Has anyone had any bad experiences with PRP?

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Bill2020

Hey guys,

I was wondering if anyone has had any bad experiences with PRP?

I had two PRP treatments, where the doctor injected directly into the scar tissue and I think they may have made my condition worse (although I can't be certain).

I now have a small indentation on the spot where I believe he injected the majority of the PRP and I feel as though my bend has gotten slightly worse (immediately after the second treatment).

Maybe I think it's worse because I am getting stronger erections because of the PRP (and this is making the bend more pronounced)?  I don't know?

Any feedback would be greatly appreciated.
*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT

Mr man

I know nothing about prp, but having stronger erections does make penis appear more bent. Sorry I can't be more helpful.
Latest routine. Started l-lysine 3mg daily, l-proline 5mg daily. Increased vit c intake. Accompanied with almost daily vacuum therapy. Pumping to 100% Exercise caution! Made good progress. L arginine supplements and prescribed potaba are helping.

jj21

If you do a search in the forums - most people found that PRP did help with curvature and erections temporarily however, found that after a few months things went back to how they were... I'm not sure whether anyone had issues like you're describig, but try a forum search.

I noticed you're in Australia - how much did the treatment cost you?  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bill2020

Hi jj21,

Thanks for your response.

I cant remember exactly how much my prp treatments cost, but they were very affordable (for me) - hence why I didn't pay much attention to the cost.

From memory, they were definitely under $200 for each treatment.

If you have any further questions about the procedure, please feel free to ask me.

Cheers,

Bill
*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT

Bud luck

I got my PRP injection a week ago, my erections improved and my orgasms are more intense. Didn't do anything for my deformity yet
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Bud luck

Three months after my PRP shot I'm reporting feeling worse than ever, I think the PRP injection caused me more scaring
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

jj21

Quote from: Bill2020 on December 14, 2020, 03:24:31 PM
Hi jj21,

Thanks for your response.

I cant remember exactly how much my prp treatments cost, but they were very affordable (for me) - hence why I didn't pay much attention to the cost.

From memory, they were definitely under $200 for each treatment.

If you have any further questions about the procedure, please feel free to ask me.

Cheers,

Bill


Hi bill did you find it effective at all?
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Quote from: Bill2020 on December 14, 2020, 03:24:31 PM
Hi jj21,

Thanks for your response.

I cant remember exactly how much my prp treatments cost, but they were very affordable (for me) - hence why I didn't pay much attention to the cost.

From memory, they were definitely under $200 for each treatment.

If you have any further questions about the procedure, please feel free to ask me.

Cheers,

Bill

Any update?
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bill2020

Hi jj21,

No update regarding PPE.  

I remain convinced that it did give me an indentation at the main injection site.

That indentation remains (it may have improved 20%, but that's being generous).

Regarding my condition as a whole, my curve has improved (mainly) via traction; although I have been trying VED for extended periods throughout the last year as well.

My curve went from about 25deg to about 14deg.

However, I should add that the improvements all occurred within the first 6 months.

No real improvement since then.

But I am currently continuing with traction and will probably give VED another try as well.

Otherwise, I am in the same boat as everyone else - waiting for some miracle cure or treatment which doesn't look like its coming any time soon.

*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT

jj21

Quote from: Bill2020 on December 06, 2021, 06:52:27 PM
Hi jj21,

No update regarding PPE.  

I remain convinced that it did give me an indentation at the main injection site.

That indentation remains (it may have improved 20%, but that's being generous).

Regarding my condition as a whole, my curve has improved (mainly) via traction; although I have been trying VED for extended periods throughout the last year as well.

My curve went from about 25deg to about 14deg.

However, I should add that the improvements all occurred within the first 6 months.

No real improvement since then.

But I am currently continuing with traction and will probably give VED another try as well.

Otherwise, I am in the same boat as everyone else - waiting for some miracle cure or treatment which doesn't look like its coming any time soon.

I'm sorry to hear that. How is 14deg curvature going - are you able to have intercourse? A while back using the VED protocol here with the 3 cylinders I gianed back some girth and was able to continue sex properly without much pain (just some positions were difficult). Needed Viagra though.

Cialis daily helped a lot too.

Are you using Restorex?
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bill2020

I haven't had intercourse for almost 2 years now.  So, I wouldn't know if a 14degree curve would be a problem.
Based on what some of the other members have shared, I am hopeful that it won't be.

However, I am quite paranoid about it (and quite embarrassed).  So, I have avoided sexual contact since this became a problem.  

I was really hopeful that I could get my curve to be less than 10deg (that was the original goal anyway).

Unfortunately, the improvements just stopped (even though I have religiously used Restorex every single day for a year and a half).

I have considered Xiaflex.  But, unfortunately (as you probably know), it is no longer available in Australia.

So, I've sort of hit a dead end for now and not sure what to do next.

*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT