Been diagnosed with a mild form of Peyronies,Looking for Lowest risk approach

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HeyThereYou

Hey Again! Been away from here for a few weeks..

My History: https://www.peyroniesforum.net/index.php?topic=13620.msg123177#msg123177

........

Just had my final appointment with urologist. I had an ultra sound and a very small thickening was found which urologist said was nothing to be concerned over, He said it was very mild. Maybe 8mm i think. (Mine cannot be felt at all). He said it wouldn't cause erection problems or anything. (I've never had bruising or anything).

If you go to my history it shows I caused an injury 7 years ago and had thinning/pain after which stopped progressing at some point (With no treatment at all) but have been left with pain upon erection and other ed issues etc since.. I RE DID something in May/June 2020 this year at the same time i was masturbating a lot more and had one potential injury during intercourse but Urologist said this could of just been a flare up from that original injury back 7 years.

........

Now Since May/June 2020 I've started getting the pain randomly when flacid at site of thickening and when moving flacid penis around, The areas that thinned 7 years ago have thinned a bit more again, Thinned around the point of thickening slightly, I've noticed more prominent curvature and deformity which is only really apparent when SEMI ERECT but when fully erect it looks pretty normal and straight and not an issue at all! The girth loss when erect is very minimal too.

The random pain throughout day when flacid seems to have subsided now and the areas that have thinned It's not getting any thinner or anything.. But i do have the deformity when semi erect and after erection etc.

The last 7 years i've struggled with erection quality and stuff so maybe i'd really benefit from something that improves that. Especially if i've had a few drinks.

.........

I've been prescribed Pentox / tadalafil / L-Arginine (I think i'll try L Citrulline before Arg) and wants me to start doing VED once a day.


QUESTIONS:

- Due to my 'mild' case, i'm a bit worried about doing any of the above as looking into things, it seems that with VED it can be easy to cause further problems from it and i've also seen people state here that Peyronies got worse on PENTOX (Maybe it would of got worse anyway but we'll never know i guess) and then tadalafil is not something i've been keen to start taking and relying on at the age of 21 and with the risk of priapism/reliance etc. L-Citrulline seems low risk though so i'm happy to start that straight away, but which next one would you start taking that has least amount of risk, VED or Pentox or tadalafil?


- With Pentox he's given me a 3 month script for it, Can I take it for 3 months, it reduces the thickening/improves EQ or what ever and then i can stop taking it and benefits will stay and there wont be any adverse effects long term/reliance or something?  Or it has to be used for ever to maintain?! It's not a drug i want to be using forever tbh.


- What i don't understand is that my small thickening is at the base of the penis but where i've noticed thinning the most is below penis head?! There was not finding from US for there. I think i get soft glans too.? What explains this?

- I think all these questions just base around the face that mine is mild, there no serious curvature AT ALL during erection so I just don't want to create an issue i don't have. Although the one thing i definitely need is an aid to improve my erections when having sex as it can be too weak for that.



PS: For anyone struggling mentally with this condition, I REALLY recommend Eckhart Tolle Books: Power of Now and my favourite: A New Earth.  I read these books back in 2015 and they changed my life back then and the momentum stayed with me for years but life happened and I got stuck back in the mind again UP until a week ago when he re read the books, I could make a massive post on these books alone but this is not the place for it lol, anyway I highly recommend them and just be open to the idea.

smashin

I don't think you will become reliant on either coal is or pentox. If your urologist has given you a script it might be a good idea to at least try them for the duration. The science says this will give you the best chance of remission. I doubt 3 months is a long enough time to become addicted or create any form of reliance regardless.

I have a similar situation and cialis has helped. I've been on pentox for a couple of weeks and have seen no draw backs.

I would also order citruline, coq10, natokinese, zinc and copper. All very cheap and have good reviews on here.

Good look, wishing you a speedy recovery.

P.s I just ordered 'a new earth' and look forward to reading it, as I haven't got stuck into a book in years.

HeyThereYou

Quote from: smashin on August 06, 2020, 06:02:06 PM
I don't think you will become reliant on either coal is or pentox. If your urologist has given you a script it might be a good idea to at least try them for the duration. The science says this will give you the best chance of remission. I doubt 3 months is a long enough time to become addicted or create any form of reliance regardless.

