Peyronies Society Forums

Please login or register.

Login with username, password and session length
Pages: [1]   Go Down

Author Topic: My progression with some ups and downs PIC WARNING  (Read 405 times)

0 Members and 1 Guest are viewing this topic.

omla

  • Voting Member
  • **
  • Country: dk
  • Offline Offline
  • Gender: Male
  • Posts: 9
My progression with some ups and downs PIC WARNING
« on: May 05, 2021, 07:12:22 PM »

Hi everyone

I’ve been wanting to share the most recent part of my journey with you for a while, so here goes. I do this in the hope of providing some info on the potential progression of this disease, alongside some minor anecdotal evidence of improvement/worsening and a few pictures. I also do this as I would like some advice, if possible, on what my next options might be, from your experiences.

In my intro you can find details from start to end-Feb. https://www.peyroniesforum.net/index.php/topic,15172.msg135507.html#msg135507
So I’m going to pick up from there more or less. I have been keeping a daily diary since then, and continuing to take regular pictures, and this has really helped. I refer back to these things now, to create this post.
Sorry it’s stupidly long.


Mid-Jan to end-Feb

During this time, there was a real feeling and sensation that things were flaring up again in terms of inflammation – something that had been stable since the pain during erections had ceased in December. For a few weeks, things were definitely taking a turn for the worse, which actually led to me writing on this forum in the first place. My penis definitely didn’t feel or look healthy overall, and there was a sense that the penis and the nodule on my dorsal shaft were tender and inflamed. Photos were increasingly worrying, with my existing 25/30 degree curve possibly worsening.

Supplements: I started taking CoQ10 and L-Arginine but below the minimum suggested (I was being ultra-cautious, having never had supplements of any kind before).

Manual Traction: Following Neo’s videos mostly (thank you), I gave MT a try for the first time. At this point I was only doing 4/5 mins a handful of times per day, in the morning mainly and occasionally when going for a piss.

I did this traction on and off, taking breaks for 2 or 3 days at times as I occasionally felt some minor sudden jolts of pain when I was evidently tugging too much. There were periods of lingering dull pain, building up to a sensation of irritation, a feeling similar perhaps to cystitis.


Mid to end-March

Supplements: About 3 weeks after starting, I reached the “minimum” as per the survival guide.

MT: As before, doing very insignificant sessions.

Intermittent fasting: I decided to give this a try also, based on things I’d read here and independent research. I aimed to do 18 hours per day, at least 3/4 a week.

The feeling of inflammation quite quickly improved and gradually went away, possibly coinciding with the start of the fasting and the increase in the supplements. I still had moments of pain occasionally (either post-traction or just on its own, mainly when flaccid) but things began to feel a lot “healthier”. In particular, I was constantly monitoring the nodule, how it felt in the mornings, in the evenings, in the shower. I got the impression that, along with the inflammation reducing, the size of the nodule was too. And the photos showing the curve seemed to be more similar to photos prior to the new inflammation.


Early to mid-April

Supplements: Again about 3 weeks later, I got to 300mg of Q10 and 200mg or L-Arg. Higher than the minimum but not the maximum.

MT: I also increased the frequency and intensity of traction. I started doing sessions of 20/30 minutes which got me feeling extremely flexible, with great elasticity. I upped this again by doing 30 minutes in the evenings too. My penis started looking really healthy when in flaccid state, hanging low and quite thick.

IF: I maintained the 18:6 target 3/4 times per week, and once or twice did fasts that were just over 24 hours but never more than that.


Mid-April to now

I am still doing the 3 things above, though I’ve definitely become less strict with fasting, unfortunately. I was/am losing quite a bit of weight and I need to find a system to try to maintain that and do the fasting.

It may all be in my head (the daily diary does help me to be absolutely certain about some things), but during periods when I wasn’t fasting for a whole week I sometimes felt the nodule was getting thicker again. Similarly, during the fasts, things were healthy and less inflamed.

Overall, I am indeed convinced that the nodule has reduced in size. When I do traction and I try the counter-bend move, the shaft is quite flat against my fingers and there are times when the nodule is hardly noticeable. When I randomly go pee and have a feel, again it’s definitely not like it used to be. I know where it is and I can find it, but I now believe someone else just touching my penis wouldn’t feel it at all – something which definitely would not have been the case in these last months.

Unfortunately, however, during this same period a new nodule (or perhaps even two small ones) has/have appeared on the left-hand side of my shaft. Could this be because of the traction? Have I caused further damage/trauma? I doubt it, but who knows. These new ones started off as very shallow-feeling “flakes”, almost, which I felt I could move around a little, but now feel harder and are objectively more noticeable than the original dorsal lump.


Conclusions
Long story short, between end-Jan and now I have been on a rollercoaster of not just emotions but also palpable (literally) changes, both good and bad.

Things were getting bad when I first posted, and rapidly deteriorating, and I think I have reversed that, to some extent.
-   I am convinced, and the daily updates of written thoughts and feelings assist with this, that my nodule on the dorsal shaft has significantly reduced. I think a combination of supplements, manual traction and fasting have caused this improvement.
-   In terms of curvature, I believe that during the re-inflammation phase things were deteriorating quickly, but I perhaps similarly reversed this when I started upping my game with the trio of supplements, traction and IF.
-   The overall health of the penis has greatly improved, especially visible when flaccid.
-   At the same time, I have felt a new bump (or possibly two, even) forming on the left-hand side of the shaft, which is of course very worrying.
-   Lastly, whereas the curve has been stable and the nodule stable/reduced, I have noticed some bad hourglassing/wasting (not sure which is right term) which has gradually gotten worse and now is as bad as it has ever been. This is hugely visible in the semi erect state and has been for a while, and is now showing also during full erections.

