VED Therapy Log

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LuisFernandez

Hey Friends,

I'm getting ready to start my VED therapy and had a few questions. I want to use this thread to post my therapy progress, thoughts, results, etc.

You can view my introduction post here: https://www.peyroniesforum.net/index.php/topic,13489.0.html

Medical Information

  • Currently 34 years old
  • Took Finasteride for two years, quit cold turkey on Apr 13th 2020
  • Experience acute Erectile Dysfunction with no pain on that day, thought it was fin
  • Turns out it was kickboxing that was the main cause of my injury
  • Got diagnosed with acute stage Peyronies around May 13th
  • Currently on 3x Pentox, L-Citruline, and Cialis - also doing Vitamin D supplements as advised from my endo
  • Not currently doing any traction due to aggravation it caused when i tried it before
  • Have two nodules/inflammation points and an indentation at the top of my penis.
  • Have a ~15° slant to the left from the base of my penis and a 10° curve to the left in the middle of my penis. These were not there before the injury
  • My testosterone is somewhat low at 515 ng/dL total and 76.8 pg/mL free but not too bad
  • Doctor is Jessie Mills and can be seen here: https://www.youtube.com/watch?v=5CJBDBIAy90

Diet & Lifestyle

  • Balanced diet with healthy carbs and fats, don't want to do Keto because of testosterone concerns
  • Usually eat 2 eggs and toast for breakfast, lunch is usually pollo loco, dinner is usually pasta/spaghetti sometimes steak or mexican food
  • Doing daily shakes with bananas, berries, almond milk, and ginger root to increase testosterone
  • Doing heavy weights, trying to avoid legs, every other day
  • Erectile Dysfunction is gone and am able to have sex with my wife, use a lot of lube and try to take it easy
  • Doing very light masturbation, without ejaculation, daily but trying to cut down
  • Avoid sleeping face down and getting erections while wearing jeans
  • Trying to stay relaxed but very hard due to Covid, wife, kids, and now the looting

VED
My pain has mostly subsided have the slightest of sensation on the bottom nodule and on the middle nodule if i touch it. Even after sex or light masturbation i don't have any more pain or aggravation.

I have a vacurect otc device: https://www.mainspringmedical.com/products/vacurect-otc-custom-model-1002.

Planning to start VED therapy in the next couple of days. Plan on ordering the RestoreX device next month to both save up for it and to give the acute phase a little bit more time.

Old Man has been very helpful and plan to reach out to Hawk, but am also posting this in the public forum just in case.

A few pending questions:


  • The vacurect instructions say to only put the tip of the *flaccid* penis in the device. It says to never put the device all the way to the base of the penis. However, everywhere else, including this demo video says to put it all the way to the base: https://www.youtube.com/watch?v=koAnuI7nPCU and https://www.youtube.com/watch?v=t2-c8Ez9Lcs
  • Doctor recommends: "vacuum penile device for 10-20 mins a day" this seems to go along with the 1 cylinder protocol in this board

I don't have any other questions as of now, but will update this thread if i do. I will also update when i start the therapy with results.

Images
Vacurect instructions: https://imgur.com/1qfNBQD
My penis injury diagram: https://imgur.com/zKpZygM

Thanks!
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

jj21

I'm subscribing to this post to see your progress.

I'm glad you've started treatment early. That's the one thing I regret.

Best of luck,
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

TonySa

Be sure to follow the protocol instructions here, NOT the device instructions.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Nicely writen post! i whish you very good luck and i am also going to follow your diary.  

aquintance22

Hi Luis,

what is the reason for you not training legs in regards to peyronies? Just wondering.  
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LuisFernandez

Session 1

Ok so yesterday i tried my first VED session.


  • Followed the basic 1 cylinder protocol
  • Only inserted the tip of the penis and got about 50% erection size
  • Concerned with the rings that come with vacurect, using the largest one it's difficult to put it down to the base, will try to order larger ring or try without ring to reach the base of the penis
  • Didn't feel any discomfort, and was very careful
  • Still having trouble stopping masturbation, specially in the morning

aquintance22: The reason is because i have pain in my inner groin and even in the right testicle. I try to not aggravate it, i believe kickboxing either caused or further aggravated my injury

Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

melting

It makes no sense to me to only insert the glans.  
How does that logically have any effect on the plaques not in the cylinder?  

