What is the ultimate final goal?

[Asphyxia]

I understand there is no cure therefore what i dont understand is what are we aiming at, straight penis with a lifelong maintenance?
Traction seem to be needed even after straightening the curve, aswell as maintaining a healthy diet and lifestyle, am i wrong? Does straightening the curve while entering chronic phase means we are off the hook and we can go back to our old lifestyle?
I think not, I been asking people on the forum and they seem to experience pain after orgasms even at the chronic phase, so, what does it mean to be "cured"?

[Xavier99]

The goal for urologists with current treatments is for us to to functional.. If you've entered the chronic phase and you can penetrate you just go on with your life. Personally I wish Xiaflex covered for me with my mild case.. but understand the risk might not be worth the reward. That is what they tell me

[Asphyxia]

Obviously one goal is to be able to penetrate, what im wondering is what is the best possible outcome we can expect, i dont want to enter chronic phase and assume im cured and subsequently be less strict just to find out its a lifelong battle and i need constant maintenance.

I've watched NeoV's video and he seems to be dealing with it for many years aswell as other people, so that makes me wonder, if i enter chronic phase and start eating some junk foods, or masturbate like i used to do will i be back to dealing with peyronies or will i be able to forget about peyronies at some point and move on.

[Godisreal]

Considering the unnatural nature of both unhealthy eating and masturbation, you will most certainly get your problems back even in "Chronic Phase" if you include those two things in your life.
You simply shouldn't be unhealthy or be masturbating. It's difficult to to admit that Peyronie's is a (probably) lifelong condition that needs care, just like any other chronic condition.
I'm 16 months in, and I still have pain in different ways... it's definitely the most annoying thing about the disease. Not knowing if you're out of the worst phase or not. Or even worse, thinking you're out and then BAM, another sting of pain.
My personal goal is to stabilize and decrease the curve, and if I'm still not content then; I will get either surgery or implant. But that's far in the future.
Try everything, ACTUALLY try it with consistency (every day for 6+months) and then after that I guess you could go under the knife or something. Whatever you prefer.
NeoV has diabetes and other big issues with his blood sugar and this and that so I wouldn't relate too much to his case.
Me, personally, got my BULLSH*T from trauma, which is MUCH worse than inheriting it or whatever you would call it. Much harder on the psyche, especially if you're young.
Bottom line tho, from my long a** text:
- You can do anything. Including straightening your di*ck into near perfection.
Taking care of yourself and excluding masturbation should be mandatory "rules" even if you don't have Peyronie's.

[Asphyxia]

Do you think its a lifelong condition even if you manage to straighten your penis(without surgery)?

[Godisreal]

It's the inflammation that is lifelong IMO. Straighten it & maintain a healthy lifestyle and you will be "cured". But I think all Peyronie's sufferers have inflammation (even tho it's low) in our penises.
That's why some members come back because it has flared up, etc.
It is an autoimmune disorder. Remember that.
It won't go away, just stay dormant if you're doing things rightly.
The only reason curve & size is a problem for us is because of our vanity and also functioning ofc.
But inflammation is the actual issue. The body just won't stop thinking it's being attacked, for a reason I do not know. There's a bunch of theories but nothing concrete.  

[Pfract]

The goal for urologists with current treatments is for us to to functional.. If you've entered the chronic phase and you can penetrate you just go on with your life. Personally I wish Xiaflex covered for me with my mild case.. but understand the risk might not be worth the reward. That is what they tell me

This user pretty much summed it up. The faster you are able tu understand this, the better..

[Bud luck]

After over 12 months with Peroynes, I still wear the Androperoynes everyday for six hours, VED for 15 min daily, Q10, Cialis, L-Argenine. I'm planning to do the previous routine for life

[postrocker]

Hi Bud Luck, what improvements did you see with this routine?

[Asphyxia]

You are planning to take supplements and do 6h a day traction for life? Is that really necessary? Im not sure if you are exaggerating or if this diseasse is really that unbeatable  

[Bud luck]

Postroker, my length is the same as pre-peroynes, and I still have erections

[postrocker]

Great to read that!

