Peyronies Society Forums

Please login or register.

Login with username, password and session length
Pages: [1]   Go Down

Author Topic: What is the reason you don't do it?  (Read 847 times)

0 Members and 1 Guest are viewing this topic.

orriw

  • Voting Member
  • **
  • Country: de
  • Offline Offline
  • Gender: Male
  • Posts: 64
What is the reason you don't do it?
« on: April 02, 2021, 02:35:38 PM »

Hello,
as same as me, many here are really bothered by the condition.
I want to know why so few do surgery.
Of course there is the shame factor but is it really that?
Or is it possible penis size reduction, Erectile Dysfunction, or that surgery can bring no results?
What is the current standpoint of surgeries anyway? Do they have a high success rate? I am really annoyed by this crap and could probably get myself to do it.... i wouldnt care about a little length loss, if Erectile Dysfunction im just gonna take some pills for the rest of my life. What i want and care about is reversing curvature and no more pain. So, in my situation, would you consider doing it or is sugery no good solution too? (Chosing an experienced doc of course)
Logged
Injured early 2018
Reinjured late 2019 when having sex with not full errection
Congenital curvature to the bottom, with Peyronies Disease additionally penis torsion to the left.
Pain since injury (never left) after sex, bad food....
Trying different stuff now.

Wilson

  • Solid Contributor
  • ***
  • Country: ru
  • Offline Offline
  • Gender: Male
  • Posts: 103
Re: What is the reason you don't consider surgery?
« Reply #1 on: April 02, 2021, 06:13:32 PM »

Hi, I would undergone the surgery, but stupid Covid closed the borders to many countries - feeling stuck inside own house, 2) expensive surgeries as many peyronie sufferers don’t work as it too hard to focus on a job, so we don’t have enough money to travel to expensive countries like the USA, 3) It’s very hard to get the american visa as again, you need to show the money on your balance and proof that you are not going to stay there forever. 4) We can not reach the famous peyronie specialists as they have a crap websites, which doesn’t reply on our requests, or at least their websites rarely answers and it’s very hard to call to their offices from our mobile phone as it’s expensive and real hassle with the connection during the international calls. So, that’s why we can not to do that at this stupid Covid times. Sincerely.
Logged
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

orriw

  • Voting Member
  • **
  • Country: de
  • Offline Offline
  • Gender: Male
  • Posts: 64
Re: What is the reason you don't consider surgery?
« Reply #2 on: April 02, 2021, 06:39:50 PM »

Got it , so it sounds for you surgery is an option you would chose, but cant get to a good surgeon and dont have the money for it but you believe in the treatment itself. Right?
Some more?
Logged
Injured early 2018
Reinjured late 2019 when having sex with not full errection
Congenital curvature to the bottom, with Peyronies Disease additionally penis torsion to the left.
Pain since injury (never left) after sex, bad food....
Trying different stuff now.

Wilson

  • Solid Contributor
  • ***
  • Country: ru
  • Offline Offline
  • Gender: Male
  • Posts: 103
Re: What is the reason you don't do it?
« Reply #3 on: April 02, 2021, 07:23:56 PM »

Orriw, If to undergone only with Dr Levine or B Christine, why not? I talked here with some people who undergone the surgery with these two peyronie specialists and seems happy. I trust these people from our main forum as they are serious old men and serious old aged men will not lie related to the surgery, I hope. Also, be careful with unchecked famous peyronie specialists as some young people here claimed that they had a happy surgery with them and pretend to be happy, but when you ask them too many serious questions and they starting to act very weird like in reality they are very unhappy with their results and prefer to hide it. So, I will try only checked specialists either Levine or Br Christine. Recently, I talked with legendary peyronie specialist - Tom Lue, but he became too old for urology science and this clown wasted my 651$ for his stupid video consultation and now I don’t have money to put on my mobile phone balance to call to USA or even to buy a coffee. So, I regret having wasted my money on this clown. Hope, it’s temporary and I will get some money from my friends soon. In addition, I also was in Serbia and talked with kind Professor Miro, he is a gender surgeon, not a peyronie, however I decided to talk with him and afterwards I started to doubt a bit regarding him as he didn’t completely check me and didn’t answer on my questions properly. I asked him if it’s possible to return my old member or at least similar and he gave me a weird answer: “I don’t know your old member.” So, after such “philosophical” words, I don’t want try with him and by the way, the Serbia is a poor racist country, which brags with Nikola Tesla electric inventor, but in a reality the Serbia is a medieval racist country. So, I consider only two american peyronie specialist either Dr Levine or B Christine. Hope, my detailed answer will help. Sincerely.
Logged
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Daremo

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 89
Re: What is the reason you don't do it?
« Reply #4 on: April 02, 2021, 10:39:54 PM »

When I first noticed the pain, then the lump, then the hourglass and then the 85 degree hinge, I panicked. I searched the internet for answers, and it was clear to me I had Peyronies. I finally was able to see my regular Urologist via a Tele Visit during covid, who confirmed my self diagnosis, and referred me to Dr Levine.