Start with low time and intensity and only slowly probe into longer time and intensity.

Mot training the legs cause of pain makes obviously sense but be aware that the penis blood circulation is also connected to the leg arteries. Having good circulation through the legs helps the penis circulation. Maybe do what you can while monitoring pain, doesn't need to be heavy weights I guess.. just movement.
And yes, any intense masturbation can inflame the tissue. Be smart about it.

GL
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Melting,

Thanks for the strong advice, i do really need to stop masturbating. Even though it's gentle, doing it so frequently cannot be helping. Plus, it makes my erections even weaker. Will take this advice to heart.

Will try to place the whole penis in the cylinder next. When i inserted the tip i did feel a strong 'stretch', but i don't see how this can help with the dent i have, which is the main thing i want to fix.

I think i will try some light squats and see if that causes any discomfort.  
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Ok, just got off the phone with the Vacurect manufacturer. I ordered the next largest ring size, that should make it easier to use.
The customer service rep told me that they recommend to start by placing the tip of the penis. But that when pumping, the pump will make its way close to the base of the penis. This is concerning to me because of the tightness of the ring, specially as the penis gets harder and how it might aggravate my two 'lesions' even more.


Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

TonySa

Masturbation is fine unless it is painful.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

melting

Of course gentle masturbation, if circumcised, best with lube, in a relaxed position, doesn't hurt.
Clenched, tense, raw, possibly stressed masturbation, "death grip", worst case in a hunched position over porn, can mess with the pelvic floor and healthy tissue "rubbing" against hard plaques might increase inflammation.

LuisFernandez, I looked closer at the device. It's made for ED.
The ring constricts the base of the penis on purpose to trap the blood even with lower vacuum and when removing it keeping the rings on to keep the erection.

I think this device might not be applicable for your situation.
You can try the widest ring available, but observe if it creates too much pressure at your base. Good cyclinders can be used without any silicon base, not sure about this one.(you can try without going for too much intensity, if it digs into the skin and pubic bone it wont work without a silicone base) Obviously if you have a nodule near the base you wouldn't want to keep the rings there constricting. (at least not starting out.. once you feel comfortable and are healthy you can increase intensity with the plaques slowly)

Regarding legs, I just wanted to warn about going the extreme other route, doing nothing for them, like only sitting lol. Some rounds on the bike or treadmill are probably enough to get the blood circuit flowing/moving.
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Melting, thanks for the information. I agree that the vacurect will not work for me. I don't want any sort of extra pressure, specially because i have a nodule at the base of my penis.

So i'm just going to cut my losses and get a new one. My doctor said i can pick up a cheap VED for less than 100$ off Amazon. Based on this study: https://pubmed.ncbi.nlm.nih.gov/20438558/ i think this can work: https://www.erecaidpumps.com/osbon-erecaid-esteem-manual-on-sale/

It's only $229. The 3 cylinder Somarect is $530, pretty pricey. I'm leaning toward the Osbon because of the price.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Actually Amazon has the Somarect: https://www.amazon.com/Soma-Therapy-ED-SOMAerect-Stf/dp/B00BFVWR2M for $249
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

jj21

I alsio found the soma erect stf here for 200 when I was looking: Soma Erect STF Prescription Grade Vacuum Therapy System | VED Systems

I have no idea how legit that site is as i'm in australia and wasnt able to purchase it through them.  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

TonySa

I believe it's the same device..,
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

LuisFernandez

Ok so i ended up getting a very basic replacement pump: https://www.amazon.com/gp/product/B088K8K3M4/ref=ox_sc_act_title_1?smid=ALBJY1YLBI6OV&psc=1

I think the 2nd VED session did some damage. Even though i was very careful, i noticed a new pea-sized bump on the left side of my penis, which had been fine until now. There was also some slight purple discoloration under my penis but ive seen that before and it might be my natural skin. My erection quality seems to have greatly suffered as well.