[Xavier99]

When the active stage is over the pain and changes stop. If you have to do traction for life to keep it straight enough  i personally would be seeking other options! I think some users here a bit of a kink for these devices or something.  You may not be able to have your partner on top but other positions where you are in control should be fine. If your worried about re-injury take a viagra.. you'll firm up the damaged agree and F~@< like a champ  

[Asphyxia]

From my understanding of other people's experience, generally people feel pain after orgasms  and are trying not to have too many in a short period of time, and thats after chronic phase, so by reinjury i dont necessarily meaning injurying yourself again in an obvious matter, i mean doing stuff that are considered "normal
Like having multiple orgasms during sex everyday or few times a day, or eating out at a restraunt with not the healthiest food

It seems like not only you have to restrict you sexual activity but you also have to keep a constant maintenance of your general health and penile health.
If the low level of inflammation at chronic phase is forever present then it means we are forever at risk, i do wonder however what are the things that seperate those who have been battling this for years and are still struggling and those who feel as though they are 99% cured and can orgasm freely as much as they want, maybe an underlying health issue.
Maybe the degree of curvature effects inflammation levels?
And the low level of forever present inflammation i suppose contributes to the risk of reinjuring wether by a trauma or not

If this is a lifelong condition and an autoimmune disorder,
Doesnt that mean that we can stop our body from attacking itself by eliminating allergens and food intolerances, or will the low level of inflammation in the penis continue regardless and stay dormant forever waiting to attack us again?

[Bud luck]

Xavier, I have a question for you. I see on your profile that you have narrowing, just like me, does your penis buckle when is semi-erect?, because is what happens to me, is disturbing. I have the thinning, the buckling and the dent all on my low left side of my shaft, that is where the Trimix was injected.

[Xavier99]

Bad luck I posted a pic of my narrowing a few posts back. I do get a little play in there is I'm not fully erect. I make sure I'm rock hard or as hard as I can be where it's thinned. I haven't really had much prob with my wife. We just don't have her on top any more.  

[Bud luck]

Xavier, for the thining I'm doing the VED for 15 min/day, but I'm thinking about hydroluronic acid to fill up the dent

[Godisreal]

The conclusion I've come to after 16 months in this b*tch is that the worsening/acute inflammation is the worst, because it gets worse, obviously.
Getting out of that, is what one should be focused on.
And depending on how bad it is then, should decide your next move.
Like pfract said, if your condition isn't that bad, go on with your life and remember this sh*t forever.
It will change your mental for the better, or for the worse if you let it.
It's a blessing in disguise. I know that sounds nuts but life is all about perspective.
However, I'm still experiencing pain and discomfort 16 months in, and I know people here who still feels pain and discomfort after many many years; and that contradicts the saying about Peyronie's having two phases. It's a hassle, lads. It sure is.

[Asphyxia]

Cant help but think il get to the point where my condition is that bad even after acute phase and i cant decide on my next move,
Anxiety at its finest.
Also cant stop thinking why people battle it for years, in order not to do their mistakes, yet i wonder if they even do something wrong or if its just random

[Deek]

@Asphyxia
I can understand you well. I've been in this nightmare for 14 months now.
My life is no longer carefree as it was before.

I think of my Peyronie EVERY DAY and I have to deal with it every day.
It's a stigma.

But I have seen changes and slightly positive signals after the actual phase.
I approach the matter with the knowledge that this will be with me for the rest of my life.

And one thing I really learned:
Treat your penis gently and peacefully !!!
No rough masturbation, no crazy sex actions  

Daily light traction and daily VED is helpful.

The healthy blood circulation must always be guaranteed.

We have to be extremely careful with our dicks  

[Asphyxia]

I find it difficult to fix my digestion and peyronies at the same time, trying to avoid carbs or sugars seems to make me ill and i was hoping i could go back to eating simple carbs once im out of acute phase and subsequently feel the way i used to,for some reason my body just cant digest fat/oils well.

