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Author Topic: Deformity getting worse despite doing everything I can  (Read 221 times)

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peter123

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Deformity getting worse despite doing everything I can
« on: July 27, 2020, 06:06:09 AM »

At the 6 month mark its starting to get inflamed again, I have pain when flaccid and the deformity grew to 25 degree. Despite me doing everything I possibly can to treat this. I'm not even depressed, I'm mortified and in shock. I'm unable to do or touch anything in life, I cnat study, I most certainly can't work and the most common thogibz I have on a daily basis is about suicide. It's all too much with my. History of depressed, this kicked it into overdrive like I have never experienced before. I have never felt so left alone and isolated. If it weren't for family I sure as hell would have pulled the trigger by now. Hell, I bought pills to end it this weekend but I couldn't do it. But I also don't know how much I can take it anymore, surely once I reach the 30 degree mark, there will be irrational actions that I can almost guarantee. Deep down I don't want to die but I literally can't sustain it anymore. I am losing control
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

hope794

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Re: Deformity getting worse despite doing everything I can
« Reply #1 on: July 27, 2020, 10:08:03 AM »

I totally agree with you. Since the onset of my Peyronies Disease (and, consequently, Erectile Dysfunction) my life has been getting worse and worse and worse. This crap is an hell when you're <50 years old.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

peter123

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Re: Deformity getting worse despite doing everything I can
« Reply #2 on: July 27, 2020, 10:12:07 AM »

I totally agree with you. Since the onset of my Peyronies Disease (and, consequently, Erectile Dysfunction) my life has been getting worse and worse and worse. This crap is an hell when you're <50 years old.


my dick is exactly 4 inches now. show me one 22 year old who wouldn't buy a gun and make his lights go out in such a situation. I cant even say im depressed, im devastated
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

hope794

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Re: Deformity getting worse despite doing everything I can
« Reply #3 on: July 27, 2020, 10:42:10 AM »

I don't know what to say, bro. The only thing i can say is "Please, don't suicide, life is worth much more than this" and i really believe this, even if i totally understand your feelings. This disease has devastated my life too.

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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

TonySa

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Re: Deformity getting worse despite doing everything I can
« Reply #4 on: July 27, 2020, 10:06:42 PM »

Ok, be sure to take objective measurements as it’s easy to feel it’s gotten worse when it hasn’t.  Next step is to address your depression...if you don’t you won’t be able to effectively manage Peyronie’s.  If you want to do any thing additional, consider traction or VED.  Hang in there!
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

richardwilson99

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Re: Deformity getting worse despite doing everything I can
« Reply #5 on: July 30, 2020, 02:35:03 AM »

Hey Peter,

I wouldn't do anything until you exhaust all options.  If I'm being honest, this pump deal sounds pretty awesome lol. Just pump your ball and get an erection, thats f***ing awesome.  I know its tough man, I'm 29 and things were going well with my girlfriend and she literally left me because I couldn't have sex with her anymore.

This really sucks. It really really does. But like I said in another post to you, we're lucky that A) as men we can have children basically whenever in life.   B) Money can definitely help make life much easier with women ( I know this is horrible, but you can strive to get super rich and women will have no problem with your issues). 

Sounds like you need to find a different doctor also, and consider telling someone in your life that you can trust.  I saw your pic, with the way science is advancing especially in this field, you'll be fine.
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29 yrs old.  Diagnosed peyronies  Feb 2020. 15-20 deg curve to left and 15/20 deg curve downward. Hinge/dent from dmage to left/under side of penis from sex/masturbation (Nov 2019). Onset of Erectile Dysfunction this year, looking for answers/hope

smashin

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Re: Deformity getting worse despite doing everything I can
« Reply #6 on: August 01, 2020, 08:43:29 PM »

Peter you need to relax.

You have classic case of catastrophic thinking. I know it because I have the same thing. You have had this disease for less than a year.

It took mine about 18 months before it started to correct itself. You need to stop looking at some of the cases of people on here with 60 degree curves and assuming you are in the same boat.

What you need to do, is get some cialis 2.5mg ordered online, and do manual traction. It will correct itself if it is a mild case of 20 degrees like you say. Just be patient. This is not the end of your life or even your love life, just a temporary hiatus while you sort yourself out.

Even if you had a 90 degree curve there are plenty of women who wouldn’t care anyway. What you need to do, is use your energy to take up a new hobby whilst you get your head right and do a few months of traction.

Try to keep your head straight. The mind is very powerful and can make minor setbacks seems like the end of the world. If you do decide to do traction though, don’t go overboard or you will make things worse instead of improve.

Slow and steady. Come to terms with that, and keep your mind occupied in the meantime.
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TonySa

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Re: Deformity getting worse despite doing everything I can
« Reply #7 on: August 01, 2020, 09:30:39 PM »

Great advice sashin, hopefully he can hear it...
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

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Re: Deformity getting worse despite doing everything I can
« Reply #8 on: August 05, 2020, 12:05:33 PM »

Smashin, 15 years on this forum has proved to me that your advice is right on target.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums
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