Peyronies's Disease (Peyronies Disease), as it's name implies, is a "disease". Just as cancer, hyperthyroidism, or tuberculosis etc. are diseases. Yes, Peyronies Disease involves the male sexual organ, but how is that different among heterosexual or homosexual men? I notice you left off bisexual men, and transgenders, and those in between, and others. Should we have separate threads for all possible sexual orientations for a disease that is agnostic to orientation? Or how about young men who are just beginning to have sex (of any sexual orientation) who have a long life ahead of them versus older men who have had 40+ years of great sex already. There is likely a greater difference in psychological effect between these age differences than sexual orientation. And this "self identity" list could go on forever. This disease does not care about your sexual orientation, age, or anything else.
Any successful venture encounters "mission creep". This forum is successful, in a way. It has been around a long time, provides some good advice, but also has "creeped" (moved) into so many areas and threads, it is impossible for a new user to know where to go and what to read, excepting the pretty good "new user advice" that is here. And the "creep" that has moved into this forum is being dominated by anecdotal remedies of various drug/supplement concoctions that have little or no scientific/medical basis. I think that is a far bigger concern. And the threads go back so many years, that it is easy to just read what was thought by members 10 years ago, before new therapies and new published medical studies were available and you may never see what is the latest information, published in good peer-reviewed medical journals. I think that is a far greater issue that applies to all men with Peyronies Disease, regardless of sexual orientation.
I greatly appreciate the efforts of those who started and maintained this forum. There is some very good advice here. But it is buried in an avalanche of non-curated thoughts and opinions. Many are harmless, but distract from proper advice and health care. But a large proportion of the threads divert the readers' attention from what is known by the medical community to what someone with no medical background and with no supporting data or information "thinks".
When I have commented on here, I have tried to attach medical journal articles that support the opinion or otherwise are helpful to the body of knowledge we need to make decisions. Almost no one else does this. In fact, strong opinions are thrown out without any supporting information. This is dangerous and irresponsible.
I think this does a great disservice to the Peyronies Disease community.
And it is with that thought, that I leave this forum with thanks to those who have tried to provide a forum for education and "fellowship", but strongly suggest that you separate the forum into
1) medically supported advice and 2) anecdotal advice by non-medical individuals who want to share their story.
How you want to further organize under that umbrella is less important.
And I am not saying that the "anecdotal advice" is not worth reading or that "medical research advice" must be right. But you should differentiate between advice that has undergone rigorous medical study and advice that is based on one person's experience. The
VED protocol advice from "old man" is a good example of personal experience that seems worth listening too, especially in the absence of much medical study guidance on
VED use. But almost all of the personal experience advice here regarding supplements has no defensible scientific support. Yet it is presented as equal to, if not even better than, rigorous scientific studies.
Again, I think this does a great disservice to the Peyronies Disease community.
I wish you all well, with this horrible condition we all have.
Shane