The before/after (5 months apart) of the hourglassing, if that’s what it’s called: https://imgur.com/9tWvQ3T speaks for itself

And here are pictures (4 months apart) of the situation with the curve/overall state at the end of Jan, next to a more recent pic in which I believe I have perhaps reversed that deterioration, even if slightly. If not, the curve is definitely stable/has not gotten worse, after managing to reduce inflammation. https://imgur.com/30GsAod

I share the above photos to give you an idea of these conclusions and the situation overall – and perhaps this is where I can ask you: what next?

If it is indeed true that the nodule is decreasing, that the overall health of the penis is improving, that any deterioration is stabilising or being reversed even, surely I should keep doing what is working? The new nodules are obviously a blow to this perspective.

And, even more so, what about the hourglassing – my attempts have clearly had zero impact on this aspect of the disease which has gradually gotten worse and worse. Unlike the curve, this does not seem to be stabilising and the indentations/loss of girth could continue to deteriorate.

Thank you for your time (if you got this far!!) and if you have any questions do let me know. All the best and thanks for any responses.
Logged
6/20 injury
7/8 pain when erect+nodule
9/20 diagnosed
11/12 no pain, curve forming
12/20-now stable curve 25°
3/21-now hourglassing, deteriorating

Uro said injections, another surgery
From 03/21 daily manual traction, L-Arg+CoQ10
04/21 IF
05/21 VED

Benraycamp0

  • Global Moderator
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 90
Re: My progression with some ups and downs PIC WARNING
« Reply #1 on: May 06, 2021, 12:04:28 AM »

Great update!

I'd consider looking into device traction (RestoreX or PMP) along with adding Pentox and Cialis. Other than that, I think you just continue the therapies and hopefully you'll continue to see improvements.
Logged
26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

Mikel7

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 451
Re: My progression with some ups and downs PIC WARNING
« Reply #2 on: May 06, 2021, 06:19:11 AM »

Great update!

I'd consider looking into device traction (RestoreX or PMP) along with adding Pentox and Cialis. Other than that, I think you just continue the therapies and hopefully you'll continue to see improvements.

This sounds like a great addition plus adding in a VED.  Keep your emotions in check and don't get carried off with gloom an doom thoughts.
Logged
Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Hawk

  • Bionic Penis 22cm Titan - Dr. Eid 8/7/18
  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 5826
    • Peyronie's Disease
Re: My progression with some ups and downs PIC WARNING
« Reply #3 on: May 06, 2021, 09:14:22 AM »

Just for clarification which photo is the most recent the one on the right with the white bedspread or the one on the lelft?
Logged
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

omla

  • Voting Member
  • **
  • Country: dk
  • Offline Offline
  • Gender: Male
  • Posts: 9
Re: My progression with some ups and downs PIC WARNING
« Reply #4 on: May 06, 2021, 09:33:48 AM »

@Hawk sadly the 'before' is on the left, taken in December, the 'after' is on the right with the white bedspread. This was just a few nights ago.
Logged
6/20 injury
7/8 pain when erect+nodule
9/20 diagnosed
11/12 no pain, curve forming
12/20-now stable curve 25°
3/21-now hourglassing, deteriorating

Uro said injections, another surgery
From 03/21 daily manual traction, L-Arg+CoQ10
04/21 IF
05/21 VED

Kobegianna

  • Solid Contributor
  • ***
  • Country: us
  • Online Online
  • Gender: Male
  • Posts: 131
Re: My progression with some ups and downs PIC WARNING
« Reply #5 on: May 06, 2021, 10:08:09 AM »

Have you seen any improvements in the hourglassing/wasting since you stared ved And manual traction?  My case look almost identical as your except in the beginning stages. I have a huge dent right below the head on the dorsal side and ventral side. I have no idea if manual traction made it worse or stopped the progress. I stop traction as of now but I am not sure what to do. I don’t want to make it worse but I also don’t know if I don’t do anything it may progress?
Logged
34 yrs Old, Healthy very active
Possibly injured penis or took too much Cialis
Symptoms starting January-February 2021
First dent seen April 4, 2021, painful erections

omla

  • Voting Member
  • **
  • Country: dk
  • Offline Offline
  • Gender: Male
  • Posts: 9
Re: My progression with some ups and downs PIC WARNING
« Reply #6 on: May 06, 2021, 11:59:15 AM »

@Kobe I have never done VED, it's what I will be doing next I think. Specifically in the hope of addressing the hourglassing.
The manual traction has definitely done nothing for the hourglassing, which has been gradually worsening in the last months. I don't think the traction has caused it, and I feel overall that I have benefitted from the traction.


Logged
6/20 injury
7/8 pain when erect+nodule
9/20 diagnosed
11/12 no pain, curve forming
12/20-now stable curve 25°
3/21-now hourglassing, deteriorating

Uro said injections, another surgery
From 03/21 daily manual traction, L-Arg+CoQ10
04/21 IF
05/21 VED
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
2 Replies
2532 Views
Last post June 18, 2012, 04:16:19 AM
by newguy
26 Replies
2866 Views
Last post October 08, 2018, 09:34:15 PM
by Alibaba
0 Replies
226 Views
Last post February 09, 2021, 02:03:08 PM
by Ejm37