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Author Topic: So, I’m new....  (Read 342 times)

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So, I’m new....
« on: August 11, 2020, 02:54:13 AM »

Hello, All!
I don’t really know how to begin. I found this site while researching Peyronies Disease and was hoping to find other women to talk with about my perspective. I love my husband very much, but am uncomfortable talking to him too much about his Peyronies Disease because I don’t want him to feel like he’s letting me down or whatever. This is so awkward, and there doesn’t seem to be much ongoing chatter from the women. Please don’t hesitate to respond as I try to figure out how to grow with input from these forums.

My husband and I are early 50’s. He has been experiencing the curvature for about 9-10 months (90 degrees near the base) and was formally diagnosed by a urologist today. I guess I’m hoping to get advice about adjusting to life with Peyronies Disease. He doesn’t have any pain, but intercourse has become a challenge. Like many women (maybe) I kind of feel like this is my fault. I also tend to babble when I’m in a new situation, so I’ll chill for now and see if there’s support here for me like there is for the gentlemen.
Thanks for your patience, and hopefully productive, future dialogues!
Pickles  ;)


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Re: So, I’m new....
« Reply #1 on: August 11, 2020, 09:41:46 AM »

Welcome to  the forum Pickles.

We are here to encourage and help you find the information and the support you need.  You are welcome to post anywhere on this forum.

My first recommendation is that nothing will serve the two of you more than opening the lines of communication.  Some have found that Peyronies Disease actually improved their relationship because it forced them to communicate and experiment. Sadly, if they failed to have good communication Peyronies Disease often drove them apart and into isolation.  While Peyronies Disease is a couple's problem  not the man's problem it is never or at least almost never the woman's blame.  Men get Peyronies Disease in most cases because they are predisposed to the condition.  There may be a triggering event but without the predisposition Peyronies Disease would not have been the response.  Even the incident can seldom be the woman's fault.  Few women force a man on his back straddle him and deliberately injure his penis.  They are more likely doing a mutually agreed upon activity and there is a accident that triggers an unknown predisposition to Peyronies Disease.

The most important first thing you can do is read this carefully, probably more than once and preferably with your husband.,3180.0.html
There is a ton of useful information there that will bring the two of you up to the point of knowing the basics and helping you formulate questions that you need to ask.

Your husband is very fortunate to have a wife who cares enough to help with this issue that you face together.  We want you to feel welcome here, so relax, read the survival guide I linked to and let us know how attempts to communicate are going.

Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums


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Re: So, I’m new....
« Reply #2 on: August 12, 2020, 06:56:43 AM »

Hi Pickles, i'm monty live in UK, if you to ask, very open minded, i was similar to your partner, so i know what your both going through.
69 UK, Erectile Dysfunction from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 20mg of Tadalafil twice a week, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life


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Re: So, I’m new....
« Reply #3 on: August 23, 2020, 11:48:57 PM »

Hi Pickles,
I'm new here too. My husband has had peyronjies for about 2 1/2 years but we are just now finding out his urologists arnt the best in the world. We are looking for a peyronie specialist. Hope you two find some good answers real soon.
52 year old wife (married 30 years, together 32) of my man with peyronie's (for 3 years).
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