First post with questions

[Ineedtosleep]

Wrote this as a fam to Neo but will post for anyone else who feels gracious enough to help:

Thanks for everything you do here and your YouTube videos.

I'm 25 and was on finasteride for a few months a year ago. I experienced all the sides (PFS), of which I am still recovering. This of course included what I thought to be Peyronies. About a month after stoppin fin, I developed a hard chord like vein while masturbating. This disappeared a few minutes later and then I developed the hourglass that was noticeable when flaccid but not erect. Urologist couldn't find any plaque and I couldn't feel any either. Slowly over the last year and few months I have lost a little length and .5" in girth. I have indents on the lower left side of my shaft that became more pronounced with time. Otherwise everything remained stable, erections improved, was able to masturbate, have sex, etc. I do have the hard flaccid afterwards though.  Fast forward to today, I recently started pumping to improve size and indents. I over pumped one time and had slight donut effect. This subsided over a few days, but after a week or two I now have indents on the right side of my penis too, and a indent on the cavernous spongiosum on the underside of my shaft a little bit below the head. Nocturnal erections are gone and penis is cold when I wake up. Not sure if this is because of extreme stress or actual reduced blood flow due to the new indents.

After over pumping, I checked to see if I could feel any hard veins/vessels like the first time this happened and couldn't find anything as substantial as the first time this happened. I may have felt one on the right side, but I was also very freaked out and it could have been anything.

Knowing this, do you have any recommended treatments? I am seeing the urologist this week and am going to ask for an ultrasound. My guess is that they won't find any plaque. I don't think that this is what this is. I think this is dead/inflamed/fibrotic vessels that are reducing blood flow. Have you heard of cases similar to mine resolving on their own? Does a VED make this worse or better when used properly? Knowing where the indents are now, including on the underside, can I  expect and future reductions in girth/length and new bends/shapes? My hourglass is gone now, but I'm afraid that is because I have a new vessel/plaque on the right side that balances out the left that was causing the hourglass/bend to the left when flaccid beforehand.

Any info greatly appreciated. Thank you very much.  

[D1990m]

Ved works miracles for me. As well as a low carb diet and occasional 48 hour fast. After I do everything properly including pelvic floor excercises (mines very tight ever since getting a herni surgery) it's as if I don't even have Peyronies. Doesn't take much to slip tho

[LuisFernandez]

Not sure about your case but i also got Peyronie's while i was on finasteride. At first i thought it was PFS, but really it was an injury due to the Erectile Dysfunction that finasteride was giving me. I was also masturbating like 4x per day so that didn't help.

In any case, I do VED every day and traction. I've never had any bad side-effects beside the occasional donut effect. I couple it with DMSO+X and am seeing decent results on my dorsal indentation.

I would suggest to tell your Uro about your Erectile Dysfunction and get daily 5mg Cialis prescribed. I actually do 10mg Cialis because i've had Erectile Dysfunction ever since the injury, which may be compounded by finasteride side-effects.

I would suggest getting a VED with a gauge (I use the DP-4000) to be absolutely safe. Don't think you should stop using VED and simply add DMSO. Specially if you're past the acute inflammatory active phase.

Personally I think focusing on "Pelvic Floor" is a waste of time. Peyronie's is simply an injury and subsequent scarring on your tunica and corpus bodies, has nothing to do with muscles or anything like that. Treat it like any other type of wound you would get on your body, except that it's inside of your penis and can calcify.

Best.

[Hawk]

Read this link CAREFULLY to give you an overview and things you can do starting now.
https://www.peyroniesforum.net/index.php/topic,3180.0.html

[Ineedtosleep]

Hi all,

Saw my uro. She did a physical examination, no ultrasound. I'm going to find another and try and have an ultrasound done, but I do have some questions about my situation.

A few weeks ago I began VED therapy for lost girth. This loss occurred over the last year after discontinuing finasteride, amongst a myriad of other things. I over pumped once, had slight donut effect, but nothing too serious. Fast forward to now, the entire right side of my penis is covered in indents equally spaced going down my shaft. I also have this on the left side, but the left side indents have been since I stopped finasteride with some new ones developing after the pumping. These only become pronounced with an erection and are undetectable otherwise. I have one that runs to the underside of my penis, leaving a slight ventral indent on my urethra. I also have a little blue nodule on the top of my shaft under the glands that fills up with an erection. It's deep blue, so definitely a vein. It might be important to note: after finasteride I developed an hourglass that only showed when I was semi erect or flaccid and peeing. There was no detectable plaque causing this either, and after pumping, this is now gone. I assume it's gone because whatever was pulling my penis left and hourglassing it is now being counteracted by what is happening on the right. That, or I actually eliminated whatever was causing it to begin with.

I don't think this Peyronies and here's why (tell me if I'm in denial): the symmetry of all of this, as well as the acute response to the VED, leads me to believe this is a thrombosis/sclerotic thing of sorts. It's as if the veins that run down the sides of my shaft all hardened, or aren't filling with blood, causing the indents as they are. Is there a condition for this or any means of receiving an accurate diagnosis? I cannot feel hardened plaque of any kind. I'm very concerned about treating this sooner than later, as I don't want to lose any more size, specifically girth, though based on what has happened over the last year, I'm expecting that to happen.

Thank you for your help!  

[LuisFernandez]

I'm pretty sure this is not thromonosis and more like Peyronie's. Not sure how sever it is.
The reason you're not feeling hardness is because it may be early. You will not feel things hard in the early phase.
However, there is some mild toughening of the tunica IMO. This is because your veins are protruding more. This happens because the tunica is toughening and pushing out the veins more than they would normally.

This is just based on what i've seen on the board and my own experience. I also thought those veins were the issue, but no it's the scarring in the tunica pushing out the veins.

I'd suggest you just keep on the Peyronie's therapy, including VED. Just my 2 cents.

[palo15]

You really need to go to a good urologist, preferably a Peyroines specialist, because it sounds like you don't have a diagnosis yet. No one on this board is able to diagnose you. Without a diagnosis, you're just guessing.

Ultrasound is not usually required to diagnose peyroines but is helpful once peyroines is diagnosed to give the specialist more information, exclude congenital curvature,  and allow for the best treatment recommendations.

The cause of peyroines is really unknown. Although it is believed to be trauma related, there's a lot more to it than just that. If it were just a penile trauma disease every male in the world would have peyroines and have it early (what guy hasn't injured his penis in some way in his life?). But, that's not the case. What we do know is there are certain risk factors for it, like diabetes (yet many diabetic men don't have it), European heritage (suggesting a genetic basis), Dupuytren's contracture, (also a disease primarily of men of Northwestern European ancestry). So, there's a lot unknowns of the cause of the disorder. I think it's a disease with a genetic basis with some trigger (which normally occurs later in life because the mean age at onset is 55-60, even though it can occur at any age), which is probably has micro- trauma as a trigger  (yet the majority of men recall no penile trauma when first diagnosed). Peyroines is really best thought of as a wound healing disorder, like keloids, of unknown origin, that wound being deep in the penis in the tunica albugenia. The tunica albugenia should be able to be injured and heal up on its own without scarring. That's the normal healing response. In peyroines plaque forms

So, I'd say get your diagnosis and go from there. That's just how any disease is approached.