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Author Topic: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL  (Read 3841 times)

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mikel7

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #100 on: March 27, 2021, 06:02:05 AM »

Great recovering!
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #101 on: March 27, 2021, 05:43:02 PM »

6 weeks 3 day post op:

Was able to do 3 hours or traction last night. Fairly easily. Had (tried?) to have sex with the mrs. Still only about 80% erection strength, and makes it very difficult to use. Also, a bit defeating. I think I'll hold off attempting that again for a few weeks to see if I regain more use.
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

mikel7

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #102 on: March 28, 2021, 05:30:26 AM »

You are still healing - I'm sure things will continue to improve.  You don't want to jump the gun. LOL .  :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

GaussRifle

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #103 on: March 30, 2021, 03:05:48 PM »

I have a question. Why was this surgery plaque excision and nkt incision to reduce risk of worsening erections ? Also bucol mucosa grafts seem to have excellent outcomes. Why was this a different graft ? Not saying you won't improve , just curios based on my research.
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26 year old
45-50 degree downward curve. Hourglassing when semi-erect
changes to indentation on one side only when erect.
Using RestoreX
Taking coq10 with daily Cialis 5mg.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #104 on: March 30, 2021, 10:19:28 PM »

I have a question. Why was this surgery plaque excision and nkt incision to reduce risk of worsening erections ? Also bucol mucosa grafts seem to have excellent outcomes. Why was this a different graft ? Not saying you won't improve , just curios based on my research.

Based on the severity of the hour glassing and the bend, coupled with the ultrasound and my pre surgery erections were still 100%, Dr. Levine felt that I was a perfect patient for the procedure he had. He said the graft I was given had proven to him to be the most effective for a positive recovery in the long run...

BUT, after surgery in recovery, he did tell me once he got in there, the plaque was much more extensive then the ultrasound showed. He was still confident I will make a full recovery.
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #105 on: March 31, 2021, 12:22:38 PM »

7 weeks Post Op:

Everything is near the same for me. I'm able to do 3 hours of traction at night fairly comfortably. The last 20-30 minutes gets a bit uncomfortable. I'm still only seeing about 80% erectile fullness. I was expecting more by now. Still hoping this improves.

So, if anyone is still reading this who has gone through this, Obviously, the more excited you get, the stronger your erections are. Should I be having the Mrs help me with that part of it nightly? It's going to sound shady as hell asking her, but I have this dumb theory that if I'm trying to force more blood to the erection, it would only help with getting things back to normal.
Logged
49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

mikel7

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #106 on: March 31, 2021, 12:40:41 PM »

Amazing results just after 2 weeks! I'm sure Dr  Levine will love to hear this also! Please  don't push yourself too fast. I'm sure it is a relief to experience the result you are getting.  :) Mike
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Curvekiller94

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #107 on: April 04, 2021, 10:51:33 PM »

How is your pain level post surgery?
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #108 on: April 06, 2021, 12:20:45 PM »

How is your pain level post surgery?

The first 2 weeks are rough of course as expected. It's painful, but not horrible. It's a deep throbbing discomfort and medium pain. Once the first couple of weeks pass, and healing really starts to take hold it's more about sensitivity and discomfort.

Almost 8 weeks since surgery, I still have discomfort. It's the sensitivity on the head, which IS getting better. The grafting area isn't bad, surprisingly. The "Pain" is all around the incision site. I didn't expect that area to be the worst of it all, but it is. I think it has everything to do with nerves and needing time for that to heal.

All in all, total pain, on a scale of 0 to 10... Week 1: 7. Week 2: 6. Weeks 3-6: 5. Weeks 7-8: 4. It's getting better and better.

Being inpatient like I am, Im frustrated 8 weeks out, I thought I'd be further along in healing, but I have to keep reminding myself, this is a process, and not a race. I started traction only 2 weeks ago so I have 2.5 months more of that before me.
Logged
49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

mikel7

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #109 on: April 06, 2021, 02:39:51 PM »

Patience....You are not 17 and healing takes time.  :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #110 on: April 07, 2021, 01:01:06 PM »

8 Weeks Post OP:

Today is 8 weeks. For the most part, swelling is down. Maybe 15% remains in the incision area. 2 weeks of traction, at 3 hours per day. This isn't bad. I expected much worse discomfort, but it's tolerable. Sensitivity of the head is better. Still hyper sensitive but calming down more and more. The graft area is pretty solid. From what Ive read, this could take a full 12 months to soften.