Hearing that this is a lifelong condition is leaving me confused,
If peyronies really stays forever as a low level inflammation then how do i do anything at all? Extreme sports? Cycling? Adjusting the diet to my body needs? How careful will i have to be. im seriously haunted by these thoughts day and night,
i was hoping once im out of the inflammation then im out,
I cant take this lifestyle much longer, i need to go back to eating what my body craves and feels best on,
and i need to engage in my hobbies that right now will worsen the pain if i will, otherwise il go crazy more than i am.

I made this post partly because im anxious but also because i dont know how to deal with this, not physically and not mentally, should i just give up on my hobbies, because right now im thinking maybe things will get better and i can go back to doing martial arts, maybe once things get better i can go back to eating fruits and get my energy back,

And i just dont know if its true, because from where this post is going it seems like im gona have to treat myself with more care than 90 year olds need to treat themselves.
So even if we are forever at risk and needing to take good care of our health, to what degree?
Do you guys plan to return to sports which involve getting your penis in worrisome circumstances or incidents?

[Lostandsad]

Bump. I have this same question. How do we know once we're out of the acute phase? Is pain being gone the signal? Are we going to have to do traction/VED for the rest of our lives to battle this? Can the plaque really be remodeled? Are we going to have to completely avoid carbs/sugar/alcohol altogether to keep the inflammation low? Lots of worry and anxiety over this.  

[Pfract]

The ultimate final goal is to let this stabilize, be cognizant that it may change again with time, and if so... proceed on to having a therapy modality that manages your condition in a way that you are able to have intercourse successfully.

[nemo]

Guys, having battled Peyronies Disease 4 times in the last 20 years (currently in a flare), I can tell you during the 5-6 year periods when I didn't have active Peyronies Disease, I felt totally normal and didn't watch my diet, had frequent and carefree sex and never worried about Peyronies Disease at all. In each instance, I believe what triggered my next flare was either: a) a minor injury (bending) during sex; b) an inflammatory storm that coincided with me getting ulcerative colitis; or c) possible inflammatory response after my COVID shots (current situation), but this too could have also been a sex injury.

My point is that if you can manage through your active stage and enter the chronic stage functional, with good erections, and a bend/dent/narrowing, etc. that doesn't make sex difficult, you are very likely to enjoy wonderful sex for many years and possibly right on throughout your life. Many guys leave this forum and never return living their lives beyond the shadow of Peyronies Disease.

I don't think you need to spend the rest of your life obsessing about diet (though, obviously, we'd all be healthier to obsess a bit). I do think you need to be very sensible and thoughtful about how you use your penis during sex. No weird bending, avoid slipping out and jamming it, etc. But other than that, when you're stable, you're stable. If something is going to reactivate Peyronies Disease, it's generally going to be an accident, or some larger inflammatory issue like I have with multiple auto-immune conditions.  

So, manage your acute stage. For the vast majority of us, I believe there is a happy life on the other side. I know it feels like a never-ending hell when we're in the middle of it, but for most of us, it's a storm, not climate change!

Regards,
Nemo

[Lostandsad]

I'm a month and 10 days in, and it seems like the pain is getting worse. The pain after sex gets pretty bad, I feel like I just need to abstain altogether for now, same goes for masturbation. The plaques I have are pretty big... one of them right at the base of the shaft that I'm not even sure traction could help get rid of. I think I'm starting to notice another 2-3 more plaques at the base of the shaft(maybe that's why the pain is getting worse) There are also 4-5 thin stiff cords on the shaft that go up to the glans. Used to be able to last 1-2 hours during sex, premature ejaculation is so bad I can't go more than 5 minutes. I feel my bulbospongiosus/corpus spongiosus is tight and constricted, making my erections tight and painful. Urination problems still persist as well. The curve isn't as bad as others, but overall seems like a pretty bad case. Sorry just venting, I probably sound like a broken record right now. I can't help but be scared of the future if things are already like this.  

[Asphyxia]

Well the thing is that i also suffer from degestive issues and inflammation, i cant even attempt to reintreduce foods to my diet because that may trigger inflammation all throughout my body, acne, joint pain, pain in my penis and stomach pains.

How do you avoid flare ups with digestion issues or attempt to reintroduce foods that will possibly cause a bad reaction?

I used to be able to experiment and see what works but now i cant afford to make the tiniest mistake and apparently not only in the active phase but also in the chronic phase according to your situation with ulcerative colitis.

