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Author Topic: My story, with some questions  (Read 317 times)

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anon1986

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My story, with some questions
« on: June 29, 2020, 10:37:52 PM »

Hi all,

I’ve been reading the forum for a couple of months and decided to join.

I developed Peyronies in mid-April of this year. I’m 33 and have been married for seven years. A couple of years ago I lost 100 pounds so my erections grew about an inch from that, and I was feeling good about myself. But, I was taking trazodone for sleep and developed priapism, which then led to an injury during sex.

A couple days after the “accident”, I met with a urologist who confirmed my suspicions. I stopped trazodone immediately and started my regiment:

Pentox
Vitamin E
ALC
L-arginine
Turmeric

The pain with erections has lessened, but the curve remains. I have a plaque about the size of a small pea at the base of my shaft, which doesn’t seem to be a normal location.

The supplements have helped a bit I think, my girth while flaccid has never been bigger. I also wake up every day to hard erections, but they’re curved.

I bought a restorex, but I’m wondering if it will work because of the location of my plaque? Especially for the bent setting, my plaque is over 4 inches from the tip of my penis, so I’m not sure if it would be smart to do the bent setting or just use it straight.

Also, I’ve read just about every thread on DMSO but I’m very confused. It’s something I’d like to try but none of it makes sense to me (even the intro thread).

Anyway, that’s my story so far. I’m starting to come around to the fact that my penis won’t be the same ever again, but I’d like it to be a little straighter for my own sanity.

Thanks for listening
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TonySa

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Re: My story, with some questions
« Reply #1 on: June 29, 2020, 10:44:49 PM »

Def get started w restorex, I’d also add nightly low dose generic cialis or viagra.      Also, read the survival guide.  https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
Not much evidence for DMSO, but there are a couple of strong advocates for it here if you want to read more.  Just be very well informed as it can cause burning and carry unwanted substances into your penis.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

anon1986

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Re: My story, with some questions
« Reply #2 on: June 30, 2020, 12:10:54 AM »

Does the cialis/viagra help make the plaque smaller?

I don’t have any problems getting erections, it’s really just the plaque making them curve to the right.
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LWillisjr

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Re: My story, with some questions
« Reply #3 on: June 30, 2020, 06:45:09 PM »

They improve blood flow and the desire is to at least soften the plaque so you don't curve. But Cialis or Viagra won't do it alone. We often encourage multiple approaches or a combination for better efficacy. I would definitely start to use the Restorex.
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Les - 10 yrs Peyronies Disease free
My History

TonySa

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Re: My story, with some questions
« Reply #4 on: June 30, 2020, 09:25:51 PM »

Yes, low dose pde5i’s can promote plaque remodeling to healthy tissue. 
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

LuisFernandez

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Re: My story, with some questions
« Reply #5 on: July 03, 2020, 01:10:32 AM »

I'm not sure I would recommend traction in the hyper-acute phase. Particularly if there's still inflammation. If you look at the studies only one used traction in the acute phase.

For RestoreX study only 3% of participants had Peyronies Disease less than 3 months. Causing more trauma could lead to more inflammation, extending the hyper-acute phase.

Also RestoreX is really powerful. I'd say start manually VERY lightly and see how your penis reacts the next couple of days. Traction is tricky if the injury is recent.

Definitely get started on low dose Cialis, along with Pentox these are really effective. I'd say erections are extremely important. The pea size thing you mention might be a 'nodule' and not an actual plaque.

I'd say to use L-Citruline instead of L-Arganine. Also your doc should have prescribed you an anti-inflammatory.
Also, it's extremely important to switch to an anti-inflammatory diet. Keto or mediterranean should be good. I personally do low-carb/low-calories.

The girth you mention might actually be inflammation. I know it feels and looks cool but it's actually a bad part of the process. This inflammation is what later causes the plaque to form. You need to focus on getting rid of the inflammation.

BUT having a harder flaccid is also good because that means the scars should settle in a more extended state. That's the idea of having consistent erections, so that the scar/plaque doesn't form in a shrunken state.

