I just had my venous ligation surgery

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LFH43

Hello everyone,

I'd like to report on my venous leak surgery, which took place last friday.

First of all, I know there's alot of discussion as to whether or not venous ligation is a good idea, etc., but please, spare me the opinions and just let me share my two cents of this journey.

I suffered a penile trauma in 2017 - classic pop sound, rapid loss of erection; however, due to the abscence of any pain or bleeding, it remains debated as to whether or not this event can be classified as a penile fracture.
After this event, my penis was never the same, and I suffered the so-called soft glans syndrome.

I've visited multiple urologists, each giving a totally different interpretation on the event, associated pathologies and possible solutions.
Viagra didn't help; Cialis didn't help; Cockrings didn't help; and I'm not really eager to get an implant, just yet.
I just had this one malformed vein, at the base of my penis which, when I would apply pressure on it, would fill my glans completely - making it point upward in a 30-40 degree'ish angle.
Personally, if I'd have to choose between curvature or soft glans, I'd rather have a fully engorded, curved glans, than a glans which doesn't fill at all.

I finally found an urologist, who sent me through to an interventional radiologist, signing me up for a penile arteriography and embolisation of any cavernous leaks in the process.

The Arteriography is useful to determine whether any arterial pathologies are active.
The Cavernosonometry can detect any venous leaks.
With the use of embolisation materials (in my case a one-second glue), they can try ligate the leaking veins, downsizing the outflow, with the hope of maintaining a fuller engorgement throughout the erection.

After 5 hours of surgery I woke up, and found out an embolisation took place.

Arteriography didn't show any lack of arterial inflow, and the Cavernosonometry revealed a type II venous leak.
The IR put this one-second glue (embolisation material) into the big, malformed vein and (probably) a shitload of other veins.

I rested the night in the hospital, didn't experience that much pain and found mysef only upset at the fact that they had to probe my bladder - twice.
Other than that my penis looked pretty bruised, beat-up, swollen and I developed discolored tissue all the way down my scrotum.

Now, 4 days later, I spent the last two days in agonizing pain, nights filled with waking up with excruciating pains - NTE's feel like a burning razor slicing through my penis.
I can barely sit, without pain;
Barely walk and stand, without pain;
And find myself experience a shitload of pain when lying down, which is what I've been doing most of the time.

My penis still looks black/blue for the most part; the big, malformed vein, in which I can feel the embolisation material, feels like it's stretched at a maximum, causing it to constantly bring up this annoying, burning sensation.
It still looks swollen, and I don't feel like trying, let alone wanting, to get an erection.

Tomorrow I'm visiting my urologist for the first post-operative check-up, I really do hope that everything I have been experiencing up till now is just a part of the healing process.

Will update further.
28 yrs old
Trauma 2017, popping sound, rapid loss of erection, no blood, no pain
Multiple urologists - diagnosed with penile fracture
No arterial pathologies BUT venous leak (type 2)
Embolization 30/04/21 Dr. Vanlangenhove, Univ. Hosp. Ghent, Belgium

Hawk

Good report.

Who was your surgeon, where is he located,  and what was the date of surgery?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

LFH43

Dr. Vanlangenhove, University Hospital Ghent (IR-department), Belgium.

I understood he's the only IR (in this region) capable of doing the intervention, and he has experience with the procedure.
He informed me about the result being possibly unexistent, minimal, temporary or (long-term) positive; depending on alot of factors.
If this doesn't work, getting an implant would be the only and final solution.

The intervention took place at 30/04/2021.

28 yrs old
Trauma 2017, popping sound, rapid loss of erection, no blood, no pain
Multiple urologists - diagnosed with penile fracture
No arterial pathologies BUT venous leak (type 2)
Embolization 30/04/21 Dr. Vanlangenhove, Univ. Hosp. Ghent, Belgium

Mikel7

Keep on healing and write down any questions you have for the Dr on your follow up - good luck!
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Hawk

Quote from: LFH43 on May 04, 2021, 03:50:27 PM
He informed me about the result being possibly unexistent, minimal, temporary or (long-term) positive; depending on a lot of factors.
If this doesn't work, getting an implant would be the only and final solution.

