An update on my condition (All my treatment reviews are useless)

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

taller

Just came back to say that since I stopped all treatment and medication some months ago, my deformity has continued to progress at an extremely minimal and almost unnoticeable pace. I don't think my condition was or is severe enough for the treatments to be of any help to me. I was scared that my condition was progressing faster than it actually was, and was so proactive that I hardly spent any time without treatment initially, so I never had a chance to see how slow it was actually progressing on its own, and gave credit for that slow or almost nonexistent progression to the treatments I was using.

Tldr: Don't rely on anything I said about any treatments possibly helping to slow my condition.

I do still deal with pain over a year out, and it sucks. I still haven't been able to stop myself from masturbating for more than a few days, and despite being as gentle and brief as possible, sometimes well under 30 seconds, I still usually end up with some burning or tightness under the skin that can be worse and last longer, days or weeks, depending on some factors. Hopefully the new girlfriend gives me the motivation I need to let this heal and help me crawl out of my depression and addiction or whatever other mental issues are contributing to this. Hopefully this actually heals and gets better at all. I have officially spent more time nude than clothed this year, and my pajama collection has grown exponentially since normal pants are quick to stir up more issues. This might be my last post. Maybe I'll check back in some time. Good luck.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

TonySa

Please keep us posted.  Have you tried pentox, ibuprofen, or voltaren gel for pain?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

taller

I've tried a few things...

Just came back to say that the dent I mentioned before forming along my urethra seems to be the cavernous area exposing itself as my entire urethra shifts to the right...

???

It still works but things are getting kinda weird over here.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

taller

I'm back now and in terrible pain. My lack of self control has gotten so bad that I need to take hormone suppressants to reduce my sex drive. I haven't masturbated for a month and I'm still in enough pain that I can't even wear my pajamas anymore for more than a few minutes without seriously exacerbating things and setting me back. I can't go out and do the things I love anymore. I can't jog, or ride a bike, or even walk at the park without messing myself up. Normal life as I know it is gone, and has been for almost two years now. I've talked with my psychiatrist and decided that I'll go a year on hormone suppressants to keep me from masturbating, and if that doesn't work or yield considerable improvement and allow me to get back to a remotely normal life without experiencing terrible pain then I'm getting a sex change. It's not like I'll be having sex again at this rate anyway, and it's better than outright amputation, which I would have also considered out of sheer frustration. This whole situation is totally getting in the way of me living my life right now and I'm ready to put an end to it at any cost. Being able to go out and experience the world again means much more to me than a normal sex life, which I would still have, just with different parts, and it's not something I would have considered otherwise. No choice seems ideal right now, but choices need to be made.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

TonySa

Your symptoms seem to be extreme penile pain.  What does the Andrologist diagnose you with?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

taller

They were hesitant to diagnose me with peyronies due to lack of severe deformity, but deformity is indeed present and progressive. The closest I'm going to get to a diagnosis seems to be "stop masturbating".  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

peter123

Quote from: taller on July 28, 2020, 02:57:09 AM
They were hesitant to diagnose me with peyronies due to lack of severe deformity, but deformity is indeed present and progressive. The closest I'm going to get to a diagnosis seems to be "stop masturbating".

If I have still pain a year out I'll put a bullet in my head i promised myself that
THIS USER HAS BEEN BANNED FROM FORUM FOR REPEATED RULE VIOLATIONS He never had Peyronies Disease but has body dysmorphia and his pastime was to attack all treatments, medical resources, and opinions.

Cesur

Diagnosed June 2019

Oral Treatment: Colcihine, pentox, Arginine, Ginger Root, planned to start 5mg Cialis

Symptoms: Pain and %25degree curvature, intercourse possible without problem, sometimes ED

TonySa

Peter, comments such as that are not really helping this individual w his pain.  It's the opposite of being supportive and essentially says nothing will ever help. 😔
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.