[BrettC]

I ask myself this question all the time.  

I started off this road with a 40-45 degree upward curve and within in a year I was up to a 60-65 degree curve.  One round of Xiaflex and over a year of traction and I am currently back to a 40-45 degree curve.  20 degrees... for a year worth of effort and expensive treatment.  Penetrative sex still seems weird and infrequent for me.  I have to think about angles.  I have not truly changed my masturbation techniques, and now I am questioning if that was the right thing to do.  Some of you sound like you no longer masturbate?  Is that practical?  

Functional... how do I get like that and feel like I am there?  Ugh!  So many questions.  

I hate to think of myself strapped to a Restorex device for life.  That sounds like no fun at all.  

[samsam]

All of us have the same questions and the concerns. Funny to see that there is so much more knowledge here than in the medical world. I also think that the chronic  inflammation is the biggest issue. For the past year I have had moments where I thought I was "cured". Had moments where things were better. Tried pretty much everything. Also weird that when things are better each time I seem to "forget" the hell and exagerate with sex.

[Lostandsad]

Yeah I hate this crap. I thought it was getting a bit better for me when the pain was subsiding. Now my current plaque looks larger and another one formed near it, and the pain became worse. When does this end?  

Nemo, your case seems like an outlier on this forum compared to everyone else! Very fortunate, i hope your current flare goes away ASAP.  

[Nolte94]

My goal:
Condition for having a normal sex life without daily pain.

[Curvekiller94]

Me personally I've just kinda said F~@< it's. I've tried supplements pills traction you name it little results. Traction made my pain worse. So I pretty much just ignore it now and I haven't seen my symptoms get worse. I don't masturbate or have sex like I used to but I still do semi often. For instance I came 3 times yesterday with some pain after. But pain is usually gone the next day. I figure if things take a turn I will get implant then. But if it remains I will stay where I'm at. Cialis with weed and Vicodin or tramadol works very nicely. I save the pain pill for my last session I take it right after to make sure I didn't hurt anything during. It allows me to relax after and not worry.  

[Lostandsad]

Curvekiller, were you consistent with the traction everyday? And are you still taking the supplements? F, I'm scared if I continue to keep doing all of this and it doesn't improve, I'll be even more depressed than I already am. I'm afraid to even smoke weed now cause some members have said it's pro fibrotic  

[Curvekiller94]

So I did it very consistently for about a month and a half 2 months. I was afraid because the pain was getting worse that I would make something worse. Also you can't fail if you don't try lol. I asked dr. Levine and he said weed will not harm anything.


But in short I'm not sure why my algorithm below isn't how urologists go about it given what I have learned.

1st. Try supplements and cialis
2nd. If cialis isn't helping try traction
3rd. If traction doesn't work and your sex is unsatisfactory  get an implant

Frankly I'm not sure why the even offer xiaflex or other high risk surgeries/treatments.

[Lostandsad]

Weed always seemed to amplify the pain for me, and reading about it being pro-fibrotic made me scared, so I stopped. I always thought the protocol was to take cialis, pentox + supplements of your choosing, and start traction right away. Maybe add VED as well, seems many members here have a lot of success.

I wouldn't try Xiaflex either... 16% better than a saline shot seems like a terrible risk/reward.

Hopefully the PMP is comfortable... I plan to use it for 3-6 hours a day consistently. My ultimate goal is to get my penis back to as close to pre-peyronie's as possible. I'm really hoping it's possible... seeing things slowly getting a bit worse is quite unsettling.  

[MiddleAgedMan]

My goal is quite simple, to be able to have intercourse with my wife without discomfort for her (and to a lesser extent myself) and without being restricted to a single position and constantly worrying about pain/slipping out/further injury. I have a dorsal 60 deg curvature and while we can still have intercourse it is frequently uncomfortable for my wife to the point where she is not really enjoying penetrative intercourse very much. I would be quite content with a curvature of 20 deg or so and I don't want to have to spend hours every day for the rest of my life using a traction device. All in all I am leaning toward surgery and hoping that that will get mo that state, and that the issue won't recur in a few years'.