I have a similar situation and cialis has helped. I've been on pentox for a couple of weeks and have seen no draw backs.

I would also order citruline, coq10, natokinese, zinc and copper. All very cheap and have good reviews on here.

Good look, wishing you a speedy recovery.

P.s I just ordered 'a new earth' and look forward to reading it, as I haven't got stuck into a book in years.


Okay great, So what is the deal with Pentox  in terms of it having permanent positive effects? Is it something that one has to keep on taking for ever? Or after 3 months I COULD potentially see it in remission and thats that?

Thanks so much for your response! Good luck to you too brother!

Hope you like the book, honestly i've read every self help book over the years and Tolle books have had the biggest impact on me, you've just got to be really open to the messages it's telling you, With a new earth i disliked chapter one as it just goes over the history of mankind and it's dysfunction etc but it's a good to read it anyway, just bear with it until it until the next chapter!  

TonySa

Hey there, neither cialis or pentox is addictive.  Both (low dose cialis) will help remodel plaque to healthy tissue and prevent worsening.  The highest risk for worsening is intercourse without 90+ erection.  Low dose (2.5-5mg) nightly generic cialis will also help with that.  You could so also consider VED or traction—they can only help (stop it back off if any pain).  Have you read the survival guide?  https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

HeyThereYou

Quote from: TonySa on August 06, 2020, 08:19:33 PM
Hey there, neither cialis or pentox is addictive.  Both (low dose cialis) will help remodel plaque to healthy tissue and prevent worsening.  The highest risk for worsening is intercourse without 90+ erection.  Low dose (2.5-5mg) nightly generic cialis will also help with that.  You could so also consider VED or traction—they can only help (stop it back off if any pain).  Have you read the survival guide?  https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057


Okay thanks a lot Tony!

- So if i took Pentox and some cialis over the next 3 months, It would leave a permanent positive change on my penis? And i potentially wouldnt have to take it for any longer and any benefit i got, will have stayed?

- So despite having ED problems for years I've aways been against viagra/cialis etc so i'm completely new to this! So your saying you could use Cialis every night before bed for months on end and then stop taking it and things will be just as normal?

- Is there any actual benefit to taking cialis every night if i dont plan to have sex every day, I was just thinking of taking it before sex or just over the weekend when i'm more likely to have sex. In that case then would store bought Viagra be safer than Cialis, less risk with side effects etc?

- Last one: I wanna start off with one thing at a time, which would you start with first out of the above?

Yes have read the Survival guide i'm just a lil scared to take all these things at the moment



TonySa

You will want to take both until the condition is reversed-both are to remodel plaque to healthy tissue to reverse the thinning.  Erections for sex are a bonus not the only reason to take cialis.  You can stop either at any time.  If you want to begin with only one I'd say it's your choice.  I'd do cialis for three weeks and then add pentox myself.  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

HeyThereYou

Quote from: TonySa on August 07, 2020, 11:24:31 AM
You will want to take both until the condition is reversed-both are to remodel plaque to healthy tissue to reverse the thinning.  Erections for sex are a bonus not the only reason to take cialis.  You can stop either at any time.  If you want to begin with only one I'd say it's your choice.  I'd do cialis for three weeks and then add pentox myself.


Okay that sounds good, so are the effects or the remodeling it does to the penis leave it like that permanently? Like i can stop taking Cialis/Pentox at one point and it will stay that way? I don't have to keep on taking Cialis/pentox??

Thanks Tony!

smashin

Hi.

Basically if you injure your penis, it has a habit of becoming inflamed and tightening up. If your penis is tight while inflamed there is little room for the inflamation to clear and/or have fresh healing blood flow.

What you want right now is natural blood flow. Cialis will provide the healthiest environment for your penis to heal. Get the issue you have about cialis out of your head, it's not a permanent thing and is something anyone in their right mind would accept in order to heal/help this situation.

Cialis will keep you full downstairs both flaccid and erect, which really is essential, and that's pretty much the bottom line regarding that drug for you right now. I take half of a 2.5mg in the morning before work and the other half before bed. You could probably get away with one every couple of days, but I'm not about saving cash when it comes to something this close to home. I, like you; plan to get off cialis as I notice lasting improvements, which there is a good chance you will have.

