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Wilson

Dear friends, I have really fed up to search a right doctors. Hope, my small personal descriptive information related to some famous doctors will help a bit to this board.

Dr. Irwin Goldstein is a super kind man, who has a super great website, has a super great service, has a super great staff, but unfortunately he is not a peyronie specialist.  

Professor Tom Lue - legendary peyronie specialist, but became too old for urology, unhelpful and just became retired money maker.  

Dr. Brian Christine is a complex man, who can refuse to help without reason, whether patient international or not, he even refused to help own local american citizens, who live 5 minutes nearby his office in Alabama, Birmingham.  

Professor Miroslav Djordjevic is a kind serbian man, but a weird gender surgeon and can not simply answer on a surgery questions due to his religious orthodox beliefs.  

Dr. Laurence Levine is a great peyronie specialist, but has a crap website which seems doesn't work, he doesn't have an own e-mail and uses only a primitive fax for conversation (20th century) So, it's hard to reach him out, excepting only his office number, but it's takes too much resources on mobile phone for the international call.

Dr. Paulo Egydio is a strange man, who earns a big money and still can not to put an english speaking translator for his brazilian office-staff. Does Mr. Egydio really thinks that all world speaks portuguese or what!? Weird person.

P.S: Friends, I'm so fed up. So, Could you advice me a top famous peyronie specialist, who has a good working website, has a good working e-mail and has a good human behavior. Many Thanks in advance. Sincerely.


Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

TDix

I recommend dr Faysal Yafi at UCI.  Not famous, but, in my opinion, a very personable and great doctor.  Others here will also recommend Dr Eid
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

mst

Why not Doctor Gelman?

I am after the redo surgery with him. I had thousand of fears but after the surgery with Dr Gelman even my erections are better than before, because I had some damaged veins after the first failed surgery somewhere else (in Poland). He fixed them.

I remember an email, where I wrote about my fears to Dr Gelman. He respond me:

Quote: "Well, I love doing surgery.  Surgery on the penis-urethra is what I do.  It is just about the only thing I do."....

After the first failed surgery my recovering was much worse than after redo with Dr Gelman. After the surgery with him I have felt like I didn't have any surgery at all. I didn't have hematoma, pain was 0%, erections was F###CKING hard just two days after the surgery. They were so strong that I was afraid the sutures will broke.

After the first surgery I had hematoma for 1 month.

daved2 had 2 failed surgeries with Kuehhas. For the third time Dr Gelman fixed him for good. You can read his story.

My effect with Dr Gelman (I had 30-35 degrees to the left and 30 degrees downward):
https://abload.de/img/img_20180930_013431vujdy.jpg

Also,

In Germany there is a friend of dr Fayasal Yafi from UCI Health (where Doctor Gelman works too).

He published also some researches about treating peyronies patients or those with congenital penile curvature.

His name is Georgios Hatzichristodoulou and he is from Nurnberg, Germany (Europe)

https://www.researchgate.net/search?q=Georgios%20Hatzichristodoulou
https://kh-nuernberg.martha-maria.de/de/urologie

For me, pernament sutures which are using by Dr Christine doesn't sounds good. But I am not a doctor.  

Wilson

Hi TDIX, Dr. Eid seems high volume implant surgeon like Dr. Kramer, so it's seems that he is not a peyronie doctor. Dr. Francois Eid and Dr. Andrew Kramer are somewhat alike similar implant doctors, I think. Regarding, Dr. Faysal Yafi, I never heard about him before. However, I will google him and I will surely write him in order to talk about my case. Many Thanks for your reply and concern.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

Mst1622, Hi friend. I wrote to Dr. Gelman twice in this winter. He is an honest man and he honestly answered me that he operates only a men with a curvature. Unfortunately, he doesn't operate a men with a straight members. Many Thanks for the concern.  
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Benjamin62

Clearly you have a unique case... not sure what can be done regarding Peyronies without a curve...

Also after personally speaking with Drs. Gelman, Levine and Christine... all excellent and personable surgeons, perhaps you are not communicating you condition, or perhaps surgery is not the route for you.   Wishing you hope...

You might try Rena Malik of Baltimore... she has a YouTube channel.  Perhaps a feminine perspective, and a fresh perspective might help.  She is kind, a good listener and top in the field.
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Wilson

Hi Benjamin62. I personally respect Dr. Brian Christine. I understand that he doesn't want too much responsibility due to peyronie. However, I wrote his different secretary (Regan and Jessica) twice recently. So, he refused to help me, claiming that he doesn't help the international patients for peyronie's case. Honestly, I didn't wonder that he rejected as I had read the medical reviews on american medical website "Healthgrades" and "Vitals" before. People wrote there that he refused to help them without reason, even they are neighbors to his office, living the next street to him. So, Brian Christine accepts people randomly, by case, not in the order. So, consider yourself very lucky like a "lottery winner" - that you are really lucky man and you was personally chosen by Dr. Christine and finally, was operated by his golden hands. Sincerely.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

Benjamin62, And I don't have a unique case, I have a deep inside plaques, instead of a curvature, I think. However, Many Thanks for your wishes. Anyway, I will try to find a top american peyronie specialist as I honestly don't want to come back to backward and racist Serbia. Sincerely.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

I wonder what a crap website Sava Perovic Foundation has. The site full of great titles and great quotes with the picture of main doctors-surgeons pretending to be like the serbian electric scientist - Nikola Tesla in urology and genital field. So, I asked them, whether it's possible to return my old member or not and they can't answer on my question properly. Suspicious website and weird doctors.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