I'm going to nofap for a couple of days and let it heal. Good thing is im able to get an erection, just not as full as before. So if my erection quality doesn't improve i will never try VED again. If nofap helps, then i will cut down on masturbation - which might be a cause of my erection quality - and give VED another try.

Will keep this thread posted.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Ok so the erection quality seems to be coming back, I canceled the low-grade VED and ordered a Somaerect. Gonna take over a week to get here so i'll resume the therapy then.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

aquintance22

Yeah man I got in the same situation, where my erection quality was weaker after VED use - also had some red dots / broken capillaries.

Currently healing up from this and hoping I didn't create more damage.
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TonySa

These are classic signs of over pumping and will heal.  When you resume only go to 50% erection to be safe.  I too overpumped initially, it's very common.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

LuisFernandez

Thanks, i hope that it heals. The vacurect pump is just bad and not at all for Peyronies.

While i'm able to get erections, they're still not as strong. Prior to using it i was having constant erections and having trouble keeping it down. Now it's lifeless and i have to struggle really hard to get 90% erection.

Will give it a few days and see how things turn out.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

melting

Agree, typical overpumping symptoms. Skin will turn purple due to no fresh oxygen. It's very easy to overpump in intensity and/or time. Especially when the base is constricted too.

Start with the lowest possible time and intensity where you see no adverse symptoms. Do that some days. Go from there.
This is a marathon and no sprint. Improvements happen over weeks not minutes.
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Ok so thankfully my erections seems to have come back. Particularly after letting my penis rest for a day i'm able to get about 95% erections if not 100%. However, the curve to the left does seem to be getting worse.

This new 'nodule' on the left might be the site of the original fibrosis/calcification. This is interesting because the two main and visible lesions are on the right but the curve is going to the left. So there must be something on the left side affecting blood flow.

Other things i was doing that might have affected this:


  • Taking daily shakes, i was using almond milk which has a lot of calcium. I'm going to switch to water from now on
  • Taking Vitamin D supplements, this was advised by my endo due to having low D. But it might be causing problems so i'm just going to stop it

Additionally, i think i may have had Mondor's disease. When i was first getting erections after my injury i had a raging erection that would not go away. It was as if blood was trapped in the top middle of my penis. The next day there was a lot of pain on the top middle base, like by the vein. This seems different than other sites. Because of this i'm scarred to try VED again.

Now that part of my penis feels hard, as if following the vein going up my penis. Seems very much like Mondor's disease.

I will consult with my Urologist and see if we can do a scan or something since i never got that done.

Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Ok so today after taking my L-Citruline and Pentox, and taking a couple of hits of the vape pen i was able to get 100% erection. I'm still thinking i have some sort of vein issue because I also noticed stronger erections after taking Meloxicam (the blood thiner) so I'm wondering if the thinner blood allows the penis to get fuller.

Because of this I'm extremely skeptical of trying VED again, specially if i have an undiagnosed vein issue. The curve and dent is not really that bad so i also don't want to try to overdo it and just leave it alone.

Will keep updating with any changes.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Ok so yesterday i was doing some light masturbation and started to use lube. I noticed that the curve upward and the dent on top is getting worse. I decided to try out manual traction, and God did it feel good.

I can see how the skin on my penis was already indented and forming to this curve. Because i'm not circumcised i hadn't really noticed until yesterday. I'm still getting full erections but other changes im implementing NOW:


  • Go on a full Keto diet, don't care about Testosterone, it's good enough
  • Do manual traction as much as possible, there does not seem to be any discomfort and feels good actually
  • No more erection checking
  • No more masturbation, really should have stopped this at the start

The only thing i regret is not starting traction earlier, i see the damage and the hardness on the penis shaft. I don't expect things to go back to how it was, but im hoping to at least stop the progression as much as possible.

It seems from there it's going it's going to curve up and there's about an inch or so of hard/dented tissue on the top.