Things I noticed: I'm still at about 80% for full erections. It's usable, with caution. The area that had the hinge still feels like a weak spot. It can bend in that same spot, not hinged, but weakened. It causes fear of re-injury to use it, so I've decided to hold off for a few weeks, to allow more healing. The last thing I want is to have to go through this a second time.

Over all after 8 weeks, I'm healing up. It can get frustrating being impatient. I want faster results, but I know this isn't a race. At only 2 months in, I'm better then I was before the surgery. Less pain, no bend in the erection, so now I keep doing what the Dr says to do, and healing up, and hope that 80% turns into 100% in the coming months!
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

mikel7

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #111 on: April 07, 2021, 01:15:07 PM »

Good news!  You won't have to go through this a second time. :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

john.doe.550

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #112 on: April 07, 2021, 11:00:01 PM »

Daremo, yours is a really great story. You're brave, too. Thank you for sharing your story. You're going to be in tip top shape soon.
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Age: 62;  Peyronies Disease diagnoses: MAR 2019;  Onset: Immediate & severe;  Treatment: Xiaflex, APR 2019 to present, slowly improving w/ much more to go. Notable Xiaflex improvement through late DEC 2020.  Increasing Xiaflex improvement in early 2021.

pfract

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #113 on: April 08, 2021, 11:46:03 AM »

Encouraging news Daremo! Here's hoping you keep healing and have a good outcome!

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #114 on: April 14, 2021, 03:05:00 PM »

9 Weeks Post Op:

9 weeks today. Traction is fine, 3 hours every night. Very minimal discomfort while doing traction.

Overall discomfort and pain... Still deep throb occasionally in the graft area. Since most swelling is gone, the graft area while doing traction is visible. It's solid, looking forward to it softening a bit, possibly aiding in gaining length back.

Still now, the most discomfort / pain is in the incision area and what I believe to be internal stitches at the incision site. I think they must stitch the incision to tissue inside, and not just skin to skin. The stitch knots is what I feel and I believe to be the source of 75% of my discomfort. Im wondering if when all is said and done, I might need to go in and have these removed inside.

I have not attempted to have sex since the last time we tried. I'm not confident in the stability of the erections. I still can't get things above 80% full, even with Cialis. I CAN use it, but for now, it's more mental. Im worried about hurting myself again, which also makes it difficult to maintain the erection thinking about it, so I'm waiting a bit to try again. More time, more healing, just hoping it gets better as I heal over time.
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

john.doe.550

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #115 on: April 16, 2021, 01:01:38 AM »

Daremo, the continuous detail sharing you've  undertaken are greatly appreciated.  Thank you. There are more than a few forum readers interested in how it goes for you.  Wishing you maximum success.
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Age: 62;  Peyronies Disease diagnoses: MAR 2019;  Onset: Immediate & severe;  Treatment: Xiaflex, APR 2019 to present, slowly improving w/ much more to go. Notable Xiaflex improvement through late DEC 2020.  Increasing Xiaflex improvement in early 2021.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #116 on: April 22, 2021, 12:22:31 PM »

10 weeks, 1 day Post Op

It seems to be at the point where things have slowed down, giving little to report. Swelling is almost completely gone, other than a small bit of tissue around the incision. Traction is fine, and sensitivity is about the same. Still hyper sensitive but only in the head and incision area.

Still only 80% erection. No better than that, yet.

Other than the same discomfort due to the incision areas sensitivity, and possibly the stitches under the incision, It's moving along.
Logged
49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #117 on: April 28, 2021, 12:30:40 PM »

11 weeks Post Op

Absolutely nothing new to report. I feel I'm exactly in the same place I was a week about. Same sensitivity, same 80% erections, same discomfort and still taking Cialis nightly and 3 hours of traction. I'm still waiting to get over this plateau and see something new in healing.
Logged
49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

Tortão Pra Direita

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #118 on: April 28, 2021, 04:01:37 PM »

Are you able to do VED?

Before my surgery, I was doing VED 2x a day and I was amazed by how it made my erections stronger, especially morning woods.

