Peyronies Society Forums

Please login or register.

Login with username, password and session length
Pages: [1]   Go Down

Author Topic: Question about progression for veterans.  (Read 298 times)

0 Members and 1 Guest are viewing this topic.

Winter

  • Voting Member
  • **
  • Country: br
  • Offline Offline
  • Gender: Male
  • Posts: 66
  • Praying for solutions
Question about progression for veterans.
« on: April 30, 2021, 01:00:30 PM »

Hi everybody.
I'd like to question the veterans of this forum on how their cases progressed after a while.
Usually the ones that got the implant are a lot more present and communicative. However, I don't see many men that experienced all the cycles of this disease and just carried on.
I guess that most that reached a balanced level of existence usually departs from the forum and choose to stay away. Therefore it remains a biased picture of the possible progression leaned to the conclusion of, either get an implant or to live with a everlasting slow downfall.
But I'll try to see what I can get in terms of answer. I know every person has a different history with this disease, but if anyone could answer, I will be very grateful.
Thank you very much!

(Assuming you feel you are on a, somewhat, stable phase)
1. How long did the pain lasted?
2. How long did the disease progressed?
3. Have any of the symptoms improved over time?
4. How are you today? Was there a time when you managed to have a moderately normal sex life?

Logged
39 yo, married Onset on 06/2020
Hourglassing when semi-erect, few indentations. Small upwards curvature
No erectile dysfunction. It still hurts sometimes;
Taking pentox, Cialis, Q10, and Hirudoid daily;
Trying keto diet with good results.
God bless

MauvaisCoton

  • Voting Member
  • **
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 36
Re: Question about progression for veterans.
« Reply #1 on: April 30, 2021, 10:22:17 PM »

Good idea! I'd like to know more as well.

Here's my contribution:
  • When the disease started, all my erections were painful. I don't remember exactly but I think the pain lasted 4 to 6 months. Nowadays my erections don't hurt anymore but I can sometimes feel some dull pain at the plaque location after sex.
  • The curve appeared when the pain stopped. My condition has remained unchanged from 2017 to 2020 when I started to experience some degree of Erectile Dysfunction. I still don't know if it's psychological or caused by the scar tissue somehow changing.
  • Nope! Except for the pain during erections.
  • I don't think I'll ever have a "normal" sex life because of the anxiety I experience. Peyronie's disease being somewhat unpredictable, I'm often worried of making things worse. That being said, things are alright now with Cialis. And from 2017 to 2020, my ex-girlfriend and I had a satisfactory sex life. Most of the time, I didn't even think about Peyronie's disease anymore. I had learned to live with the curve but had the occasional worries.

Hope that helps.
Logged
29. Congenital curvature upward. Diagnosed with Peyronie's in 2017. Curve approx. 45° to the left and near the base of the shaft.
Mild Erectile Dysfunction since summer 2020. I take Cialis on demand.
Currently using RestoreX (since 04/21).

Xavier99

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 85
Re: Question about progression for veterans.
« Reply #2 on: May 01, 2021, 08:17:47 AM »


1. How long did the pain lasted? It was was brutal flaccid and hard for about 4-5 months. Literally hurt to rub in my pants while walking. I was loaded up on pentoxofylinne and Viagra which didn’t do much. It did help sex though which I managed with my wife the whole time.. at least once every two weeks. Couldn’t do much besides soft and slow.


2. How long did the disease progressed? It kept bending/changing  may-aug 2020.. started with a titled head..little bottleneck and narrowing. Then just stayed as is


3. Have any of the symptoms improved over time? No it’s just stayed as is.. if I touch the nodule/plaque is can be irradiated again. I’ve tried manual traction and it also still causes discomfort.. it feels like the plaque is retracting and almost creaking all day if I do it. It’s better when I feel nothing and not reminded all day about Peyronie’s.


4.How are you today? Was there a time when you managed to have a moderately normal sex life?
I was lucky to not have a bend that made sex difficult. My wife doesn’t even feel a difference but my confidence isn’t great and I certainly don’t feel sexy looking at it in bed. I used to have  straight arrow decent thickness 7in dick and now it’s def a bit shorter and narrower. I take 25mg viagra before sex and It helps with stiffness.. I can go without if needed but it gives me a little confidence. Pain is all but gone a year later but I def take it easy.. I make sure I’m rock solid before use.. I don’t jerk off near plaque site. It’s a different sex life but could have been worse
Logged
35 yrs old
Onset 05/01/20 diagnosed 05/14/20. Taking Pentox, trental, multivitamin, Zoloft & Tylenol
Traction was painful and made it worse
Lateral plaque by glands 20 degrees left/ narrowing
Lost about 2cm length

Winter

  • Voting Member
  • **
  • Country: br
  • Offline Offline
  • Gender: Male
  • Posts: 66
  • Praying for solutions
Re: Question about progression for veterans.
« Reply #3 on: May 01, 2021, 10:21:35 AM »

To Xavier and MalvaisCoton.
Thank you guys very much for writing down those long and careful replies. As someone who is living the dreadfully unpredictable acute stage, it is very meaningful to hear from you. It is a very grim disease, but it may have light at the end of the journey, even if it only means some sort of stoic peace on a painless stability. 
Logged
39 yo, married Onset on 06/2020
Hourglassing when semi-erect, few indentations. Small upwards curvature
No erectile dysfunction. It still hurts sometimes;
Taking pentox, Cialis, Q10, and Hirudoid daily;
Trying keto diet with good results.
God bless

Winter

  • Voting Member
  • **
  • Country: br
  • Offline Offline
  • Gender: Male
  • Posts: 66
  • Praying for solutions
Re: Question about progression for veterans.
« Reply #4 on: May 13, 2021, 11:27:43 AM »

Would anyone else like to post their experiences?
Logged
39 yo, married Onset on 06/2020
Hourglassing when semi-erect, few indentations. Small upwards curvature
No erectile dysfunction. It still hurts sometimes;
Taking pentox, Cialis, Q10, and Hirudoid daily;
Trying keto diet with good results.
God bless

LWillisjr

  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2970
  • 65 y/o - 13 yrs Peyronies free
    • My Peyronie's Story
Re: Question about progression for veterans.
« Reply #5 on: May 13, 2021, 11:49:17 AM »

I don't normally respond to these on an individual thread, because most of us veterans have a "My History" link in our signature.



(Assuming you feel you are on a, somewhat, stable phase)
1. How long did the pain lasted?      Peyronies onset June 2007 40 degree curve. Pain lasted about 6 weeks as curve progressed
2. How long did the disease progressed?   about 6 weeks progressed to 70+ degrees dorsal
3. Have any of the symptoms improved over time?   No, had a series of Varapamil (before Xiaflex) injections. Excision/grafting surgery July 2008
4. How are you today? Was there a time when you managed to have a moderately normal sex life?  Great, good erections, great sex life
Logged
Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
7 Replies
4333 Views
Last post January 31, 2013, 04:43:35 PM
by John B
14 Replies
8309 Views
Last post February 01, 2014, 10:02:14 AM
by LWillisjr
8 Replies
3001 Views
Last post October 01, 2014, 09:05:44 AM
by NeoV