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Author Topic: I've had peyronies since I was 17....  (Read 8343 times)

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isoemerger

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I've had peyronies since I was 17....
« on: January 21, 2011, 05:38:26 AM »

I found this board and thpught what the hay..i've tryed everything else.

Here's my story.I was diagnosed at an early age 17.Was married at 19,had 2 great kids and was divorced at 25,due to my peyronies problems i am quite sure.Every since i was 25 it seems that it has gotten worse.I used to have good days and bad days.Now they all seem like bad days.I don't even have an interest in sex now,because of the pain and uncomfortableness.Thought maybe i could find some sort of help (psycologically or physical),from this forum.I haven't been in a relationship since my divorce,i am 34 years old now.and it just seems there is no end in sight of this nightmare.So,if anyone could lend a ear or a just give me some insight i would greatly appreciate it.I'm at about the end of the rope.
shane
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George999

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Re: I've had peyronies disease since i was 17...
« Reply #1 on: January 21, 2011, 11:28:45 AM »

Shane,  The tools for recovery are all right here and so are a lot of people who will be willing to lend you a hand.  It will help if we know approximately where you are located geographically.  That way we can help you get yourself hooked up with a doctor who really understands Peyronie's and who can support you in your effort to overcome it.  And BELIEVE ME, you CAN overcome it just as a lot of us around here have been able to do.  I presented with Peyronie's nearly seven years ago, and suffered much pain and some degree of physical disfigurement.  But now I have no pain EVEN WITH SEX, and if you were to look at my erect penis, it would look very normal to you.  All of this is the result of using things that work and finding doctors who know what they are doing when it comes to Peyronie's.  This CAN work for you as well.  WELCOME!  - George
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isoemerger

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Re: I've had peyronies disease since i was 17...
« Reply #2 on: January 23, 2011, 01:58:42 AM »

I live near charelston ,west virginia.Any help on pointing me to a good doctor would be greatly appreciated.
thanx
shane
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jackp

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Re: I've had peyronies disease since i was 17...
« Reply #3 on: January 23, 2011, 07:28:59 AM »

The best advice I can give you is to get on VED therapy NOW. All the information you will need is in the VED thread. Any questions do not hesitate to ask.

As for the closest good doctor that probably would be Dr. Douglas Milam at Vanderbilt in Nashville TN. I talk so much about my implant here but he does so much more. Worth the trip for a consultation.

My peyronies started in 1995 and thankfully I have a loving caring wife. I went through all the phases of peyronies and then the severe Erectile Dysfunction that lead to an implant. My story I call "One Mans Journey" is in my new blog http://jackp-penileimplant.blogspot.com.

There is help. Any way we can help you find what you need do not hesitate to ask.

Jackp
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isoemerger

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I've had peyronies since I was 17....
« Reply #4 on: April 20, 2012, 06:08:30 AM »

  My condition hasn't changed at all in the past 16 years. I still have a curve and it is painful during erections most of the time. I have a 1/2 a pea sized lump in my urethra near my testicles. I am 35 years old and was wondering if there is any treatments that may help my condition. My doctors don't seem to want to do anything as long as i can still get erections and have sex...they just give me viagra. But, sex hasn't felt right for years and i was just wondering if there is any end in sight from this condition?
Shane
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james1947

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Re: I've had peyronies since I was 17....
« Reply #5 on: April 20, 2012, 08:48:48 AM »

isoemerger

I suppose you forget that you open the topic "I've had peyronies disease since i was 17..." in January 21, 2011.
What you are writing about the doctors is very typical for doctors that don't have too much knowledge regarding Peyronie's.

You have visited the doctor that Jack has advised you? He is the no.1 specialist in your area.
You have made any treatment in the mean time? Jack proposed you to begin VED therapy back in January 2011.

It is better to post on the same topic if is related to be more easy for you and others to follow up your posts.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

isoemerger

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Re: I've had peyronies since I was 17....
« Reply #6 on: April 21, 2012, 08:05:40 AM »

how do i get to the topic i started in 2011?
shane
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james1947

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Re: I've had peyronies since I was 17....
« Reply #7 on: April 21, 2012, 04:40:44 PM »

isoemerger

Happy to see you back, especially because you can read the answers you have get back in 2011.

To see your messages, click on the "PROFILE" icon (located on the top, left side of every page when you log in between "SEARCH" and MY MESSAGES" icons.

The page will change showing your profile page. On this page you can change things on your profile (you are the only one that can do that).
On the bottom of the page you have:
Show the last posts of this person.
Show general statistics for this member.

Click on the "Show the last posts of this person" line and you will see all your posts.
Click on the topic of your posts you want to search and you will get to the page of your topic.
Sounds complicate, but is simple and strait away.

I will advice you also to read more our forum. You will find huge knowledge that will help you to fight this disease. This forum is managed by the members and is not connected in any way to doctors or pharmaceuticals.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Hawk

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Finding your topic
« Reply #8 on: April 21, 2012, 09:08:14 PM »

isoemerger,

Your topic was on page four of this board.  If you look at the bottom of the topic list on this board you will see 4 pages.  I just merged it with this topic so it is all right here with these posts in this topic.

Hawk
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

isoemerger

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Re: I've had peyronies since I was 17....
« Reply #9 on: April 23, 2012, 12:19:50 PM »

Could someone please give me a name of a dr. near charleston wv. No more than an hour drive would be great. And not dr. martinez.
thanx,
shane
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jackp

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Re: I've had peyronies since I was 17....
« Reply #10 on: April 24, 2012, 09:59:04 AM »

isoemerger

Unfortunately you are many hours drive from a doctor that is great with peyronies.

