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Author Topic: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL  (Read 1162 times)

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Daremo

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Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« on: February 03, 2021, 07:25:14 PM »

I have a 80+ degree dorsal bend and hourglass from Peyronies. I went to see Dr. Levine, and after a followup visit 3 months later, we agreed on the PEG surgery. It was set for the end of March, and I received a call with a cancellation, and I'm going in one week from today. I'd nervous, scared, excited, and full of all sorts of crazy thoughts. All I can say is, I'm looking forward to getting this all behind me. I'm holding onto the HOPE that there are no complications, no permanent Erectile Dysfunction, and everything just heals correctly. I'll be happy to follow up with my surgery and recovery if anyone is interested in those details.

Wish me luck.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

pfract

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Re: PEG surgery with Dr Levine scheduled next week
« Reply #1 on: February 03, 2021, 11:08:24 PM »

Good luck with your surgery... Quite the time to go under the knife..... Please keep us posted!

Benjamin62

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Re: PEG surgery with Dr Levine scheduled next week
« Reply #2 on: February 04, 2021, 09:22:29 AM »

What does Peg stand for
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Daremo

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Re: PEG surgery with Dr Levine scheduled next week
« Reply #3 on: February 04, 2021, 04:57:09 PM »

What does Peg stand for

penile excision and grafting
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

gaussrifle

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Re: Excision and Grafting (PEG) surgery with Dr Levine scheduled next week
« Reply #4 on: February 04, 2021, 06:54:24 PM »

All the best and please keep us posted about how surgery went.... we all would like to know.
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26 year old. 45-50 degree downward curve. Hourglassing when semi erect, changes to indentation on one side only when erect. Currently doing restore x traction and taking coq10 supplement with daily cialis 5mg.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine scheduled next week
« Reply #5 on: February 05, 2021, 03:54:21 PM »

Covid test at the surgery center today. As long at thats negative (and I have no doubt it will be) I'll be all set for Wednesday. it's getting closer and closer, and the fear and anxiety is starting to set in. Obviously no man ever wants to have surgery on his penis, but I also don't wish Peyronies on anyone either. To prepare, I've been scouring these forums for positive stories and outcomes. I want to be one of those stories. Fully healed in 8 weeks, back to normal, no need for Erectile Dysfunction medications... All the good stuff. Time will tell!

I'll be back when I get my call the day before surgery.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine scheduled next week
« Reply #6 on: February 09, 2021, 10:32:29 PM »

Got my call today. I'm all set for 11am check in tomorrow. I think this just hit me, and how real this is. The nerves are setting in, and along with nerves and anxiety, I keep running the typical gamut of questions like "Am I doing the right thing? What if there's permanent damage? Am I SURE I can't live like this?" I'm absolutely sure this is normal since it's so close. All I know, and I keep telling myself is, in 16+ hours from right now, this will FINALLY be behind you, the problem will be fixed, and it's just healing from that point forward.

I'm scared. 100%.

I'll be back tomorrow. :)
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

gaussrifle

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Re: Excision and Grafting (PEG) surgery with Dr Levine: TOMORROW
« Reply #7 on: February 09, 2021, 11:57:24 PM »

We all are with you and praying for your success !  :)
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26 year old. 45-50 degree downward curve. Hourglassing when semi erect, changes to indentation on one side only when erect. Currently doing restore x traction and taking coq10 supplement with daily cialis 5mg.

bustedchubb

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Re: Excision and Grafting (PEG) surgery with Dr Levine: TOMORROW
« Reply #8 on: February 10, 2021, 08:13:19 AM »

You definitely have my prayers, brother.  I just spoke to Dr. Brian Christine yesterday and that is one of the two surgical options he's thinking for me.  I also have a 80 degree curve.  Keep us posted!
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43 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 80 deg bend up, lost length and girth top half (hourglassing).

