Feeling hopeless in mental and physical pain

[Curvekiller94]

This condition is miserable for me I really hope things get better but this is my hell.

My gf is getting pissed cause Im consumed by this disease.


I miss having regular sex, I miss having sex twice in one day without thinking about it, i miss being able to masturbate without pain, i miss sex on my back or on my side, I wish not worrying how I fall asleep. I miss not being in pain 24/7 and feeling like I pulled a muscle when I get an erection.


This crap is eating me up and it's really sad to me no one has any good solutions I'm doing everything and I mean everything I can but it's not enough and it's greatly affecting my life.  

[GaussRifle]

I understand how hard this can be , but from your tone it seems that you are stressing quite a bit. You have a supportive girlfriend, don't act like a maniac with her all the time or she's going to dump you ! As I have said earlier, walk through all the steps to treatments one by one to see what works for you.

Meanwhile don't stop having sex, please be creative, use a sex toy , a strap on, make sex fun again and for a change take pressure off your dick. Keep her happy, you'll be happy. Meanwhile you work through treatments step by step, if all else fails , might consider going for an implant like tartao looking at his amazing results. Whatever you do, please don't act crushed all the time with your girlfriend around, you are lucky to have one that supports you, I'm sure she'll be more than happy with you making the extra effort to please her with toys/ strap ons.... or even making it fun like it once used to be.  

[GaussRifle]

Also I don't know which dumb urologist you went to and why he dint prescribe you daily 5mg cialis.  but cialis kills peyronies pain, I and many other people on this forum have found this to be true and can vouch that our penis feels so much better, almost no pain and none of that pulled muscle feel , when we take cialis daily.  

[Mikel7]

Also I don't know which dumb urologist you went to and why he dint prescribe you daily 5mg cialis.  but cialis kills peyronies pain, I and many other people on this forum have found this to be true and can vouch that our penis feels so much better, almost no pain and none of that pulled muscle feel , when we take cialis daily.

Excellent advice - get on some daily cialis as it tends to cut down on inflammation. You need to get out of the worrying mindset. Don't eliminate sex, just try to be creative and gentle with it.  

[Hawk]

This condition is miserable for me I really hope things get better but this is my hell.

My gf is getting pissed cause Im consumed by this disease.

This crap is eating me up and it's really sad to me no one has any good solutions I'm doing everything and I mean everything I can but it's not enough and it's greatly affecting my life.

Read what you wrote.  Truer words have NEVER been spoken.  You should be able to clearly see that it is your mind that is ruining your life, not your dick.  Your GF won't leave because of your dick but no one can expect someone to spend their time with someone who is constantly complaining and too absorbed with themselves to care about anyone else.  You would not stay, and neither will she.  You need to be absorbed with her, not with your dick.

If you don't fix your mind, she will leave.  If she does, do NOT blame Peyronies Disease.  Blame you.  You cannot change that you got Peyronies Disease, but you can change yourself.

Here is the question of the day, maybe the question of your life.  What are you doing daily to change??

It is not a plan to come here to the psychology board and tell us how bad it is.  Do you want to change?  If so, reach out, and we will help you develop a plan.

[Curvekiller94]

I want change as in change it back to what I had I will likely never be happy this way

[20yo]

that is simply not true bro.
and it's coming from someone that has been devastated beyond how he could imagine by the mental toll of this disease.
but saying you will likely never be happy is just not true and everyone with some reason will tell you so.
you (and me) have to adapt to our new body. it's gonna take time and it's going to take work. hell, it might be one of the hardest things that we have to do in our lives.
but giving up already saying you will never be happy it's the easy way out, it's giving up.
it's not even about the penis, it's just a wrong mentality. you could apply it to any problem, and fck up your whole life because of a difficulty along the way.
there are surgeries, specialists, medication that can help you better your Peyronies Disease. there are many ways to improve your mental health, like meditation, exercise, the resources Hawk shared and so on. I'm sure you have people you could talk to about this and that might help you too.

I've been there, i had my "no hope" section of my life when i first was diagnosed. But eventually, like any phase, this ends and you end up wishing you didn't throw away everything else in your life too. I got behind in my uni exams but luckily i can still recover. I isolated from my friends but luckily I was able to build back the relationships that mattered.
So ye don't ruin your relationship with your gf and everything else, or you might end up with a functional dick (because of surgery or who knows what) but everything else ruined.

[Curvekiller94]

You're right man, I'm sorry I just don't know who to turn to and I've been asking docs for therapists and stuff and it's just taking forever to get in and peyronie specialist's cost 1500 bucks and I don't have insurance that works with them. You guys are right I'm trying to adjust, but it's excruciating for me mentally and painful physically. I know everyone is going through this on here so I'm not special or different than anyone else. I just can't believe this is forever and there is no light at the end of the tunnel which is the hardest part for me.

[Curvekiller94]

Just bit the bullet, scheduled an appointment with Levine for a consultation cost me $1615 which is like 1/4 of my net worth. Is that worth it? I guess what do these guys do differently?

[Hawk]

Find one thing you can improve in your life today that has nothing to do with Peyronies Disease.

Spend an evening with your GF thinking only about what would make a nice evening for her.  Do something to succeed in your personal or educational efforts.  Enhance a friendship or even initiate a new one.  Figure out what would be a pleasant surprise to your neighbor and do it.  There are dozens more you could do.  All of them will relieve stress, and relieving stress has physical rewards, not just mental ones,

Let us know what you decided to do and how it turned out.

[Curvekiller94]

I helped my parents get there house in order after having us over for an Easter holiday party the other day and I  started to clean my messy apartment I have really been letting it go lately. It felt good to get things in order a bit I will continue cleaning tomorrow. I also went for a walk with my parents dog  

[Hawk]

Curvekiller,

Do NOT underestimate those steps.  That was even better than I hoped for today. Enjoy seeing your progress, and when you are walking, try not to think of the past or the future.  Enjoy the moment.  These small things are the beginning of progress and a better frame of mind. Others will begin to notice, especially your GF, who deserves to see that you care enough to make small changes.

Keep us posted.

[Mikel7]

Curvekiller,

Do NOT underestimate those steps.  That was even better than I hoped for today. Enjoy seeing your progress, and when you are walking, try not to think of the past or the future.  Enjoy the moment.  

That is excellent advice! This is how I got through loosing my only brother in a car crash - enjoy what you are doing at the moment.  It is a mindset that you choose.  

[Hawk]

It is unavoidable that random thoughts will pop into your mind.  It happens to everyone.  An introduction to meditation taught me that I could let them pass right out of my mind.  I see them as literally being swept away from the left to the right side of my mental view, and the slate is clean again.  Soon another uninvited thought will pop up, and I repeat the process.  Like all things, it is something you get better at the more you practice.

We also often find that random thoughts cancel the simple things we enjoy (walking, nature, a hot shower, dish of ice cream). We allow them to intrude and literally occupy all of our capacity or bandwidth.  The next thing we know is that the activity has passed, and we were robbed of the enjoyment.  The same technique of letting those thoughts pass out of our mind assures that we can enjoy those moments.

These moments allow our minds to rejuvenate, rest, and heal.  They are as vital as sleep.

On the topic of finding a small task you can complete, here is a 95-second video well worth watching.  These are the seemingly insignificant things that successful, happy people use to make their day better. ---->https://www.youtube.com/watch?v=KgzLzbd-zT4