I also got the the new ring for the vacurect, and it fits a lot better, when i use a lot of lube.
I'm still nervous about doing VED because i don't want to make my erections worse. Having strong erections really helps in hiding the curves and dents. So far i seem to have lost a few centimeters in the last few days. Hoping that nothing is calcified or fibrosis, but there's probably some amount of fibrosis already set.

I can definitely feel this when i do the manual stretching, this also explains the numbness on that part of the penis.

If anyone has any thoughts on VED please let me know, i may try it again with the new ring seeing how manual tractions seems to be really helping. I haven't ordered a new VED device, waiting for the next paycheck.

Thanks.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

melting

You can see how the VED without ring feels on the base/pubic bone and if it seals..

From what I experienced and reading here most people used a variety of means to solve the issue. VED alone might work but some traction and other stuff will help too. It's just about being a bit smart and aware how it could work for yourself and then implement it, observing if it helps or not, even if just a little bit. You could experiment using heat during traction and VED. With infrared light or just a damp cloth(could be more effective). The tissue loosens up considerably with heat. But be aware that it will also lead to more fluid accumulation during vacuum. So shorter sets..
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Thanks Melting,

Not sure what happened but i have very bad news. After manual traction and trying out the pump with literally just one pump i am now having extreme ED again. But this feels much different than before, way worse.

I was able to get erections just yesterday, but today the top of my penis feels numb and non elastic when trying to get erect. The blood seems stuck at the bottom and i have the smallest 'erection' i have ever seen. I'm so sad now.

If this doesn't get any better, i'm seriously considering the penis pump implant. I don't want this shortening to be permanent and would rather have a mechanical dick than a much shorter dick.

Will continue to post on this bad situation.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

bustedchubb

Hang in there, man!  I'm in the dumps alot too about it, but it definitely is best to take it day to day.  
45 Yrs old, Peyronies Disease Onset 11/2019, Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, lost length and girth.

Underwent Plication with Dr. Brian Christine in Birmingham, AL on 6/17/2021. Fully recovered with no complications.

LuisFernandez

Thanks guys,

Yeah i wouldn't wish this disease on my worst enemy. Ok so very weird, i took a nap and afterward i was able to get an erection. The penis wasn't as numb or 'sore' as before.

I wonder if it was due to the traction, or perhaps the single pump, lack of sleep from last night? The erection was strong, but the curve does seem to be getting worse. The curve going upward is about 15-20 degrees.

So hard to find the right therapy, but it seems that at least traction is not dangerous and all i want is to stop the curve from getting worse.

Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

melting

You probably did too much, too high of an intensity. Doing too much means you create more problems. Could be for some hours, a day or a lasting problem.
That's why I tell people to start with 5 minutes lowest intensity and work from there. It's different for everyone.

Could be your pelvic floor reacted and you tensed up, bloodflow is impeded, nerves pressed on, you will notice furthest point(glans). If you really(!) overdo it then nerves could be hurt too. Probably not..
You seem to overreact rather extreme from the mind point too. Just be careful and smart without too much stress. Consistency is key. It's a marathon not sprint.
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Yeah i definitely overdid it, I did not know to only do 5 minutes. All traction studies say several hours.
I went for several hours at a high intensity and with different angles, mostly following the NeoV videos.

Will keep this thread updated.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Ok so after going through my history and reviewing things, I think i know what i have and it's not just Peyronies.

Because of my usage of finasteride my penis had shrunk. When i stopped it i believe that my penis started to grow a bit, i noticed extremely good erections and length increase.

However, this caused high-flow priapism - this was basically a semi-erection that did not go away. I had told this to my Urologist, but they weren't too worried because the erection did go away. But in fact i had a hard flaccid for a while which i thought was because of the Peyronie's diagnosis.

So, i believe i have high-flow priapism which caused tissue death on top of my penis leading to this dent and curve. This was not directly caused by Peyronie's i believe.

Here's a study and commentary on some of these cases: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4708203/

While it can be possible to resolve the vein issue tissue death is not reversible. One of the therapies for high-flow priapism is in fact Finasteride. So I never should have stopped taking it, crazy right!