Propolis, L-Citrulline/L-Arganine, RestoreX > 110days,  VED, Pelvic Floor Therapy

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Re: Excision and Grafting (PEG) surgery with Dr Levine: TOMORROW
« Reply #9 on: February 10, 2021, 05:10:18 PM »

Good luck buddy, youve got a army of support here behind you. Bustedchubb, Im seeing Dr. Christine at the end of February. Good luck and I may have some questions for you later.
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Kickler

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Re: Excision and Grafting (PEG) surgery with Dr Levine: TOMORROW
« Reply #10 on: February 10, 2021, 06:35:01 PM »

good luck man :)
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Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #11 on: February 11, 2021, 11:43:37 AM »

I really wanted to post yesterday but I was a bit out of it with the Anesthesia and pain meds. But here I am, the day after surgery, 18 hours later. I'll give you the details up to right now...

I arrived early for surgery, around 11am. I had my procedure done at the Surgical Center, and not the actual Hospital, as I wasn't a high risk for any complications. No one else was allowed in, so my Fiancé had to wait in the car. Covid, I get it. It doesn't make things any easier on the nerves though. Check in. Paperwork, the usual. I was brought back to my bed around 11:10, so it was quick! I changed into my hospital gown, and socks, and got into bed. Lots of questions, and then the IV is started, with some electrolytes to get things started.

The Anesthesiologist came in at about 11:45 and said Dr. Levine was half way through his current surgery, it was trickier then planned, but I would be up next. She asked if I had questions. Since this was my first surgery, going under scared me. I said to her "You're the most important person in my world today." She said "Yes I am. What are your concerns?" I said simply "It's not my time. Please make sure you wake me." and she promised.

Let me just say, the staff was amazing. WONDERFUL people, and you can feel the actual care they all have. Can't speak highly enough about the staff!

at about 1:25 Dr. Levine came in after his first surgery, to prep me, told me exactly what he was going to do, and said he's all warmed up now, the previous was tricky and he's hoping mine goes easier. (Spoiler alert, it didn't! haha)

Now it just got very real. Nerves are kicking in. I'm second guessing everything while I sit alone and wait.

What felt like 30 minutes was actually 10, and at 1:35 they came to take me to the OR. At this point, its a nurse and the Anesthesiologist. I was asked if I was OK. I said "To he honest, I'm starting to get REALLY nervous!" The Anesthesiologist said "Don't worry, I just gave you something and in 30 seconds, you won't be nervous anymore. She was right. :)

In the OR room, cold, bright, large room. They wheeled me up the other bed, I had to scoot over to it and get into position, and then, boom. I opened my eyes and it was over. Seriously, I wasn't even told I was about to go out. I literally remember getting on the table, and I woke up. BRILLIANT! If there's ANYTHING I can tell you, They did everything while under. From disrobing, to shaving. All the prep. It really helps save you from any possible modesty or embarrassment, or uncomfortableness. It was great.

OK, so I wake up back in my original room. As soon as I open my eyes, I request my phone to text my Fiancé and tell her Im out. This is the point I thought about how to word this, so I don't scare anyone... Just after opening my eyes, I feel the pain. Searing pain in my penis. It was bad. ALSO I need to mention, I have sever Spinal Stenosis, so laying flat on that'll table as long as I did made my spine really sore, so I have to contend with sever lower back pain, and the new surgery pain.

Dr. Levine came in to see me, they got me immediate pain medication into my IV, and it helped almost instantly. (Within 5 minutes)

SO, my actual surgery... It was more challenging and difficult then he anticipated. What was estimated at 45 minutes took 2.5 hours. There was deeper and more plaque then he anticipated, but he said it went perfectly. He also called and told my fiancé that it's now straight as an arrow! The extra time and cutting and grafting will be the cause of the pain, and other than that, things look good!

Next up, Cookies! haha! They give you water, and cookies. They actually brought me coffee too. You must urinate before you leave. That was a problem for me at first. Since I have Spinal Stenosis, I already have issues there. I trickle, and though this was going to mean I need a Catheter. I stood in my room and tried for 10 minutes. I had to , I just couldn't go. They laid me back down, and gave me another bottle of water to drink. At this point, Im thinking "This isn't going to happen..." and I asked to go try in the restroom.

As im walking, and here another scary part for some, Im dripping blood. I get into the bathroom, and this theres a lot of blood dripping to the floor. Again, Im thinking the worst. Good news, I was able to uriniate. Some blood in the urine, not too bad. Back to the bed, and they were pleased with the output, and told me I could get dressed, it was time I could go!

