Hi - Looking for any kind of help or suggestions

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Bill2020

Hi All,

I have only recently joined the forum.  I really wasn't going to post anything and was only going to lurk around and use it as a research tool.

But the truth is that I am absolutely beside myself.  I have slumped into a sever depression and have been having panic attacks throughout the day.

So, I just thought I'd introduce myself and tell everyone about my situation, in the hope that I may get some advice.


My situation is as follows:

I am 45 years old and single.

I noticed a slight curve about 1 year ago, but only noticed that it had gotten worse a few weeks ago - I guess I just wasn't paying attention and honestly thought nothing of it.

I currently have 20-25 degree lateral curve (its just so difficult to measure it properly)

My erections feel a little different (not painful, but ever so slightly uncomfortable).

I have lost some length (about 2.5cm) and certainly lost some girth (just on the top half of my penis).

I am absolutely petrified that this is going to get worse and just as scared that it is not going to get better.

Although this forum has been a blessing in terms of the information it has provided (I thank all of you for all you have contributed), I have also read so many horror stories that I honestly feel like walking in front of a bus.

For someone who is known (by family and friends) to be an incredibly strong person, this has really hit me incredibly hard.


I am currently on -

COQ10 (300mg per day)
Cialis (daily 5mg)
Acetyl L-Carnitine (3000mg per day)
Tamoxyfen (10mg every second day - I cant take any more than this because it give me problems with my vision)

Have also started heat therapy (just started yesterday) and manual traction as per advice from Neo's YouTube clips.

Lastly, have also completed 2 rounds of PRP (FYI - it did absolutely nothing to help, even though my doctor was quite adamant that it would).  I would have continued with the PRP (just because I am so desperate), but I think it may have even made me every so slightly worse.

I also have an appointment with a urologist in a week's time, which I feel is just going to be a waste of time and money (I'm not even certain if he is a urologist who has any expertise with Peyronies Disease).

I understand that there are a lot of guys on the forum that are in a much worse position than me (and I wish them godspeed in their recovery).  I just feel so helpless and I feel like my life is over.  I just don't think Im going to be able to live with this.  

Can anyone please tell me if there is anything else I can do?  Right now, I'll try just about anything!!!

It's just so confusing.  I have done so much reading over the last few weeks, it has become completely overwhelming.   It seems that there are so many published studies offering promising results.  But, after reading all the experiences on the forum, none of the results in the studies seem to be able to be replicated.

Thank you all for reading and apologies for the long post.




*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT

LuisFernandez

You should be doing traction therapy and using a vacuum device daily.

Stop getting depressed and panicking. Worse case you enlarge your penis as much as you can and then get an implant, so stay positive.

But for now just start physical therapy and see how it works out.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bill2020

Thanks TonySA.

Could you recommend which Traction Device and which VED are the better ones to buy?
*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT

TonySa

If you can afford them: restorex and soma erect.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bill2020

*45 y.o.
*25° lateral curve
*Lost about 2cm in length and some girth
*2 sessions of PRP - made things slightly worse
*Currently taking Tamoxifen(low dose), L-Carnitine, COQ10, Vitamin E, Cialis (daily 5mg) and TRT