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Author Topic: Tomorrow w/ Dr Levine - MN71's Implant Journal  (Read 2164 times)

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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #100 on: May 06, 2021, 04:38:16 PM »

Hawk- God as my witness there is NO concave. I am like maybe I got an old one!  Not sure!
Again- something else. I add to my list for the 17th.   They might be shutting the office down as. I am gonna get my time!

So I asked my wife just now and she says she didn’t notice anything other than a slight lean to the left... I said ok.  Honey that’s vague... what’s “slight lean” and we ended up with a 15 minute Q&A session... she wants to know my obsession...  I said “this Hawk guy” wants to know. 

Size?   I think it was actually BIGGER than day of my surgery.  I don’t know my measurements before the operation.  I will have all that info after the 17th.   I want to see how they measure as to be consistent when I measure at home.

I think my penis looked so much better!  Wasn’t all misshapen and just totally disfigured!  Looked semi normal...  I didn’t notice any indentation or curvature.  I think I was so waiting for pain and kind of excited about what. I was actually seeing I missed whatever else.

I will say now- I am a little sore from pumping up and stretching.  Took some Advil before and took two pain pills after. 

Hawk- give me, with what you can put together, an effective cycling regiment... after all the reading of so many journals- things are running together.. and unlike my college years I didn’t write down or clip and paste important points...  share with me, after all you have experienced and read your thoughts.   I get everyone is different.  But please share

Off to grocery store.

Best,
M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #101 on: May 06, 2021, 05:08:02 PM »

First, I don't care how they measure your penis.  There is only one way to accurately measure an erect penis so you can consistently measure progress.  BPEL with the same ruler (some cheap ones have an edge that adds to the first inch).  Press it hard enough into the hollow above the shaft that it is "bone pressed," and you know it is impossible to press it further the next time no matter how hard you try.  That is your accurate length no matter how much weight you gain or lose.  Measure your girth with a cloth tape measure at the base, mid-shaft, right behind the glans.  WRITE DOWN ALL MEASUREMENTS.  You will not remember when they start changing slightly.

If you never measured your dick before surgery, you have to be the first man in history that did not know the size of his penis.  I guess if Levine had shorted you an inch or so, he could have just convinced you you were always that size ??  :)

Concerning the cycling protocol.  Correct me if I am wrong, but your doctor orders are not to cycle until your appointment.  I am pretty hesitant to instruct and encourage you to violate those orders.
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #102 on: May 06, 2021, 07:25:29 PM »

HAWK!!

I am unique to say the least!  I have never whipped out the ruler and measured my $hit.   

Dont u know the theory that you don’t get on a scale to see if your losing or gaining weight...  you can tell by the clothes- if the 34 waste don’t fit you jump up to 36...  and vise versus.

If the magnum condoms don’t fit ya get the smaller size!
Sometimes ya don’t wanna know! 

Yeah- doctor said to leave it 1/2 inflated until I got in on the 17th.
It’s ok.. I will take notes when I review the journals again.

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #103 on: May 06, 2021, 08:13:12 PM »

If you asked what I did, I got in a tub of hot water, then let the hot water run as hot as I could stand it and left it tricking to keep it hot.  It greatly reduced penis discomfort even though the rest of me was beat.

I would pump up.  If my scrotum was sore, I would pimp a couple of times and wait 30 seconds.  I would shift the skin on my scrotum, so the same skin was not getting pinched between my thumb and the pump on every squeeze.

I would continue until the pump would not budge.  Then I would find something distracting.  For me, it was a song playlist.  I would go for at least 15 minutes, then try to get in a few extra pumps because you will stretch.  By that point, it was a contest to see if I could make the 30-minute mark.  When I could not stand it anymore, I would listen to one more song.  When that was over, I would then wait until the second hand hit 12 to stretch it out a few more seconds.  Then I would hit the release button.  AAAAaaaahhhh! sweet relief!

Dr. Eid told me to relate for at least two 15-minute sessions a day.  I asked if one 30 minute session was ok and he said, "yes, that is fine."  That gave me as much time inflated but only half the pumping on my scrotum, which was pretty tender.

