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HeyThereYou

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My history:
« on: June 06, 2020, 10:51:29 AM »

HISTORY:

I'm early 20's.

I started masturbating from a really young age (Mostly everyday during my early teens). I would make sure I climaxed every time in 10-30 seconds by clenching really hard.

I had a painful event when I was 14. Before this I had zero issues from the penis.
This certain day I masturbated 4 times, during the last masturbation that day, I don't know exactly what happened or what movement I made but this sharp pain came into the penis and I had to stop, I cant remember if the penis shrunk and deflated, I don’t think the sudden severe pain lasted for very long after that, no bruising/swelling or snapping noise that I can remember when it happened.
Some symptoms I noticed immediately after the painful incident when i was 14:
* Overall size progressively changed for months after, The area just below the head and potentially towards the base went progressively thinner over the following months. Then just stabilised and stayed thinner and did not progress any further after so many months.
* Chronic penile pain after the event. I just can’t remember the degree of penile pain I had, If it was when erect or flacid or both but i know it calmed down a lot as the months went on until any acute pain that i was getting was non-existent apart from what it left me with over the following years and now.
* More frequent deformity shape which got better as weeks went on and then stabilised.
* Penis also stopped growing at that point.

After the initial trauma when I was 14, I carried on masturbating regularly (Mostly everyday) up until i was about 17-18 where I reduced masturbating a lot, maybe once a week or every two weeks some times. In recent years I’ve just did it once or twice a week (normally very long edging sessions).

Went to urologist 8 months after the initial trauma in 2014 and then January 2020 this year I saw another urologist who both hand examined my penis and at both times they said there is nothing wrong. Both never gave ultrasound scans or other scans.

(And also I don't know if it has got anything to do with it but around about the time of the incident when I was 14, I had started taking Roaccutane Tablets for acne and within the month, this painful experience happened, so not sure if there was any relation there, I know that Roaccutane is quite a potent drug and can cause a lot of side effect. Also had been on a long stretch of Anti-biotics for acne 8 months before this painful incident so not sure if there’s also any relation from that. I have also been on Anti-biotics a lot in general since a young age).







SYMPTOMS THAT HAVE PERSISTED FOR THE LAST 7 YEARS FOLLOWING THAT INITIAL TRAUMA AND STILL PERSIST TO THIS DAY:

* ERECTILE DYSFUNCTION AND BAD ERECTION QUALITY: When engaging in sexual activity I struggle to keep an erection, only stays up with lots of physical and mental stimulation and also by clenching/kegeling constantly, if I stop anything, erection will be lost quickly. Same goes for the overall erection quality, unless i’m clenching/kegeling constantly with mental and physical stimulation it won’t get to full girth/length. (Before the incident when i was 14, I would be at a full erection just randomly throughout the day without even touching it). 
* SPONGIOSUM NOT FILLING WITH BLOOD PROPERLY: When erect, the Corpus Spongiosum is basically flat unless I clench/kegel constantly and only when i’m near the end of sexual activity when i’m extremely aroused and there is lots of physical stimulation will the spongiosum start to fill with blood, when it does fill with blood, the Spongiosum is still very soft and it gets thinner towards the tip and basically stays flat right below penis head. (The whole circumference just below the head stayed thinner than the rest of the penis after that initial painful trauma when I was 14).
* WEAK NOCTURNAL ERECTIONS: I do and have got nocturnal erections in recent times which I know from when I’m woken up while having one, it’s never a full solid erection, always weak, Corpus spongiosum will be flat and overall penis wont be at full length or girth.  (When i was younger I used to get morning erections most mornings and it used to be extremely hard/full and stay erect for ages).
* WEAK ERECTION WHILE LAYING DOWN: During normal sexual activity, when laying down, I struggle to get a full erection, so not sure if this is why I also do not get fully hard nocturnal erections as it’s an issue I have when laying down anyway, not just during the nocturnal erections. When i’m standing up or sitting on the edge of a chair, the erection will be more full straight away. Laying down on my back is the worst position for me to get an erection in.
* PENILE SENSITIVITY/PAIN WHEN ERECT: When erect, penis is extremely sensitive in terms of pain, Kind of like an unpleasant pressure feeling sometimes. if I move the erect penis on it’s own side to side or up and down it will be painful, it has to be kept straight pointing in one direction and staying in one position when erect. I could never hold a towel on the erect penis, it would be extremely painful, If it’s pushed down when erect at all it hurts. More coming from the cavernosa tubes all alongside them (I have to support the whole penis by holding it and keeping it pointing in one direction/position at all times during erection otherwise I risk getting this pain/pressure feeling).
* PAIN/PRESSURE FEELING WHEN GOING FROM FLACID TO ERECT: Sometimes, When blood is going into penis, taking it from flaccid to erect, there is that pain/pressure feeling as the penis is half engorged and blood is still going in and it’s really uncomfortable. I think this mainly comes from the cavernosa tubes, maybe more at the area just below the head of penis and more the left side. This pressure feeling goes away when penis is more fully erect.
* PAIN WHEN PRESSING ON CERTAIN AREAS: When erect/semi erect, if I press along the cavernosa tubes, there are certain zones which are painful to press on. Some more painful than other.
* SHAPE DEFORMITY/HARD FLACID AFTER EJACULATING: After ejaculating, when blood is leaving the penis and when its going/back into a flaccid state, for some time after, it looks all deformed, bumpy, really thin, uneven and I get hard rigid flaccid for a while after in flaccid state.
* POTENTIAL CURVATURE DEVELOPED: Not sure if I developed a slight curve since the initial trauma when i was 14 or if i always had a congenital curve. I can’t remember.
* COLD GLANS: When flaccid, the head of the penis is cold most of the time.
* PENIS FREQUENTLY SHRIVELS UP: Penis shrivels up a lot easier than it did before the trauma during daily activities.
* LOSS OF SPONTANEOUS ERECTIONS/ABILITY TO GET ERECT WHEN DRUNK: Before trauma when I was 14 I could get fully erect at random points during the day in school for e.g and it would stay fully erect for ages. I also used to be able to drink alcohol and get erect. I can get an erection now from just mental stimulation but again it will be weak and won’t last for ages.
* HARD FLACID PENIS: Penis seems to be in this hard flaccid state a lot, the penis will be flaccid but it will be hard and rigid and not spongy (I was thinking this was more due to the pelvic floor based on my clenching habits/daily stress which causes involuntary kegels, I get these involuntary kegels during sexual activity which i feel causes premature ejaculation for me) But i only noticed it more frequently after the original trauma when i was 14.

