STICKY BLOOD (Viking & others) as Peyronie’s start contributor

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

boomerang

While researching my symptoms I discovered that one "Syndrome" matched my symptoms perfectly.

The syndrome was Hughes Syndrome (or less correctly Antiphospholipid Syndrome)
blood tests eventually confirmed this.

The treatment for this is Blood Thinning Medication of almost any kind with some types working better than others.

I was wondering for some time why blood thinning medication of almost any kind seems to work?

After research, into inflammation, the answer seems to be that for inflammation to take place the blood supply has to be slowed or restricted in some way.
If the blood is moving too fast then the inflammatory agents are not able to get through the walls of the cardio vascular vessels and are washed along too quickly.
A bit like the fact that silt cannot settle in a fast flowing river.

Thus blood thinners will always reduce inflammation and infection for the same reason.

It is known that many infections like to restrict blood flow for obvious reasons.

Since posting last I have been diagnosed with Osteoarthritis which has shown up by inflamed joints on the ends of my fingers.

However I have also had severe back problems and knee and hip problems since I was a teenager.  These symptoms together are typical of Osteoarthritis.

So I have a history of a long standing "autoimmune" disease.

Interestingly many Hughes Syndrome sufferers also have joint problems too!

My conclusion at the moment is that long standing diseases circulate in the cardiovascular system causing inflammation.  These diseases may well "switch off" the immune system in cells thus allowing other diseases to infect cells.  The older one gets the more these diseases accumulate.
Anything that restricts or reduces blood flow, such as beta blockers, heart disease, thick blood, other diseases etc will allow the inflammation to take hold in susceptible areas.


My view now is that any medication that increases blood flow will help reduce the inflammation causing Peyronie's.  However once the tissue is damaged and scar tissue is created then it is too late to reverse. (At the moment)

There are however methods for repairing scar tissue but this involves damaging the old scar tissue. Hence I am thinking stretching could be the way to go or perhaps pricking the scar tissue with multiple steel needles to damage it so that new good tissue can grow.  Painful but this is the method used to treat facial scar tissue.








George999

While this may be true, blood thinning strategies can result in brain hemorrhages and can cause other forms of fatal bleeding.  Anyone pursuing a strategy of blood thinning should be doing it under medical supervision and should be getting their clotting factors tested regularly or they are asking for something far more serious than Peyronie's Disease.  - George

ComeBacKid


George999

The big problems come if one attempts to start 'stacking' multiple blood thinners.  At some point you can wipe out your blood's ability to clot effectively and bad things can happen as a result.  I am not really too concerned about guys taking blood thinners for Peyronie's, but I am concerned about taking MULTIPLE blood thinners without any caution toward what kinds of nasty things can happen from TOO MUCH blood thinning.  - George

boomerang



The problem I have found with the Medical Profession is that they are "Wilfully Blind" (Google that) because they have a Perverse Prejudicial Interest in not curing people.  What I am saying is that their jobs rely on people being sick.  If everyone was never ill all the Medical Profession would be out of work! It does not matter what morals they say they have, subconsciously they become Wilfully Blind to anything that might help make people well.  This is a well known condition of the mind which has been studied at great length. In the UK we have the NHS but they are not paid by results, they get paid anyway regardless of whether they cure people or not. The same applies to drug companies.  If there was a drug that cured all ills then the drug companies would go out of business because no one would ever buy any more drugs.  So drug companies have a vested interest in producing drugs that may appear to work for a bit and then other drugs are needed and so on, keeping them in business.  This is not a wholly conscious decision but one caused by the wilful blindness prevailing in the drug companies as a result of Perverse Prejudicial interests.

My own experience is that the medical profession have got steadily worse at diagnosis and treatment even though we have huge advances in technology with the internet connecting all the best medical minds in the world.  Medical progress is painfully slow.

I must assume the reason why most people visit this site is because they are not getting anywhere with the Medical Profession.

I certainly would not mix blood thinning medications or even take alcohol while on any blood thinning treatment.

However I have found more natural ways to thin my blood.

Many foods are said to have blood thinning properties as, also it appears, do certain enzymes.
Exercise is also reported to make the blood thinner.

On the other hand some foods might make the blood thicker such as green vegetables like broccoli and kale which contain high levels of vitamin K.
Vitamin K is the vitamin used to make our blood clot.  Most green vegetables contain vitamin K.

I was eating plenty of Broccoli and Kale just before my heart attack because of TV health campaigns telling me how healthy they were!

My own theory is that internal long standing infections cause inflammation in the cardiovascular system which in turn causes Fibrin to be generated. This thickens the blood causing all sorts of problems.

I am also treating my condition as a long standing internal infection by perhaps many different pathogens.

I have found that D-mannose (Thanks for the advice from this site, sorry forgot your name) does seem to help and has reduced my need to visit the loo many times a day.
I also alternate this with Cranberry Juice.

