Loss of sensation

[MacMathuna]

Is anyone else experiencing a loss of sensation.

Almost immediately after my injury last august I experienced symptoms (including mild curvature, indentation, and later rotation), but mainly I felt a loss of sensation in the part of my shaft just behind my gland, and this is also where my most palpable plaques are located.

Anyway over the course of my peyronies progression more and more of my penis.feels less sensitivd to touch including much of the left side of my shaft. (My other symptoms have progressed as well).

Before my injury i could get an erection with just physical stimulation to the head of my penis, but I haven't been able to since my injury. Touching or having my penis touched just doesn't feel good/arousing anymore. I can't really enjoy hand stuff or bjs now. I can have intercourse but if I use a condom it is very difficult to experience any pleasure.
I can enjoy sex without protection fortunately, but if I try to have sex a second time I. The same day I feel much less as sensation and I struggle to experience any pleasure.

I haven't masturbated in several months. I'm not sure if I could and if I was able to I expect it would take 45 minutes and be incredibly stressful.

Has anybody experienced symptoms like this?
It doesnt see like this always happens with peyronies because there's some guys on here who jack off like 2 to 3 times a day.
I'm not sure exactly what's causing it. Maybe its that plaques have replaced or are in the way of sensitive tissue? Maybe there's nerve damage?

It doesnt seem like people talk a lot about sensitivity issues on here. I don't know what to do about it.

[Tobyg]

I too lost sensation, and the refractory period is a disaster.
and I made it worse by operating the foreskin, I also lost the sensitivity of the glans, it's all crap

[popopo]

I can still enjoy masturbation, but sex has become A LOT less enjoyable to me. Aside from the fact I don't like it anymore because I fear getting worse and have been very sore from penetrative sex in the past, the sensation also changed dramatically. I wouldn't say I'm totally numb and can still feel enough to reach orgasm, but my penis is defenitely less sensitive overall compared to before I got any peyronies symptoms. I think it's not that uncommon for guys to experience this, it may just not be their biggest concern. To me personally the loss of size and change in shape is the worst of my symptoms, but the loss of sensation defenitely messed me up too and changed the way I enjoy sex.

[MacMathuna]

Ok. Well any theories as to why this happens?

Any ideas about what could be done?

Hav3 you brought this up with doctors and have they said anything as to why it might happen or what we could do?  

[MacMathuna]

Also has this progressed over time? Gotten any better or any worse?
My loss of sensation definately has gotten worse since august.

[popopo]

Can't say it really get better, more so that you get used to it over time. And doctors... well, in my experience none of them have been of any use and seem to know anything.

[Tobyg]

the doctors do not know about this, it is not going to fix itself, for 5 years I have been all asleep.
but I have to tell you something interesting that happened to me, 2 years after the peyronie, I had foreskin surgery for a slight phimosis, the post-operative I recovered the sensitivity of the shaft of the penis for 10 days, what could have happened? (antibiotic, anesthesia, serum physiological, bandage, or increased blood circulation from surgery, probably the latter)
My glans was keratinized by the foreskin plasty and I lost sensitivity too.
I'm already tired of fighting all this

[jan.schaller1958]

Is anyone else experiencing a loss of sensation.

Almost immediately after my injury last august I experienced symptoms (including mild curvature, indentation, and later rotation), but mainly I felt a loss of sensation in the part of my shaft just behind my gland, and this is also where my most palpable plaques are located.

Anyway over the course of my peyronies progression more and more of my penis.feels less sensitivd to touch including much of the left side of my shaft. (My other symptoms have progressed as well).

Before my injury i could get an erection with just physical stimulation to the head of my penis, but I haven't been able to since my injury. Touching or having my penis touched just doesn't feel good/arousing anymore. I can't really enjoy hand stuff or bjs now. I can have intercourse but if I use a condom it is very difficult to experience any pleasure.
I can enjoy sex without protection fortunately, but if I try to have sex a second time I. The same day I feel much less as sensation and I struggle to experience any pleasure.

I haven't masturbated in several months. I'm not sure if I could and if I was able to I expect it would take 45 minutes and be incredibly stressful.

Has anybody experienced symptoms like this?
It doesnt see like this always happens with peyronies because there's some guys on here who jack off like 2 to 3 times a day.
I'm not sure exactly what's causing it. Maybe its that plaques have replaced or are in the way of sensitive tissue? Maybe there's nerve damage?

It doesnt seem like people talk a lot about sensitivity issues on here. I don't know what to do about it.

