New Plague from Restorex? Should I stop?

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funpanda

I have been using RestoreX for almost three weeks now.

Having trouble keeping the head/glans clamped unless it is very tight. I have contacted RestoreX before and besides telling me which settings there are, basically I had to clamp harder for it to work. I am not sure if that contributed to my current problem but... my problem now is that I see a second curve forming or already formed right underneath the head/glans now.  My previous curve is two inches from the head/glans. This is obviously very upsetting as my first curve haven't really improved and now a second one is forming from what I assume is from the counterbending of RestoreX.

Should I stop using RestoreX altogether or at least use it for straightening? I think I read a few posts here with people with similar experiences.  ​

Unfortunately my appointment with my urologist is in August so I am not sure if I should continue with traction.
Age: 31
1st symptoms date: random morning November 2020 but no physical injuries caused this
Treatment trying: RestoreX, Manual stretching, vitamin E, CoQ10
Deformity: 40 degrees diagonal left/up, hourglassing, girth/length loss

CAD

It's not uncommon for the disease to progress with or without traction. That's not to say traction doesn't have positive benefits. I think it does if one is careful and doesn't overdo it.  
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20yo

i visited many specialists and they all talked against traction
20 yo, Peyronies Disease 2020(55 degrees down) + congenital curve
loss of length, stable erection, sensation. hourglassing
antioxidants, hyaluronic acid injected & oral, maybe Yachia in future
Recently started VED 2x a week
Still wants sex and a relationship

GaussRifle

My urologist strongly recommended to continue with traction to preserve length.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Hawk

Quote from: 20yo on March 30, 2021, 04:19:27 PM
i visited many specialists and they all talked against traction

Specialist in what?  Certainly not specialists in Peyronies Disease.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Hawk

Quote from: gaussrifle on March 30, 2021, 04:50:52 PM
My urologist strongly recommended to continue with traction to preserve length.

So it sounds like there are some helpful, good urologists out there.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

knowledge81

Quote from: funpanda on March 27, 2021, 06:38:03 PM
I have been using RestoreX for almost three weeks now.

Having trouble keeping the head/glans clamped unless it is very tight. I have contacted RestoreX before and besides telling me which settings there are, basically I had to clamp harder for it to work. I am not sure if that contributed to my current problem but... my problem now is that I see a second curve forming or already formed right underneath the head/glans now.  My previous curve is two inches from the head/glans. This is obviously very upsetting as my first curve haven't really improved and now a second one is forming from what I assume is from the counterbending of RestoreX.

Should I stop using RestoreX altogether or at least use it for straightening? I think I read a few posts here with people with similar experiences.  ​

Unfortunately my appointment with my urologist is in August so I am not sure if I should continue with traction.

That clamp put me off buying, looks brutal, inconvenient and how does clamping the head NOT stop bloodflow? I do manual, but I am 1 year in. I think this is key with any injury: if you have just pulled yr hamstring, first you need to wait until things have calmed down then you start massaging and gentle stretching to get rid of scar tissue. If I were you, I would do stretching and massaging, but gently. Right now I am doing 10 seconds each way on compass, then 20, then 30. That is week 1, next week I will add 40 seconds on there and keep increasing it every week. This seems logical to me. And of course warm it up before hand as any other muscle injury.
Age: 42
Diagnosed: July 2020
Shape: 45° up (plaque on sides & top)
Treatments: ESWT
Supplements: L-Citrulline, French Maritime Pine Bark Extract.

Nolte94

Most urologists are against traction, because they don't know as much as most of us about the PTT with Peyronies Disease.
Only 1 of 4 visited "specialists" mentioned traction in my case, but all recommended Potaba, which is the only approved drug for Peyronies Disease in Germany, but has no proved benefits.
Restorex, PMP and Phallosan are the devices, which work and for example the multimodal treatment works for me very well.  
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

knowledge81

Quote from: Nolte94 on August 08, 2021, 03:06:12 AM
Most urologists are against traction, because they don't know as much as most of us about the PTT with Peyronies Disease.
Only 1 of 4 visited "specialists" mentioned traction in my case, but all recommended Potaba, which is the only approved drug for Peyronies Disease in Germany, but has no proved benefits.
Restorex, PMP and Phallosan are the devices, which work and for example the multimodal treatment works for me very well.

