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Author Topic: question about improving the bend  (Read 562 times)

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Deek

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question about improving the bend
« on: September 08, 2020, 06:04:26 AM »

over time (a few months) i have noticed a slight improvement in my dorsal curve from almost 90 degrees to 65-70 degrees.

Has anyone here noticed how the curvature has improved on its own over time (possibly after many years)?

This question is important to me because I don't want to give up hope that things can get better over time - even if it doesn't look like it right now.

I am constantly working on my situation and would be happy about other experiences - thanks guys
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42 years old / Peyronie since October 2019 /
70 degree bend / curve up - probably the classic

Aboqor

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Re: question about improving the bend
« Reply #1 on: November 11, 2020, 07:23:07 PM »

Hello Deek,

Congratulations on your improvement, I hope this trend will continue.

My curve started out at 45 degrees dorsal. Without treatment it improved to about 25 degrees in 5 months. Now that I have been doing treatments (VED, Supplements, pde5 (5mg tadalafil), tamoxifen (10mg x2) the curve is about 15 degrees. My penis looks a bit shorter from above due to the curve at the glans, although after measuring it today I found out the length is probably the same as it was before my peyronies started so I should stop worrying. Lost about 0.75 inch of girth at the top 20% of my penis due to narrowing but no significant girth changes at the rest of my penis so not a big deal.

My glans did not get hard anymore but following the VED protocol of my urologist probably did the trick in getting that almost back to normal.

There is hope. I still worry everyday but just listen to your uro and be critical.

For me doing things as keto did not have any benefit other than make me lose 8kg in a month. Best just to eat healthy, not smoke, drinking red wine for alcohol once a week if you want to, exercise 4 times a week and be on top of your medication and physical therapy. With lockdown in place I am wearing my traction device for 7 hours a day and it feels good because you feel like you are actively combatting the condition.

yours truly,
aboqor
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7th of March 2020: noticed 45 degree bent upwards
1st of July 2020: started feeling pain when flaccid, soft glans.

3rd of August 2020: VED. PDE5 + Tamoxifen COQ10, ALCAR, Vitamins,light traction.

5th of October 2020: Traction Device + Above

jj21

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Re: question about improving the bend
« Reply #2 on: November 12, 2020, 05:07:12 AM »

Ab - thanks for sharing your improvement - it's definitely inspiring.

Could you please share the VED protocol that you used?

Thanks
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Deek

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Re: question about improving the bend
« Reply #3 on: November 12, 2020, 05:52:54 AM »

Hello Aboqor,

Thank you for your reply.
After not really knowing what to do for the first 6 months, I have now found a routine for myself that seems to help a little.

Like you - after 6 months I started with 5mg tadalafil daily.
In addition there were daily VED sessions + daily intake of L-arginine + citrulline + traction by hand.

The blood flow to my penis has improved noticeably. I actually didn't have Hard Flaccid anymore.

I noticed yesterday in the VED tube that my curved penis is hitting the wall of the VED tube less.
I also noticed yesterday that my penis in the VED tube was 0.5 cm longer - great news for me :-)
It seems to be slowly going in the right direction.

It takes time - I've been in this fight for 12 months now.
12 months ago I had no hope and was devastated.

I want to call out to all those affected - STAY AT IT!

It's a marathon, but every route starts with the first step.
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42 years old / Peyronie since October 2019 /
70 degree bend / curve up - probably the classic

bustedchubb

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Re: question about improving the bend
« Reply #4 on: November 12, 2020, 08:26:55 AM »

I'm pretty much in the same situation you are in.  I'm still around 90 degrees dorsal bend, but have been doing daily VED and on day 33 of traction with RestoreX, focusing heavily on the counter bend feature.  I have definitely noticed penile health improvement and slight improvement in curvature, 85 degreesish.  I am doing all the same things you are except for the PED5's.  lets hope we can have similar improvement and get over this crap.
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.  Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 15 deg bend left, 90 deg bend up, lost length and girth top half.

CoQ10, Propolis, L-Citrulline/L-Arganine, Pelvic Floor Therapy

Deek

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Re: question about improving the bend
« Reply #5 on: November 13, 2020, 03:19:16 AM »

hello bustedchubb,

i have read your posts carefully in the past - we have a similar starting point.
Our age and our onset of the disease are very similar. it sounds almost identical  ;)

A very important point for me was the daily use of tadalafil / cialis (5mg)
I am convinced that the blood flow in our penis must always be strong.
I believe it can help you too.

