Yes, No, Maybe so?

[Chatnoir]

In the last 3 weeks, life has been completely turned upside down. On Friday 3 weeks ago, I was getting aroused and going to masturbate and I take out my dick and what I see is completely out of the ordinary. Its normal thickness at the base then suddenly in the middle there is a constriction that considerably narrows the girth and from that point up it continues in the thinner size.

Thinking I've just caught things in a transition phase, I tried to get an erection and couldn't. Things felt different. I was so distressed that I gave up. I took a couple of days off and tried again. Still the same issue in the semi-erect phase, but I was able to get erect and everything looked normal. I immediately contact my doctor to see him about this.

Primary care doctor indicates Peyronie's disease.  "A lot of times it resolves itself" (now I'd ask what resolves itself? pain, curvature, the entire condition??).  

I schedule a urologist appointment for the next week. At this point erections are impossible. Clearly physically but also mentally. The urologist I saw next said he 'would never give to another patient again' after seeing the recovery from the injections, the pain and downtime involved versus the outcome compared to the condition prior to the treatment.

The urologist says that it is not Peyronie's. "If the symptoms aren't present when erect then it's not Peyronie's". OK. So what then explains what's happening? The answer: "once you hit 40 things start falling apart".  If not Peyronie's, then what is it? Absolutely no one so far has any idea. I have another appointment with a different urologist to which I will present the symptoms and situation and see what he has to say.

Whatever the case may be, the facts as of right now are:
-getting and maintaining an erection is very difficult, if it happens at all (tried this evening and nothing)

-with the hourglassing/bottlenecking that happens I have lost noticeable length and girth

-the penis that I once had pride in is now generating shame

-I am seeing a therapist weekly for the fear/anger/sadness/grief/shame/humiliation/depression/anxiety that is the norm all day everyday at the moment

-I don't know how to not see this as completely life altering and defeating

Sometimes I believe the urologist that it isn't Peyronies Disease and that it is something that will heal on its own.  The side of me says that I'm in denial and that as I've read on several forums "acceptance is the best treatment".

Shock and disbelief is putting it mildly.

"But there are other kinds of sex!"

"If someone really likes you then what your penis is like won't matter"

"You should really think more positively"

"I'm sure it's nothing"

"Don't you think you're being a little melodramatic about this?"

I've heard all of these in the last 3 weeks. It is patronizing and insulting for me to hear that my penis becoming smaller and deformed isn't a life changing event. I frankly see myself isolating indefinitely. Even with a normal and fantastic penis, dating and sex where challenging and frustrating. At least I could please myself. Now that is even off the table. I'm not sure what to think or do at this point.

[Godisreal]

It's all about adaption & mindset.. You SHOULD be grateful that you got to have a healthy penis for such big part of your life. I didn't even turn 20 before my problems started.
It was and is devastating, just as it is for everyone else; but it's all about adaption since you will most likely recover from this disease to a certain extent.
It's the most challenging disease for a male to have. That is a fact.
Which means that you can prosper further and better than anyone else who does not have this condition.
You will probably never return to your pre-Peyronie's penis, but that's more than ok.
You will still have satisfying sex in your life, in time.
Most importantly, don't let it consume you.
Check out all the treatments that has been discussed and do not waste no time.

Sincerely,
GIR

[Mikel7]

Welcome chatnoir77 the first thing you should do is to read and then re-read the survival guide --> https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057  This will help you out and is a great beginning point. This forum has a ton of great members who are in the same boat as you. You are in shock and yes we all understand.  You probably need to consider finding a Dr that specializes in peyronies if that is possible. Use the search function because a lot of your questions have already been answered in prior posts.   Mike