Condition confirmed!

[omgpleaseno]

I know this is the 'introduce yourself' page and I have already introduced myself in a previous post, but I am now introducing myself as an official member of the Peyronies 'club'! To be honest, I wish I didn't have to, but we are where we are!

So, I went to the urologist  today through a private Bupa insurance and I chose a urologist fairly local to where I live who lists Peyronies within his clinical interests (to be honest, there weren't many to choose from). Anyway, I showed him a couple of photos of my erect penis, showing the bend. He examined it flaccid and pointed out where there was some plaque - the cause of the bend. I couldn't feel it before, but when he showed me exactly where it was, it was pretty simple to feel.

He prescribed Pentox and Cialis and is recommending that I see a specialist in London who does the Xiaflex injections. He is also arranging for somebody to see me regarding sorting out a vacuum pump (VED). My insurance will not fund the injections, so I will fund them privately and direct any questions to that particular message board (plus, post my results back there too). He said that the NHS will most likely fund the VED device because I am type 1 diabetic. He said there is little point in even thinking about surgery at this stage and that this would really only be an option when things stabilise, which could be 12 months.

So, whilst I feel a sense of relief about the diagnosis and knowing what this is (pleased this forum is here too), I am now very worried about the 'marathon' I am about to engage in. I will post updates/questions on other boards from time to time.

[Mikel7]

So it sounds like you have a battle plan - that is great! Don't try to stress out and think and rethink things over and over - you will create more stress. Just stay the course one day at a time. Get a VED device that is good and affordable and follow the VED protocol from this forum. I find that there are members here who have been through exactly what I am currently going through. This gives me hope to know that I am not alone in this - and I will make it through. Why should I try to worry about tomorrow for what has not happened and may never will. There are a lot of great guys here with very interesting stories about there peyronies experience. Keep your chin up    Mike

[omgpleaseno]

Thanks Mike, much appreciated.

[Hawk]

This topic is, locked.  Members get only one topic on this board with up to 10 replies.  This rule applies to everyone.

Please continue to post on the main forum below.  Post your questions and comment under the appropriate topic where more members will see your posts.  If you need help with using the forum, contact me.  I do NOT answer Peyronies Disease questions by PM.