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Author Topic: Non sono il mio pene  (Read 150 times)

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jackal77

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Non sono il mio pene
« on: August 02, 2020, 12:29:09 AM »

Hi folks
Here my intro

Age? 43

What did your medical doctor conclude? Peyronies with hard plaque and a surgery candidate, going for a 2nd opinion with Mr Shukla in Edinburgh

How long have you had symptoms?
Curve started end of April 2020, pain in erections since approx October 2019

What are your symptoms?
Pain in erections has stopped now, although now and again get a bit of dull ache when flaccid
45 degree ish upward curve
Still able to penetrate carefully

What treatments have you tried and what were the results?
4 weeks in
Traction And VED 
Daily cialis 5mg, Vitamin E 200iu and CoQ10 ubiquinone 300mg daily, but just upgraded to ubiquinol yesterday after reading posts in this forum
No noticeable results.......yet.

Do you have insurance or means to get medical treatment?
Private medical won't cover sexual dysfunction but after arguing I had physical and mental pain I got agreement for a consultation

where are you in dealing with the psychological aspects of Peyronies Disease?
I like to see myself as a strong character, but this crap has knocked me for six and I swing from being strong and positive to getting lost in my thoughts of what the future may hold.
Also started meditating using the "calm" app. I like it.
As hawk says in the survival guide, I am not going to be defined by my penis. I truly believe through positive mental attitude and hard work / lifestyle changes this can be cured or improved to a workable point without surgery or injections. I am prepared to give it a few years of work before resorting to surgery.

Are you in a relationship?
My wife is fantastic and we have been talking lots and trying other things in the bedroom with care, which is fun. I don't know what I would do without her, she keeps me sane, confident and grounded. My heart goes out to single guys with this condition.
I do miss a nice 'normal' f**k though.

My Peyronies story
About October 2019, I started to notice my erections were not as good as before and I'd lost maybe half an inch plus in length erect (7.5'' from 8'' plus I'm my youth) . I put it down to age, but ordered some cialis 20mg from Numan.com.
Then a couple months later I noticed pain in erections, but erections were getting really hard naturally so didn't really worry, stopped using the cialis and continued having sex. Obviously regret not getting checked out then.

Fast forward to April 2020, my wife and I were in the bedroom and I noticed a weird sort of hinge like feeling midway up the shaft. Did some thorough investigation and found a lump, like a penny under the skin on top of shaft mid way along. Then overnight, ie next erextion, I had a roughly 45 degree upward curve.
Did the google self diagnosis and discovered  peyronies (Hooray) . Contacted my GP doctor and my private medical (AXA).
Had an online doctors appointment and shared photos, he agreed with my peyronies diagnosis and gave me a referral for a urology consultation. AXA took about a month to get back to me, eventually said they would arrange urologist consultation via BMI albyn hospital in Aberdeen (Scotland).
Then Aberdeen private hospital got back to me saying only urologist working did not treat peyronies.

Found Michael Fraser via cram osteopaths in Glasgow. He was very helpful via email and phone calls. I paid £200 to see him and get shock wave therapy on 6th July,. Unfortunately when he examined me he said plaque too big and too hard for shock wave to have any effect and said I'd need surgery. I was gutted as had put a lot of hope in the shock wave treatment. I also forgot to ask loads of questions as I was kinda stunned with his diagnosis.

In the meantime bought a penimaster Pro (PMP) and Androvacuum VED.
I've been doing traction, averaging about 5 hrs daily since, depending on commitments.
I work rotational on the oil rigs, I've smuggled my PMP offshore this trip, I'll be doing well to get 3hrs a day in offshore, most likely will manage 2hrs. Decided not to take the VED as didn't want to have that conversation with security when they checked my bag, they didn't find the PMP, thank god. I'm gonna leave this one in my locker and order a second for home use.
I'm about 4 weeks in with no noticeable results yet, but as the guides and research says I'm going to give it a year before I give up on traction.
Since reading the survival guide I have got some baseline measurements to more accurately measure progress. I think I'll take next set and photos every month and hope for some improvement
I want to thanks hawk for the website and survival guide, what a legend you are pal.