When I was near my limit, I learned that trickling water on my penis with a washcloth or dragging the end of the washcloth across my penis seemed to interrupt the discomfort so I could extend my time.  I gradually worked up to an hour.

PS: When pumping, sometimes it helps to drape a washcloth across the scrotum and grab the washcloth to pump.  The cloth between your thumb and the scrotum was more comfortable.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #104 on: May 08, 2021, 05:25:59 PM »

Post op 24

Hello Gentlemen,

Post op 24 and pretty sore still.   Everything seems to irritate the skin of my penis.  Slapping a little baby oil on it or petroleum jelly on it to keep it soft and less irritated. 

Trying to not think about chasing my wife around the house per doctors orders which are different than everyone else’s... but as Hawk has pointed. Out- my surgery was a little different than everyone else’s as my implant wasn’t done thru the scrotum...

My incision looks GREAT!  I will brag about that.   Barely noticable... Dr Levine used the original scar line from my circumcision 50 years ago it seems and it has healed beautifully. 

NOT TO BE CRUDE-
I cannot WAIT TO PUMP THIS UP AND USE IT!!!
I mean that’s what it’s for!!!

I really don’t have much to add medically other than the soreness. 

More tomorrow.

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Mikel7

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #105 on: May 09, 2021, 05:33:29 AM »

Post op 24

NOT TO BE CRUDE-
I cannot WAIT TO PUMP THIS UP AND USE IT!!!
I mean that’s what it’s for!!!


   Great recovery!  You are not being crude and you will get your chance to experience your new bionic powers.
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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #106 on: May 09, 2021, 07:49:31 AM »

MN,
Fascinated about your implant procedure since it was done via the scrotum.
Did you find the size of your implant yet?
What was the reason Dr Levine used the scrotal approach?
StepOne
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Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #107 on: May 09, 2021, 08:10:08 AM »

Post op 24 Trying to not think about chasing my wife around the house per doctors orders which are different than everyone else’s... but as Hawk has pointed. Out- my surgery was a little different than everyone else’s as my implant wasn’t done thru the scrotum...

His implant was done through a Coronal approach with the penis degloved and no other incisions as per his signature line.
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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #108 on: May 09, 2021, 01:25:55 PM »

Encouraging news MN71! Wishing it continues like this!

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #109 on: May 10, 2021, 05:58:47 PM »

POST OP 26

Not feeling so hot today.   Nothing implant related.  Just drained as hell... took a little nap today even which is totally not me.

Still dealing with slight soreness.  Been totally deflating before urinating... remember my surgeon wants me to stay 1/2 inflated until he sees me.  I can’t seem to finish completely with a half a chub.   
No leaking or mess by totally deflating.  Pumping up and deflating seem to be no issue. 

Just continuing the holding pattern.

Best,
M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #110 on: May 16, 2021, 12:30:17 PM »

Post op 32 days

I saw my Dr’s PA day after surgery.  Tomorrow I have appointment @ 1115am.  After surgery I was sent home 1/2 inflated and told not to “mess/play” with my new bionic penis.  I was told to wait the 6 weeks and then would be given a full run down on my “penis rehab”.    Obviously thru my journal here you know that didn’t happen

I have a lot of questions.  Some situations I found answers here.   I have fully inflated, soaked in the hot tub, deflated (not sure how but whatever I am doing deflated me), chased my smoking hot hot wife around the house, dealt some surprising situations and thank you to this forum had an incredible experience with all the support people have given and shared.

It is true!!!  I am the worst patient ever!  Tomorrow i will go in and listen intently.  I have a prelim list of questions and things to share and need clarification.  I am excited to go to doc; everytging up to this point has been experimental and curiosity.  Tomorrow begins my official rehab.

I look forward to sharing!

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #111 on: May 16, 2021, 12:38:41 PM »

Question-
Per Dr Levine- I was told he used a col titan 22 with one RTE.

My release valve FEELS NOTHING like the pictures I have seen on here. Is it possible he used an AMS700.   My release valve feels exactly like that looks.  Rectangular and no release valve pointing out.   