I was on Neprinol for more than 11 months which kept me going.  It did seem to do what it said on the tin and had a few bonuses. I did get a few strange aches and pains and a bit of dizziness as it worked its magic for me.

I then had a period on the Active Circulation Formula

And am now on Proteolytic Enzymes

My incredible tiredness has gone and I can get erections again.  I am not fully cured yet but will continue to work on it.

I find that "hitting" the infection with different treatments (one after the other) seems to be effective

newguy

Quote from: George999 on February 11, 2011, 12:50:52 AM
The big problems come if one attempts to start 'stacking' multiple blood thinners.  At some point you can wipe out your blood's ability to clot effectively and bad things can happen as a result.  I am not really too concerned about guys taking blood thinners for Peyronie's, but I am concerned about taking MULTIPLE blood thinners without any caution toward what kinds of nasty things can happen from TOO MUCH blood thinning.  - George

I agree. That's part of the reason I dropped Vitamin E, a long time ago. At was taking fish oil too, pentox etc, and I think adding vitamin E (which doesn't seem to be all that useful for peyronie's anyway) was pushing it a step too far.

boomerang

Sorry if this is a bit long but it is important.
Dupuytren's contracture is related to Peyronie's and is known as the Vikings disease. I have also heard of thick blood referred to as Icelandic blood,
hence the Nordic connection.

Perhaps I could coin the term Viking Blood Syndrome  (it has to be memorable)

This is the theory which may be wrong but everything I am doing seems to work for the better if I follow this theory.

Firstly there are no standard tests available to test the relative viscosity of blood.  Even engine oil has the viscosity marked on the can.
Blood viscosity has to fall within a certain tolerance to allow the heart and blood vessels to operate correctly but as far as I know this is not tested.
Thick blood will not show up on any standard blood test and testing blood sugar or blood oxygen will not show up much either.

However a swing in blood sugar from high normal to low normal could indicate that there may be problems with High GI carb cravings.

Thick blood will cause or exacerbate inflammation due to the slowing of blood flow upsetting the inflammatory response balance.
Inflammation will also cause the blood to thicken hence a vicious cycle.
It will also increase pressure on capillaries and blood vessels.
Thick blood will cause cravings for high GI carbs because the body cells are starved of glucose, oxygen and nutrients.
Thick blood will not easily pass through the capillaries which is where all the transfer of oxygen, glucose and nutrients take place.
High blood sugar has been shown to thin the blood in diabetics hence perhaps why people with thick blood crave sugar and high GI carbs.
(It not only helps raise energy levels but also helps make the blood thinner)

So thick sticky blood will cause hypoxia (low oxygen)  in the cells but not in the blood itself.
It will also cause symptoms of hypoglycaemia (low glucose) even though blood sugar is within the normal range and even slightly high.

Lack of oxygen and glucose to the brain cells will cause symptoms like depression, poor memory, spelling problems and hence low self esteem.

Typically people with thick sticky blood will develop migraines between the age of 9 to 25 which may subside only to return in later life often in the form of zig zag visual disturbances.

They will also typically suffer at various times during their lives from transient multiple minor symptoms like sinus problems, tinnitus, inner ear balance problems, back pain, sporting injuries, hiatus hernias, post nasal drip, slow recovery after sporting activities, general feeling that something is wrong, muscle twitches, nervousness, knee problems, hip problems, seeing stars from time to time(caused by lack of oxygen to the brain), IBS, excessive flatulence, gum problems, hay fever, reduced breath holding ability, body hair loss, foggy thinking, dyslexia, food intolerances, intermittent atrial fibrillation, thread veins and varicose veins in the legs and more all caused by poor cell oxygenation and nutrition. The older guys will have more of these.

Diet, lifestyle, age and genetics may have a significant effect on whether people get all these symptoms. Epigenetics may play an important role especially with familial (diseases which run in families but are not genetically transferred diseases)

I use a product called Neprinol to normalise my blood and it works pretty well but there is another product called Serracor NK which is similar and others out there now which may be more potent. I am looking at the

I get good erections and the bend is reduced but still there at the moment.

I am looking to considerably up the dose of Serrapeptase and take vitamin D10 also to help dissolve the scar tissue.
I eat very little green veg because it contains high vitamin K which is the blood clotting agent.
But I do eat oily fish and other fruit and veg.

Taking Neprinol has removed my cravings for high GI  and it has banished my serious chronic fatigue which started in my 50's.
It has also taken the other symptoms to a low level.  I had a heart attack 3 years ago and am now not taking any drugs.
Taking beta blockers did not help especially with the peyronie's. The heparin did help but has side effects long term.

My wife has MS and now takes neprinol too and no longer has chronic fatigue either, so something is working here with this theory.
My Daughter is an A and E nurse and my wife's sister works in the medical profession advising medical workers on the use of drugs and they both agree that my wife no longer has chronic fatigue.  We stopped the treatment and the fatigue came back and we tried it twice to be sure.

Good luck to all, Boom.

