Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

Pages: [1]   Go Down

Author Topic: Scared before starting xiaflex  (Read 359 times)

0 Members and 1 Guest are viewing this topic.

GaussRifle

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 382
Scared before starting xiaflex
« on: April 24, 2021, 04:58:43 PM »

People who have taken xiaflex,  I need your feedback if I should proceed with xiaflex or not. I have my appointment scheduled for 7th May. I am mostly worried about permanent sides.

For guys who underwent xiaflex was it worth it ?
Did it worsen your Erectile Dysfunction , did you have a hematoma scar or any permanent scar/discoloration or side effects ?



Logged
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

pen fifteen

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 12
Re: Scared before starting xiaflex
« Reply #1 on: April 26, 2021, 12:44:11 PM »

I was in your position in the fall and started a similar thread: https://www.peyroniesforum.net/index.php/topic,14411.0.html

I had the same concerns as you regarding permanent effects. I know the warnings in the xiaflex pamphlet are scary but keep in mind this is stuff they MUST tell you or risk major lawsuits, like every other prescription medicine.

I'm 3 rounds in. Jury is still out on whether it's been worth it. I did not see much change after round 1 but now I am noticing it. The question of whether it's a big enough change to be worth it is still up in the air. I'm still modeling and using restorex.

Regarding the effects. The swelling and hematoma did eventually go away. And of course abstain from sexual activity for 4 weeks after your shots so you dont risk injury.
Logged
31 y/o. 30 degree upward, and slightly leftward curve. 3 rounds of Xiaflex completed and praying I don't have to do anymore.

GaussRifle

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 382
Re: Scared before starting xiaflex
« Reply #2 on: April 26, 2021, 01:12:41 PM »

Thank you for your feedback.
Logged
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Shane43

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 70
  • Hourglass hinge horror
Re: Scared before starting xiaflex
« Reply #3 on: April 29, 2021, 02:42:08 PM »

I have posted previously, you can search for those if you want, but my experience was similar to pen fifteen, except after 3 rounds of Xiaflex I went from large hourglass indentations and no ability to have sex due to hinging...to much smaller indentations and I can now have sex, albeit carefully. I had pretty bad swelling after 6th injection (3rd round), but it eventually went away and I think it all was well worth it.
Logged
60YO, hourglass indent/hinging at base 30deg bend up 3cmx2cm hard plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased plaque/indent/hinge/bend by ~50%. Can now have careful sex, but now getting worse. Saw Dr. Levine, will start PMP for 6 months

pen fifteen

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 12
Re: Scared before starting xiaflex
« Reply #4 on: April 30, 2021, 05:32:56 PM »

I have posted previously, you can search for those if you want, but my experience was similar to pen fifteen, except after 3 rounds of Xiaflex I went from large hourglass indentations and no ability to have sex due to hinging...to much smaller indentations and I can now have sex, albeit carefully. I had pretty bad swelling after 6th injection (3rd round), but it eventually went away and I think it all was well worth it.
That's good to know because the same thing happened to me. The swelling after round 3 was by far the worst. I had my 6th shot in late March and it STILL has not completely gone away. It is however much better than it was 2 weeks ago so it is very slowly improving. I just have a small bulge now. But yeah, for some reason the effects of the 3rd round were horrific for me. The discoloration and post-injection pain were also just as bad compared to the first 2 rounds.
Logged
31 y/o. 30 degree upward, and slightly leftward curve. 3 rounds of Xiaflex completed and praying I don't have to do anymore.

TDix

  • Global Moderator
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 874
Re: Scared before starting xiaflex
« Reply #5 on: April 30, 2021, 07:39:50 PM »

Have you read my journal?  Having gone through all I have, I hate to say it but I am anti Xiaflex
Logged
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
12 Replies
2528 Views
Last post December 12, 2014, 02:23:05 AM
by james1947
5 Replies
1916 Views
Last post November 25, 2015, 08:59:43 PM
by bucfan
18 Replies
1976 Views
Last post July 31, 2018, 09:56:39 AM
by JohnR