MacMathuna,

That's an interesting question you raise about Peyroines causing loss of sensation. I think the only one that could give a half-way correct answer to the question would be a true Peyroines specialist, like Dr. Lue. A urologist who specializes in the anatomy of the penis and has treated hundreds, if not thousands of men over the last 30-35 years. He might say it happens in 10%, 25% of men, I really don't know. I know I never experienced it myself. The major complaint I had was loss of length due the contracture caused by the plaque formation. It sort of makes sense. If there is a shorter penis, then less penis means less pleasure. It's not a scientific statement, but just a personal one. I don't think it has anything to do with keratinization of anything either. Strangely enough, one study showed that the keratinization of the inner and outer layers of the foreskin was pretty much the same:

,,Results

Comparing our fluorescence-based analysis to previously published immunohistochemical methods revealed that our method was highly accurate for measuring foreskin keratin thickness. There was significant heterogeneity in the keratin thickness of the inner and outer aspects of the male foreskin within and between the different donors. There was no significant difference between the inner and outer foreskin keratin thickness (25.37 ± 12.51 and 20.54 ± 12.51μm respectively, p=0.451).

Conclusions

We found no difference between the keratinization of the inner and outer aspects of the adult male foreskin. Keratin layers alone are unlikely to explain why uncircumcised men are at higher risk for HIV infection." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2951978/

It's weird, but go figure that one out. Life is a pretty complicated affair, and human anatomy is a pretty complicated affair too. So, I guess we are all different and penile sensation is multifaceted. It might in some cases of Peyroines have something to do with it, and it others none. It's hard to say.  

[Caseyjones01]

I am experiencing this. And my penis is very hard with erection and almost white on the right side near the glans. I do not feel much. I am thinking its calcification. I am still able to get an erection and ejaculate but i felt almost nothing. I seem to have every symptom of this disease, pain, curve, indent, loss of size and now this, im ruined.

[TonySa]

Jan, Toby was speaking of keratinization of the glans secondary to circumcusion (no longer being covered by the foreskin)-not keratinization of the foreskin.  This results in loss of sensation which is crucial for one to know before allowing any doc to mutilate (circumcise) them.

[jan.schaller1958]

Tony, I've heard some guys report that and many who report no loss of sensation. I guess everyone's experience is different.  

[TonySa]

Jan, let's say your right that some men have no loss of sensation w circumcusion (doubtful)...how will someone know if they will lose that lottery?  They don't and many men lose tremendous sensation.  Actually, I stand corrected, it is only mutilation if you do it to an infant without their consent or to an adult without fulling informing them of the risks (such as with the individual above).  Please don't minimize the harm that was done to him!

[jan.schaller1958]

The discussion started out as a loss of sensation due to Peyroines. I definitely believe Peyroines can cause loss of sensation in some men. I didn't experience it myself, but we're all different so that could explain it.

[jan.schaller1958]

I don't minimize anyone's perception of harm done to them. I've met people with bad rhinoplasties who say they were mutilated. It's just a word that can mean anything you want it to mean, for any reason. Do you think my gallbladder removal was a ,,mutilation". I'm stuck now not being able to eat the same foods as before without getting diarrhea. Sounds like a ,,mutilation" to me. It was definitely a loss/harm, whatever you want to call it. No one informed me about any of these effects beforehand. Yet, I've met some who say they never had any problems after their gallbladder removal surgeries (doubtful).  

[jan.schaller1958]

Plus Tony,  I don't know what you mean by loss of ,,tremendous" sensation? What's ,,tremendous" (is there ,,mild" or ,,moderate" sensation? And how is it measured?  Is there some kind of machine to hook up and take a reading?  I've read many posts of men losing Sensation due to Peyroines, but they just say loss of sensation,  not ,,tremendous loss of sensation."  Others don't mention it. I didn't lose any sensation from Peyroines myself, but I did lose a lot of length, going from 8 to 5.5 inches.  Now that's a bummer. I'd do anything to get straightened out and recover even 2 inches; the straightening is possible but not regaining 2 inches. Unfortunately. Life can be a bummer sometimes.

[Caseyjones01]

I only masturbate maybe 1 per week as usually it is accompanied by alot of pain on the left side with burning and pinching that can last for days recently i was experiencing mild pain and tingling on the right side of my penis and now if i orgasm i feel maybe 30% pleasure on the left side and almost no pleasurable sensation on the right side. This just happened recently. I can ejaculate a decent amount, but feeling robbed once again from this disease. I lost around .5+ and i started at 5.3-5.5 and have a 20 or 30 degree curve, and alot of bruising/brown spots. Handling my penis when its erect feels like hard bone, and i see a large kind of gradiated white area just on the right under the glans. Doing some internet research leads me to believe there is ossification which they say is rare and maybe resulting in nerve damage. I did an ultrasound last month and doc said he sees nothing. Im told ultrasound is useless though. Doc said i should wait for Peyronies Disease to stabilize before i use xiaflex, its probably useless now. I am still relatively young.