The closest would be in Nashville TN., Chapel Hill NC., or Baltimore MD.

There may be others but these are the best.

Jackp
http://jackp-penileimplant.blogspot.com/
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isoemerger

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Re: I've had peyronies since I was 17....
« Reply #11 on: April 29, 2012, 05:09:06 PM »

Do any of yall have problems urinating? it takes me forever.It starts and stops(feels like someone is squeezing a waterhose and then letting it loose in spurts) It hurts also most of the time i p.About 70% of the time? Is this also common for peyronies sufferers?
shane
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james1947

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Re: I've had peyronies since I was 17....
« Reply #12 on: April 29, 2012, 09:55:38 PM »

Slow urinating is usually tot associated with Peyronie's.

I had also slow urinating as you are writing that was from enlarged prostate. After I had TUNA process (surgery) and the prostate size was reduce my urinating improved. Not 100% but much better.
Now I have again slow urinating, the uro says after testing my prostate and bladder with ultrasound that I have stones in the bladder. I am making a treatment now to eliminate them, hope will be OK.

I am advising you to check your prostate by ultrasound and if is not enlarged to check for bladders stones.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

jackp

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Re: I've had peyronies since I was 17....
« Reply #13 on: April 30, 2012, 08:24:12 AM »

Shane

I was having problems with urination back in the mid 1990's and had two TURP's within a year of each other. The problem was an enlarged prostate.

I have been on Saw Palmetto for years. My prostate has returned to a normal size about 6 months after I started taking it.

Last summer I was having urination problems again and was sure I needed another TURP.  I went back to Dr. Milam, at Vanderbilt, and he did a cystoscopy and found that my problem was an over active bladder that was treatable with medication.

The results also showed that I probally never need another TURP.

A cystoscopy will show exactly what your problems are and how to treat them.

Jackp
http://jackp-penileimplant.blogspot.com/
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james1947

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Re: I've had peyronies since I was 17....
« Reply #14 on: April 30, 2012, 09:06:49 AM »

Jackp

Can you tell us the name of the medication you have get?
My uro give me Finasteride that I am not taking because in the past it made me Erectile Dysfunction problems.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

jackp

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Re: I've had peyronies since I was 17....
« Reply #15 on: April 30, 2012, 02:13:51 PM »

James

I have been taking Saw Palmetto for over 20 years, since the mid 1990's, for my prostate. It brough my prostate back to normal in about 6 months. I have had no side effects.

Every time I go to a uro and have a prostate exam he tells me what ever I am doing keep it up.

Jackp
http://jackp-penileimplant.blogspot.com/
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isoemerger

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Re: I've had peyronies since I was 17....
« Reply #16 on: April 30, 2012, 05:00:46 PM »

2 doctors checked my prostate back when i was married(I've always had the peeing problem since i got the peyronie)and they said prostate was normal.The did a cyctoscopy and said i had a little scar tissue and that was all. I couldn't believe it!I can't have sex normal feeling,i can't pee right, theres gotts to be a connection.Thanx 4 respones
shane
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james1947

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Re: I've had peyronies since I was 17....
« Reply #17 on: April 30, 2012, 05:18:53 PM »

isoemerger

I can understand your frustration, I feel the same.
I have expected that after reducing the prostate size the slow peeing problem will end. It was improved, but not what I have expected.
I am waiting two more weeks to see if the bladder stones has disappeared, my uro say the peeing problem is because of the stones.
If no stones, remain just Peyronie's and over active bladder.

Jackp

I mean what are the medications you get for over active bladder.
I will see my uro in two or three weeks, should I ask from him to make a cystoscopy?
What cystoscopy is? Something like catheterizing? I think my Peyronie's begin from damage made by catheterizing.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

jackp

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Re: I've had peyronies since I was 17....
« Reply #18 on: May 02, 2012, 06:37:14 PM »

James

I take Enablex for my over active bladder. I can not take Flomax or some of the others because they cause an irregular heart beat.

Basically a cystoscopy is where they insert a cath into your bladder to measure the volume. They then fill you up until you pee. They do this a couple of times. They also insert a small probe in your rectum to measure the pressure in your bladder.

The last thing is they put a numbing gel in your urethra and then a camera to look at your urethra and bladder.

It is not painful or uncomfortable. The staff at Vanderbilt were very professional, kept me covered most of the time.

Jackp
http://jackp-penileimplant.blogspot.com/
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james1947

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Re: I've had peyronies since I was 17....
« Reply #19 on: May 02, 2012, 06:55:56 PM »

Jackp

Thank you for the answer.
In my next visit to the uro I will see what can be done to check my problem and see if Enablex is available in this world area.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

isoemerger

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Could someone please help me find a peyronies DR.
« Reply #20 on: September 01, 2013, 09:06:45 AM »

I'm 36 almost 37. Have had peyronies since i was 17.
It has remained the same for the past 19 years(maybe a little worse). I can achieve erection but is painful and often loose it pretty fast. It takes me forever to orgasm an when i do it does not feel pleasant.
Shane
please help
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james1947

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Re: Could someone please help me find a peyronies DR.
« Reply #21 on: September 01, 2013, 09:16:43 PM »

isoemerger

Please read the link bellow. It will give you basic information regarding all Peyronies aspects.
MUST READ BEFORE YOU POST - Information for new members - Peyronies Society Forums
You may want to begin treatment, better later than never.
Regarding pain, Pentox helped and helps many.

Welcome to the forum
James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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