This is an extremely rare case and i hope that i can at least help someone else that had this when taking Finasteride. The therapy is different than Peyronies including anti-androgens and stopping erections. Thankfully Pentoxifilline might have stopped some of the fibrosis.

From the traction i must have re-injured this vein as it felt just like the first incident in which i achieved a crazy hard erection that then wouldn't go away followed by pain the next day. Well, the majority of the erection went away but the top middle stayed hard - kind of like a hard flaccid. This is now where the dent is, probably due to tissue death or fibrosis. The next day to top bottom part of my penis and where some veins are really hurt but the pain eventually went away after a couple of days. After that day i just feel hardness in the vein. Because this was from one day to the other I

I can't believe i didn't make a bigger deal out of that incident to my doctors, i was too. focused on the Peyronie's injuries - which would have also been made worse by an expanding penis. DHT suppression causes fibrosis non-expansive tissue formation of the penis which explain also the Peyronie's.

All in all, Finasteride is an evil drug. We should look out for anyone who reports Peyronie's with a history of Finasteride use. VED and traction therapy are NOT the correct approach and will make things worse.

At this point i'm just so confused i wish i would have known this months ago but it's so F^@$!ng hard to put all of this together and knowing what to focus on. In general rule of thumb, if it hurts focus on it and bring it up to your doctors. I didn't.

Anyway, i'm scheduling a visit with my Uro asap. I'm hoping for the best but expecting the worst in that i may now have permanent Erectile Dysfunction due to tissue death.

I'm also scared that I may not be eligible for a penile implant which was the last solution. I'm devastated but also hopeful and hoping to get correct diagnosis and treatment for this ASAP. But as noted in the study with tissue death the Erectile Dysfunction will probably persist.

I did get an erection yesterday, with work, that's all i want at this point. But honestly i can't believe my luck and the complexity of my case. In some instances I wish i didn't research so much into things and over-do it, but at the same time i may not have been able to find the root cause.

Anyway, wish me luck guys and keep this case in mind for future reports of Finasteride use.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

TonySa

Wow, I agree finisateride is an evil drug.  Interestingly enough one case of priapism in the study was due to trazadone at night for insomnia.  Please keep us posted how it goes.  Why do you fear an implant may not be an option for you if the ED is not reversible?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

LuisFernandez

Hey,

Ok so i went to the emergency room to get checked out because the pain was becoming more acute. It seems i got a small hematoma at the base of my penis. It seems this was caused by the single vacuum pump. This is why the vacurect says not to place it at the base of the penis. Again, vacurect is not a good device for Peyronie's.

This should resolve on its own in a few days, but I'm not sure that it's causing my worsening ED. The traction probably did cause some further inflammation at the plaque side which is in the dorsal (top) side of my penis.

My next appointment with my Uro is not for another month, but they will be able to review the ultrasound and hopefully provide more insights. The on-duty ultra sound technician did not see any plaque and only noticed the hernia.

I'm not sure that i ever had priapism, but i'm not sure what the first episode of very erect penis followed by pain the next days. The pain felt exactly the same as today's pain but more acute. So i'm thinking i also got a hematoma then. I did not notice any purple spots so i'm not sure.

I told the on-call urologist (which is a student of my main urologist) about my finasteride theory. He said he had never heard of that but how physiologically it makes sense. I really believe stopping finasteride caused penis expansion because that's when these problems really started. If it wasn't expansion it was erection quality. I must have gotten used to poor erections during finasteride. I got so excited when i got that post-finasteride erection i tried to get as hard as possible which is when i felt this hematoma-like pain that time.

Tony,

The reason i'm concerned with priapism is because of the amount of scar tissue that quickly forms. Specially inside the corpus cavernosa, so it makes the implant surgery much harder and in some cases impossible. I really want to keep that option open so that's why i went to the emergency room since my Uro couldn't see me for a month.

Melting,

Thanks for your advice, i need to learn more about how the pelvic is involved. It was weird how i took a nap and then was able to get an erection. I don't think i did any nerve damage, although i may have been holding my glands too long as i see and feel some soreness there.

