jogging; weightlifting,  etc... Try to get your mind off of the problem.  Take a trip to the zoo or go treat yourself to dairy queen.
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Curvekiller94

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Re: Feeling let down by treatment
« Reply #2 on: May 12, 2021, 08:30:31 AM »

I do have hobbies I enjoy, but I’ve about exhausted them. I start a new job which should help but also just makes me feel like what’s the point. My sex drive must be strongly tethered with my overall drive for life. Many of my hobbies just lost there fun after all of this. Being 27 with this is a dark bleak world. Even hanging out with my friends makes me sad as everyone is talking locker room talk etc. seeing girls makes me angry and seeing couples makes me jealous. I’m in a relationship but I feel like I’m not because of the lack of sex.
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Curvekiller94

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Re: Feeling let down by treatment
« Reply #3 on: May 12, 2021, 08:33:31 AM »

It’s hard take my mind off of it when treatments are multiple hours a day and don’t seem to do anything. I’m so mad pulling on your dick is the best “treatment option” such a joke. I paid 1600 bucks to have some one say buy a 300 dollar traction device that might work. I just feel so let down
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Curvekiller94

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Re: Feeling let down by treatment
« Reply #4 on: May 12, 2021, 08:43:05 AM »

I just feel like I wasn’t meant to improve

It all started with UPS
I worked my ass off to become a driver was loading 70k lbs by hand per night
I ended up with a shoulder with calcifications and had a seizure just  before I started driving for them.

Tried being a cook ended up with IBS that started out of the blue after a hand surgery


I learned to become an electrician apprentice put in years but my knee swelled up like a melon and I kept needing it drained of blood so I thought let’s switch to electrical engineering

I finally am getting Through my hard classes one more math class left all of my physics done. Boom a pandemic followed by Peyronies.


It makes me think I should’ve never tried at all
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Hawk

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Re: Feeling let down by treatment
« Reply #5 on: May 12, 2021, 10:08:39 AM »

Everything you learn in life combines to make you who you are.  Your work and effort might not have turned out as you dreamed they would but that does not make it wasted.  Get over that and find something to that is right in your life, something that would be a lot worse if you did not have it.  We dwell on what we don't have and take all we do have for granted.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

GaussRifle

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Re: Feeling let down by treatment
« Reply #6 on: May 12, 2021, 10:21:36 AM »

Curvekiller which traction device are you using ? I use RestoreX. Oral pills can at the most only stop further progression. If you want to see a change in curve deformity, I would recommend using restore X. I was at about 50 or even 55 degrees, now I'm at 40 degrees. So an improvement of about 10 degrees atleast from doing traction for 3.5 months. I have just started my first round of xiaflex and am hoping to get rid of indent/hourglassing statically with a reduction in curve to under 30 degrees. Try no to overtime, this is a long process. As my urologist from Mayo Clinic, Rochester (Dr. Matt Ziegleman he was mentored by Dr. Landon Trost at Mayo and now has replaced his spot) has told me he will make me go from least invasive to most invasive solutions in a methodical manner.  Worst case scenario there are men out there with implants for over 30 years as anon1986 colopast rep is one of them.

That being said, I totally understand your need for venting and I totally see where you are coming from. Sometimes it helps for people to listen to you vent. Stay in touch, we will beat this crap.


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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Kobegianna

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Re: Feeling let down by treatment
« Reply #7 on: May 12, 2021, 11:17:38 AM »

Man bless you guys on being so positive. I am with curvekiller. This is so rough. When people say don’t think about and it takes time, try to enjoy other things. You can’t. At least you have a gf that’s supportive. I’m trying to stay positive so let try to give each other words of encouragement. Everyone says it’s takes a couple years so we just started our journey.
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34 yrs Old, Healthy very active
Possibly injured penis or took too much Cialis
Symptoms starting January-February 2021
First dent seen April 4, 2021, painful erections

Hawk

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Re: Feeling let down by treatment
« Reply #8 on: May 12, 2021, 02:09:09 PM »

The words you were given were words of encouragement.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

markdubby

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Re: Feeling let down by treatment
« Reply #9 on: May 12, 2021, 05:24:31 PM »

hey man

it took me 2 months of wearing the penimaster pro 6-8 hours a day before i saw a slight reduction in curvature. it almost started happening when i stopped fixating on the problem so much and just got on with it without thinking too much and accepting the bad luck i had with this condition.

forget about whats going on for a bit and continue with your therapy and see where it leads. if in a few months you don't see any result then you can look at alternatives.... try and keep fit and healthy in the meantime too with some sports or exercising. really helps both the body and the mind

i had another plaque appearing a few weeks back but am just powering through, not overthinking it and not letting it get to me and matter of fact my curvature is more or less stable! the mind has a lot of power on all this as well!

stay strong!!!
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30, discovered ~20-30 degrees right bend beginning of Feb 2021. Small plaque under gland on right side of the shaft

300 mg COQ10, 2-3 g Acetyl-L-Carnitine, , 6-8h traction daily with pmp,

new scar 26/04 on left side below glans, current curve < 5

Curvekiller94

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Re: Feeling let down by treatment
« Reply #10 on: May 13, 2021, 10:01:31 AM »

Thanks guys for the encouraging words I will do my best to follow your suggestions and try to keep my head up.

I tried the restorex for about a month and was in too much pain, so now I use the pmp and I currently only do about 3 hours per day. I am increasing as we speak. Have been using pmp since the 18th of April.
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive
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