Can You use an AMS witg the Col Titan? 
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #112 on: May 16, 2021, 12:46:28 PM »

No, it is not possible.  They do not mix parts.  For one thing it would void the entire warranty
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #113 on: May 16, 2021, 01:14:14 PM »

Thanks Hawk...I could be wrong but it FEELS NOTHING like the Titan release
I guess I will find out tomorrow.

I will be PISSED if he told me one thing and it’s another...as a SURGEON I think double and triple checking is EVERYTHING! 

YES- Mistakes happen... but that is a luxury surgeons cannot afford!

Stay tuned for this unfolding!

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

TDix

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #114 on: May 16, 2021, 01:26:47 PM »

I have heard of two different types of a Coloplast pump.  Mine is the older version pump I believe.  Yours may be the newest version
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #115 on: May 17, 2021, 01:10:28 PM »

Well that was a fast doctor appointment because I have had you guys as a resource!  For that I can grateful and blessed..
Fully inflated and deflated...  I have an older release valve which is flat like a rectangle... it’s not the one button cylander release I have seen everywhere...  explained that people have a much easier time with the device I have.

Reasoning given for the wait of 6 weeks is because of the extensive work I had done...  the molding and straightening was explained.   Dr L usually uses the circumsisional incision when dealing with the peyronies straightening.   

Sent home and told to start cycling 2x daily for a month and next month 2x daily for an hour a day.
Measured 14.5 in length before and after surgery...   I am excited to start the cycling and watch the increase...

So- Hawk. You shared your routine... who else has had some gains with their own cycling routine??
Forgive me for not reviewing the journals again.

Glad today is done and I am fully released to work out, chase the wife, and get back to some fun and frolic!!!

I am truly blessed and thankful today!

M
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Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Pfract

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #116 on: May 17, 2021, 02:27:07 PM »

Found it funny in a good way the part about chasing the wife...  8) that was a good update mn1971! Have fun!

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #117 on: May 17, 2021, 02:29:08 PM »

Good news!  Congratulations, and good luck on your first launch.
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #118 on: May 17, 2021, 06:40:06 PM »

In reference to “launch”

Houston- “One Small Step for Man; One giant leap for Mankind!”

Definitely a wierd feeling for me still.  Slight tearing? Raw almost...  none the less a successful mission! 

I am sure it will get more like normal in the future.

Tonight start my cycling... 
m
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Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Stepone

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #119 on: May 17, 2021, 07:06:58 PM »

MN1971 no one asked for a clarification on your post. so I will.
You posted your before and after measurements as 14.5 in length.
Do you mean, you have 14.5 cm in length? 
If you have 14.5 inches, can you please post a pic?
Thanks for your post and glad you are doing well.
StepOne
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #120 on: May 18, 2021, 12:35:32 PM »

No it wasn’t inches!!   Not sure I would wish that on anyone!!! Hahahaha. 

And if I did. My wife wouldn’t let me post pictures if I was 1cm...  she wouldn’t like that at all!   I guess she is kinda possessive!   Not sure of what!  I am definitely not a “George Cloony/ Brad Pitt” in reality!

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #121 on: May 20, 2021, 07:00:08 PM »

Post op 36

So I am cycling... The PA said 2x a day 5 minutes at a time... after a month 2x an hour a day.
Lemme tell you the 5 minutes is more than long enough with the pain I am getting used to.  Stretching or whatever they consider it.   

Definitely not fun.   I really need to go check the journals.

M
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Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #122 on: May 21, 2021, 12:00:11 AM »

Your journal has some real significance because you have one of only 2 sub-coronal approach implants on the forum.  You might not have the same experience as the other journals.