So, i don't think the traction caused the hematoma but it might have caused the inflammation of the plaque site which caused ED. Will keep posting as i do more testing and see if my Uro has any more insights.

For now i'm going to lay off vacuum not even one pump for now. I will still order a very basic pump with a gauge. I am a little concerned how easily i got a hematoma i wonder if i have some underlying disease like sickle cell disease but i doubt it, since that would have probably been caught earlier in my life.

If i do traction it's going to be super super gentle, i really need to take to heart how this is a marathon. I'm hopeful because i did very recently get an erection.

I'll see if i'm able to get a natural erection in the coming days, certainly no masturbation.

Otherwise plan on keeping a low-carb diet and some fasting, keep taking pentox, cialis, and l-citruline. I will also be taking naproxen for the hematoma pain for the next week or so. Will try to relax as much as possible.

Thanks everyone, will keep this log updated with progress.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

I went to another Urologist today, he said there is a small plaque no evidence of fibrosis yet.
However, after doing some research i've concluded that l-citruline has actually made my condition much worse. It is not specified in any literature and recent studies conclude that it promotes inflammation and makes the soft tissue inelastic. This is exactly what i've been feeling.

I'm a little angry at my doctor for giving me this. It's probably part of some 'standard protocol' for ED, but why don't they research it before they recommend it.

Needless to say today was the last day i'm taking that. I hope and pray that it gets out of my system soon. Furthermore l-citruline actually hurts the veins and vascular systems. This is why i can't use VED or traction. Ugh, wtf.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

BTW, take my thoughts on l-citruline with a grain of salt. The research on that seems mixed, some doctors and papers seem to recommend it in the case of ED.  
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

projectpd

* https://www.sciencedirect.com/science/article/abs/pii/S0022534705676161
nothing really on citrulline as an agent in itself - something about iNOS increase by injury , which they assess the level of iNOS by analyzing the citrulline to arginine ratio.
"iNOS inhibition causes a greater erectile response in the rat, suggesting that iNOS may alter the vascular tone in the penis. "

but regarding iNOS, check out this much more detailed study: https://doi.org/10.1016/j.cardiores.2003.12.006

"3.1 Intensification of aging-related fibrosis in the arterial media by iNOS inhibition"
"evidenced both by the increase in ROS and an intensification of fibrosis when iNOS activity is inhibited. "

"Conversely, there are reports that suggest iNOS expression helps suppress collagen deposition and oppose fibrosis, while iNOS deficiency increases collagen content in atherosclerotic lesions, enhanced production of NO suppresses the development of atherosclerosis.51,52,53 "
https://www.nature.com/articles/3900872

those doesn't seem consistent with it. At least it's obvious the overall picture about NOS is a lot more complex.  I wonder if the iNOS inihibitor,  aminoguanidine, in the sciencedirect link one, worked through some other mechanisms..


* https://www.nature.com/articles/3900872
"Most tissues can oxidize the guanidine nitrogen of L-arginine to form L-citrulline and NO. NO is rapidly oxidized to the stable, inactive end products nitrite and nitrate. The enzyme that catalyzes this reaction in cells and neurons is termed nitric oxide synthase (NOS).23"
that doesn't suggest citrulline would help form NO, but I've read somewhere else that citrulline is also converted to arginine...

* https://youtu.be/-UDAcaOY6Gw?t=432
that doesn't seem to talk about citrulline. discounts a list of oral treatments, describes interferon injections, verapamil injections, chlostridium injections (xiaflex), surgery (some gruesome pics in there mind you! ) . very inaccurate by omission as there are obviously unmentioned types of treatments that have been tried, and finishes with the conclusion "surgery is the gold standard".

* http://tau.amegroups.com/article/download/28824/25275
that looks like a more reasonable overview type article. This one references 3 studies involving citrulline and says evidence is sparse, and possibly most relevant in the cute phase. Maybe I'll have a look through those references.
Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

melting

L-Citrulline is helpful in supplementing NO which helps facilitate an erection.
Inflammation is a natural part of the 'body mechanism' which it goes through all the time.  
For example building muscles involves inflammation. So does an erection, especially prolonged ones.
When everything is in balance it's no problem. It's dealt with during sleep, recovery basically, and you can start again next day.