So I understand you to say that he made no promise about how effective the surgery would be and no promise about the outcome.  Is that correct?

We hope every day brings you some improvement.

Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

LFH43

Correct,

He said penile imaging and embolisations do take place alot - IR nurses confirmed the operation's not-infrequent nature in the OR.
However, due to multiple factors, guarantees cannot be made.

Age matters, prior treatments matter, cause of pathologies matter, health & other health issues matter, etc.

They informed me about the possibility of the images not showing any underlying pathologies and/or leaks at all.

Saw the urologist today:

He gave me extra medication for pain-relief.
Adviced me to bite the bullet and wait at least three to four weeks until enough healing took place.
At the end of June, I'm seeing the IR again.

Currently the only downside is the pain; other than that, I can't quite tell.
Penis is still swollen, red, discolored (due to post-punction-bleeding spreading out to the scrotum).
I still wake up multiple times at night due the painful erections; urologist said it's better not to interfere with this natural process, especially now, as healing is taking place and blood-flow necessary.

It sure would be a bummer to go through all these pains, to realize that the surgery didn't help.
For now, I remain positive.

More updates coming soon!
28 yrs old
Trauma 2017, popping sound, rapid loss of erection, no blood, no pain
Multiple urologists - diagnosed with penile fracture
No arterial pathologies BUT venous leak (type 2)
Embolization 30/04/21 Dr. Vanlangenhove, Univ. Hosp. Ghent, Belgium

Mikel7

I don't know what kind of pain meds you have , but may I suggest either percocet 10/325 or fentanyl patch. They are both opiods that are very strong at relieving pain - if your Dr will prescribe them. I have used them both for kidney stones/surgery.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

LFH43

Update:

Had alot of doubts as the whether or not I made the right choice past week.

The pain is wearing down on a daily basis.
However, at night I still wake up with these sharp, painful erections - almost as if little knives are the cutting inside and my penis is being torn apart.
And I discovered the source of these pains.

Now that the effects of the surgery are slowly taking hold, i.e. my penis fills, my glans fills, everything fills up to a rock-solid level of erection I haven't experienced in years (even with PDE5i's...),
I can see the changes which took place post-trauma and post-op.
Bloodflow function seems to do be being it's job.

However, somehow it feels as if my tunica might be severly injured;
as in this moment, I'm experiencing:

- A constant leftward hinge.
- My penis shrank at least 2 cm (post-op).
- When erect, my glans forms a 80-90-degree'ish dorsal bend (used to be 30 degrees max.); it's impossible to have any kind of intercouse with such severe malformity.

When I lie on my back and my penis is erect, it's as if some kind of worm came crawling out and is looking straight at me; kinda creepy.
Ironically, it looks Lovecraftian.

My penis looked pretty f'~c<+d up post-op, and now I have a feeling the real battle is yet to come.

Every post-op-erection hurt so bad I would instantly lie down and start focusing my mind on something non-sexual.
I tried masturbating just once, the pain was almost unbearable; ejaculation created so much pressure it felt as if my penis would rupture from the inside out.

I'm kinda left guessing if these new symptoms are indeed hiding scars of a past trauma, and the VL-BS-erections (pre-op) were actually a blessing in disguise, to prevent my body from producing these stings.
Doctor told me to keep taking a sixfold of painkillers daily and wait atleast another week.

I'm planning to order a PMP, try and start regaining the lost length, girth and hopefully get a somewhat steady curve - at least normal enough to be able to have intercourse.

Do you guys know anyone else who started experiencing severe Peyronie post-op?
Length loss?
Pains?

Also, any advice on traction and methods to start working out this hinge and curve is appreciated.

