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Author Topic: Worsening situation what is one supposed to do?  (Read 576 times)

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peter123

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Worsening situation what is one supposed to do?
« on: September 13, 2020, 09:26:28 AM »

There are indentation and lesion all over now. They have recently developed even further, I don't even know what to say I am totally paralyzed. I have now 4 of these cord like bands of tissue each of them causing indentation. Also the curvature has more than doubled over the last 5 weeks. It's now almost 30 degree to the left. I feel absolutely defeated. There is also not one doctor in this crap hole country that has any non negkegibke expertise in this field. I attached some pictures of the lesions. I have no idea why they are all circumferential and only the one in the first picture, on the left side of the penis is giving the curvature. What is going on? I started my anti depressants now because I'd have continues panic attacks otherwise and obviously they haven't taken effect and won't so for many weeks. It really feels like this is the end. I already bought razor, sleeping pills, I decided that if my peyronies doesn't stabilize after 6 months I will commit suicide.now it's 8 months in and pain is worse than ever, deformity tripped since onset and now the healthy side is affected.

Cord causing deformity:

Imgur: The magic of the Internet

Healthy side:

Imgur: The magic of the Internet
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

Hawk

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Re: Worsening situation what is one supposed to do?
« Reply #1 on: September 13, 2020, 10:12:06 AM »

Peter,

Can you please post a photo totally erect if you are so inclined.  I think your perception of deformity might be flawed because just judging from the hang and the size of your penis in the flaccid state your perception of your size certainly seems to be off.
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peter123

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Re: Worsening situation what is one supposed to do?
« Reply #2 on: September 13, 2020, 10:54:14 AM »

the reason it looks like this is because of the daily 5mg tadalafil. flaccid it makes a huge difference, it looks not like this when I do not take any drugs. I can post something showing the deformity later on. I just need to desperately know what these cords are. the one on the left(first image) is peyronies scar that has been confirmed by the urologist. the three on the right might be as well as they are very similar to how the others have started
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #3 on: September 13, 2020, 09:34:13 PM »

Help
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

jan.schaller1958

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Re: Worsening situation what is one supposed to do?
« Reply #4 on: September 13, 2020, 11:15:53 PM »

Peter123,

I don’t know what you are referring to as „ cords“. Peyroines has a distinct look to it when erect, and schlaff it just looks like a normal penis. Strange that a urologist would confirm a „Peyroines scar“,  unless he’s talking about what he feels. A scar shouldn’t be visible. The deformity, of course.  Peyroines has a feel to it, but with mine I could never see cords or plaque. On ultrasound it was there. I just couldn’t see it. (I couldn’t even feel it even when Dr Lue could.)
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jan.schaller1958

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Re: Worsening situation what is one supposed to do?
« Reply #5 on: September 13, 2020, 11:47:28 PM »

Peter123
TEXT REMOVED by Administrator for violating form rule of English language only rule!
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peter123

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Re: Worsening situation what is one supposed to do?
« Reply #6 on: September 14, 2020, 06:36:02 AM »

TEXT REMOVED by Administrator for violating form rule of English language only rule!
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

Tortão Pra Direita

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Re: Worsening situation what is one supposed to do?
« Reply #7 on: September 14, 2020, 12:08:10 PM »

I don't know what you mean by "chord", but plaques can't be seen. You should post a photo of your erect penis.

I think your perception of deformity might be flawed because just judging from the hang and the size of your penis in the flaccid state your perception of your size certainly seems to be off.

I share the same opinion.
Seems peter123 has a distorted view of reality. His major problem is mental, and I really think he should join a mental health forum instead of this.
We've tried to help him but seems we are just wasting our time. He ignores all the help and asks more and more for attention.

With this in mind, from now on I'm gonna ignore this user. He needs a psychiatrist and therapy, not our attention.
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Symptoms started something like september 2019. Peyronies Disease developed quickly. After one complete year, pain is almost gone. Currently regimen: VED 2x day, Pentox 1x day, Cialis every week. Excellent erections, but a 70º degree (approximately).

projectpd

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Re: Worsening situation what is one supposed to do?
« Reply #8 on: September 14, 2020, 04:18:20 PM »

I used to think for many years it wasn't visible, but I had been doing some manual exercises, and just playing around really, and it (they) had become obviously visible, like a pinto bean clearly under the skin, less than a mm below. I don't know how exactly to reproduce the situation. I also have used heat (ir lamp) . of course it is much easier to feel it. The horizontal ridge that peter videod, I have two of those too, that look the same, on the left side side too, but they are not palpable and do not correspond to any curvature. the palpable plaques are quite hard and some are jagged, some are smooth like a bean.
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Alexander88

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Re: Worsening situation what is one supposed to do?
« Reply #9 on: September 15, 2020, 03:47:49 AM »

Peter123 i think your Penis looks fine

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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #10 on: September 16, 2020, 08:12:56 PM »

but I have one confirmed peyronies plaque. and it also looks just like those cords, I posted a picture of it here.