I got home, about an hour from the center, and felt OK. Drugs were still working, I was uncomfortable, but OK. I had some soup, and laid in bed early and let out a huge sigh of relief. Its over. Now I just heal.

Dr. wants me laying down for one week. Doing NOTHING. Take the compression bandage off in 3 days, and in one week, nightly low doses of Cialis to promote blood flow. Let me tell you, that isn't an issue for me. Last night, I was already woken up several times due to nighttime erection pain, only with the compression bandage, and this being so soon after surgery, I didn't notice anything yet, other then the pain. If you have experienced Peyronies pain with an erection, this is like that, only a bit worse.

Urinating is easier then I thought, I've gone about 10 times since I got home, I assume all the IV and such. No burning, and it's actually easier then I thought.

Glans is swollen I can feel the glans, but it's dull and numb. There's constant pressure youre aware of, due to the bandage. There's some pinching pain now and then, which I can only assume is the stitches. So far, I've only take 2 pain pills, the antibiotic they prescribed, and 2 tylonol to help bring down the low grade fever after the surgery.

I explained it to my fiancé last night, From the top of my head to my toes, my body feels like it KNOWS it's had trauma. It's a weird feeling for me.

There are many moments of discomfort and pain. Not going to lie. It's not as easy as I expected, but right now, It's just uncomfortable, and mangle. if THIS is as bad as it gets, I got this. The WORST pain so far, other then the initial waking up. is the night time erection blood flow. That is brutal, but If I make my way to the bathroom to urinate, I can get that to go away quickly.

Here's a tip... SIT DOWN to urinate. The glans is so swollen, you urine stream will go anywhere but straight, and cleaning up a bathroom was not something I wanted to do after my first standing pee at home. LOL

So far, I'm dealing with it. In my heart, I know this was the best thing I could have done. I'll keep updating!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

postrocker

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #12 on: February 11, 2021, 12:52:34 PM »

Great to know, man!
Please keep updating us!
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~30/35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #13 on: February 11, 2021, 02:00:59 PM »

Great to know, man!
Please keep updating us!

I will, 100%!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #14 on: February 11, 2021, 02:39:57 PM »

Quick update. Still don't need pain meds today. Bruising is starting to collect in the scrotum and just forming on the rim of the lower glans. Not painful, just... Alarming at first site? LOL

Still good!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

bustedchubb

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #15 on: February 11, 2021, 03:30:32 PM »

I'm getting nervous just reading your ordeal.  You are doing great, man!  We got (well I still got) the same situation as you, 80 deg dorsal bend with good erectile quality.  Looking forward to hearing how well you keep doing and hope you make a speedy recovery in all ways.
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43 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 80 deg bend up, lost length and girth top half (hourglassing).

Propolis, L-Citrulline/L-Arganine, RestoreX > 110days,  VED, Pelvic Floor Therapy

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #16 on: February 11, 2021, 04:03:42 PM »

I'm getting nervous just reading your ordeal.  You are doing great, man!  We got (well I still got) the same situation as you, 80 deg dorsal bend with good erectile quality.  Looking forward to hearing how well you keep doing and hope you make a speedy recovery in all ways.

Honestly, the pain is more surprising and foreign feeling than unbearable. It's not great, but pain meds, especially at the time of surgery is great. Having my spine issue makes this harder on me then it should normally be. My back pain is worse then the surgery pain at the moment.

Don't get nervous. I know it's easier said then done, but in my case, this is the only "fix" and after a few weeks of discomfort, it's all behind me. If you go this route, we're here for you too, and I can offer any tips I can along the way.

