Dear guys, companions and brothers,
I’m reporting back after more than a year of silence, where I have been diving into a crazy work session (still ongoing…), and trying to take distance from the obsessive compulsion of researching about Peyronie’s in order to find at least a little psychological relief… Did not work that well, but at least I managed to devote the little free time I had to something else than becoming wrazier about my disease.
So, after 3+ years of conventional treatments not working, unsolved symptoms and a billion crazy experiments on my junk, I wholeheartedly wanted to redact a big summary of everything I did that helped or not, hoping that it would provide you solutions or gain of time and energy, i.e. be precious to both newcomers and old bros.
So without further ado, here is what has helped and was has not since the onset of the disease in summer 2017 (hourglassing, dents, length and
girth loss, variable but endless pain).
What I tried, but did not help
Side effects or peripheral positive effects are specified in parenthesis; if I don’t specify anything after the name of the item, it’s that is has juste done nothing noticeable to me
Oral supplements and meds : pentoxyfilline (gave me GI distract, weird sleep); L-carnitine; L-arginin; L-citrulin; Co-enzyme Q10; bilberry extract; propolis extract; gotu kola (“centella asiatica” : great for stress relief though); ashwagandha (but very good for sleep too); passion flower extract (same thing for both stress and sleep); valerian (same thing for stress, but seems effective also for sleep in most people); magnesium (good for sleep); boron; Fibrotek (mix of zinc, vitamin E, Superoxyde dismutase); Glisodin; nattokinase; serrapeptase; pycnogenol; probiotics (change my gut life & life though); sillymarin; ACV; active charcoal; quercetin; bromelain; rutin; fish oil; reishi; gingko biloba; sulforaphane; ginger extract; CBD; fish oil;
collagen powder (really effective and great for skin and hair health though); MSM.
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Surely forgetting 5 or 6 others. Tried each one for a long time, progressively increasing to high and even very high dose.
Topical therapy: scar/penis massaging, along with EVERYTHING liquid that exists on Earth (see my specific topic about it : essential oils, vegetal oils,
DMSO… at some point I had some short-lived relief with a special mixture of essential oils, but it never lasted more than a few hours, was super messy and crazy expansive); heat therapie (helped with the cold dick syndrome during
traction, but seemed to awaken and foster
inflammation in other occasions).
Parasurgical therapy:
PRP/HA injections (see my related topic; no benefit other than short lived, and procedure very stressful and mad expansive).
Hormonal therapy: Human chorionic gonaotropin (raised my crazy low testosterone, but that’s all).
Diet (became a real nutrition-nerd, watching videos and conferences everyday and trying everything on myself): low carb high fat; ketogenic (1 year straight; see my related topic; great for focus and gut health, but no progression regarding peyronies, and decreasing explosive energy over the months); carnivore diet (6 weeks: perfect for gut health, fat loss and satiety, but felt terrible after the 4th week, and yes I was watching my macros and kcal etc. etc.); high carb low fat vegan (2 months, great for gut – found that only meat or only vegetals in a meal was great for me, but mixing the two feels terrible); high carb moderate fat vegan (1 month, same thing); high carb low fat raw vegan (1 month; great for satiety, fat loss, skin, energy; correlated with a decrease in Peyronies Disease pain, but I’m pretty much convinced this is due to the cofounding factor of starting to use my
ESWT personal machine); vegan keto (2 months; as keto, but with MUCH more ketones and a MUCH higher protein threshold before decreasing ketones, like 140-160+g versus 60-80 with animal proteins – and yes, proteins for me does affect tremendously ketones production); all sorts of monodiets (3 to 7 days); intermittent fasting in every way (14/8, 16/6, One meal a day: great for gut health); now stabilised on a whole food plant based diet, with lots of fruits/veggies/legumes and occasional meat and fish, no dairy, no sugar, daily 14/8 IF.
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Unfortunately, and unlike everything I had been wanting to believe for 2-3 years, none of those diet experiences really changed anything to my Peyronies Disease symptoms. They have, however, profundly changed my life in many ways (for instance, since I have totally eliminated refined and artificial products two years ago with all these experiments, I have not been sick a single day (!!!)); but it’s not the topic here ^^.Alternative therapies: toothbrush method (yes, lol, told you I tried everything); red light, infra-red and near-infrared therapy (studied the stuff deeply, bought a lot of material, consistently tried several of protocols for 2 months; did not do anything for Peyronies Disease, but gave me CRAZY and even excessive erections for the next 24h after exposure, especially at night, along with strange pimples on the skin though).
