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Author Topic: How well do people around you know about it?  (Read 653 times)

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tonyrobinson

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How well do people around you know about it?
« on: February 01, 2021, 08:26:09 AM »

Hello mates. Do your neighbours know about your disease? Do your colleagues know? What about the community around you?
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Fubar94

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Re: How well do people around you know about it?
« Reply #1 on: February 01, 2021, 08:29:15 AM »

Neighbours probably know by now because I get mentally insane and scream it lol. Also, the girl I been dating knows as well and she's been great to me, but I still feel lost. My best buddy and my family knows too. As bad as it has become I am almost at a point whrre I wanna scream it out and let everyone know cause I will become impotent anyway and wanna start not giving a fck.
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Age 26
Did jelqing, pumping & clamping from abt age 15 until 17. Never had any real issues, until it was too late.
I got a change of shape, sensation, and a loss of volume.
it continues progressing

Bud luck

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Re: How well do people around you know about it?
« Reply #2 on: February 01, 2021, 03:04:44 PM »

I walk around with a sign that says "I have Peyronie's, what do you want to know" 😆. Now seriously, the people that know about are: my girlfriend, the "doctor" and the owner of the clinic where they gave me the Trimix shot that caused me the problem and the two "Peyronie experts" that did absolutely nothing to help.
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My first symptoms started 18 months ago
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
I have a girlfriend

mikel7

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Re: How well do people around you know about it?
« Reply #3 on: March 18, 2021, 04:07:02 PM »

My wife knows and I had a talk with my 23 year old son. He was thankful that I let him know.
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.
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