I wouldn't wish Peyronies on an enemy, but we have a fix. If I can do this, so can you!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

LWillisjr

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #17 on: February 11, 2021, 04:44:50 PM »

Daremo,
Your experience is very similar to mine. Dr. Levine did my surgery in 2008. I still follow up with him. Great Doctor, great staff, etc. It is good to hear you have the same experience. I can tell you for me the bruising got worse after a few days. Shades of purple and blue I never thought existed. But it all did heal and got better. Healing is a slow process. Take your time, don't rush anything. I feel I was completely healed in about 6 months. So follow completely Levine's instructions post surgery and don't try to speed up anything. Take your time and in the long run you will appreciate it. I am still grateful for my surgery and very active sex life still after 13 years.
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postrocker

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #18 on: February 11, 2021, 06:01:26 PM »

Three questions:

How much length is loss with this procedure?
If you lose anything, can you do traction afterwards to regain length or not? And VED as well for girth.
After PEG can you put an implant if you need? After x years, for instance.
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~30/35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #19 on: February 12, 2021, 11:44:46 AM »

Three questions:

How much length is loss with this procedure?
If you lose anything, can you do traction afterwards to regain length or not? And VED as well for girth.
After PEG can you put an implant if you need? After x years, for instance.

For MY experience, I didn't lose length, he actually told me I gained 2.5 CM. This is POST Peyronies, as I never really measured length prior to the issue. Time will tell if my length is "Normal" but because this is the PEG and not Plication, there should be almost no loss, or minimal.

Traction is part of the recovery plan. I think I start traction in 2 weeks, after my follow up visit to go over modeling, and message to make sure it heals straight. During that time, I believe any loss of length will return.

From what I understand the grafting is actual tissue, so it returns the shape and penis to normal, so an implant is 100% doable later if needed. Some guys here have have this surgery and still needed the implant later.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #20 on: February 12, 2021, 11:46:46 AM »

Daremo,
Your experience is very similar to mine. Dr. Levine did my surgery in 2008. I still follow up with him. Great Doctor, great staff, etc. It is good to hear you have the same experience. I can tell you for me the bruising got worse after a few days. Shades of purple and blue I never thought existed. But it all did heal and got better. Healing is a slow process. Take your time, don't rush anything. I feel I was completely healed in about 6 months. So follow completely Levine's instructions post surgery and don't try to speed up anything. Take your time and in the long run you will appreciate it. I am still grateful for my surgery and very active sex life still after 13 years.

I LOVE the success stories. It gives me more hope this is all fixed. Congrats on yours! You're right on the shades of purple. Yikes! hahaha
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #21 on: February 12, 2021, 11:53:09 AM »

Day 2 Post OP:

Yesterday, I was experiencing discomfort in odd places. My pelvis, all around the base was sore. They must have used some sort of device or pressure that pushed things down. Also, funny story I guess, I kept asking myself "Why does my skin burn?" and after looking at bandaged penis it dawned on me... Im shaved smooth. Everywhere, and the razor burn is real! hahaha!

So, today is a LITTLE better than yesterday. I assume each day will bring a little more relief. I assumed several days to a week or two will be uncomfortable. The swelling of the glans, and the bruising started yesterday. It's certainly a DARK purple. Less pain then I thought overall. It's more of an annoying deep throb then pain. It's manageable so far, and Im thankful for that.

Tomorrow morning, I was told to remove the compression bandage, and he told me to make sure I take my pain meds BEFORE I remove the bandage, because it will hurt. Anyone have experience on this, and how to make that process easier?
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #22 on: February 12, 2021, 04:21:12 PM »

Peace of mind, I called the office to discuss swelling. I had to send pictures... awkward. But, looks good, no worries, totally normal.

Again, my very best tip I still stick to: SIT DOWN TO PEE. I felt like Jim Carry in "Me, Myself & Irene" if you get that bathroom reference. LOL
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

gaussrifle

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #23 on: February 12, 2021, 08:28:11 PM »

Excited for you !
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26 year old. 45-50 degree downward curve. Hourglassing when semi erect, changes to indentation on one side only when erect. Currently doing restore x traction and taking coq10 supplement with daily cialis 5mg.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #24 on: February 13, 2021, 02:34:29 PM »

Post OP Day 3:

Today I removed the compression bandage. Here's another tip for you guys who will go through this, and this made it EASY and completely painless. Use very warm / hot water and q-Tips. As you slowly peel back the bandage use the q-tips to "paint" the water along the stuck areas as it softens dried blood and it comes off easy. One you get the final skin layer, GO SLOW. Keep wetting as you go. This worked perfectly for me.

