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Author Topic: Multimodal Treatment  (Read 1212 times)

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Nolte94

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Multimodal Treatment
« on: February 07, 2021, 03:28:16 PM »

At the beginning
35° curvature to the left, because of a plaque right under the glans. Worsen after 3 months with no real treatment to 45°, hinge effect and pain (while flaccid and errected).

First try on treatment
First urologist recommended Potaba, which I took for 30 days. I also took many supplements (Serrapeptase, Nattokinase, Acetyl-Carnitine, L-Arginine, Coq10, Omega 3 Caps and Curcumine). The progression maybe slowed down and the symptoms are stable.

Basic treatment with success
I joined this forum and read studies on PTT and oral treatments. Many supplements are just waste of money and could lead to other issues. So I decided to speak with another urologist and start a "basic treatment" like it's written in the "survival guide":

PTT with PMP up to 8 hours (average maybe 4-6 hours)
after traction simmondsia chinensis seed oil with macadamia ternifolia seed oil (just for skin care)
Tadalafil 5mg
Acetyl-L-Carnitine
L-Citrullin
Coq10
Patience

I've always been sporty and eaten healthy, so I don't have to focus on this two. I don't smoke and drink alcohol.

Improvements
The worst symptome for me was the pain. Hopefully I just feel a tension, because of the curvature, but no real pain anymore.
The curvature itself improved to ~35°.
Errection quality improved. Nightly errections are back and sex is possible without huge risks of injuring again.
The beginning of a depression could be stopped and I don't think always about this disease. My girlfriend is a great support.

Targets left
Get rid of the hinge effect
Curvature ~10-20° (100% straight is not my target)
Keep smiling :)

I don't want to experiment with questionable supplements or drugs anymore. This multimodal treatment seems to help me and I don't have any sideeffects. My urologist supports me, too, so I shouldn't get other health issues, because of experiments without medical knowledge like a few desperate members do.
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26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

postrocker

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Re: Basics
« Reply #1 on: February 07, 2021, 04:40:48 PM »

Great progress!!

"after traction simmondsia chinensis seed oil with macadamia ternifolia seed oil (just for skin care)"
what exactly is that? you apply on the glans?
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

GaussRifle

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Re: Basics
« Reply #2 on: February 07, 2021, 05:09:02 PM »

Nolte , the approach you are taking is very similar to mine. I consider my urologist to be very knowledgeable  considering he is from Mayo Clinic here in the states and he told me to focus on traction and daily tadalafil 5mg for 6 months. He has told me to try restore x for a few months before considering Xiaflex. If the hinge buckling continues, I will consider Extra Tunical grafting. I do not have a girlfriend, consider yourself very lucky to have a partner when this struck you. It certainly helps mentally talking to someone about this. At this age, not even our friends would understand, they would think it’s something funny, and I can’t even talk to them about it. I hope you and I are happy at the end. One step at a time.
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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

NeoV

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Re: Basics
« Reply #3 on: February 07, 2021, 10:41:34 PM »

Great post!

Nolte94

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Re: Basics
« Reply #4 on: February 08, 2021, 02:22:30 AM »

@Postrocker
This is a product from the company behind PMP. Just for skin care. I wear the device many hours and use the oil to keep my skin of the penis smooth and healthy. I think, you can buy other and cheaper products for skin care...

@gaussrifle
Same as I do. Focus on the basic treatments, which studies confirmed to help. Xiaflex isn't authorized in Germany and in my opinion questionable like Potaba. Surgery is the last option, but I don't thinking about it much at the moment. Step by step :)
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

treeza1

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Re: Basics
« Reply #5 on: February 08, 2021, 04:55:58 AM »

Wonder if it’s time to jump in on the under 30 club action regarding traction (although only 29 for a few more months!) Have been stable since onset almost 8 years ago - feels like a long time now 😲

After losing almost 2 inches in length, some girth and suffering all the other effects - Hinging, some indentations, 35 degree bend upwards slightly to left and hard flaccid due to multiple plaques and a hard thinkened cord that runs along the shaft and can be felt by pressing in both thumbs from either side and running them along the length of the penis.. Feel like maybe I should buy a RestoreX and give something a crack as I have just come out of a relationship and have hardly been single since onset!

Does anyone think Traction without Xiaflex to soften the plaques and cord would be worth it to try and get some sort of straightening and length improvements nearly 10 years into the onset or wishful thinking??

I feel for you guys as I remember things being pretty good down there prior to taking a huge hit in a sporting game - luck of the draw unfortunately. But definitely sucks to cop this crap in your 20’s.

Well done on both your efforts 👏
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postrocker

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Re: Basics
« Reply #6 on: February 08, 2021, 06:00:15 AM »

@Nolte94, just found the product on PMP website. do you apply it directly on your glans (everywhere?) after finishing using PMP? it's quite expensive indeed.
if anyone has any other suggestions, I would also be interested.
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Nolte94

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Re: Basics
« Reply #7 on: February 08, 2021, 06:48:22 AM »

@treeza1
I have multiple plaques, too. But only the one right under my glans causes the curvature, a little dent and the hinge effect.
Just read the studies about traction and multimodal treatments (everything is posted multiple times in this forum) and you will see, that's never too late for starting treatment.