By the way, I've been doing a new thing for 2 months - I try to produce 2-3 erections a day - I keep them for 20 minutes each time.
This is a real penis workout. (but no ejaculation! - which is difficult sometimes)
I am 100% convinced that erections are very important to our progress.

Hold on - we don't really have a choice - this thing will stay with us until the end of life.

Have trust my friend  8)
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42 years old / Peyronie since October 2019 /
70 degree bend / curve up - probably the classic

jj21

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Re: question about improving the bend
« Reply #6 on: November 13, 2020, 05:16:05 AM »

If you guys are experiencing Erectile Dysfunction, I found pentox in combination to the Taldafil really helps a lot.
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

bustedchubb

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Re: question about improving the bend
« Reply #7 on: November 13, 2020, 08:01:29 AM »

Yeah, our stories are definitely close.  I'm going to have to add the PED5, there's no good reason not to.  You may be on to something about the erection holding idea.  I remember Monty having alot of success doing similar things with the way he uses the VED.
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.  Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 15 deg bend left, 90 deg bend up, lost length and girth top half.

CoQ10, Propolis, L-Citrulline/L-Arganine, Pelvic Floor Therapy

Aboqor

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Re: question about improving the bend
« Reply #8 on: November 13, 2020, 11:04:19 AM »

Ab - thanks for sharing your improvement - it's definitely inspiring.

Could you please share the VED protocol that you used?

Thanks

The protocol I use is as follows:

Warm up my pumping a little bit and releasing pressure.

1. Pump to about 90% erection, hold for 2 minutes then release. This is to warm up further.
2. pump to 100% erection, hold for 2 minutes then release. I repeat this second step 2-4 times.

I did this twice daily for 3 months. It is the only evidence backed protocol as far as I am concerned which is why urologists recommend it. If you have another protocol (like the one by old man) that works for you then please stick with it!

If you notice some bloodspots on your penis then give it some rest and do less repetitions. If you are doing fine then you can do 4.

Logged
7th of March 2020: noticed 45 degree bent upwards
1st of July 2020: started feeling pain when flaccid, soft glans.

3rd of August 2020: VED. PDE5 + Tamoxifen COQ10, ALCAR, Vitamins,light traction.

5th of October 2020: Traction Device + Above

jj21

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Re: question about improving the bend
« Reply #9 on: November 17, 2020, 06:11:52 AM »

Do you feel this protocol was more effective than the one recommended on this forum ?
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Aboqor

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Re: question about improving the bend
« Reply #10 on: November 17, 2020, 09:25:09 AM »

I can not comment on that since I have not tried that specific protocol. Any evidence is purely anecdotal from my part. The research can be found at: https://bjui-journals.onlinelibrary.wiley.com/doi/full/10.1111/j.1464-410x.2010.09365.x . They use a 3 minute holding time, although my (assistant) urologist said 2 minutes is also fine if I experienced a lot of blood spots.

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7th of March 2020: noticed 45 degree bent upwards
1st of July 2020: started feeling pain when flaccid, soft glans.

3rd of August 2020: VED. PDE5 + Tamoxifen COQ10, ALCAR, Vitamins,light traction.

5th of October 2020: Traction Device + Above

Mr man

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Re: question about improving the bend
« Reply #11 on: November 24, 2020, 03:15:41 AM »

If your seeing improvement without doing anything. Do nothing. Your improving. Be greatfull and well done... Long may it continue.

Ps: cardio exercise seems to help a little with me.
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Age 45. Symptoms began August 2018. Started andropeyronie reduced curve by 5 degrees. Before penis wilted and shelved a/peyronie's. Starting DMSO formula with traction and VED therapy. 30 degree bend. Target to reduce to 15. By April 2021. Fingers X.

Aboqor

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Re: question about improving the bend
« Reply #12 on: Today at 02:06:09 PM »

I indeed saw improvement in the curve by doing nothing, however: pain and hard flaccid increased (even on a keto diet with cardio which is why I quit both) so that's why I opted for medicine and physical therapy. I now experience little pain and no more hard flaccid. Curve has remained the same, indentations have increased in flaccid state but are difficult to spot when erect.

The mental battle is definitely half of it. Physical therapy allows you to 'combat' the disease which helped me process my condition and gain hope. VED definitely works and I am positive traction helps too although I have only been doing it for 2 months (6-9 hours a day).
Logged
7th of March 2020: noticed 45 degree bent upwards
1st of July 2020: started feeling pain when flaccid, soft glans.

3rd of August 2020: VED. PDE5 + Tamoxifen COQ10, ALCAR, Vitamins,light traction.

5th of October 2020: Traction Device + Above
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