So, it's off and I can see everything clearly. First, what a feeling of RELEAF to have compression off. It feels 10 pounds lighter. There is significant swelling in the glans and rim, and bruising, and I expect the swelling to get better over the next couple days now that compression is off.

The incision and stitches surprised me the most. I expected a horror movie moment, and it's hardly noticeable. Seriously. They did an amazing job, where even if this scars, It will be so minimal, I won't notice much.

I'm please so far, Looks good, still tender, sore and I think now I can feel a bit of throb in the grafting area, but still manageable. I took a pain pill just in case, but didn't really NEED it.

My fear now, is nocturnal erection without the bandage. I can imagine this will be painful tonight. Bonus, I get to shower today! YAY! haha

I'l be back!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Tortão Pra Direita

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #25 on: February 13, 2021, 04:16:34 PM »

I'm happy for you! Keep us updated!  ;)
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Symptoms started around September 2019. Pain was gone after a year. Curvature went to 70º+, but now is around 45º. Manual traction is the only thing that made an impact. No erectile dysfunction. I've curvature and hourglass.
28yo.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #26 on: February 13, 2021, 11:46:50 PM »

Evening update:

Swelling of the glans is almost gone, and it moved down to the incision site, all the way around, deforming things oddly. Now it looks beat up! haha. Pain is still minimal. I figure a few more days of odd swelling.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #27 on: February 14, 2021, 02:10:39 PM »

Day 4:

This is where I begin to struggle with my own impatience. I KNOW this is going to take time. Lots of time. Maybe 6 month to "normal." But my impatience looks at it and starts to think "Oh man, this isn't fixed. It's not going to get better." and I know this isn't true. It's this weird doubt, because I that instant gratification person. If I want something, I'll scour 25 stores until I find it, pay more than I should have, and then not look at it more than twice, but I'm too much in a hurry. THAT bad personality trait makes healing difficult for me. Convincing my brain this is a marathon, and not a sprint.

SO, pain level is minimal. Swelling in some areas is going down, and showing up more in others. Im pretty sure the grafting area is tender on the inside. There's a deep "trauma" feeling. Not pain, but uncomfortable.

Showering last night was wonderful. No pain, no issues, and being clean again after surgery made me feel like a new man.

One bit at a time!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

postrocker

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #28 on: February 14, 2021, 02:19:07 PM »

how is it to urinate? 100% normal? since day 1?
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~30/35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #29 on: February 14, 2021, 08:08:43 PM »

how is it to urinate? 100% normal? since day 1?

I was nervous about this, mainly because my urine stream is already weak because of my spine compression, I assumed it would be near impossible with a compression bandage. Not the case. Urinating is no problem at all. No burning, no discomfort at all. The worst part is the swelling makes the stream go in crazy directions, so like I said, best tip, SIT DOWN to pee! haha
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

TDix

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #30 on: February 15, 2021, 04:07:38 AM »

Haha I sit down to pee for most of my marriage!😂. Been where you are.  It gets better.  Hopefully you are not numb from the neurovascular bundle movement.  That could take months to heal.  Good luck to you
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #31 on: February 15, 2021, 05:12:03 PM »

Day 5 post op:

Im starting to wonder a few things. I was not told to do anything other than rest. I wasn't told to ice it for swelling, wasn't told to use neosporan on the incision after removing the bandage... With COVID, and my Fiancé not allowed in the building, and im given all this information in recovery, did I miss something? Hmmm...

Pain is about the same. It's deep and dull. Mainly in the shaft and pelvis area. I have zero sensation on the right side of my glans, but the left side is good. The right side is also much more swollen between the rim, and the incision. It does seem less than yesterday. It's concerning, but Im trusting the process. If it was getting worse, I'd call the doc.

No pain meds needed today, night time erection pain still there, but less, and its not really getting "erect", just enough I guess.

I wish I had more nerve to post photos. I take them every day to compare.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: DONE
« Reply #32 on: February 16, 2021, 01:58:47 AM »

Looked through all my paperwork. Yes, I’m supposed to be using neosporan on the incision, so I started this after showering.

