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Author Topic: Started Xiaflex Today  (Read 457 times)

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glamrox92345

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Started Xiaflex Today
« on: April 01, 2021, 07:26:33 PM »

Hey all,
Had my first shot of round one today. I was quite nervous but the doctor was really calm and that made it so much better. Shot two of round one comes Monday. Will keep everyone posted on the progress.
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Age 44 Had symptoms about six months now. Officially diagnosed by a urologist about two months ago. Taking vitamin E supplements until next visit which is in about four months.

GaussRifle

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Re: Started Xiaflex Today
« Reply #1 on: April 02, 2021, 04:01:48 AM »

Great.... I’m scheduled to have my first shot about 3 weeks from now.
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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

mikel7

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Re: Started Xiaflex Today
« Reply #2 on: April 02, 2021, 04:29:56 AM »

I have been contemplating this - keep us updated. :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

john.doe.550

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Re: Started Xiaflex Today
« Reply #3 on: April 08, 2021, 01:32:03 AM »

HI, the 3 of you that posted above me my be interested in the exchange between a NorCAL forum member and me (SoCAL member).  We shared a lot about our xiaflex injections in another current thread.  I wanted to alert you because you 3 are just starting injections and have questions that are answered by us.  If you are interested, then please use this forum hyperlink: https://www.peyroniesforum.net/index.php/topic,15065.0.html

Oh, and best of luck and hope it works well for you!
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Age: 62;  Peyronies Disease diagnoses: MAR 2019;  Onset: Immediate & severe;  Treatment: Xiaflex, APR 2019 to present, slowly improving w/ much more to go. Notable Xiaflex improvement through late DEC 2020.  Increasing Xiaflex improvement in early 2021.

glamrox92345

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Re: Started Xiaflex Today
« Reply #4 on: April 08, 2021, 07:15:00 PM »

Hey guys,
So had second injection of the first cycle on Monday and in office modeling on Wednesday. Did see quite a bit of swelling and irritation for second injection but from what I've read I expected that. Relatively no pain just slight discomfort. Yesterday the doctor did the in office modeling exercise. Just did my first 3 30 second penile stretches today at home. Will hopefully start with Restorex again by tomorrow or Saturday at the latest. Just want a little more swelling to go down. All in all, a smooth first cycle. Hopefully some of this stuff will break up over the next six weeks. Keep everyone posted when I meet with the doc in six weeks to see about the next cycle.
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Age 44 Had symptoms about six months now. Officially diagnosed by a urologist about two months ago. Taking vitamin E supplements until next visit which is in about four months.

male_patient

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Re: Started Xiaflex Today
« Reply #5 on: April 29, 2021, 11:24:48 AM »


Did the injection hurt?    I was screaming bloody murder during mine.  I never felt pain like this in my life in both sets of injections.  As a grown man, I was sobbing as I was exiting the office. Is this absurd pain normal when injecting?
thnx 
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57,Peyronies started in 2018 with pebble size hardening, but no curvature. Late 2020, sudden (within  weeks) 50-60 degrees of upward bend and hourglassing while erect.  1 round Xiaflex without numbing, without ultrasound, without endused erection

glamrox92345

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Re: Started Xiaflex Today
« Reply #6 on: May 20, 2021, 05:50:26 PM »

For me the injections didn't hurt but the numbing injection hurt like crazy. The first one wasn't as bad but the one for round two of the first cycle and then when I went back two days later for modeling it was even worse because the area was so tender from two numbing injections already but surprisingly I guess no pain from the actual Xiaflex injection.

I go tomorrow to meet with my doctor about round 2 injections. It's been roughly six weeks since injection 2 of round one. It seems to me that the curvature has went down a bit so I am encouraged at least that we are going in the right direction. Will post again as round 2 progresses here tomorrow and through next week.
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Age 44 Had symptoms about six months now. Officially diagnosed by a urologist about two months ago. Taking vitamin E supplements until next visit which is in about four months.

mikel7

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Re: Started Xiaflex Today
« Reply #7 on: May 21, 2021, 05:57:26 AM »

So you do notice some reduction in your curvature - tha's great!  Can you gestimate just how much?
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

glamrox92345

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Re: Started Xiaflex Today
« Reply #8 on: June 03, 2021, 07:05:56 PM »

I went to see the urologist and I was right the curvature is down which is great. During the Doppler a few months back he had me at a 55-60 degree curvature and now I’m looking at about 35 degrees so definitely improvement. Now I have to get over my mental block and attempt sex with my girlfriend as the doctor is encouraging. Masturbation is successful so that’s the next step. He said I still qualify for round 2 since I’m over a 30 degree curve but he left it up to me. At this point I think I want to do another round. Thoughts?
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Age 44 Had symptoms about six months now. Officially diagnosed by a urologist about two months ago. Taking vitamin E supplements until next visit which is in about four months.

PeteNYC10003

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Re: Started Xiaflex Today
« Reply #9 on: June 07, 2021, 12:40:22 PM »

You responded so well to one round, I'd go for it.
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LWillisjr

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Re: Started Xiaflex Today
« Reply #10 on: June 07, 2021, 01:20:55 PM »

Based on current Xiaflex results, that is pretty significant after only one injection.
Auxilium Pharmaceuticals will be seeking you out to make commercial :-)
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History

glamrox92345

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Re: Started Xiaflex Today
« Reply #11 on: June 13, 2021, 11:23:57 AM »

I was using traction before round one and somewhat so after round one so not sure how much traction helped with the curvature versus Xiaflex. Xiaflex certainly helped reduce the curvature but again not sure if traction assisted as well as I didn’t consistently check the degree of curvature. I just went off the original number when he did my Doppler and then the number about a month after the first injections. At this point I’m set up for round two at the end of August. I anticipate that to be my last round. I’ll keep everyone posted.
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Age 44 Had symptoms about six months now. Officially diagnosed by a urologist about two months ago. Taking vitamin E supplements until next visit which is in about four months.
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