If you read the journals, you know that all of us agree that you are far less successful enduring the time recommendations if you are not sitting in a tub of hot water.
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #123 on: May 22, 2021, 08:09:33 AM »

Agreed.  The tub... with my one experience definitely helped.
M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Roddy

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #124 on: May 22, 2021, 03:37:39 PM »

The hot bath advice is an absolute diamond. Heat desensitises pain for some reason, meaning you can have a much longer stretch.
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Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #125 on: May 22, 2021, 03:54:23 PM »

I agree,

Since I have used HOT water to block disc pain and kidney stone pain my theory is that your nerves cannot transmit both the sensation of pain and heat at the same time (or the brain cannot sort it out).  It has no residual effect like it does for sore muscles.  The second you stand up the pain returns if it is just blocking the pain signal.

In the case of the implant, it probably has some direct effect on the soreness of the tissue, softening the pump, and cylinders and relaxing the scrotum but my experience is there is a pain-blocking phenomenon that goes beyond that.

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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
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MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #126 on: May 24, 2021, 05:39:50 AM »

Day 50

Good morning everyone!

Quick follow up:

I continue the short cycling encouraged by the Dr & PA...  still struggling along without the hot bathes.  I think I mentioned I am one of those “hard learners”.     Another issue I am having- 2 areas on my incision area is really sensitive... raw almost.  I am attributing it to the cycling and possible stretching of skin... not sure if that sounds possible.

Other than that things are going along.  I would like to put my investment of $ and pain to work a lot more- but that’s a marriage issues!  Hahahaahahah.   I figure since I have gone they all this and it’s guarenteed to work WHY THE HELL NOT???

Problem is the one we have had for quite awhile- it’s not physical more logistic!! Meaning with all the kids we have finding time and location!   We have 7; two of which are under 7 and still attached to Momma’s hip and LOVE to sleep in our bed... yeah I know.,, I know...

Physically. I guess I am going ok; mentally dealing with wanting to “play” with our new toy and not being able to is pissing me off

More later!   I hope everyone is doing well!

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Mikel7

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #127 on: May 24, 2021, 06:08:24 AM »

Day 50

Problem is the one we have had for quite awhile- it’s not physical more logistic!! Meaning with all the kids we have finding time and location!   We have 7; two of which are under 7 and still attached to Momma’s hip and LOVE to sleep in our bed... yeah I know.,, I know...
M
   Great report! I can understand.  We have 4 kids and when they were little it was all I could do to keep my sexual sanity.  We shipped them off to grandma's house many times.... Also in the shower can be fun.  :) Mike
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #128 on: May 24, 2021, 05:40:25 PM »

Ok-
Well we did the deed... I lied and said I was very comfortable and no issues

It was definitely not pleasant...  a “raw”feeling on my Johnson esp where the incision line is... and just not pleasant.  Lot of pressure on the glans as well...

My wife says it’s amazing and “WOW!”   And maybe it was... for her... like I said. I was definitely uncomfortable... this I need to research.

Best,
M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

TDix

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #129 on: May 24, 2021, 05:54:47 PM »

Possibly try using a condom until your sensitivity calms down?
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47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #130 on: May 24, 2021, 08:57:49 PM »

The condom idea might be great.  I would not have thought of that. 

Needless to say, the penis is more traumatized with a sub-coronal approach just from being 'degloved" but then inflation and thrusting are putting pressure directly on your incision.  It is just going to take time.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Stepone

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #131 on: May 25, 2021, 12:31:55 PM »

MN, sorry about the pain, but glad she liked it.
Did you have sex for more than 30 minutes? I found that when I got to the 30 minute time, I would have pain.
I hate to say this, but I told the spouse, until I get the feel of this thing, the first few times might just be more about me driving around the block and then pulling it out when I pop the clutch, so to speak. The spouse was very kind to me, because after the new car feeling went away, I was pressing on all cylinders over and over.
So my advice is focus on you for now. Try to cum more quickly to avoid too much friction. You can always use your mouth or fingers to give her a good finish.
Good luck my friend,
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #132 on: May 29, 2021, 08:43:32 PM »

Post op 55

Hello all.  Still doing my 5 min cycling as Rx.    Can’t say I enjoy it very much.   I am beginning to swell around the pump in my scrotum and having stabbing pain eveyry now and then... very random

I am also sure to totally empty the penis... yet sometimes feel it’s 1/2 erect occasionally without me  pumping at all.