https://imgur.com/a/ZLHyjfW

and here

https://imgur.com/a/4ELRtR4

https://imgur.com/HxqhtXt (there it is best visible)



here when erect

https://imgur.com/a/7ZESj0F

the middle of the other cords is at the same level on the shaft as the one with the deformity associated to it. now, there is also pain on both sides. they also start and end in the same position, start on the septum and reach down the entire half circle. I just dont understand what this is, what is the plaque, what are the veins, do I have 3 circumferential peyronies plaques?? or just one and bulgy veins that just so happen to exhibit the same pattern including pain and palpation? peyroneis is so bad because there is a) no cure b) no serious treatment options c) its totally unpredictable and d) nobody seems to understand what is going on, I had 4 appointments and still know absolutely nothing. just like the doctors who examined me apparently. this can't be real
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #11 on: September 21, 2020, 10:25:05 AM »

Brutal that nobody knows an answer to this
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #12 on: September 21, 2020, 11:52:13 AM »

I'll provide an update, the cords appear to be growing and there is definitely some inflammatory pain. I can't think of anything that could explain this despite more tunica thickening aka more peyronies all over the place, three of these ridiculous cords have emerged.













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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #13 on: September 25, 2020, 10:12:14 AM »

I'll provide an update, the cords appear to be growing and there is definitely some inflammatory pain. I can't think of anything that could explain this despite more tunica thickening aka more peyronies all over the place, three of these ridiculous cords have emerged.













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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #14 on: September 25, 2020, 10:14:51 AM »

Update: the specialist thinks these are venes not peyronies plaque. What's happening is that the plaque which is actually in the septum he said is somehow making those veins appear more pronounced. He said I have a small noncalcified plaque that is dorsolateral and party in the septum. He advice to continues with the taladafil as there are studies, one in particular that has shown reduction of septal plaque with daily pde5i
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

TonySa

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Re: Worsening situation what is one supposed to do?
« Reply #15 on: September 25, 2020, 10:23:20 AM »

That makes sense Peter.  Fortunately you’ve seemed to have a diagnosis before any dents or curves are pronounced or problematic.  I’m sure the pde5i nightly was started soon enough to halt any further progression.  I hope this can provide you some level of relief as we all know Peyronie’s can be quite distressing.
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Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #16 on: September 25, 2020, 11:16:50 AM »

sadly not i have a 4mm deep indentation and about a 20 degree left snd 15 degree upwards curvature. he explained that this might be more of an issue than a one dimensional curvature as my penis rotates around its axis a bit. he said he would not do surgery qt this point as since im young je thinks with tadalafil and potaba admistered for 12 Months i have a "good chance this will resolve to some extent on its own". not sure what to believe tho as studies suggest deformitoes rarely dissolve without treatment. i could deal with the curve but the indentarion is ridiculous it feels like someone cut out a small piece of my prnid and since i have been insecure about my penis size before the loss of girth bothers me of course. thanlfully i have barely lost any length if i have good erections the loss is only around 1/6th of sn inch. i will say though thaz the reports of people losing literally 2-3 inches has given me so mich anxiety and i still wonder whether im in the clear zone now or whether i csn still get worse. onset was in mid february so around 7 months ago. my doctor thinks im still in the accute stage which he sad is good for zhe potaba and taladsfil to work best. however im losing hope that the existing deformity will get better on its own. i suggested traction snd he thoigjt not as long sd i have flacid pain as there is still some inflammatory action going on and you dont want to cause more disturbance by stressing it with traction. he thus recommended iontopjpresis with verapamil snd dexosmethadone which i will start in 2 weeks.
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

this_day

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Re: Worsening situation what is one supposed to do?
« Reply #17 on: October 04, 2020, 10:07:07 AM »

Peter, can you clean your inbox?  Going to PM you
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peter123

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Re: Worsening situation what is one supposed to do?
« Reply #18 on: October 04, 2020, 01:07:49 PM »

yes
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #19 on: October 05, 2020, 05:27:48 PM »

the curvature progressed again :/ I cant cope with this crap
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

this_day

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Re: Worsening situation what is one supposed to do?
« Reply #20 on: October 05, 2020, 05:50:36 PM »

How did it change?  Do you still have pain on both sides?
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peter123

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Re: Worsening situation what is one supposed to do?
« Reply #21 on: October 05, 2020, 05:56:27 PM »

How did it change?  Do you still have pain on both sides?

the curve progressed by 5 degrees since last time I measured(3 weeks ago) and the pain has increased, the indentation is a little deeper. really depressing thinking about what if every month for the next few years there will eb worsening then by end of the years 2021 I have lost my entire penis or so much that its unusable
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

peter123

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Re: Worsening situation what is one supposed to do?
« Reply #22 on: October 06, 2020, 10:39:40 AM »

How did it change?  Do you still have pain on both sides?

clear your inbox please I want to write you one last time
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

Mi3an

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Re: Worsening situation what is one supposed to do?
« Reply #23 on: October 17, 2020, 12:08:20 PM »

clear your inbox please I want to write you one last time

Hey peter, have those ribs/ridges disappeared or the pain reduced? I’ve got 3 on my top right shaft. I hope it’s not peyronies. Did he say when it’ll go away? Also empty hour inbox please. Thank you
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