OTHER:
* Premature ejaculation (Not related to trauma when i was 14, more potentially due to pelvic floor tightness).
* Testicular discomfort, from the right testicle more, which is more towards the testicle cords, more if testicles are being moved and rotated during sleep for example (Not related to trauma when i was 14).







RECENT SITUATION SINCE MAY/JUNE 2020:

* All of the symptoms above are still present to this day but were not progressing in the last 7 years, May/June 2020 is where I may have re-injured it and have noticed new found issues and basically everything above but amplified a lot worse.  Now I can clearly specify exact problematic points of the penis (I.e Towards the base, on the left cavernosa/below penis head etc).
* I have been masturbating more in the last few months since lockdown, I have got bad premature ejaculation so I have been purposely edging/masturbating more for long durations of time to train myself to last longer, more playing with penis while it is not fully erect just casually throughout the day too.
* There is one incident in the last few months since lockdown which was suddenly painful, I was having sex with a condom and the condom was not on properly and when penetrating it caused me to kind of penetrate into the loose condom causing sudden pain, I couldn’t see exactly what happened but maybe as i’ve penetrated into the loose condom it caused my penis to bend back on it self to the left, I don’t re-call snapping sound/swelling or anything like that, I may have even carried on the sex after it, I can’t remember fully.
* I started noticing a mild discomfort pain while masturbating around the start of June this year, around the same area towards the base on the left cavernosa area (This is still very persistent now).