If you havee a constant state of stress, like not sleeping enough etc. or overtraining or rough prolonged sex then chronic inflammation can happen.
Same with an unhealthy diet. Just from reading your posts it seems you're in some sort of 'overdrive'/stress. An existing problem like peyronies or ED is harder to deal with then or can get worse.

So L-citrulline, might not help you right now as it is involved in inflamation processes. But it's not a bad supplement itself.(finasteride is mostly bad and you hear it all the time on mens health type forums in different contexts)

If you're in an inflammatory state you should 'cool' that state down first. Healing, relaxing, sleeping, eating, no inflammatory actions(hard masturbation, intercourse, stretching, VED etc.). That's all IMO.
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Ok,

After some scary traction results things seem to be somewhat back to where i was a couple of weeks ago. Not yet trying VED, but i did get a new cheap pump: https://www.amazon.com/gp/product/B088GXDLCF/ref=ppx_yo_dt_b_asin_title_o00_s00?ie=UTF8&psc=1

While the standard ring does not fit, it came with a ring that's shaped like a mouth. This mouth adapter is thick yet flexible. It provides a good amount of space between the pump and my pelvis. It also keeps my penis straight without constricting bloodflow.

Also it comes with a gauge and a release valve. It seems like it'll be a good way to start VED therapy if/when i'm ready to try it again.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

melting

Just start everything with low intensity and low time and go from there.
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Ok today i felt compelled to try out a VED session after letting my penis rest for a while.
I tried my new cheap device with very low intensity reaching about 30% erection max.

Things seemed to have gone well. Blood flow seems to have improved and could feel my penis a bit fuller and easier to get an erection afterward.

I'm following the Old Man protocol for 1 cylinder. I will certainly start to add this to my routine. I'm also purchasing a RestoreX. I wonder if there's any protocols or experience from people using both.

Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

LuisFernandez

In regards to l-citruline, this is my take.

I believe the mechanism that promotes inflammation is nitric oxide synthase (NOS). This is the process of the body making nitric oxide. Thus l-citruline is the end format of the synthase process, which can inhibit the synthase process thus helping *reduce* the inflammation process.

Just my own personal theory on this subject.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

TonySa

Good news Luis on VED!
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

melting

NO itself is no problem in healthy amounts. It's part of a functioning penis, an erection and the body. Of course if it's out of balance, like too much erections then it might turn into a problem.

QuoteI'm also purchasing a RestoreX. I wonder if there's any protocols or experience from people using both.
I used VED and traction same day for months.
I think Pumping AFTER Traction is the way to go.

When you pump fluid will be drawn into the skin layers(it will go back after some minutes or hours) and when you then apply constriction like the headpiece of traction it will cut/'deform' into the skin easily.

I liked stretching the tissue with the extender and then "filling in" the created stretch with blood/expansion via the VED.
I sometimes used a heated up pump(with a heating pad) for a short time to heat the tissue and then use the extender.(heated tissue is easier to stretch)
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Thanks for this advice Melting. I have integrated this process into my therapy.

Currently I'm:
* Heating up a heat pad, wrapping it in a shirt, and heating up my penis
* Applying the RestoreX device - currently 10-15 minutes total 3x a day
* Using VED 1x a day - experimenting with cheap VED and Vacurect

I'm not really happy with either cheap VED or Vacurect. The cheap VED keeps my penis straight but the sleeve that came with it is too tight. The mouth adapter is great, but it keeps getting sucked into the cylinder making it ineffective.

The vacurect is just hard to use and my penis does not stay straight as it goes in. I want to buy a SomaErect but don't have money for it yet. Will continue to use cheap VED and Vacurect and make the best of it until i can afford SomaErect.

I may increase VED to 2x a day depending on how things go.

