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Author Topic: my penis continues to cripple.... what to do?  (Read 280 times)

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Alexander88

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my penis continues to cripple.... what to do?
« on: November 12, 2020, 02:53:32 AM »

Please can someone help me. The curvature gets stronger and stronger, the plaque grows and every erection hurts. none of the therapeutic approaches help. I have cialis, pentox, ved, traction, vitamine e, q10, painkillers, potaba, tcm, hot / cold shower, acupuncture, ..... I can't believe that this is getting worse and I can only see like my penis crippled  :'( :'( :'( :'( :'( :'(
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

bustedchubb

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Re: my penis continues to cripple.... what to do?
« Reply #1 on: November 12, 2020, 08:30:07 AM »

I know it's horrible, I felt the same way you did up until this August when things really started to stabilize and not worsen.  Before then I tried about everything and all I was doing was making it worse.  Light VED was the best thing I did, because shortly after I started using it, I noticed improvement in pain and inflammation and then stabilized.  As many on the forum have posted, this is a marathon.  You are just getting through the first lap, which is the hardest.  Hang in there, and have faith that things will get better. 
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.  Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 15 deg bend left, 90 deg bend up, lost length and girth top half.

CoQ10, Propolis, L-Citrulline/L-Arganine, Pelvic Floor Therapy

Alexander88

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Re: my penis continues to cripple.... what to do?
« Reply #2 on: November 12, 2020, 12:34:42 PM »

Thank you gor your understanding. But In february it is 3 years :(((( that Long enough!

So you recommand just to do ved for the rest of Life or until it stops?
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

TonySa

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Re: my penis continues to cripple.... what to do?
« Reply #3 on: November 12, 2020, 10:19:35 PM »

How much traction do you do and have you consulted re surgery?
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alexander88

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Re: my penis continues to cripple.... what to do?
« Reply #4 on: November 13, 2020, 03:15:46 AM »

What is „re“ surgery? I believe with a 40degree curve, pain, and Progression no good surgen would advice to do surgery

I do restore x and Hand traction... but i have troubles with the device
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

bustedchubb

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Re: my penis continues to cripple.... what to do?
« Reply #5 on: November 13, 2020, 08:05:33 AM »

Yes, I would consider VED using the 3 cylinder model from augusta medical systems or equivalent.  Usage protocols are posted on the VED topic on the forum.  It is commonly referred to as the "Old Man" Protocol. He (Old Man) is an amazing guy, 90+ years old that gives me a lot of courage and hope fighting this disease and the adjacent other medical issues it brought on.
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.  Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 15 deg bend left, 90 deg bend up, lost length and girth top half.

CoQ10, Propolis, L-Citrulline/L-Arganine, Pelvic Floor Therapy

TonySa

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Re: my penis continues to cripple.... what to do?
« Reply #6 on: November 13, 2020, 11:37:14 AM »

It is not unheard of to have a longer acute period, and I suspect those w that situation are more likely to seek out and stay in the forum, while others have recovered and left.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

McChicken94

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Re: my penis continues to cripple.... what to do?
« Reply #7 on: November 13, 2020, 12:38:50 PM »

Yep, also forever in active phase. I got it from jelqing as a teen though, so may differ atlot from "classic" peyronies.
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TonySa

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Re: my penis continues to cripple.... what to do?
« Reply #8 on: November 13, 2020, 07:12:42 PM »

Alex, re means regarding.  With a compound curve and one side at 40 degrees I think you would be a plication surgery candidate or even implant.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alexander88

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Re: my penis continues to cripple.... what to do?
« Reply #9 on: November 14, 2020, 03:33:31 AM »

but what about the pain? will the pain go away after surgery?

symptomes came out of nowhere and there was no pain first, but that later on it worsended
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

TonySa

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Re: my penis continues to cripple.... what to do?
« Reply #10 on: November 15, 2020, 04:22:04 PM »

If you’re having pain try pentox, oral NSAIDs or topical generic voltaren gel.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alexander88

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Re: my penis continues to cripple.... what to do?
« Reply #11 on: November 16, 2020, 06:44:30 AM »

ok i will start pentox again. that might have been helpfull.... i stopped cause i thought the sideeffects were to strong :(
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

TonySa

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Re: my penis continues to cripple.... what to do?
« Reply #12 on: November 16, 2020, 07:47:45 PM »

If you’re having side effects you might start w a lower dose and see what you can build up to overtime without side effects.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alexander88

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Re: my penis continues to cripple.... what to do?
« Reply #13 on: November 17, 2020, 02:43:56 AM »

Ok thank you i will try

I just feel like i dont want to take pentox and cialis for ever...... when can i stop?
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...
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