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Author Topic: Hourglass hinge horror  (Read 1040 times)

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Shane43

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Hourglass hinge horror
« on: July 13, 2020, 03:51:15 PM »

I am 59 YO, noticed weakness (hinging) at the base of penis mid 2019 and indentations early 2020, progressed to hourglass with deeper indent on right than left, and more severe hinging w/ 30 deg bend to right and 2 cm x 1 cm hard plaque in center dorsal area at base of penis. I have no Erectile Dysfunction, though I believe slightly lower rigidity at my age contributed to the bend trauma that probably caused the plaque. I have had 2 rounds of Xiaflex and this has decreased indents, and the hinge is a bit better, but penis is still too unstable for sex. First round of injections went ok, pain of injection without numbing was bad but very brief. The bruising was worse on the second injection 2 days after the first, and was significantly worse on the second round - especially the 4th injection. But nowhere near as bad as some have reported. Will get the third round in 5 more weeks.

I greatly appreciate the time and advice some of you have put into helping the rest of us. I'll keep you posted.
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59YO, hourglass indent and hinging near base, 30deg bend, 3cmx2cm hard (but not calcified) plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased indent/hinge/bend, waiting 3 mo to see if I can avoid 4th round fo Xiaflex (lots of bruising/pain)

TonySa

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Re: Hourglass hinge horror
« Reply #1 on: July 13, 2020, 03:59:17 PM »


It’s great it’s starting to help.  Many docs believe adding traction between rounds increases the improvement.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

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Re: Hourglass hinge horror
« Reply #2 on: July 13, 2020, 03:59:59 PM »

Welcome Shane,  You are among those that completely understand what you are going through.

This will sound like "I have one so you should get one" BUT this is my take.  If you are 60 with less than firm functional erections the odds that will improve when you are 65 is slim.  An implant would correct your bend, hour glass, and totally make a lack of rigidity a thing of the past.  I suspect that if you continue with injections, nurse along with instability, that you will cause yourself pain, time, money, and possible reinjury when one outpatient surgery could fix it all and DONE.  NOW.  that does not mean rush into an implant.  Read some implant journals, ask questions, pick a high volume surgeon by asking the right questions. I farted around for over a decade and after I got an implant I felt like a fool for not doing it sooner.  To the man, I think every guy here with an implant wish they had done it sooner.

Also read this through carefully about twice.  https://www.peyroniesforum.net/index.php/topic,3180.0.html


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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

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Re: Hourglass hinge horror
« Reply #3 on: July 13, 2020, 04:04:15 PM »

While your researching all your options I’d also consider low dose nightly generic cialis (2.5-5mg) as it can help w stronger erections and remodeling plaque to healthy tissue.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Shane43

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Re: Hourglass hinge horror
« Reply #4 on: July 13, 2020, 04:14:57 PM »

Many thanks to both of you for your quick responses and advice. I will research those topics as you suggested. I had thought about low dose cialis and will order some up. Do you think traction works for hour glass? The mild bend I have is not a problem. My urologist has experience and I think he has done a good job with the first two rounds of Xiaflex. I have a rather hard plaque that was at least 2.5 cm x 1.5 cm and he is injecting in multiple locations each time. the plaque is now perhaps 75% of the original size.  But I think I may need to see a more experienced specialist
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59YO, hourglass indent and hinging near base, 30deg bend, 3cmx2cm hard (but not calcified) plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased indent/hinge/bend, waiting 3 mo to see if I can avoid 4th round fo Xiaflex (lots of bruising/pain)

Hawk

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Re: Hourglass hinge horror
« Reply #5 on: July 13, 2020, 05:40:13 PM »

Although a very small study, there is evidence that traction can increase girth and reduce hourglass deformity.  you could also consider a 3 cylinder Agusta VED.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Shane43

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Re: Hourglass hinge horror
« Reply #6 on: August 22, 2020, 11:55:56 AM »

I have a dorsal plaque at the base of my penis, causing hourglass indentation and hinging (very little stability when I am hard). It was about 3 cm long, 2 cm wide, hard but not calcified yet. I have had 3 series of Xiaflex, just finished the third. After two series (4 injections on the right side of the plaque) the plague reduced to about 1.5 cm x 1.5 cm and the indentations are smaller. The bruising and pain gets worse with each series, but it is tolerable with ibuprofen and ice the first 1-2 days and heat a few times a day for 1-2 weeks. He injected on the left side this time and I will wait to see how things look in a few weeks to see if I will go withe the fourth series (and last one that my insurance will cover).
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59YO, hourglass indent and hinging near base, 30deg bend, 3cmx2cm hard (but not calcified) plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased indent/hinge/bend, waiting 3 mo to see if I can avoid 4th round fo Xiaflex (lots of bruising/pain)

TWalker

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Re: Hourglass hinge horror
« Reply #7 on: April 15, 2021, 08:24:40 PM »

Hope things are going well for you Shane (sounds like we have a rather similar deformity- not fun!) Had any luck in reducing it further by any measures?

Hawk- don't suppose you recall the name or authors of that study showing that traction can exacerbate girth loss/hourglassing? Was considering starting traction but would like to read about possible negatives before I do so. Feel free to message me the link to that study if easier.

-TW
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27, Peyronies Disease started 4 months ago after sex injury- still progressing. Dad had Peyronies Disease
1 plaque on each side opposite each other near base- causing indentations on side and top and thus hourglassing- could be 1 circumferential scar?
Pentox, Cialis, L-Citrulline

GaussRifle

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Re: Hourglass hinge horror
« Reply #8 on: April 15, 2021, 09:17:45 PM »

Most of us have some degree of indent/hourglassing. I have xiaflex scheduled in 4 weeks from now. I will be getting it and doing restore x daily traction over my 4 rounds. I will report if my indentation/hourglassing will reduce. My urologist said, xiaflex should help but in case it it not sufficient, he can do extra tunical grafting to add stability and prevent hinging and hourglassing.
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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Hawk

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Re: Hourglass hinge horror
« Reply #9 on: April 16, 2021, 12:40:30 AM »


Hawk- don't suppose you recall the name or authors of that study showing that traction can exacerbate girth loss/hourglassing?

I owe you an apology.  In my hasty typing, I was unclear and gave the opposite impression that I intended to give.  The study indicated traction increased girth and decreased hourglass deformity.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TWalker

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Re: Hourglass hinge horror
« Reply #10 on: April 16, 2021, 01:17:47 AM »

No apology needed! You’re a busy fella trying to help advise all of us- the odd mistype is inevitable. Thanks for the clarification and for all you do on this forum.

-TW
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27, Peyronies Disease started 4 months ago after sex injury- still progressing. Dad had Peyronies Disease
1 plaque on each side opposite each other near base- causing indentations on side and top and thus hourglassing- could be 1 circumferential scar?
Pentox, Cialis, L-Citrulline

LWillisjr

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Re: Hourglass hinge horror
« Reply #11 on: April 17, 2021, 04:15:17 PM »

This introductory board is just for introductions.  Each new member gets one topic here with no more than ten replies.

As such this topic is locked.  Please continue to post under the appropriate boards below on the main forum.

Les
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
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