What I tried and did help
I’m listing here what helped in general, whether it is for the pain, diformity or Erectile Dysfunction (with details in parenthesis) Oral supplements and meds :
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Tadalafil (= cialis; solves
Erectile Dysfunction for me, but absolutely zero benefit on pain or curvature; it’s actually quite pain-generating given that it provides me with frequent erections, especially at night, which is indeed painful);
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Curcumax (curcumin+pectin, see my relative post, available on Amazon and everywhere ; relieves pain);
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Boswellia Serrata (same thing);
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Ibuprofene (same thing, but artificial and with long-term side effects, so I don't take it chronically).
Mechanical therapies:
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VED (Augusta medical’s one, not the other craps out there; 15 min session 2 times a day for 2 years, then 1 time a day because it was otherwise unsunstainable in psychological terms; definitly helps me limit the loss of
girth and maybe loss of size, and certainly fosters good
EQ);
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Traction therapy (very ambiguous for me: definitely helped me recover 1cm over around 1,7cm lost, helped a little with
EQ, BUT also clearly contributed to re-injuring (with Andropenis, which I do NOT recommend : get Penis Master Pro, it’s much better and safer), and is now anyway pretty unusable for me because my last spot of
acute inflammation is right under the glans where the head of the device attaches);
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Maybe pelvic massage (yes, by anal way, with a professional therapist: my 3-4 sessions seemed to coincide with a better overall feeling around my junk, and surely a little less pain in that area (including the penis), but I honestly can’t estimate how much which contributed to what);
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ESWT (four 100€-sessions at my uros, which made pain significantly subside for 10-15 days before it came back; then, I recently bought a
ESWT personal machine from China, which I am still experimenting with; right now I'm having encouraging though ambiguous and uncertain results; I will very soon redact a whole post on this).
Topical therapies:
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Diclofenac cream 4% (prescribed by my uro and specially compounded in a pharmacy: interestingly, does help to allieviate the local inflammatory response after sex or masturbation);
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Cold therapy (via devices like “Therapearl”, ie straps containing small marbles that you store inside the freezer, and which are normally designed for wrists or ankle pains related to sports; what I do is that ASAP after having sex or masturbating, I wrap my dick in it, take an Ibuprofene, a curcumax and a boswellia, and then 15 mins later oint my junk with diclofenac 4%: it’s a little boring, but it greatly, greatly helps to feel almost normal down there the day after).
--> GREAT UPDATE HERE : absolutely see this post about Hirudoid cream as a game changer : https://www.peyroniesforum.net/index.php/topic,15711.0.htmlDiet and lifestyle:
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Being careful not crossing my legs and strangling my pelvic region while sitting all day long at work;
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Wearing loose underwear and jeans (yep lol);
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Quitting coffee and dairy (solved a great part of my unexplained pelvic pain and prostate symptoms such as pee dribbling; nothing exactly related to Peyronies Disease, but I consider it to be nearby enough to be worth mentioning);
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Quitting refined and artificial products (along with coffee and dairy, solved all my painful gastric symptoms, helped with my pelvic-related syptoms, made me lose fat and only fat);
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water fasting for 2, 3, 7 and lastly 15 days (see related post: all pain astonishingly gone after 6-7 days… but always progressively came back after refeed, even while being careful, grrrrrrr…);
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quitting porn and temporarily masturbation (gosh it was the hardest thing I ever made, but I suspended masturbation for a whole year, and totally and definitively quit porn: after a few weeks of crisis, it made a HUGE, absolute and astonishing difference with
EQ; just being with girls and touching her bodies now gives me almost everytime discharges of pleasure level 15-years-old-ultrasensitive-horny-teenager… and, if I’m not too anxious, the great erection that comes along with it (and when I’m anxious, which is still quite often, I just load up on cialis 2 days before ;-). Oh and last but not least, from the pain standpoint, limiting masturbation (I allow myself now just once or exceptionlly twice a week) and, unfortunately, limiting sex, absolutely is a factor of bettering).
To sum up bros --> keep in mind that this is a singular experience from a singular inividual; if you’re new to our community, first and foremost read and apply the PDS Survival Guide (pentox, ALCAR, cialis, traction/VED, cleaner diet, exercise, quit smoking, limit alcohol); if you want to push your experiments a little further, then do try one by one the things I listed here, and see what helps you, while keeping the most scientific-focused method you can :-) [/b]
Cheers,
G
Author
Topic: 3+ years of relentless research and self-experiments - What worked, what didn't (Read 3421 times)
January 16, 2018, 09:44:09 AM