My thoughts regarding Pentox is that it thins the blood and allows nutrients to areas affected by plaque and inflammation, which essentially helps breaks down plaque and restore/remodel healthy tissue.

Like I say, blood flow and nutrients are key. Cialis and pentox gives you the chance you need.

Take this opportunity to get a healthy diet, cut down on carbs and eat your greens. Make the most of this chance to heal.

Other cheap medications such as coq10, citruline, natokinese, vitamin k, copper, zinc and magnesium will help. You could buy all of that for 3 months for about £40.

Take head from your doctor and take the pills, get off them later if you want. But give yourself the best chance now.

Regarding the length of time to take substances, I would say take them until you feel you have seen improvements or become stable, and feel you are no longer benefitting. I don't believe you must take them for life, but it is also a case by case thing.

TonySa

Once you have the improvement you desire you will be able to stop. If you notice worsening it is because Peyronie's was being held it bay on them and you will restart.  Usually the acute worsening phase is over in 6-12 months so that should give you an idea.  Be sure to take cialis nightly.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

HeyThereYou

Quote from: TonySa on August 07, 2020, 12:52:54 PM
Once you have the improvement you desire you will be able to stop. If you notice worsening it is because Peyronie's was being held it bay on them and you will restart.  Usually the acute worsening phase is over in 6-12 months so that should give you an idea.  Be sure to take cialis nightly.

Right i think i got you, So e.g: say now i caused the injury May this year, i've got 6-12 months of acute stage from then (Maybe more in some cases), now if i take Pentox/cialis etc during that time frame i stop it from getting as bad as what it could do from not taking anything. Then 12 months is up and i've passed the acute/worsening stage and can assume that i'm stablised at that point (IF it really is 12 months).

Or another example: Injury May this year: Take pentox for 3 months now, slow/reverse progression at this point for 3 months, i stop taking after 3 months and then potentially it just carries on it's acute stage for the remainder of the acute stage?

Both of them correct?

HeyThereYou

Quote from: smashin on August 07, 2020, 12:27:11 PM
Hi.

Basically if you injure your penis, it has a habit of becoming inflamed and tightening up. If your penis is tight while inflamed there is little room for the inflamation to clear and/or have fresh healing blood flow.

What you want right now is natural blood flow. Cialis will provide the healthiest environment for your penis to heal. Get the issue you have about cialis out of your head, it's not a permanent thing and is something anyone in their right mind would accept in order to heal/help this situation.

Cialis will keep you full downstairs both flaccid and erect, which really is essential, and that's pretty much the bottom line regarding that drug for you right now. I take half of a 2.5mg in the morning before work and the other half before bed. You could probably get away with one every couple of days, but I'm not about saving cash when it comes to something this close to home. I, like you; plan to get off cialis as I notice lasting improvements, which there is a good chance you will have.

My thoughts regarding Pentox is that it thins the blood and allows nutrients to areas affected by plaque and inflammation, which essentially helps breaks down plaque and restore/remodel healthy tissue.

Like I say, blood flow and nutrients are key. Cialis and pentox gives you the chance you need.

Take this opportunity to get a healthy diet, cut down on carbs and eat your greens. Make the most of this chance to heal.

Other cheap medications such as coq10, citruline, natokinese, vitamin k, copper, zinc and magnesium will help. You could buy all of that for 3 months for about £40.

Take head from your doctor and take the pills, get off them later if you want. But give yourself the best chance now.

Regarding the length of time to take substances, I would say take them until you feel you have seen improvements or become stable, and feel you are no longer benefitting. I don't believe you must take them for life, but it is also a case by case thing.


Ahhhh very interesting and thanks so much for clearing all this up for me! Amazing! As my case is quite mild i'm really positive things will better with these treatments!

I wish you all the best mate

smashin

Yes, take supplements during acute phase. Once you become stabilised there is high chance you can discontinue.

No problem.

Paolo

heythereyou123456 I have sent you a PM, we have already chatted through the Ray Peat Forum  :)
Paul.
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.