I immediately looked at the solutions, and made the huge mistake of watching the surgery online. I panicked and said "[email protected]< this, I will never do this. I'd rather live with the bend and the pain then have THAT done to my dick!"

I saw Levine, and after the initial visit, it was clear surgery was my only option.

I wasn't going to do it out of fear. I did it. 7 weeks out of surgery and still healing. Would I do it again? Ask me again in 4 months.
Logged
49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

porterrobinson

  • Voting Member
  • **
  • Country: england
  • Offline Offline
  • Gender: Male
  • Posts: 58
Re: What is the reason you don't do it?
« Reply #5 on: April 02, 2021, 10:49:09 PM »

because of significantly below average penile length before i even got the disease so cannot afford to lose a single mm
Logged
single, mid 20
diagnosed early 2020
indentation 20 degree bent to left and now very severe Erectile Dysfunction for weeks
tried vacuum device with no success

porterrobinson

  • Voting Member
  • **
  • Country: england
  • Offline Offline
  • Gender: Male
  • Posts: 58
Re: What is the reason you don't do it?
« Reply #6 on: April 03, 2021, 10:33:01 AM »

second reason is that europe is a genuinely trash continent and there is zero experts in the field. i personally have seen made self proclaimed andrologists and i respect none of them, indeed i have nothing but disrespect for them. theywqy they treat their patients and the desinterest and lack of care should actually be punishable by law. who would want them to operate on their penis? i definitely don't, i would rather spend 30 thousand to fly to US get a decent opinion there and then do surgery there as well. iwould take out a loan for that even though the surgery would be covered by insurance here the lack of competency of european androlgogists when it comes to peyronies can NEVER be overstated. britainand germany are most certainly no exception in fact i have seen many doctors in both countries and they are genuinely laughable
Logged
single, mid 20
diagnosed early 2020
indentation 20 degree bent to left and now very severe Erectile Dysfunction for weeks
tried vacuum device with no success

john.doe.550

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 50
Re: What is the reason you don't do it?
« Reply #7 on: April 16, 2021, 01:09:36 AM »

Q: What is the reason you don't do it?

A: My condition started out pretty bad.  Two reasons I've not done surgery, yet.
1) have received many xiaflex injections in effort to provide best conditions for future plication surgery (with secret hope that xiaflex will fix it "good enough" to forego surgery). Will say, there's been some tremendous results with xiaflex and I'm getting toward the point that surgery is in the not too distant future
2) I am unhappy with prospect of losing length  :-[
Logged
Age: 62;  Peyronies Disease diagnoses: MAR 2019;  Onset: Immediate & severe;  Treatment: Xiaflex, APR 2019 to present, slowly improving w/ much more to go. Notable Xiaflex improvement through late DEC 2020.  Increasing Xiaflex improvement in early 2021.

TDix

  • Global Moderator
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 867
Re: What is the reason you don't do it?
« Reply #8 on: April 16, 2021, 03:09:17 AM »

I have done Xiaflex and ended up with a fracture.  I have had 2 surgeries, excision/grafting, and implant....those were a cakewalk compared to my Xiaflex experience
Logged
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Ontheroad

  • Voting Member
  • **
  • Country: ch
  • Offline Offline
  • Gender: Male
  • Posts: 9
Re: What is the reason you don't do it?
« Reply #9 on: April 16, 2021, 03:41:15 AM »

Serbia is a poor racist country, which brags with Nikola Tesla electric inventor, but in a reality the Serbia is a medieval racist country. So, I consider only two american peyronie specialist either Dr Levine or B Christine. Hope, my detailed answer will help. Sincerely.

Wilson are you in Serbia? Have you talked to Dr. Djinovic? I’ve seen some pictures of people that underwent surgery with him and they have had great results! Why not setting a consultation with him?

 
second reason is that europe is a genuinely trash continent and there is zero experts in the field. i personally have seen made self proclaimed andrologists and i respect none of them, indeed i have nothing but disrespect for them. theywqy they treat their patients and the desinterest and lack of care should actually be punishable by law. who would want them to operate on their penis? i definitely don't, i would rather spend 30 thousand to fly to US get a decent opinion there and then do surgery there as well. iwould take out a loan for that even though the surgery would be covered by insurance here the lack of competency of european androlgogists when it comes to peyronies can NEVER be overstated. britainand germany are most certainly no exception in fact i have seen many doctors in both countries and they are genuinely laughable

Can you explain more about the doctors you have visited? Dr. Ralph in the UK? Dr. Osmonov in Germany? Please explain a bit more because I’m also in Europe and looking for a doctor
Logged

Wilson

  • Solid Contributor
  • ***
  • Country: ru
  • Offline Offline
  • Gender: Male
  • Posts: 103
Re: What is the reason you don't do it?
« Reply #10 on: April 16, 2021, 01:05:23 PM »