NEW SYMPTOMS SINCE MAY/JUNE 2020:
* MORE PENILE THINNING: Penis has gone thinner overall when flaccid and erect and especially gone even thinner AGAIN at the circumference below penis head. It’s also gone thinner directly at the area towards the base on the left cavernosa where i’ve had the new persistent pain/issues and where that cord is, it feels as if there is a small dent there when erect. Not sure if it’s gone slightly shorter overall as well.
* MORE CURVATURE/DEFORMITY: When semi erect and when blood is going into penis I’ve noticed more Deformity/Bumpiness and more of a prominent curvature to the left than i’ve ever noticed before in semi erect state, the penis can also look really deformed/Bumpy/Uneven/more curved when flacid. The more prominent curvature/deformity improves when i’m fully erect but there is a curve when erect too but I’m not sure if that’s a new thing since this new situation in the last month or if it came on after the initial trauma when I was 14 or if it’s just congenital.
* MUCH WORSE DEFORMITY/CURVATURE AFTER EJACULATION: After I have had an erection or mainly after ejaculating, as the blood is leaving the penis, the penis looks very deformed/bumpy/uneven and can look like more curvature to left again, and then stays in this deformed shape for a while after even when flaccid.
* PAIN WHEN FLACID: Throughout the day when flaccid, I will sometimes notice pain shooting around that area towards the base on the left cavernosa mainly and very occasionally some other areas too, it’s not a terrible pain but it’s noticeable and annoying. Also kind of feels like a mild bleeding feeling sometimes.  The random pain throughout the day seems to be happening less as time goes on but what I notice is the pain when flaccid is brought on instantly if I move my penis in certain directions or if i’m running and the penis is moving/jolted while running it will be painful directly from that point towards the base on the left cavernosa.
* MORE PAIN WHEN ERECT: It’s not constant, I still have the same erect pressure sensitivity that i listed above in initial symptoms onsetting from the initial trauma when i was 14 but there is also now pain when masturbating while erect which I can feel it nagging in the exact same area again towards the base on the left cavernosa, to combat this I don’t complete a full stroke and i have to be extremely gentle and use lots of lube, I also keep the movement close to the head and away from that base.
* PAIN TO PRESS ON CERTAIN AREAS: When erect and flaccid, if I press directly at this point towards base in the left cavernosa I can feel a lot of pain instantly. It’s definitely worse at the point towards the base on the left cavernosa and below penis head on the left cavernosa but when erect, a lot of zones on the two cavernosa tubes are painful to press on.. I don’t remember having exact extra painful points before May/June this year.
* HINGE POINT DEVELOPED: I’ve noticed that from the area below the head of the penis, when flaccid/partially erect, I am able to hinge that point upwards towards myself and hinge it to the left also, Not sure if this was there before the recent re-injury in June 2020 or if it was just brought on.
* NEW CORD: Also noticed that cord like thing which i showed you which bulges out of the skin but stays in one spot even when skin is being moved which i had not noticed before the last month.







OVERALL HEALTH/MEDICATION/CURRENT LIFESTYLE BRIEFLY ETC

* Hormonal/lipids all full blood tests are all fine, Testosterone is high at 29 with a range of 9-29, thyroid results came back normal.
* I eat an extremely healthy  diet and have done for at least 4 years now.
* Exercise with weights daily.
* Never taken viagra or anything.
* Take absolutely zero medication.
* Hardly ever consume alcohol/do not smoke/do not take drugs.
* I do and have got a lot of stress in my life at present times in the last few months since working from home. Although i’ve had OCD tendencies all my life.
* Father has mild mild duputryen in his hand which he noticed about 10 years ago (He’s 55 now).

TonySa

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Re: I'm not sure what i have 7 years later..
« Reply #1 on: June 06, 2020, 11:41:40 AM »

Hi, certainly sounds like you struggle w hard flaccid.  Maybe try reverse kegels.  For harder erections and improving penile health I’d consider low dose nightly cialis—over six months can improve erection quality...day to day also helps as it has a long half life.  I don’t hear anything in particular that would make me think Peyronie’s.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

HeyThereYou

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Re: I'm not sure what i have 7 years later..
« Reply #2 on: June 06, 2020, 12:03:30 PM »

Hi, certainly sounds like you struggle w hard flaccid.  Maybe try reverse kegels.  For harder erections and improving penile health I’d consider low dose nightly cialis—over six months can improve erection quality...day to day also helps as it has a long half life.  I don’t hear anything in particular that would make me think Peyronie’s.


Thank you so much for the response!

No your right i completely dismissed peyronies after the final appointment i had with uro start of this year.. And the fact i never formed a plaque 7 years later, if it's peyronies, a plaque will always form i'm guessing??


The thing that alarms me is the pain at the certain point on the left upper tube part and the more bentness i've noticed recently.. Like i said i didnt do anything specifically traumatic recenetly apart from just masturbating more and feeling the discomfort at that part of the upper left tube... If i 'did' give myself peyronies would i have noticed a more traumatic painful event ?

i think i just need re assurance more than anything i tend to freak out bout this stuff !


I've been considering the cialis for a while now hmmm

melting

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Re: I'm not sure what i have 7 years later..
« Reply #3 on: June 06, 2020, 04:16:24 PM »

Sounds like a messed up Pelvic Floor. The constant kegeling to achieve errection surely is bad and the "erection system" if done too much will rely on it. A normal erection is achieved by an autonomous very fast firing of the "kegel muscles".

The pain could be from nerves trapped c of tight PF muscles.
Cold glans also points to low circulation, so does a flat CS.
All of that then can lead to some inflamations and peyronies could be created easier under such conditions. But sometimes if it's only on one side, that side is specifically tight and the pain can shoot from deep in the PF through the CC side up to the glans. Many of the PF muscles are 2 sided.
You surely have to rethink your masturbation behavior, body position etc.