I think you should try if your doctor allows you. Be very careful in the beginnig.
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28 yrs old
Peyronies Sep 2019.
Curvature 70º+ to the right. New plaques at the left "straightened" to around 35~40º.
Lots of plaque, curvature, loss of size, loss of axial rigidity. No Erectile Dysfunction.
Mar/2021 Titan Touch 20 cm + 1.5 RTE.
Healing now.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #119 on: April 29, 2021, 04:55:58 PM »



I will ask my doctor about this. Thank you!
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #120 on: May 06, 2021, 12:57:21 PM »

12 weeks Post Op:

Things are improving in regards to sensitivity and such. It's very slowly coming back. Still not much more to offer at the moment. Erections are decent, but still a "weak" spot where the initial bend was. I still need to ask Dr Levine if VED is OK to try, and if it could help with this. Still the incision area is the main source of my discomfort. I WISH I had a surgery video of my procedure and I might be able to pinpoint exactly what hurts and answer so many of my own questions about where certain things are inside, and why. I think the most frustrating part of this surgery is the follow up, and seeing other team members and not Dr Levine. It's hard to get accurate answers for specific questions.
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

mikel7

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #121 on: May 06, 2021, 02:30:07 PM »

I think the most frustrating part of this surgery is the follow up, and seeing other team members and not Dr Levine. It's hard to get accurate answers for specific questions.

       Since you are a patient of  Dr Levine you can use the patient portal -->https://uropartners.followmyhealth.com/Login/Home/Index?authproviders=0&returnArea=PatientAccess#!/default . This should allow you to ask a question and get a response in a reasonable amount of time.  I have access to my account and all of my billing, etc.....
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #122 on: May 07, 2021, 03:48:54 PM »



Fantastic information! Thank you!
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #123 on: May 12, 2021, 01:06:32 PM »

13 weeks post op:

Same story today! Im getting close to being out of the 90 day Cialis supply. I still have not heard back through the patient portal, so I am calling today for a couple of answers. Nothing good or bad to report, just still healing my way through this, with the same 80% I've been dealing with.
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49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine

Kobegianna

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #124 on: May 12, 2021, 03:39:09 PM »

Do you mind posting photos or are you still uncomfortable?
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34 yrs Old, Healthy very active
Possibly injured penis or took too much Cialis
Symptoms starting January-February 2021
First dent seen April 4, 2021, painful erections

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #125 on: May 13, 2021, 11:41:48 AM »

13 Week post op update:

I was able to talk to one of Dr. Levine's team members. I discussed several things. 1, the internal stitches and discomfort around the incision area. As I suspected, I shouldn't have this sort of discomfort and pain in that area still. I explained it's the stitch knots, I can feel them on both sides, and they are the source of the shooting pain. I have a in person follow up 6 weeks or so, so I was told to message the area while in traction to help loosen the scar tissue around the stitches, but was told this isn't quite normal. I MAY have to have them removed at some point. Yay.

I asked about the use of a VED device to help bring more blood to the erections and help to strengthen them. I was told NO. Do NOT use a VED device for at LEAST one full year after surgery. It was explained to me drawing to much blood in the graft area could cause blood to get under the graft and force the graft to separate. This is something to try in the future, but not now.

I was also told erection strength might get better still, but it seem likely I may be close to "as is" so we upped the Cialis from 5mg to the 20mg to see if that helps. I was also informed that the "weak" area where the bend used to be is nothing to be worried about, that even if it remains a weaker area, there's no risk of re-injury. This one, I had a hard tome believing. I don't want to take any chances with this.

SO, on the positive side. Sex is doable. I just have to keep it slow and careful. It works, and the promise of my erections being straight are 100%. It's perfectly straight. There's the possibility of improvement, so even if it stays like this, and gets no better, I'm in a better position then I was the day before Surgery. I'd consider things a success with a couple minor hiccups, that can still be worked out.

So far so good, Im still following all directions, traction, Cialis, and so on. The stitch pain isn't unbearable but if I can get these out, and release that discomfort, I will consider that down the line. I'm assuming it would be 2 small incisions, to get them out, and then just some surface skin healing.

I'll consider the photos at some point, as asked in the post above me.
Logged
49 Years old, Autoimmune my entire life
Peyronies From Feb 2020. 80 Degree dorsal curve, hour glassing, much pain.
Still maintain solid erections, making me a good candidate for PEG.
Surgery scheduled for Feb 10, 2021 with Dr Levine
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