Decided to try this talking thing

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Bent Dong

I am just going to tell my story. It feels so weird writing on here but I think this will help lighten the load of having Peyronies Disease.

I am 25, but was diagnosed at 23. I had no injury, nothing to blame this on, I just felt a lump... thought it was cancer but then reasoned this was unlikely. I looked up Peyronies Disease etc and got so confused as everything I read was telling me this is something "old men get" not 23 Y/O's. I went to the Dr anyway, she just referred me to a urologist, no info or support. I had to wait 3 months for the appt and ended up seeing a trainee urologist who said I had Peyronies Disease, told me to take Vit E and take pics of my curve etc. He booked me in with a consultant urologist who I saw 6 months later. That guy didn't ask to look at the pics I had taken. He told me I didn't need surgery and nothing else had any strong evidence but again said to try Vitamin E. He discharged me as I told him it hadn't really changed.

Well, I'm 25 now, it has slowey got worse, I now have 3 reasonably big plaques and a curve up and to the left. The 3rd is new, within the last month.

I had kind of accepted having Peyronies Disease, well I thought I had. Having this new 3rd lump developing has hit me hard. It's been over a year, but still getting a new lump..., so F^@$!ng unfair, that's how I feel; angry at fait/Life, whatever. I couldnt stand not doing anything about it apart from taking stupid Vit E so ordered an andropenis as I know I have lost some length and obviously the curve but mainly just scared of it getting worse. It's so ridiculous but I felt ashamed at myself when looking all this stuff up. Like I'm some deformed "wrong" person. Anyway the andropenis is still in the post. I just found this forum. I'm trying to understand more. Maybe I have ordered the wrong traction device, as lots of different thingd being mentioned, maybe I missed a big oportunity to help myself over the last year and a half. Maybe this is going to keep progressing until I can't have sex with my GF and all the crap that comes with that. Maybe il get ED as lots of others have. Maybe I already have some ED due to Peyronies Disease or just the bloody stress. I don't know.

I think I just haven't really acknowledge until now that I am actually quite scared about this. Yes it's been almost 2 years but it's not mild, it's not going away, it's not "stabilising", and it's not bloody normal!

It's just nice to finally feel that maybe I'm not the only person going through this crap.

That's it really.  
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TonySa

Welcome, you've found the right place for info and support.  Be sure to read the survival guide here:  https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057
Traction is a great strategy, consider adding pentox and low dose nightly cialis or viagra to halt progression And reverse by remodeling plaque to healthy tissue.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Hey Bent... i can guarantee you, almost all here understand your frustration. It definitely is a very good idea to vent out your thoughts, especially when you are feeling down. Helps to put things into perspective.

One thing you can do, is inform yourself the best you can and follow the info here on the forum. Staying active and engaged on fighting your condition is also a very good idea.

Have you read the survival guide? have you read the guidelines from the AUA on what to do with peyronies patients?