What Tony said and you might need a professional who knows about physiology and the PF. 
Could be some of the medical system or yoga types etc. depending what is available. You can do a lot yourself with some research on google and youtube if you are able to understand and apply.
For some sitting and rolling on a tennis ball between anus and penis can help.. for others it's too intense..
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Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

Cabby

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Re: I'm not sure what i have 7 years later..
« Reply #4 on: June 13, 2020, 11:43:00 AM »

I have exactly the same symptoms as you apart from penile thinning . I feel my glans may have twisted slightly clockwise and I also suffer from urine dribbling fairly bad at times. My pain is mostly in the glans a dull throb sometimes a sharp pain,  and sometimes pain at the base of the shaft. I'm waiting to be referred to a urologist and I've convinced myself I've got peyronies cant stop stressing about it but I am a very stressed person in general and I'm hoping it's a pelvic floor problem time will tell.
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39 been noticing pain and curvature to the left and maybe a little upwards for around 6 months. Pain is most days now . Taking vitamin e and arginine daily.

HeyThereYou

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Re: I'm not sure what i have 7 years later..
« Reply #5 on: June 13, 2020, 01:25:39 PM »

Sounds like a messed up Pelvic Floor. The constant kegeling to achieve errection surely is bad and the "erection system" if done too much will rely on it. A normal erection is achieved by an autonomous very fast firing of the "kegel muscles".

The pain could be from nerves trapped c of tight PF muscles.
Cold glans also points to low circulation, so does a flat CS.
All of that then can lead to some inflamations and peyronies could be created easier under such conditions. But sometimes if it's only on one side, that side is specifically tight and the pain can shoot from deep in the PF through the CC side up to the glans. Many of the PF muscles are 2 sided.
You surely have to rethink your masturbation behavior, body position etc.

What Tony said and you might need a professional who knows about physiology and the PF. 
Could be some of the medical system or yoga types etc. depending what is available. You can do a lot yourself with some research on google and youtube if you are able to understand and apply.
For some sitting and rolling on a tennis ball between anus and penis can help.. for others it's too intense..

Just noticed this reply @melting !

So when you say about pain being from trapped nerves due to tight pelvic floor.. Would it be right that i have the shooting pain at random points on the penis, like i said i have noticed on the left side of the upper tube of the penis.. But is that the normal pattern to experience the pain?

bustedchubb

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Re: I'm not sure what i have 7 years later..
« Reply #6 on: June 13, 2020, 01:25:53 PM »

Cabby2020, best thing to do is to try to relax.  I was a wreck before my impending cystoscopy ( that ended up not happening ) only to go to a solid uro who is very confident that it is a pelvic floor issue.   Nervousness and anxiety will just amp your issues up.  I am also dealing with similar urinary issues and start pelvic floor physiotherapy next Tuesday.  Hang in there man.
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43 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, ~50 deg bend up, lost length and girth top half (hourglassing).

Underwent Plication with Dr. Christine in Birmingham AL on 6/17/2021. Recovery in progress

Cabby

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Re: I'm not sure what i have 7 years later..
« Reply #7 on: June 14, 2020, 03:39:25 AM »

Back in December 19 a lady was on top during sex there was a snapping sound but no pain or swelling etc after its this incident that is fuelling my anxiety and convincing me I have peyronies . Ans you're right the more anxious I get the worse the symptoms! Thank you for your reply and good luck in your journey!
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39 been noticing pain and curvature to the left and maybe a little upwards for around 6 months. Pain is most days now . Taking vitamin e and arginine daily.

melting

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Re: I'm not sure what i have 7 years later..
« Reply #8 on: June 15, 2020, 02:37:47 PM »

So when you say about pain being from trapped nerves due to tight pelvic floor.. Would it be right that i have the shooting pain at random points on the penis, like i said i have noticed on the left side of the upper tube of the penis.. But is that the normal pattern to experience the pain?

Possible. Also possible there's a peyronies plaque putting pressure on a nerve in your penis.
Sometimes it's both..

If you are unsure, get a 2nd or 3rd opinion from a different doctor including ultrasound etc.
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Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

BornIn89

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Re: My history:
« Reply #9 on: October 06, 2021, 12:29:12 PM »

I was just reading your posts and your symptoms are very similar to mine. How are you doing nowadays? I see it's been a little while since you got a diagnosis. Has anything changed for you? Did the pelvic floor exercises help you at all? Thanks mate (tried to pm but your inbox is full)
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LWillisjr

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Re: My history:
« Reply #10 on: October 08, 2021, 08:22:19 AM »

As this is approaching 10 posts as an introductory post, I will lock now and feel free to post additional questions in other topics/boards on the forum.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History
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