[jan.schaller1958]

You're lucky not to have lost too much length. I wish I had only lost a half inch. I have about the same curve, maybe 20-30% pointing up. I do take nightly sildenafil (viagra) but I can get an erection, no problem, without it. It sort of strange how you feel 30% pleasure on one side and not on the other, and instead mild pain. Well, I sure couldn't put a % number on pleasure (I would have no idea how to measure it). Not that I don't believe you, it's just it's that I've always notice pleasure to be a huge variable in the same guy with the same penis from one sexual event to the next. They'll say on one occasion it was just ok, and on others totally mind-blowing. I know that was what I experienced. Who can explain that? It's so complex and there are so many things going on, it's impossible to explain I guess. I've heard this a lot from other guys. Maybe it has to do with who you are with? I never figured that out. Ejakulate volume would have nothing to do with Peyroines. That's all prostate stuff. I've heard some anecdotal reports of Peyroines causing nerve damage, but I really can't say. One thing is true is that it only very rarely, almost never interrupts urine flow (Dr Lue told me that). Since I've had this for 5 years now and it's stabilized and improved enough, I can start Xiaflex. I'm a bit nervous about that since I heard the injections are painful (but they numb you up first).

Your story just points to how variable this disease is. The symptoms are really just all over the place it seems. But it can get better on its own, which is the good news.

Keep taking the Pentox. I took it was a couple years and stopped, not noticing any improvement. My condition did improve, but I can't say it had anything to do with Pentox. It could have. Just don't know. All I can say is, if Pentox worked, it did so very slowly. It was not an immediate thing.  

[Caseyjones01]

I am just discovering this symptom. I didnt realize this was something i could experience either. I am 1 year into this disease and it doesn't seem to have stabalized yet with all these new symptoms.

[jan.schaller1958]

Casey,
I think mine stabilized in around a year? It's been awhile, but I went first to my GP, she diagnosed it, then I wanted a urologist to diagnose it and saw her a little later. That must have been the end of 2014. Then I came over to San Francisco and saw Dr. Lue, because I heard he was one of the best and he did the ultrasound and more thorough exam and recommended that surgery, I think it was the plication thing because he said mentioned using alloderm as a graft material. And he said he couldn't use Xiaflex at the time. That was 2015. At that time i had the hour glassing and it was at its worst. And that was all in less than a year. So,  it took at least a year to stabilize, or longer. I saw him again in February, right before Covid hit, and now he said he couldn't do the surgery because the ED risk would be too high (40%), because of my age, so he said just do Xiaflex. I guess it improved enough with time that now Xiaflex is the best option.  

[Tobyg]

TonySa: yes, I lost a lot of sensitivity with the operation (from 10 to 2.5 if I had to put it in numbers), I did some research (a little late).

https://www.reddit.com/r/CircumcisionGrief/comments/gwaaw9/information_to_spread/

and I also lost sensitivity in the shaft of the penis due to the peyronie, I hope the regenerative medicine hurries.

[GreekGuy85]

I am also for experiencing this loss of sensation in my penis - in glans and shaft. Before my injury I loved touching myself and got immediately erect. I would play many times per week. Now like @CaseyJones01 maybe like once a week and when I do masturbate off I do not feel as erect or hard as before, and I have to add new touches to new places to get myself very hard. I do not know if I explain that well. I also do not ejaculate as much as i did before peyronie's, lol, although I did not measure it before nor now I can tell it is not as much quantity.  And orgasm does not feel as good as before.
I wish this peyronie's would go away.

[Caseyjones01]

Ok so, i masturbated and actually had a more complete orgasm. And my penis seemed to swell up almost to its original size for a moment, i did apply more pressure though, and the very hard areas i could not really feel my hand or actual pleasurable sensations, i just kind of orgasmed, definitely does not feel like it used to though. Im scared i will be in pain from this later.

[ahmedeid]

l have complete loss of sensation in all penis  can the sensation back by time please help me . can nerves regenerate and i will feel like before ? what can i do or i must be wait for the time to recover ?

[Gerald12345]

I definitely lost a lot of sensation. Especially the sensation you need to go from flaccid to hard. Meaning I really have to wrestle with my dick in order to get hard.