I have emailed the doctor last week about it and have heard nothing back.. will call Tuesday if I do not hear back

Hope all is well with everyone’s journey and hope you enjoy your holiday weekend.

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #133 on: May 29, 2021, 09:31:00 PM »

Post op 55

I have emailed the doctor last week about it and have heard nothing back. I will call Tuesday if I do not hear back.

I hope all is well with everyone’s journey and hope you enjoy your holiday weekend. 

Honestly, I don't think any man should have to deal with this.  It is disappointing to hear that Dr. Levine's patients are left without even an email response.  Dr. Levine is on our list of implant surgeons because of his long history with Peyronies Disease patient's in general, but the truth is that he does less than 100 implants per year.  That, combined with the fact that he is not very accessible to his patients, puts us in a position of wondering if we should be recommending him to implant patients.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Stepone

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #134 on: May 30, 2021, 09:45:56 AM »

MN
Call the doctors office and ask for a patient advocate. It infuriates me to no end about poor healthcare. I know you don’t feel like complaining, but pretend you got a new car and it wouldn’t start, I bet you would be complaining and ask to speak to the manager. Call and don’t give up, you are worth more than this.
About the pain, I had random stabbing pain too. It is one of those things that just happens. Annoying yes, but it will eventually be just a thing in the past.
I am wondering about your cycling, you wrote 5 minute cycling. I was told to cycle 30 minutes or more to stretch the penis tissues. The 30 minutes was a goal, at first I could only do it for about 20 minutes, always in a warm bathtub, and usually with a beer and the radio playing something to take my mind off the pain. Sometimes I took a xanex when the pain was intense.
I thought that Hawk had written a generic after care instructions.
But read people’s journals and you will find lots of concerns and helpful comments.
Sadly I have never seen good aftercare instructions.
I am not sure about the swelling, but like Hawk said your particular procedure is different from most of ours.
Sorry if I repeated some things.
If you want to chat, email me and I can give you my number.
Hawk is truly the expert on all this, but I know when you can’t get in touch with someone to discuss your concerns, it can be very stressful.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #135 on: June 01, 2021, 10:55:33 PM »

You know what.. I am in total agreement with you gentleman..
Interesting conversation with the PA @ my appointment
When asked about why I received the instructions to leave my penis 1/2 inflated and not to do anything with it She makes a comment that because of the extensive work done and how difficult it was that was the reason my instructions
 were as they were... understandable... BUT I said that post surgery when Dr L spoke with my wife he said things went very well and almost seemed routine as far as there were no suprised or concerns... I was like come on. 

Ok.  Something I am noticing is like swelling around my pump... like something surrounding it?   
Also- I remember the “dog ears” comments... are those in reference to the tips/points around or under the head of the penis?   Those [email protected]&/era hurt!

Sorry I haven’t been around. Job search and continuing Erectile Dysfunction are taking up a lot of time.

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #136 on: June 02, 2021, 12:02:37 AM »

I am noticing is like swelling around my pump... like something surrounding it?   
I remember the “dog ears” comments... are those in reference to the tips/points around or under the head of the penis?   Those [email protected]&/era hurt!

No!  Dogears are not at the tips.  When you deflate a Titan the cylinders go flat.  While flat they place very little tension on your flaccid/deflated penis so your penis shortens a little,  When it does the flat cylinders have to fold at some point along the shaft.  If you walk the deflated cylinders with your fingers you will feel the folds.  They have pointed corners on them and are called "dog ears."  Look at the photo of the pink drinking straw in this topic.  It illustrated dog ears. https://www.peyroniesforum.net/index.php/topic,12308.msg113865/topicseen.html#msg113865

Did you mention the swelling around the pump to the PA?  you would be able to feel the pump detail as clearly as you ever have.  If you cannot, CALL YOUR DOCTOR.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #137 on: June 03, 2021, 04:14:26 PM »

Calling as soon as I am done typing this..
If I move the pump around I can feel it

Otherwise I swear it feels like something surrounding it...

Here is another thing I am noticing-  in voluntary filling?   Like it seems to fill to a semi all the time on its own... never stays in the totally flaccid state...