I'm glad you have found something that works. Which device would you recommend for someone with indentations around base and 45° bend to left? Thanks.
Age: 42
Diagnosed: July 2020
Shape: 45° up (plaque on sides & top)
Treatments: ESWT
Supplements: L-Citrulline, French Maritime Pine Bark Extract.

Nolte94

I can only recommend, what I am using on myself and that device is listed in my signature.
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

dannys1s1

I was using Restorex for about 6 months consistently but after speaking with Dr. Eid recently, he said there was no value in Restorex and PTT as the stretching of the penis it provides is not benefiting length size gains since the plaque is not being stretched only the soft tissue so the restricting of the size growth is not changed.
Age 63
Had Peyronies disease w/45-degree bend from using Quadmix for 2 years for better sex
4 rounds of Xiaflex.  1-2" length loss (surgery may correct)
Titan Implant 10/21. Surgery by Dr. Valenzuela
Included TEP and Grafting.

GaussRifle

Are you sure dr.EID said that ? It seems very weird if he did actually say that given there are many studies on PTT and it's role in remodeling the plaque. If what he is saying is true, it means neither PTT, nor VED , nor an implant can expand the plaque but only the soft tissue.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

dannys1s1

I was off-set when he said that, this was about two ago.. Again it was clearly his words not just my interpretation. Is he the final word that remains to be seen. I am in a holding pattern so any opinions or discussions would be great.
Age 63
Had Peyronies disease w/45-degree bend from using Quadmix for 2 years for better sex
4 rounds of Xiaflex.  1-2" length loss (surgery may correct)
Titan Implant 10/21. Surgery by Dr. Valenzuela
Included TEP and Grafting.

knowledge81

Quote from: dannys1s1 on August 11, 2021, 08:04:05 PM
I was using Restorex for about 6 months consistently but after speaking with Dr. Eid recently, he said there was no value in Restorex and PTT as the stretching of the penis it provides is not benefiting length size gains since the plaque is not being stretched only the soft tissue so the restricting of the size growth is not changed.

After using for 6 months, you saw 0 improvement? From everything I have read, it helps more than most people reduce curvature by half. Doctors always go by the book so I never 100% trust what they say to be gospel.  
Age: 42
Diagnosed: July 2020
Shape: 45° up (plaque on sides & top)
Treatments: ESWT
Supplements: L-Citrulline, French Maritime Pine Bark Extract.

Nolte94

My own experience with PTT shows, that it works. I combined it with VED, the most recommended supplements and Tadalafil.
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

markdubby

same here, i had 3 plaques and 3 curvatures come up since february. thanks to traction the curvature from the first 2 plaques are gone, only one at the base left which is slowly but steadily improving.

i think traction is actually the most important tool against the disease (more than supplements etc)
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
10 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PM

Zappa

I found there to be a learning curve with Restorex. After a couple weeks, you should settle into a good routine. I have not measured my curve, but it looks better anecdotally. Could be wishful thinking. I did notice an improvement on length. I recommend it and am about to combine with a vacuum device and a trip to qualified Urologist for proper diagnosis.

I have an upward and left curvature, currently too extreme to have normal sex.
Mid 50's, married,
Unknown trauma with 90-degree curvature 
Implant Surgery Date: 11/21/22, Coloplast Titan Touch Implant, Dr. Tarik HakKy

knowledge81

Quote from: Nolte94 on August 12, 2021, 04:58:45 AM
My own experience with PTT shows, that it works. I combined it with VED, the most recommended supplements and Tadalafil.

What do you do in the way of exercise and healthy food = low carb diet? Cut out sugar? Alcohol?
Age: 42
Diagnosed: July 2020
Shape: 45° up (plaque on sides & top)
Treatments: ESWT
Supplements: L-Citrulline, French Maritime Pine Bark Extract.