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Author Topic: First Round Xiaflex  (Read 468 times)

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Caseyjones01

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First Round Xiaflex
« on: April 16, 2021, 04:42:55 PM »

Just got back from my second injection. Was told to remove the bandage after 1 hour. I have some swelling at the injection sight. Its not huge swelling and there is no discoloration. Slight stinging pain very brief. Im not sure what to do about it. He said swelling is normal, and maybe take a cold shower. I was told take tylenol for pain. First injection was beggining of the week and it wasnt bad at all. Just 3 days later i started having alot of pain and shrinkage. Also was not able to get full erections to do another pic. He said all this is normal. This whole thing makes me so nervous.
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37 Years Old
April 2019; pop sound from BJ
Diagnosed Sept 2019. Possible 2nd injury
Have 2 very large plaques and loss of size and girth
Pain for 2 years
Tried VED, Traction, Xiaflex
Pentox 3 times 2.5 mg Cialis daily started Colchicine 2/17/20

Caseyjones01

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Re: First Round Xiaflex
« Reply #1 on: April 16, 2021, 04:57:13 PM »

Does anyone know. Should i take a cold shower for the swelling?
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37 Years Old
April 2019; pop sound from BJ
Diagnosed Sept 2019. Possible 2nd injury
Have 2 very large plaques and loss of size and girth
Pain for 2 years
Tried VED, Traction, Xiaflex
Pentox 3 times 2.5 mg Cialis daily started Colchicine 2/17/20

TDix

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Re: First Round Xiaflex
« Reply #2 on: April 16, 2021, 06:24:56 PM »

I would offer advice but I am not really a proponent of Xiaflex.  I am happy you are not experiencing any real major issues like I did.  I wish you success!
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47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

pen fifteen

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Re: First Round Xiaflex
« Reply #3 on: April 16, 2021, 07:16:50 PM »

not sure about a cold shower. At this early stage it's going to be very tender. I would gently apply an ice pack to it.
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31 y/o. 30 degree upward, and slightly leftward curve. 3 rounds of Xiaflex completed and praying I don't have to do anymore.

Caseyjones01

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Re: First Round Xiaflex
« Reply #4 on: April 16, 2021, 10:45:23 PM »

I applied ice. Its not painful, its really ugly looking though. Like pockets of pooled blood closer to the glans. Also discoloration/bruising. How big does it have to swell before we become concerned and have to get it drained?
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37 Years Old
April 2019; pop sound from BJ
Diagnosed Sept 2019. Possible 2nd injury
Have 2 very large plaques and loss of size and girth
Pain for 2 years
Tried VED, Traction, Xiaflex
Pentox 3 times 2.5 mg Cialis daily started Colchicine 2/17/20

TDix

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Re: First Round Xiaflex
« Reply #5 on: April 17, 2021, 12:16:22 AM »

Sounds like you have hematomas like I did.  Mine were the size of grapes.  If they get that size I would definitely go to the ER
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47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Caseyjones01

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Re: First Round Xiaflex
« Reply #6 on: May 22, 2021, 11:16:21 PM »

Well 1 month later and seems this just made things alot worse. I. In pain almost everyday again. And its curving more and i get inflammation daily. Doc says i have no choice but to keep going. Basically aggravated and made the plaque bigger. Did the stretching, half the time there was some pain so i didnt keep up. Also made it smaller. And its now twisting. Im mostly thinking im going to stop. I have 3 viles left out of 4.
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37 Years Old
April 2019; pop sound from BJ
Diagnosed Sept 2019. Possible 2nd injury
Have 2 very large plaques and loss of size and girth
Pain for 2 years
Tried VED, Traction, Xiaflex
Pentox 3 times 2.5 mg Cialis daily started Colchicine 2/17/20

Caseyjones01

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  • 37 years old
Re: First Round Xiaflex
« Reply #7 on: June 05, 2021, 02:54:45 AM »

So, just let ppl know about potential ill effects. My first round was a disaster. My penis is hardened and shrunken and more curved. I am able to penetrate, but its very painful. I dont even think surgery will save me. The hardening is so prominent it is running a good length of the underside of my penis. I cum very fast since this. Its over for me and this will likely be my last post for a very long timr. So warning if u have endless inflammation and pain dont do xiaflex. My penis is a shrunken hardend bendy pencil now. I just dont know what else to say. My doc says to resume once it is stable. I really dont think its a good idea.
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37 Years Old
April 2019; pop sound from BJ
Diagnosed Sept 2019. Possible 2nd injury
Have 2 very large plaques and loss of size and girth
Pain for 2 years
Tried VED, Traction, Xiaflex
Pentox 3 times 2.5 mg Cialis daily started Colchicine 2/17/20
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