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Author Topic: Discussion of no new drug treatments...  (Read 612 times)

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Freemason

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Discussion of no new drug treatments...
« on: February 03, 2021, 11:27:26 PM »

It’s been a long time since I’ve been on this board..Nothing has changed but I’ve also not really done much to change anything..

I’m not buying the argument that there are no companies doing Peyronies Disease research bc there’s no money in it..

I’m actually kinda shocked it isn’t researched more by Pharma companies..

I work for a very large Pharma company...We just got FDA approval on a new drug that has a potential annual population of about 3000 people..3 years and millions and millions of $$ to bring this drug to the market..

Let me ask this..

How much would you pay to have a normal dick? Personally I’d pay up to $50k...

This disease has prevented me from dating..I’ve gone 8 years without a date...Depression is real.

Now no drug is ever 100% cure..well most aren’t...But if a drug was launched and it cost a lot of $$ but had a success rate of 80-90% wouldn’t it be worth the try?

Even if just 3% of adult men suffer with Peyronies Disease that is at least 3Mil potential users..

I think this market is way undervalued by Pharma and it’s really a shame..

Heck Xiaflex is a $100 mil drug...and it’s something I wouldn’t even consider personally..
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AlterEgo

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Re: Discussion of no new drug treatments...
« Reply #1 on: February 04, 2021, 04:10:23 AM »

It’s been a long time since I’ve been on this board..Nothing has changed but I’ve also not really done much to change anything..

I’m not buying the argument that there are no companies doing Peyronies Disease research bc there’s no money in it..

I’m actually kinda shocked it isn’t researched more by Pharma companies..

I work for a very large Pharma company...We just got FDA approval on a new drug that has a potential annual population of about 3000 people..3 years and millions and millions of $$ to bring this drug to the market..

Let me ask this..

How much would you pay to have a normal dick? Personally I’d pay up to $50k...

This disease has prevented me from dating..I’ve gone 8 years without a date...Depression is real.

Now no drug is ever 100% cure..well most aren’t...But if a drug was launched and it cost a lot of $$ but had a success rate of 80-90% wouldn’t it be worth the try?

Even if just 3% of adult men suffer with Peyronies Disease that is at least 3Mil potential users..

I think this market is way undervalued by Pharma and it’s really a shame..

Heck Xiaflex is a $100 mil drug...and it’s something I wouldn’t even consider personally..

Mr. Freemason man of knowledge if you would pay 50k to change things, why do you say you haven't done anything?  Have you tried any supplementations, stem cells, shockwave? Why not use some of that 50k and try your own experimentation.  Have you found anything that bettered the scarring for you? I agree if they can send a rocket to space why can't they find an easy fix for an organ the size of a banana?
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42 male
main symptoms are hollow feeling shaft
scar tissue on corporas shown on ultrasound
Loss of girth, weak flaccid skin sensitive

Bud luck

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Re: Discussion of no new drug treatments...
« Reply #2 on: February 04, 2021, 12:12:03 PM »

If there was more money to be made, the solution would be already here, but there is not enough economic profit and never will be. The only thing we can do is the implant or do multiple things to try to improve it
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My first symptoms started 18 months ago
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
I have a girlfriend

AlterEgo

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Re: Discussion of no new drug treatments...
« Reply #3 on: February 10, 2021, 05:02:23 AM »

If there was more money to be made, the solution would be already here, but there is not enough economic profit and never will be. The only thing we can do is the implant or do multiple things to try to improve it
We should be using this forum to make our own research groups and find efficacy
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42 male
main symptoms are hollow feeling shaft
scar tissue on corporas shown on ultrasound
Loss of girth, weak flaccid skin sensitive

Kickler

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Re: Discussion of no new drug treatments...
« Reply #4 on: February 10, 2021, 05:46:49 AM »

personally i dont think it is that easy. i have been on forums like this one related to other issues like hair loss for example and the conversdations are the same, nobody understand why a better solution has not been found yet, people are debating on doing their own research. truth of the matter is that these problems are not easy to solve, fibrosis is not very well undertood and despite progress in regenerative medicine realistically one is always 20 years away from a decent drug form the point the mass media talks about it. if you were to believe the media we would have cured balding by 2005. now it seems to be taking another 30+ years to get there. plus there is arguably an even higher financial incentive in solving that problem. there is even less research in peyronies disease, if it wasnt for dyuptrens contracture, we would not evne have xiaflex which is really sad and a disgrace to modern medicine. the kind of research thats been done is also just not good, its hard to get a decent sample size and most studies are just traction or ved all over and over again with different outcomes. nobody is bold enough to get to the bottom of it
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Freemason

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Re: Discussion of no new drug treatments...
« Reply #5 on: February 16, 2021, 08:39:07 PM »

If there was more money to be made, the solution would be already here, but there is not enough economic profit and never will be. The only thing we can do is the implant or do multiple things to try to improve it

We disagree...It isn’t a life threatening disease (at least physically)..which is prob why Pharma doesn’t care..

The market to make $$ on a successful Peyronies Disease drug is more than there..It’s also a disease that will always have new patients..

As for other comments on why don’t I spend $50k trying? Stem cells I’d def try if there was an ounce of clinical data showing it worked...there isn’t..

I guess in part I’ve not committed to traction bc I’m worried I’ll mess something up and make it worse..

Our dick is the most important organ to men outside of our brain and heart...and when that organ isn’t functioning like you want it’s devastating...
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