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #138 on: June 04, 2021, 11:48:19 AM »

Here is another thing I am noticing-  involuntary filling?   Like it seems to fill to a semi all the time on its own... never stays in the totally flaccid state...

How to stop involuntary filling and why it is important.

If you are truly involuntary filling, it is because your scar capsule is healing/healed smaller than the full reservoir and putting pressure on the reservoir.
If the capsule is totally healed and scared in Dr. Eid says there is no correction for this except surgery.  That is why he sends men home deflated.

Hopefully, it is not too late to stretch the capsule.  You must constantly keep every drop squeezed out of the cylinders except when cycling.  Squeeze them FLAT both in front of and any inflatable cylinder behind the scrotum.  When you are flat, I would wrap Coban wrap that sticks to itself around the penis to keep back pressure on the penis side.  This was my own solution.  I have never heard a surgeon say this, but I only had to do it for 2 days to resolve the situation.  Of course, I corrected the problem when I was only about 3 weeks out of surgery, as I recall.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #139 on: June 04, 2021, 09:16:40 PM »

Thanks Hawk!

I called and told reception is I want an appointment ASAP.  Early next week.
I had emailed them a number of times and no response. Shared that I was a less than happy camper   

Keep ya posted

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #140 on: June 06, 2021, 11:03:30 PM »

So I heard back from my Dr’s PA...

I am going in next week. But after 2 emails and 2 weeks they finally responded

“ I am not sure what the fluid around the device would be except for swelling, is this around the pump or the cylinders? 
IT is common for some auto-inflation, it never stays as deflated as when you first get it down, this is normal.”

Thoughts? 

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #141 on: June 06, 2021, 11:18:10 PM »

I am disappointed that anyone's implant surgeon would be that difficult to get in touch with.  Also nothing against PA's but having to wait to get passed to a PA is even more disappointing.

I have no auto inflation.  Did you follow my tip?  Your reservoir capsule has to be stretched NOW (actually a month ago).  If I smash my penis flat and hold it, then let go, it will fill out to round in a couple of hours but the cylinders in my penis still feel flat.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

MN1971

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #142 on: June 07, 2021, 07:51:16 AM »

Hawk- anything you tell me I take as biblical... so yes ran out to Walgreens and got the supplies to tie this thing shut... yesterday wanted for see if it worked... yeah... my Murphy goes from totally deflated to probably a half full..  I have my wife inspect it just so I know I am not imagining things.

I am sure the only reason they responded per email is because I called and said I had emailed and no one got back to me.

I know most don’t want to be bothered with a phone call and email or text is usually the preferred method of comm... very disappointing.

M
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50 yrs Old, Type 2 Diabetic since my youth
Peyronies Disease since mid 2020
worsened from 50+ to 60+ degree bend in spite of
VED, Traction, Pentox, injections
3 Piece inflatable implant 4/14/21 - subcoronal - Dr. L. Levine

Hawk

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Re: Tomorrow w/ Dr Levine - MN71's Implant Journal
« Reply #143 on: June 07, 2021, 11:08:57 AM »

Just to be clear (your statement "tied it shut" made me nervous).  I TOTALLY deflated, then wrapped a Coban wrap on the shaft from the glans to the base. it is like wrapping a sprained ankle with an ace wrap.  I would leave it on all night and much of the day when not cycling.  I only had to do it for 2 or 3 days, but I caught it within a few weeks because I was sent home totally deflated and was cycling in 3 days.

You should not even have to look to see if you are inflating.  Deflated, new Titan cylinders should feel like flat plastic straws snd even have folds/bends in them.  One side of the cylinder wall will be flat against the other wall of that cylinder with zero space in between. If you have auto-inflation, the flatness of the cylinders will be replaced.  When you squeeze a cylinder with your thumb and index finger, you will be able to move one side closer to the other because they are not touching.

Also, at this stage, a totally deflated New Titan should make your penis somewhat unnatural and flat or mishappen.  That is how you want it until you make every effort to stretch that reservoir capsule before it is TOTALLY healed.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums
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