Will update later!
28 yrs old
Trauma 2017, popping sound, rapid loss of erection, no blood, no pain
Multiple urologists - diagnosed with penile fracture
No arterial pathologies BUT venous leak (type 2)
Embolization 30/04/21 Dr. Vanlangenhove, Univ. Hosp. Ghent, Belgium

Hawk

I would gently, persistently, and patiently begin rehab with light traction and VED.  I think it will be a few months until you know what you have in the way of deformity.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

LFH43

Update:

Two weeks since surgery.

I managed to cut some pain-relief meds, as this sure does upset my stomach - quite alot.
Daytime pains have reduced, night-time pains still hold.

When blood enter my penis, everything fills and becomes rock-solid up to the end of my glans, sensitivity has restored aswell.

The downside: Peyronie disease, I guess.
The curve remains (+/- 80 degrees upwards); I can feel indentations inside the left side of my glans; the dorsal side of my penis feels harder in flaccid state than it does when erect and I can feel multiple indentations in my shaft.
The pain in the malformed vein has subsided.
However, whenever I pull my erections downwards, the vein actually pushes my skin forward; much like a bump pushing from the inside.

Haven't tried sex yet as it seems quite impossible with the current curvature and pain during- and after masturbation.
And it feels as though some positions might not self-evident anymore.
Time will tell.

Now doing daily manual traction (2x 5 min.).
Post-op it felt as if a part of my penile skin was abundant - the way skin can hang abundantly over ex-obese persons who have lost noticeable amounts of weight - I guess size loss is the culprit on this one.
Right after I did traction I do notice a slight change on this.
Traction does feel a little painful - even while being cautious!

Now just patiently waiting for traction effects to take hold and see how everything continues to develop.
28 yrs old
Trauma 2017, popping sound, rapid loss of erection, no blood, no pain
Multiple urologists - diagnosed with penile fracture
No arterial pathologies BUT venous leak (type 2)
Embolization 30/04/21 Dr. Vanlangenhove, Univ. Hosp. Ghent, Belgium

Hawk

You probably covered this but can you explain your overall plan.  You have an 80 degree upward curve and Erectile Dysfunction and opted for venous ligation surgery to fix the Erectile Dysfunction issue.  What is your plan for the curve?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

LFH43

Try to see my IR sooner than the end of June, so I can get a quicker report on what took place during surgery.
Ask his opinion on the curve and also how long one should wait until all post-op-effects have settled.
Afterwards look for a Peyronie specialist in this country.

At this moment I'm taking:

- 300 mg CoQ-10

And I do a 3 x 5 minutes of manual stretching routine; try regain some lost length and -structure.
(I don't feel like buying any traction-device just yet.)

So, for now I'm just gonna be patient and remain as positive as possible.

Also, water-fasting.

I've managed to reduce the pain meds to just one a day.
For now only the dorsal side (which feels permanently hard - even when flaccid) of my penis hurts, when semi- and fully erect.
Got 3 solid indentations, all which seems to form the base of the outer edge of my curve(s).

How exactly does a VED exactly help with Peyronie's and curves?
How does Cialis help with Peyronie's?

Thank you.
28 yrs old
Trauma 2017, popping sound, rapid loss of erection, no blood, no pain
Multiple urologists - diagnosed with penile fracture
No arterial pathologies BUT venous leak (type 2)
Embolization 30/04/21 Dr. Vanlangenhove, Univ. Hosp. Ghent, Belgium

notmeplease

Hi FLH43,

Can you please update about how has been your recovery and if erection are strong?

This treat intereses a lot since I have the same problems...

Thank you.

Sten1

FLH43, please update your recovery and erection status


Thank you.
41 years old. Penis fracture in February. Surgery. After fracture - normal erections. Until July. Shock wave - after that I lost my NTE. After Shock waves the PDE5 didnt work.
2020 - already without depression, I'm just trying to get on the right way

Errorhuman

How cost you total treatment ? Im from indo and i have ed soft glans cause jelqing
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