Tonight I think I see the swelling a bit less. Had a break though I suppose. The mrs helped me with a moisturizer on the glans. For some reason the skin is very dry and rough. This I have to admit excited me a bit. Even with little feeling, I did get an erection. About 60% maybe... straight as an arrow. This was the first time I think I believed I may actually come out of this fixed.

Back to resting! More tomorrow.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #33 on: February 17, 2021, 01:47:29 PM »

Day 7: One week Post OP

Swelling around the incision site is very slowly going down. Slower than I expected it to be. The stitches are a bit pokey, and the incision site is a bit tender, but I think the grafting area is the deep throbbing, dull discomfort. It's not horrible, but you're aware something isn't right. It's odd feeling.

So, things seem to be moving in the right direction. Slow heal, slow to lower swelling. Im supposed to start low dose Cialis tonight, but I won't have those meds for a few more days. My follow up visit is in just under a week and a half, and I'm supposed to start stretching and remodeling I was told... I don't see how that will be possible this soon. Time will tell!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #34 on: February 18, 2021, 01:35:45 PM »

Day 8 Post Op:

It's getting harder to post updates at this stage, because it's just little steps each day. A little less swelling, and little less pain. This morning is the first morning I'm starting to feel a bit more normal where I don't have as strong of that over all "Trauma" feeling. I have no other way to describe it. Your body just knows something isn't right, and you feel that weirdness from head to toe. But today, that is less. So far, so good!

FedEx is coming today with my Cialis medication for nighttime, so I start that tonight. Oh boy. Not looking forward to that. I'll let you know of that goes, tomorrow!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

LWillisjr

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #35 on: February 18, 2021, 06:36:31 PM »

Did Levine say to start the Cialis already.  I think for me it was like 6 weeks post op.
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Les - 10 yrs Peyronies Disease free
My History

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #36 on: February 18, 2021, 11:17:41 PM »

Did Levine say to start the Cialis already.  I think for me it was like 6 weeks post op.

Yes. It's a low dose, 5mg one week after surgery for 90 days. I had to double check my paperwork to make sure I wasn't about to make a mistake here!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #37 on: February 19, 2021, 01:16:54 PM »

Day 9 Post Op:

Well, Cialis isn't fun. I know this is way too soon to judge anything, but the Cialis does in fact cause blood flow and erections, but it doesn't rise. It's harder and painful, but doesn't stand up. I'm only guessing this comes in time. I hope.

Other than that, same old. LITTLE better on the swelling, and a LITTLE better with discomfort.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

postrocker

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #38 on: February 19, 2021, 01:55:23 PM »

great to know, man. keep on!
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34yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~30/35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #39 on: February 20, 2021, 03:46:19 PM »

Day 10 post op:

Same news to report. Swelling and pain is slowly getting better. Night time Cialis is uncomfortable, and the pain does wake me. I think the grating site throbs from time to time, and the stitches and incision line is tender. The stitches are annoying. Sharp, pinchy, snags on clothes. Looking forward to these falling out!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

pfract

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #40 on: February 21, 2021, 12:43:34 AM »

Interesting to see you say it doesn't rise. With all the trauma down there... From the surgery, maybe it is to be expected?

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #41 on: February 21, 2021, 03:23:38 PM »

Interesting to see you say it doesn't rise. With all the trauma down there... From the surgery, maybe it is to be expected?

I guess last night was better in that area. It gets erect from top to bottom, but I'd say about 65% at the moment. I'm telling myself, it's only been 10 days, once I start the therapy of traction and remodeling, and based on what I've read from others, this should return in time.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #42 on: February 21, 2021, 03:25:54 PM »

Day 11 post op:

Cialis was rough last night. I think it's because nerves are starting to wake up more and more. Being shot awake from penis pain is not fun. haha!

Swelling is better! One day at a time!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #43 on: February 22, 2021, 01:05:19 PM »

Day 12 Post op:

First day I can't really say anything has improved. Swelling is the same, discomfort is the same. Night time Cialis remains painful.

I think some of the sharp sutures are coming off. My paperwork says to keep using the neosporan on the incision until all the stitches dissolve.

One thing I noticed, I hang differently. It's like the grafted tissue seems heavier and more solid then natural. This possibly changes with healing / remodeling? Just an observation really.