Ontheroad, Hi friend. According to russian medical sources with reviews, Dr. Djordjevic is considered better than Dr. Djinovic. However, I read the eyes of Miro Djordjevic and understood that all these serbian doctors more focus and love only transgender people rather than peyronie sufferers. It’s disgusting, because a doctors should focus and love all patients regardless the diagnosis, though their websites claims that they love all patients. By the way, they don’t answers on the questions related to surgery properly as they are orthodox and depends on God’s will. So, I want to go to the USA and If I can’t get the american visa, probably I will come back to the medieval Serbia, though I doubt about this option. 2) I don’t recommend you to go to Serbia during pandemic as you will stuck there, until you pay 200 euro for PCR-test in Serbian Government Hospital for your home flight. Sincerely.
Logged
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

mst1622

  • Voting Member
  • **
  • Country: nu
  • Offline Offline
  • Gender: Male
  • Posts: 98
Re: What is the reason you don't do it?
« Reply #11 on: April 16, 2021, 06:49:47 PM »

Wilson are you in Serbia? Have you talked to Dr. Djinovic? I’ve seen some pictures of people that underwent surgery with him and they have had great results! Why not setting a consultation with him?

 
Can you explain more about the doctors you have visited? Dr. Ralph in the UK? Dr. Osmonov in Germany? Please explain a bit more because I’m also in Europe and looking for a doctor

Check Georgios Hatzichristodoulou. He co-operate with UCI Health in Orange County where dr Gelman works.

He published also some research about treating peyronies patients or those with congenital penile curvature.

https://www.researchgate.net/search?q=Georgios%20Hatzichristodoulou

https://kh-nuernberg.martha-maria.de/de/urologie
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

Benjamin62

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 88
Re: What is the reason you don't do it?
« Reply #12 on: April 24, 2021, 02:11:25 PM »

Every case is different.  But I had Plication with Brian Christine.  Simple and fairly easy to recover from a 45 min out patient procedure. 

There is no Shame either with with the condition itself of with surgery.  We are just human.  Watch NeoMan on YouTube “you are not your penis”... to help you with confidence in this area.
Logged

sky43diver

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 62
Re: What is the reason you don't do it?
« Reply #13 on: April 25, 2021, 03:54:39 PM »

@porterrobinson, what makes you think that all urologists in Europe are no good? We have some of the best in the world in my opinion.
Logged
55 years old 5 months post op LUE procedure with Prof Ralph in London to fix 90 degree bend to left. Currently doing Traction and VED to gain back 2 inches lost in length, which is going well. Taking daily Cialis and having great erections and sex.

bustedchubb

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 247
  • Month to month, not day to day...
Re: What is the reason you don't do it?
« Reply #14 on: April 25, 2021, 04:11:26 PM »

I, like Benjamin62, am having plication with Dr. Christine in mid June after I suffered 18 months with this crap condition.  I've made great progress with traction to get me to where plication was a good option and I'm going for it.  I'll definitely update all after its done and over with.
Logged
43 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, ~50 deg bend up, lost length and girth top half (hourglassing).

Underwent Plication with Dr. Christine in Birmingham AL on 6/17/2021. Recovery in progress

Hawk

  • Bionic Penis 22cm Titan - Dr. Eid 8/7/18
  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 5843
    • Peyronie's Disease
Re: What is the reason you don't do it?
« Reply #15 on: April 25, 2021, 10:56:07 PM »

So you are OK with the loss of length associated with plication?
Logged
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Jack1909

  • Major Contributor
  • ****
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 583
Re: What is the reason you don't do it?
« Reply #16 on: April 26, 2021, 06:26:47 AM »

here my two cents, people are super frightened off from the idea of losing some lenght and that keeps them away from surgery. Funny thing is they are taking the good decision by following the wrong purpose. I mean, most of the people can have what they lose from surgery back with traction. On the contrary the real risk is getting Erectile Dysfunction from it, maybe severe and not respondant to meds, losing sensation with no guarantee of getting it back. No mention to the curvature recidive..

Even funnier is, paradox kind of, straightening surgeries are accounted to be a candy when they may give you more complications than  an implant.

I was speaking with an andrologist some days ago and he said me most of the people undergoing straightening surgeries deal with some degree of Erectile Dysfunction.

Logged
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe Erectile Dysfunction after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

bustedchubb

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 247
  • Month to month, not day to day...
Re: What is the reason you don't do it?
« Reply #17 on: April 26, 2021, 07:59:47 AM »

Yes, I am ok with the loss of length.  I gained about an inch back with the Restorex use, so if I lose that and a little more and end up straight, I'll be more than happy.  Once again, these are all personal decisions that have to be weighed at the time of making decisions.
Logged
43 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, ~50 deg bend up, lost length and girth top half (hourglassing).

Underwent Plication with Dr. Christine in Birmingham AL on 6/17/2021. Recovery in progress

Zombiereign

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 6
Re: What is the reason you don't do it?
« Reply #18 on: May 14, 2021, 12:58:21 PM »

Besides the concern over losing length, there is also the worry about WHO is doing the surgery.   I was referred to "a very good urologist" for xiaflex injections, and I was handed off to a nurse practitioner who actually did the injections.  Since there was no improvement after this, I worry about allowing anyone from this same practice to do something that is potentially even more damaging.   
Logged
47 years old
70 degree upward curve
completed 4 cycles of xiaflex / daily restorex (no change)
Pages: [1]   Go Up
 

Related Topics