For what it's worth, after a few days of using RestoreX i have seem an improvement in length. SPL is now around 7'2 which is up from my original 7' pre-peyronies. No change in girth, but i never really had a girthy penis to being with. Erection length also seems to have slightly increased. Haven't seen too much of a change on the dorsal curve though.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

melting

Yeah lots of people selling and shilling for "medical" VED devices for BS prices on nasty advertisment laden sites.
https://matadorcore.com/products/augusta-medical-soma-erect-vacuum-pump <- what a dumb joke for example. 300 dollar lol
While the really cheap ones are bad quality...

There's a mid priced segment that will work too. But you have to find your size etc.
For example check: https://thickwall.co.uk/shop/penis-pump-kits/starter-kits/
These work perfectly fine and I had a thickwall never failing for many years. You can use them right on the skin.
Not sure how and if they ship to US. Im sure there are manufactures in the US too with similar quality.
And you have to find the correct size which you have to research yourself for which is correct.
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

LuisFernandez

Hey so I haven't updated my VED log for a while. That is because i wasn't using it for a long time. I was using just traction with RestoreX.

First of all, i decided to go all in with traction given that my EQ has improved. Now I am taking a bit more Cialis every day. Some days I'll take 10mg instead of the standard 5mg. I suspect that eventually this will start failing but mentally i'm prepared to get the implant.

Anyway, my erections have been pretty good recently.

So, with RestoreX i'm seeing some significant gains even from my pre-Peyronie's length. I used to be 7 inches erect length and now i'm able to hit 7'5 erect length. This is slight bone pressed. When i measure right on top of the penis i get slightly less maybe about 7'4 or so.

The curve has also reduced significantly, but not completely gone. I also still have an indentation on the bottom left of my penis.

So, with that i've been doing a lot of research into penis enlargement (PE.) I believe that every Peyronie's sufferer should get into PE. I believe one can stop losses and make gains if you get started early enough.

My personal goal is 9 inches, but I know it'll take a long time and my EQ may fail before i get there, but we'll see.

So, with that research i think that VED to get rid of dents and increase girth is the way to go. There's so many success stories from the protocol from Old Man and Bathmate.

I only have the Vacurect, i've stopped using the cheap VED i got just because it does not ever create a good seal.

I'm now doing VED every day for no more than 20 minutes and never hit 100% erection (yet?)

I plan on ordering the SomaErect device in the next couple of months and I believe it provides the best mechanism for getting rid of dents. I also want to get into hanging and all day stretching (ADS.)

Check out videos by TotalMan and Good Looking Loser for great tips.

I'll keep posting about my Penis Enlargement (PE) journey good luck to everyone.
Injury in April 2020. Onset of ED.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Traction (+1 inch)/VED/PGE-1/DMSO+X

Timewilltell

Glad to hear about your improvements. I just would suggest that you take any penis enlargement procedures very carefully. There is enough reports from users of its effects that it clearly has some benefits but it has its hazards and it is not exactly a guarantee of infinite gains. You are probably going to put on only an inch past your initial length but everyone reacts differently.

I would recommend aiming for something like 8 inch length and 5.5/6 inch girth. Your average pornstar is only between 7-8.5 inches in length. Hell, even at just 5.5 girth some girls will struggle and will require lots of foreplay and lube.

At 9 inches length you would need to be very careful about ramming the back of a woman's vaginal canal when pushing towards a climax for either of you. She might like that sensation but only when completely aroused. It will quickly turn to soreness after she climaxes and will diminish the possibility of multiple sessions.  
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peter123

Quote from: bustedchubb on June 09, 2020, 06:37:05 PM
Hang in there, man!  I'm in the dumps alot too about it, but it definitely is best to take it day to day.


helps being 43 too instead of half that age  
THIS USER HAS BEEN BANNED FROM FORUM FOR REPEATED RULE VIOLATIONS He never had Peyronies Disease but has body dysmorphia and his pastime was to attack all treatments, medical resources, and opinions.

sky43diver

9 inches 😳 Do you want to be a porn star, otherwise what is the point. Not sure what else you are going to do to gain another 1.5 inches.
55 years old 5 months post op LUE procedure with Prof Ralph in London to fix 90 degree bend to left. Currently doing Traction and VED to gain back 2 inches lost in length, which is going well. Taking daily Cialis and having great erections and sex.