@postrocker
I apply it everywhere. Why not? My whole penis is covered with skin. But I think, you focus too much on this oil, which ONLY is for skin care. There are so many cremes, lotions and oils for skin care, so it doesn't matter what you use.
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

Juan

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Re: Basics
« Reply #8 on: February 08, 2021, 07:19:02 AM »

Nolte, as you are very young I wonder why you take 5mg of tadalafil instead of 2,5mg. Did your uro recommended 5 for a certain reason?
What time do you take it?

Last time I used pmp I used castor oil and it worked very well. Both for get the glans in the chamber and for the skin care.
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38 yo. Onset Oct/20. 25º upward bend 1cm before glans. High erection angle.
Pentoxifiline 400 2/d. Cialis 2,5. Vit E, Vit C, Propolis, Omega, Ubiquinol.
VED. Starting manual traction.

postrocker

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Re: Basics
« Reply #9 on: February 08, 2021, 11:02:40 AM »

I will try castor oil to use after/during the use of PMP.
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Nolte94

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Re: Basics
« Reply #10 on: February 08, 2021, 11:30:23 AM »

@Juan
My urologist prescribed Tadalafil 5mg to me. I take it in the evening, but the time doesn't matter. You only should take every day at the same time.

Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

Nolte94

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Re: Basics
« Reply #11 on: February 28, 2021, 04:32:37 AM »

Update
The PeniMaster Pro works very well. I've increased the hours of wearing the device in general per day and the curvature improves more and more. Size of my penis is bigger than before Peyronies Disease.
Soft glans because of the hinge effect gets better, but not perfect yet. Therefor I've added VED sessions, but I don't use exactly the 26 weeks protocol. In combination with the supplements and others in my signature I have to say: multimodal treatment works for me so far.
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

postrocker

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Re: Basics
« Reply #12 on: February 28, 2021, 12:48:44 PM »

great to know!

what is Tensiologes and contratubex?
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Nolte94

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Re: Basics
« Reply #13 on: February 28, 2021, 02:22:10 PM »

Tensiologes is a supplement and Contractubex a scar gel.
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

Nolte94

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Re: Basics
« Reply #14 on: March 11, 2021, 05:06:19 AM »

Update
Hinge effect doesn't exist anymore. Glans gets hard again with an erection.
Curvature improvement to 20-25° to the left.
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

postrocker

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Re: Multimodal Treatment
« Reply #15 on: March 11, 2021, 05:53:58 AM »

Amazing!
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

markdubby

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Re: Multimodal Treatment
« Reply #16 on: March 15, 2021, 06:58:28 PM »

hi nolte

is the scar treatment decreasing your plaque size?

thanks!
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30, discovered ~20-30 degrees right bend beginning of Feb 2021. Small plaque under gland on right side of the shaft

300 mg COQ10, 2-3 g Acetyl-L-Carnitine, , 6-8h traction daily with pmp,

new scar 26/04 on left side below glans, current curve < 5

Nolte94

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Re: Multimodal Treatment
« Reply #17 on: March 16, 2021, 01:22:51 AM »

The multimodal treatment decreases my plaque size, yes.
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

markdubby

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Re: Multimodal Treatment
« Reply #18 on: March 16, 2021, 05:09:47 AM »

sorry let me rephrase:

are you noticing a big difference since you added contractubex to the treatment? am looking into some topical creams as well!

thanks!
Logged
30, discovered ~20-30 degrees right bend beginning of Feb 2021. Small plaque under gland on right side of the shaft

300 mg COQ10, 2-3 g Acetyl-L-Carnitine, , 6-8h traction daily with pmp,

new scar 26/04 on left side below glans, current curve < 5

Mikel7

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Re: Multimodal Treatment
« Reply #19 on: March 16, 2021, 05:29:05 AM »

sorry let me rephrase:

are you noticing a big difference since you added contractubex to the treatment? am looking into some topical creams as well!

thanks!
I am also interested in Contractubex - we need a new posting regarding this cream.
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Nolte94

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Re: Multimodal Treatment
« Reply #20 on: April 06, 2021, 05:54:26 AM »

Update
I'm feeling well. I continue with the treatment, because I'm very happy about the good shape of my penis. After many hours of tracrion and VED, my penis has become bigger than before Peyronies Disease and my erecrions are stronger than before Peyronies Disease.
I still have a little curvature, but that doesn't bring any problems or disadvantages with it.

Good luck to everyone out there!
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

Mikel7

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Re: Multimodal Treatment
« Reply #21 on: April 06, 2021, 06:15:32 AM »

If it is  working don't change a thing - "if it ain't broke, don't fix it. "   :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

postrocker

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Re: Multimodal Treatment
« Reply #22 on: April 06, 2021, 07:43:33 AM »

That's really great, man.

Do you know how many hours of traction do you have? I am approaching 300h with no noticeable improvements in curvature  :(
Logged
34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Nolte94

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Re: Multimodal Treatment
« Reply #23 on: April 07, 2021, 07:02:57 AM »

@postrocker
I guess around 400 hours with 600g tension.
Logged
26 years old, Peyronie since August 2020, 45° bend to the left, hinge effect and pain
‐---
Daily Tadalafil
Traction 4-8 h
VED
Acetyl-L-Carnitine, Tensiologes, Coq10 and Contractubex
----
Improved ~20°
No pain anymore
No Erectile Dysfunction
No hinge effect anymore

Realvinni2000

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Re: Multimodal Treatment
« Reply #24 on: May 24, 2021, 07:49:41 AM »

You may add flavonoids.
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