I think my impatience is getting the better of my brain again. I'm feeling a bit down, I keep thinking "What if this didn't work? What if I can't get a full erection again?" It's difficult when negative thoughts start to consume you.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

bustedchubb

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #44 on: February 22, 2021, 01:39:44 PM »

Try not to go there with those thoughts.  Just a month or so ago I thought my post voiding burning and issues were going to be a way of life for me, and here I am a month later and after suffering for over a year, nearly back to normal. 
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43 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 80 deg bend up, lost length and girth top half (hourglassing).

Propolis, L-Citrulline/L-Arganine, RestoreX > 110days,  VED, Pelvic Floor Therapy

gaussrifle

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #45 on: February 22, 2021, 05:07:13 PM »

Daremo I if I were you I wouldn’t bother with negative thoughts at all. You have manned up and made a decision to better yourself. Give it time, patience is key, body needs time to heal. Think of it this way, worst case scenario you’ll end up with a penile implant if it ever comes to that.  This means your worst case is on demand erection for however long you want and that too at the age of almost 50. A lot of people your age would be jealous.

Moreover, if you give up hope and start feeling defeated, it really breaks moral of younger men on this forum like me who are in their twenties, single and just starting their lives with this stupid condition. Consider yourself fortunate and count your blessings.
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26 year old. 45-50 degree downward curve. Hourglassing when semi erect, changes to indentation on one side only when erect. Currently doing restore x traction and taking coq10 supplement with daily cialis 5mg.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #46 on: February 23, 2021, 01:54:06 PM »

Thank you guys for the support. It's difficult for any of us with this, and being human, I have my good days and bad days with this, physically and mentally. I have high hopes this was successful and I have a lot of confidence in Dr Levine. I know this will take time, and I need patience.

Thank you!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #47 on: February 23, 2021, 01:59:41 PM »

Day 13 Post Op:

Not much to report. If there's improvement, it's slight. I think i'm at that point now, stitches are starting to dissolve, skin on the glans is quite sensitive. Direct shower water on the glans can feel like electricity, but easy to work around. I assume I have at least another week of where Im at now. I have more discomfort then pain, the only irritating pain is the night time Cialis erections. It's not unbearable, but not pleasant either. I keep telling myself, it's a good this It means it's getting the blood flow needed for healing, and it means its working.

My follow up visit is in 6 days, that will tell me more I believe.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #48 on: February 24, 2021, 12:36:39 PM »

Day 14 Post op:

2 weeks after surgery, and as with each day, swelling goes down a tiny bit more each day. Skin sensitivity in some area are going back stronger. Incision site is less painful. Nightly Cialis is getting more bearable. My only concern now is my erections are only at about 50-60% and I don't know if this is normal for 2 weeks out. Follow up visit in 5 days, and I can't wait, I have so many questions.
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.

Daremo

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Re: Excision and Grafting (PEG) surgery with Dr Levine: JOURNAL
« Reply #49 on: February 25, 2021, 02:44:45 PM »

Day 15 Post Op:

SO, last night I had a moment where for the first time I felt like things are going to work. First of all, swelling is going down, sensitivity is slowly returning, meaning the skin is starting to have feeling again where the swelling is going down. The stitches are dissolving and falling out. I think at least 65% of them are gone. That's becoming more comfortable. Each day now, I'm seeing more and more improvement.

As a test, and with very gentle help from the Mrs, I had my first "full" erection. Even the glans. I was so happy, the pain didn't matter. Id say, for 2 weeks to be able to get what I'd consider 85-90% full a big win for me. It tells me, blood flow is good, and this should only improve with time. Seeing it straight, with no hour glassing too? Amazing. I did however notice the size was shorter. Im hoping through traction and time, that will return too.

So, 15 days out of surgery, I'm pretty damn happy and in good spirits! Can't wait for the follow up. 4 days!
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49 Years old, Autoimmune my entire life with Peyronies From Feb 2020. 80 Degree dorsal curve with hour glassing, much pain. Still maintain solid erections, making me a good candidate for PEG. Surgery scheduled for Feb 10, 2021 with Dr Levine.
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