My vital statistics taken 28th July are:
BSPL = 18.4cm or 7.25"
Angle of curvature = 45 degrees from photo
Girth = 14cm or 5.5" at base 12.7cm or 5" under glans - is it normal to have such a difference.

I've also found Mr CJ Shukla in Edinburgh from the Doctors thread on forum and have booked a consultation when I get off the rig. The initial consultation is covered under my private medical. I'm hoping to get a pentox prescription from him and bloods / ultrasound to see if the plaque is calcified.
Further treatments may not be covered I'll cross that bridge when it comes. I have some money tucked away for a rainy day, so can afford to pay myself, within reasonable limits.

Thanks again Mr Hawk and all the other contributors, I'll update where I get to if anyone is interested.

'Non sono il mio pene' is my new mantra (I am not my penis)

Keep the faith brothers


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43 years old, Scotland
45 degree upward bend, curve started April 2020
Doing traction, CoQ10, vit E and daily cialis 5mg

jackal77

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Re: Non sono il mio pene
« Reply #1 on: August 02, 2020, 07:11:26 AM »

Sorry for the extra long post, bit boring I know, just wanted to get it out there  ;D
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43 years old, Scotland
45 degree upward bend, curve started April 2020
Doing traction, CoQ10, vit E and daily cialis 5mg

bustedchubb

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Re: Non sono il mio pene
« Reply #2 on: August 02, 2020, 01:08:16 PM »

Mine started about a month after you and same age, also have the great dorsal up bend.  I can totally relate to your mental state and the ups and downs.  Hang in there, and stick with traction/VED.  I'm not doing surgery for at least another year of working on it.
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.

Dent/Hourglassing distal and dorsal side, 15 degree bend left, 60 degree bend up, lost length and girth top half. Stabilized 6/2020.

CoQ10, Propolis, Vit A, L-Citrulline/L-Arganine, Low carb diet

TonySa

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Re: Non sono il mio pene
« Reply #3 on: August 02, 2020, 01:55:17 PM »

Surgery isn’t really an option until one is well into the stable phase (best 12-18 months after onset) so it def gives time for the oral and physical treatment approaches to help.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

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Re: Non sono il mio pene
« Reply #4 on: August 03, 2020, 07:48:20 AM »

Welcome Jackal, and don't apologize for the long post.  I wish everyone gave that much information.

I would print or at least be able to recite the studies and info in the survival guide on pentox (click on the links there).  Some doctors just don't embrace it and will not prescribe but some have been open enough that they were convinced to try it.

We will be interested in  how you do with the traction and the consultation.

Best wishes mate !
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jackal77

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Re: Non sono il mio pene
« Reply #5 on: August 03, 2020, 08:35:31 AM »

I will do hawk, I intend to go see Mr Shukla with all that info. The forum post on Dr's said Mr Shukla put them on Pentox right away, so I'm optimistic. I want an ultrasound and bloods too. Need to see if this bad boy is calcified.

I'll update my monthly measurement and throw in pics too. I hope I see some results for the hours of traction soon 🙏🙏🙏
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43 years old, Scotland
45 degree upward bend, curve started April 2020
Doing traction, CoQ10, vit E and daily cialis 5mg

jackal77

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Re: Non sono il mio pene
« Reply #6 on: August 03, 2020, 08:36:59 AM »

Mine started about a month after you and same age, also have the great dorsal up bend.  I can totally relate to your mental state and the ups and downs.  Hang in there, and stick with traction/VED.  I'm not doing surgery for at least another year of working on it.

Thanks busted chubb, hopefully we improve on the same schedule too. Keep the faith pal
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43 years old, Scotland
45 degree upward bend, curve started April 2020
Doing traction, CoQ10, vit E and daily cialis 5mg
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