intro 48 male 15+yrs ed now a drastic curve

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Waveboy

hello everyone

just getting started with my own page. my wife has been reading me all the post for a bit now. so im taking the plunge and starting my journey.

ps. i don't do grammar :)

ok i needed to modify my message some.  i have been dealing with Erectile Dysfunction for years more pre ejaculation and loss of tone n stamina, but kept moving along with trying meds  then they stopped working about a year or 2 ago. then 8 months ago noticed a curve in my penis mild but it was there n i was like what now. then the last 4 months curve went from 30 degree bend to more like 80 plus. which made sex impossible while made me panic and shut down to blaming. So just lost and learning now. seeing the treatment and fixes scare the crap out of me due to me being a hemophiliac.
so my journey begins  
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Stabler

Hello and welcome to the forum! If you can share some of your history with us we will be happy to help with whatever questions you may have.

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Hawk

Welcome to the forum Waveboy!  I sincerely hope we can help you with the information and the support you need.  I know you and your better half read the Survival Guide together, which is awesome.  That alone has me cheering for you.

My understanding is that hemophilia will eliminate Pentox, and probably Xiaflex injections, as treatment options.

That leaves the following non-invasive treatments.

I would start VED and Traction to prevent a further loss of size.  I would hope for some possible reversal and maybe even some improvement in erections.
I would take all of the recommended supplements.
I would investigate possible hyperbaric O2 therapy
I would throw in some heat therapy

I think your best option with Erectile Dysfunction and significant bend is really going to be an implant by a top, very experienced surgeon who will not be rattled with your hemophilia and do less than a stellar job with your implant.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Mikel7

Welcome to the forum Waveboy!  Nice screen name.  Here you will find a nice community of guys who are dealing with some form of peyronies.  :)  Mike  
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Waveboy

Thanks for the support. Mind is all over the place and learning how to navigate this page. Thankful for it. Several issues going on do I need to post each issue in each bracket? I know that's probably a duh answer but my mind trying to take all this in.
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

GaussRifle

Waveboy, you will find on this forum plenty of young men in their 20s and 30 s with this horrible condition. Take myself for example..... we are single, in the prime of our lives and unable to have sex. We don't have a loving partner either like your wife. Consider yourself very fortunate..... and don't give up. Know that their are so many other men out there who had it worse than you and are still doing all they can to help themselves. Trying out each treatment step by step till we succeed.  
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Waveboy

Yes I am very thankful and blessed for my wife and support no doubt in that! Learning on this site about all of the others including yourself helps me get a better grasp that I'm not alone and there is hope and I am grateful for that
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Pfract

Welcome! by pre ejaculation, you mean... ejaculating under 2 minutes or less? What medications and solutions have you tried? You have a couple of problems there and you should do your best to try and stay pro active about them. Ignoring this is never the solution!

Do you have a sexual medicine doctor that you go to? are you seeing somebody in the medical field?

Hawk

Premature orgasm/ejaculation can be treated behaviourally with several techniques, but one thing that helps is very low-dose Trazadone.  Half of a 50 mg tablet with a little snack for absorption is often prescribed for sleep.  It has 2 other great side effects.  One is NTE's, and the other is delayed orgasm, which can be great or not so great if you have trouble with orgasm.

You are only taking half of the lowest dose pill.  It is an old drug, but ten times that amount was prescribed for depression. This dose will have zero effect on depression.

The other great thing is that it is dirt cheap.  Almost anyone can ask a doctor to prescribe it for sleep, and they will.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Pfract

I second hawk and I add that there are more medications than that one.  

Waveboy

Yes, to the less than 2 mins and correct on premature ejac. Sorry not good with the grammar. The premature has been since teenager. Tried numbing sprays. Phycologists. Meditation and medication n no changes on that. Then in upper 20s low 30s started taking much longer between rounds to recover and once recovered, couldn't keep strong without overstimulation, then ejac happen n right back to the damnit stage. Then tried all the meds  Drs would prescribe n things sex shops had to offer. It would get it up, but premature ejac happen even before I got In to start sex. and between round recovery was faster, but the outcome the same. Then early forty's happened, and nothing helped. Just that's right,! Emotionally almost broke n excepting it and my wife supporting me through all it! Thankful for that for sure. This damn bend started, and then loss in length and girth started n nighttime erections decreased in frequency and stamina. WTF!!!!!! So I'm learning how to read about all this and talk about it, and praying for a fix!
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Hawk

This is a cut & Paste from your wife's topic.  I am sure you saw it.  I just want to remind you.

Applying what I have learned in the past 16 years, I I had both Erectile Dysfunction and Peyronies Disease at age 48, this is what I would do.

I would start with non-invasive means:
I would start gentle VED and Traction to prevent a further loss of size.  I would hope for some possible reversal and maybe even some improvement in erections. (if not contraindicated with hemophilia.
I would take all of the recommended supplements
I would try to get a Pentox prescription
I would investigate possible hyperbaric O2 therapy
I would throw in some heat therapy

All of these things show some promise in some individuals.  None of them are likely damaging to his penis or his general health. Approaching from all angles has some chance of success.
I would simultaneously be considering the very top implant surgeon you can access.  By the time you settle on a surgeon and book an appointment, you will know if the non-invasive methods improved things to a level of acceptability.  If not, I would continue them as I proceeded to schedule surgery.

The likelihood that non-evasive means will correct both Peyronies Disease and Erectile Dysfunction enough to make sex satisfying is not great, but it is possible.  If it doesn't, then nothing but a properly installed inflatable implant is going to fix it all.  The good part is that it can be done with one outpatient surgery with the potential to have intercourse within 3 weeks of surgery.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Hawk

This introductory board is just for introductions.  Each new member gets one topic here with no more than ten replies.

As such this topic is locked.  Please continue to post under the appropriate boards below on the main forum.

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums