Hi, I’m Ian and This is My Story

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ITW1231998

     Hello everyone, my name is Ian, I'm 22 years old.  I have been to two different urologist, both concluded I do have Peyronie's disease (mild), as early as 2018 is when I started to believe I may be developing the disease and by 2019 I was  fairly certain and by September 2019 I was certain, I was unable to get into a general practitioner to get a referral until July 2020 though and after that I was able to get into a urologist early august and was diagnosed with Peyronie's after a simple examination, most notably on the right side of my penis and to a lesser degree on the left, this doctor and I discussed a treatment options and he basically told me the only thing he'd recommended is traction, he did not recommend xiaflex and we also discussed newer treatments such as SWT and stem cells, he was optimistic about stem cells as a treatment option.  Ultimately I sought out another urologist because I did want a second opinion just to be safe and also I had other issues he didn't address, I had that appointment on 11/4/2020 and the diagnosis was again confirmed although I did not have an ultrasound either time though and I wish I had requested that just so I could know the exact details of my particular plaques.

    I started to believe that i was developed Peyronie's when I noticed my penis would hurt quite badly after masturbation and ultimately would be smaller when flaccid, I also started to notice that my curvature to the right started to worsen (I've had a right curve since I was 16 or so).  I also started to monitor my girth specifically as I've always had magic erectile dysfunction when trying to measure length, I started this when I specifically noticed I was more able to touch my thumb and index finger together when masturbating and this was something I was barely ever able do.  A kinda weird turn in this whole story is the first time I ever measured my girth was when a friend of mine who has size confidence issues told me his girth asking if he was doing good or bad statistically speaking and this led me to measure myself and although I can't remember the exact it was something in the ballpark of 6.75-7 inches in girth (obviously erection quality plays a role here).  I've since used this measure as a rough baseline and monitored my girth over time, my curvature hasn't gotten sugar much worse, I'd say at most maybe 30 degrees and probable less, I have lost between .5 and 1 inch on girth, I haven't gotten a measurement within the last 2-3 weeks as I've had significant erectile dysfunction issues and low libido as well, the last measurements I was able to get varied between 6-6 3/8 inches and it wasn't a just consistent decline, along with the loss of girth I was able to get a length measurement shortly after able to get length measurement and since have only tried to repeat that twice and have observed a loss in length of .3-.7 inches, I had a erect length of 6 inches on the dot, I will admit I am overweight and have a fat pad which hides what I estimate to be 2-2.5 inches of length, I have tried to relieve this but I have metabolic issues which after watching some of neo's videos which are what combined me to come on here, I've come to the realization that Peyronie's and metabolic issues may go hand and hand. As other symptoms besides atrophy and curvature go I suffer from severe E.D. and penile pain.

    I haven't currently done any significant treatment, I started Pentox on 9/5/2020 and I'm doing my best to take it 3x a day per instruction, I wouldn't say I'm super optimistic about it, my dr although I would rate Fairly high overall didn't do a great job explaining how it would really help in my case, maybe someone on here could help me out with that, I am looking into options such as PRP, SWT and stem cells, I've heard overall very positive things about first two and I've read studies suggesting stem cells could work quite well in the treatment of existing plaques. My goal isn't just to heal my current plaques but also restore healthy erectile function that way I can have a full sex life and also prevent them from occurring in the future. I've heard different guys over the last couple months occasionally refer to this disease as type 4 diabetes and I'd like to have a better understanding of that, I've done fasting and low carb diets before fid weight loss and I currently have a few issues regarding both practices.

   I do have insurance, it's not bad, not great either, It really doesn't matter in regards to most of the treatment options I'm looking to pursue. I'm willing to spend $30,000 if need be and as I told my urologist, I'm willing to be a human guinea pig as long as I can possibly fix this condition and help others do the same.

    My psychological state has carried throughout this whole ordeal, at times I've been quite depressed and it's fueled my anxiety to extreme levels, this anxiety is one of the reasons I've never had a girlfriend even unbeknownst to me at the time there's been a few ladies who were quite interested so in a way you could say conquering this disease is also driven by my desire to conquer my anxiety, I've also been quite disillusioned at times, my mother is my primary support network on this (I know this might sound weird) and when I first tried explaining this disease to her, she was quite dismissive and she didn't see what the big deal was, it lead to other awkward conversations and she arrogantly dismissed me and my concern, when she did this it set my normal calm and kinda calculating temper off into quick but vicious rage and I left, after a little bit of time to cool off she seemed more understanding and I assume a conversing my father may have influenced her newly found concern, also the fact that I'm 22 with severe E.D. Seemed to have an effect, she did some of her own research which has lead to her having some fairly misinformed opinions though such as active vs stable stages and the likes and I've had to correct her on that.

One last thing, sorry for the novel just kinda thought it would be best to lay it all out on the table for the most part.


23, right curve, dorsal indent left corpora, hinge/buckling, length loss and girth loss (.5 in), Pelvic floor issues, severe peno-scrotal webbing & hidden penis via aggresive circumcision, 2 flair ups,700+ hours w/ PMP, pentox & cialis, want titan.

TonySa

ITW, welcome.  I think pentox is a great start to address Peyronies Disease.  I'd also consider adding low dose nightly cialis (helps w Erectile Dysfunction and decreasing plaque).  Also, traction which can help you regain lost length snd hopefully girth.  Please keep us posted.   PRP, SWT and stem cells are just experimental, haven't shown much success with Peyronies Disease, and expensive at this point.  I'd start w the other recognized treatments first.  https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.