I miss Dr. Irwin Goldstein's clinic with the super great service. First time, I had ever seen a clinic who really was well-prepared, concerned, careful and serious. They answered me via their website too fast and set up for me a free international call in this winter. Unfortunately, Dr. Irwin Goldstein is not a peyronie specialist. However, I respect him for founding a super great clinic with a super great service.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

As I already said, the Egydio's staff is a weird for me. Two days ago, they replied me on my what's app 1 year later. So, I talked with his staff member and probably he is a new member of his office, as he was unprepared. He said me that Mr Egydio is a super peyronie doctor during our chat conversation. Then, I started give him too many questions related the possible peyronie treatments and finally, he said that Mr Egydio doesn't accepts young people in this year, only old ones due to covid, probably. And, we said "bye" each other and finished the chat conversation. So, Weird brazilian clinic.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Winter

Hahahah. I do understand you Wilson. I also reached them out and, even in Portuguese, I've got the same impression.
He also charges an incredible amount of money for any operation if you wanna know.
He also has this weird criteria of not accepting younger clients. If you ask me, I would look up for the American specialists myself.  
41 yo, married. Onset on 07/20. Flare up on 07/21. Brand new flare up 01/23. Indentations and hourglass. It still hurts sometimes; No erectile dysfunction. Taking Pentox, Cialis, Supplements, trying diets, fasting, VED and manual traction.
God bless

Wilson

Winter, you know, - I'm not surprised. I already met and talked with some peyronie specialists during this year and not surprised. First, old goat - «professor» Tom Lue from UCSF, who is considered the top peyronie specialist in San-Francisco, took my 651$ for 15 minute video consultation - recommended cialis and said me "goodbye". I told him that I'm upset having peyronie and he said:"don't be upset". Doesn't he thinks that his stupid words will not help my situation!?  
2) I moved to racist-backward Serbia, which is considered the "second Pakistan" in the center of the Europe and met with Professor Miro. His eyes told me that he doesn't care and he loves only gender people. Though, he is maybe a kind man, but he doesn't know peyronie field and his website misleading people writing that he focus on different genital disorders etc. It's - wrong. I just wasted my personal time etc.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Winter

Yes. Honestly, I think most of the important knowledge about non-surgical treatment is wide open here.
There is probably no magic pill hidden by some renowned expert. I visited 5 different supposedly experts here in my country. 3 of them told me to do nothing and hope for the best. 1 was very kind but offered me only colchicine and the other allowed me to buy Pentox and Cialis daily (but only because I insisted a lot! At first he also just wanted me to watch and wait like the others).

If you are willing to have surgery, seek out the most experienced doctor, set up a date and go forward. Otherwise I would recommend just to follow the survival guide and keep an eye on the boards of experimental treatment here. I'm doing VED, using Hirudoid daily, an occasional Celebrex for pain, and practicing Keto diet. Most doctors in my country wouldn't prescribe any of this to me.
41 yo, married. Onset on 07/20. Flare up on 07/21. Brand new flare up 01/23. Indentations and hourglass. It still hurts sometimes; No erectile dysfunction. Taking Pentox, Cialis, Supplements, trying diets, fasting, VED and manual traction.
God bless

Wilson

Winter, yes, you are right and I totally agree with your recommendations. By the way, their «wait and see» approach means "wait, 200 years yet, until we find a suitable supplements, and then come to us"! It's their - real thoughts, but they don't want to admit it during the consultations. Sincerely.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

Winter, In addition related to Mr. Egydio and his weird clinic, I can say that suspicious Mr. Egydio - old crap doctor who charging a big money from poor sufferers and his math-geometric founded surgeries is a total marketing crap. He can shove his geometric founded surgeries in his ass. Hope, he will read this post.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Winter

Hahaha. I totally understand your frustration. I don't like his weird ways either.

Regardless of him, I know very little about your condition, but I can tell you this; do not let yourself sink deep into anguish and sorrow. Our minds can do terrible things to our bodies if we allow it. One thing this crappy disease is teaching me is how to control myself and to be really pragmatic. I am not saying it is easy, but instead of focusing on the things I can't do, I put all my mental energy on what I can do, fiercely! I am doing all at once, ketogenic diet, exercising, taking several supplements and trying almost everything I can get my hands on. Everything new that appears, I do try. If you did your homework by reading plenty of stuff on this forum, you probably know more about this disease than most of the urologists you might find. Every new treatments that comes around, a member will post here. Probably there is no hidden secret, known only by some cabalistic star doctors. Instead focusing on the top, super expensive, eccentric doctors, I strongly recommend you to push yourself towards taking feasible and practical actions, as much as you can.
Godspeed my friend.  
41 yo, married. Onset on 07/20. Flare up on 07/21. Brand new flare up 01/23. Indentations and hourglass. It still hurts sometimes; No erectile dysfunction. Taking Pentox, Cialis, Supplements, trying diets, fasting, VED and manual traction.
God bless

Wilson

Winter, I don't use the conservative treatments as I lost faith in it many years ago since 2012. I only watching films, art, history etc in order to distract my mental health and the same time collecting money to go to the famous American peyronie specialists. In short, Winter, Many Thanks for your kind words. All the Best to you. Sincerely, my friend.
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Bud luck

Do you have indentation, narrowing, hourglass?.  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46