Abstain from sex and hard masturbation. If you do have sex or masturbate use a lot of water-based lubricant and only the head. Erections are good. Friction is bad. Consider the erections therapy.

Once the inflammation settles and you have your diet in check you can start light traction. VED is a bit less traumatic than heavy traction. One thing a URO and Xiaflex manual mention is GENTLY bending the erect penis opposite the curve. NEVER PULL ON ERECT PENIS!

Good luck!
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TonySa

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Re: My story, with some questions
« Reply #6 on: July 03, 2020, 10:52:14 PM »

Several studies support traction during the acute phase.  Of course back off if any pain.  Inflammation is a internal process and generally can’t be seen (ie swollen).  Nofap or sex is not helpful unless it causes pain for you.  Def get started w traction or VED.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

LuisFernandez

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Re: My story, with some questions
« Reply #7 on: July 04, 2020, 12:22:54 AM »

To clarify,

In general i think you def want to start traction and VED ASAP. Just be careful with it. I overdid it a month after my symptoms with really bad results and pain. I felt tingling. BUT this might actually have been good as i was probably not allowing the scar to fully form and settle. Certainly start it, just be careful with it. Don't go all out from day 1.

Personally i could see the inflammation in my penis, also it was difficult to pull my foreskin back and it would not retract itself easily. Now this does not happen.

Also yeah have sex and masturbate. Just take it easy and use lube. Careful not to re-injure yourself.
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anon1986

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Re: My story, with some questions
« Reply #8 on: July 04, 2020, 09:47:41 PM »

Luis,

Thank you so much for your response.

What’s the difference between a nodule and plaque? What would plaque feel like?

I took melatonin last night because I have trouble sleeping and I think in a daze I did something to aggravate things because now I feel as though I have a hard flaccid.

Honestly, I’m scared to try cialis. I sleep on my stomach and if I’m getting erections all night, that might make things worse. Having erections nonstop at night from trazodone is what got me here in the first place.

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LuisFernandez

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Re: My story, with some questions
« Reply #9 on: July 05, 2020, 04:22:16 PM »

Ok so i'm just talking about my case and how things evolved. I have several nodules and at least two scars as i can tell.

First i believe the nodules are the sites of the original injuries. Over time some of these went away or hardened. They didn't however, cause big deformities.

The scars are plaque tissue that gets 'attached' to the tunica. They can be close to the nodules.  For me the scars are what cause the curving and hourglassing.

The scars feel different than the nodules. It's hard to explain but you don't really feel them unless you stretch them. For me they feel a bit rougher and tough than normal penile tissue and itch and tingle when i stretched them early. They don't necessarily feel hards like the nodules do.

Most of the time the scars will be on the top (dorsal) side of the penis. I have one there and on the top left of the penis. These were preceeded by inflammation in those areas.

What did you do to aggravate things? At that stage i'd probably just do manual traction to avoid the scars forming in a contracted state.

Some people say low time and low intensity, i'd probably do low intensity high time at that stage.

For me for the dorsal scar i use the two hand technique where i hold the base with one hand and stretch the top with the other.

I think RestoreX might be too much in the early stage, but the Dr that invented it swears by it and using it as soon as possible. Your call on what to do there.

I suggest sleeping with no underwear and light blanket to allow erections. For me cialis eventually stopped working well so take advantage of it. Do be careful with priapism, i had a couple of mild cases in the beginning.

You can buy some sudafed and take 4 capsules in case of priapism emergency. I used to set alarms throughout the night and mentally make sure the erections would go down. You probably don't want to take trazodone and cialis at the same time. But you should ask your urologist about that.

Good luck.
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LuisFernandez

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Re: My story, with some questions
« Reply #10 on: July 05, 2020, 04:24:07 PM »

Also, i'd start Old Man's VED protocol sooner than later.
I'd say VED is for girth and dents and traction is for length.

The idea is to break up the scars and don't allow them to settle and form in deformed states.
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Hawk

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Re: My story, with some questions
« Reply #11 on: July 06, 2020, 11:17:00 AM »

This topic is now locked because it has exceeded the 10 post limit imposed on Introductory Topics.

Please continue to post on the appropriate boards on the forum.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums
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