Iseilinus

Boomerang,

Interesting theory. There is an affliction called Hughes Syndrome in the UK, and APS in the states. It is an autoimmune illness which is commonly known as "sticky blood" disorder. Treatment is blood thinners, usually aspirin, but sometimes requiring coumadin or heparin.  You can test for it by looking for ACAs (anticardiolipin antibodies). It causes miscarriages in women. Could if be responsible for Peyronies Disease in men? I dunno. Urologists do not test for it.  Since I do have APS and also Peyronies Disease, your theory is making me wonder.  Maybe Peyronies Disease victims should be consulting hematologists as well as urologists.  I would not be surprised to learn of an associated blood disorder.


Quote from: boomerang on February 11, 2012, 09:32:04 PM
Perhaps I could coin the term Viking Blood Syndrome  (it has to be memorable)

james1947

Boomerang
It doesn't mather is long (your post I mean). What you are describing is Polycythemia Vera or:
QuotePrimary polycythemia; Polycythemia rubra vera; Myeloproliferative disorder; Erythremia; Splenomegalic polycythemia; Vaquez's disease; Osler's disease; Polycythemia with chronic cyanosis - Myelopathic polycythemia; Erythrocytosis megalosplenica; Cryptogenic polycythemia
The symptoms you are mentioning are caused by  increased blood thickness do to high count of red blood cells, white blood cells and platelets.
I have this disease and some of the symptoms. Some of the symptoms had gone after the first month of using Pentox. I will see next week my blood tests. Because the blood is thick, the blood flow to the penis can be limited and cause to ED.
More information you can get on many www, one link bellow:
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001615/
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

boomerang

I have been tested for Hughes Syndrome at St Thomas' Hospital London(the world experts where Dr Hughes works) and they say I don't have it.

Also all my blood tests show nothing wrong including blood cell count etc.


I suspect that if the blood is too thick for any reason then the symptoms I describe will appear.

I have recently found 5 other people by chance who have the same symptoms but they are all women(so no peyronie's) and one of them had been diagnosed with Hughes and another with MS who tested negative for Hughes.  I think the MS diagnosis was wrong because my wife has MS and I am very familiar with the symptoms.

I don't get out much so finding 5 people with the same symptoms cannot be put down to chance.  

There must be a lot of people with thick blood who remain undiagnosed.

I do have thick blood and injecting Heparin for six months helped enormously but not as much as the good old Neprinol.

I suspect that many people must be suffering from a different syndrome which may relate to nordic inheritance although the blood tests for Hughes are very unreliable and to get diagnosed you have to be almost dead!

Peyronies may also be triggered by thick blood as it appeared to do in my case.  The beta blockers helped it on its way and now I have full peyronies the full length of the shaft not just one little lump.  I have dupuytren's and my feet were trying to get ledderhose. I have other related symptoms including rounded shoulders and hypodontia(completely missing teeth) however we are all different and various genes are switched on and off differently in us all.  Even genetically identical people can have different genes switched on or off (which is what makes the difference).

There could be several reasons for having thick blood.  But using blood thinning treatments should relieve the symtoms.

I suspect that various parts of the body are susceptible to damage and the good old todger is one.

Serrapeptase removed my ganglion and sorted out the scar where I had had a sebatious cyst removed.

So hence why I will try it in a much larger dose for a year.

boomerang

Sorry just in case you thought I had no teeth from the wording of my previous reply, I have only got two missing teeth (hypodontia)  but I do not know if this is related along with dupuytren's and peyronie's to thick blood. I have been quite successful at sports and in my sex life up till now.
I wonder if the thick blood when under pressure due to an erection damages the capillaries in the penis?
I suspect that normal blood would not be likely to cause any damage.

Boom

Luciano

If I understand correctly, this is about neprinol working for some people under certain conditions.
Actually I think I read somewhere (even george wrote also about it) that neprinol helped him for lots of things (getting rid of fibers etc..) but had no real effect on Peyronies Disease.
I myself took neprinol for 6 months, (like 3x3 a day).
I must admit i felt better, but it had NO effect on my peyronies.
I found then, using a blood thinner like pentox had much better effect.
thats my 2 cents
Luc

boomerang

Thanks luciano,
                    every 2 cents worth is worth its weight in gold.  It helps get an overal idea of what is working for some people. Did the pentox cure your peyronies or just improve it?

Luciano

neither.
Actually I'm not cured, I am thinking about surgery.
Pentox made me feel better.
After I had peyronies, I could hardly get an erection. Bloodflow was really bad. I had to take 100mg viagra to take an erect photo of my penis for my uro.
Now, after 1 year on pentox, i can get "normal" erections, Curve is still there.. (maybe a bit better, but still more than 50°.)
Also the flaccid state has improved.
Luc

james1947

I had during the years a few injuries to my penis but they didn't caused Peyronie's.
The psible injury during TUNA for enlarged prostate occurred after more than a year that I was diagnosed with "sticky blood".
My Peronie's started three months later.
I believe that in my case the combination of the sticky blood and the injury started the Peyronie's

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum