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Author Topic: Do i even have Peyronies Disease?  (Read 757 times)

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orriw

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Do i even have Peyronies Disease?
« on: May 01, 2021, 01:36:30 PM »

Guys i was always sure i have Peyronies Disease but as i learn more about it  i am not sure. Doctor that diagnosed me took just 10 minutes and wasnt really patient.
I have no plaques dents or  whatsoever.... congenital curvature to the bottom, and after hurting my penis by unnatural pressure, i have pain near the base and some rotation of the penis.
Flaccid and with errection he twists counter-clockwise at inital about 5 degree to now 30 degree.... still pain. I am not sure this is even Peyronies Disease. But what else then - maybe worse because i cant be diagnosed and hence not be treated?
I want to know why ii have still pain and why this idiot is rotating. Some other guess what could it be? Penile Fracture i guess, but does this not always lead to Peyronies Disease?
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25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

Mikel7

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Re: Do i even have Peyronies Disease?
« Reply #1 on: May 02, 2021, 05:16:58 AM »

I cannot diagnose what you have.  Perhaps you need to seek out another Dr?  Remember that peyronies disease is a healing disorder when your body replaces normal healthy tissue with non elastic scar tissue.  It can be from an injury, fibrosis, etc......Have you tried any suggestions in the survival guide?  Cialis or Viagra? How about VED therapy?  Manual traction
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Lump April 2020, age 61 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Eaudecologne

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Re: Do i even have Peyronies Disease?
« Reply #2 on: September 20, 2022, 12:39:13 PM »

Hey Orriw!

I kind of have the same problem with rotation that you describe in your post.
The doctor couldn’t find plaques either but there is pain and this weird rotation.

It’s more or less 6 month since this post and I am interested in your progression!

Please let me know how you are doing man. Hope you are fine. If you don’t response, I’ll take it as a good sign  ;D

Thanks and best wishes!!
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29 years old- symptoms since 2 month
Unclear diagnosis: moderate pain (mostlyflaccid, sometimes erect) 10 degrees right curve erect, bend very visible semi erect. 45 degrees axial rotation

In a relationship

Searching for help

orriw

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Re: Do i even have Peyronies Disease?
« Reply #3 on: September 20, 2022, 05:06:33 PM »

Hi Eaudecologne,

we could chat in chat in german. Here is only english allowed. PM me if you want.

Unfortunately all my symptoms are still there. I am having this issue since forever (almost 5 years) and i dont think i will ever fully heal again. You are still early in the disease, you can still have a much better outcome, you should limit sex and masturbation i think, eat healthy, dont smoke, dont stress. Read a lot about VED and traction. But i am not very sure if this is a good idea for anyone, i never tried it because i think it could make my condition worse. Sorry, but i can not tell you a lot of good things.

I read your other post ,you mentioned laser therapy. What kind of laser therapy is this, do you have a link?

Have you done MRT already?
Logged
25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

Curvekiller94

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Re: Do i even have Peyronies Disease?
« Reply #4 on: September 21, 2022, 01:31:50 PM »

I feel very similarly although the more time passes the more I know I do have true peyronies but docs don’t even know where my pain is coming from I’ve spent weeks (literally of time researching, going to appointments, reading possible solutions on the internet, reading and writing on the forums) if there’s unfortunately one thing I know for certain it’s that no one knows for certain and they never will until a better understanding of how individual nerves function, what problems they can have, as well as how to resolve those problems. 

Unfortunately we are still at the phase where we barely know the possible problems we can have. We know pain, sensation loss but we don’t know how to fix that, what’s causing that, or how to resolve it unless we are dealing with herniated discs. One day hopefully soon as our digital capabilities grow we may be able to implement such equipment ti help trouble shoot complex analog circuitry like our nervous system
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28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Sonic

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Re: Do i even have Peyronies Disease?
« Reply #5 on: September 23, 2022, 07:10:22 AM »

Hey Curvekiller, you say docs don't know where the pain comes from. I notice in your sig you have hard flaccid. So if you have diffuse pain like me where you are sometimes feeling an ache but you cannot pin point where it's even coming from when you palpate around your penis and the area surrounding it then it's 100% from the hard flaccid.

Hard flaccid is just another word for a tense pelvic floor. Having hard flaccid and peyronies toghether intensifies all the peyronies symltoms and make every deformity look 10 times worse. Relaxing the pelvic floor with deep breathing and various stretches can help but most important of all is to try get rid of the anxiety as that is a very big trigger to HF.
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28 years. Started to develop a rightwards curve in June 2020.
narrowing on right side and about a 20-25° curve to the right.
Weakened erections and instability due to narrowing.

orriw

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Re: Do i even have Peyronies Disease?
« Reply #6 on: September 23, 2022, 07:17:24 AM »

Hello Sonic i like to learn more about hard flaccid syndrom.

Does it mean your penis is constantly small but hard?
Because mine is not, can hang very soft. But my errections are somewhat weak, dont get so hard anymore. Plus i have a tight pelvic floor, always clenching it, and flaccid pain ofc.

Also i notice ( i am uncircumcised) that my glans is looking out a little bit always lol when flaccid. It used to not be like this
Logged
25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

Curvekiller94

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Re: Do i even have Peyronies Disease?
« Reply #7 on: September 25, 2022, 03:22:47 AM »

There doesn’t seem to be a huge definition or root cause. I went to piccolo floor therapy for months and didn’t see any huge gains personally. I’m not against it but it made little difference to me personally.
Logged
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo
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